Engineering information technology for actionable information and better health: Balancing social values through desired outcomes, complementary standards and decision-support

Studies in Health Technology and Informatics

Volumn 153, Issue , 2010, Pages 107-118

  Detmer, Don E ^a,b,c,d,e  

^a UNIVERSITY OF VIRGINIA   (United States)

^b American Medical Informatics Association (AMIA)   (United States)

^c UNIVERSITY COLLEGE LONDON   (United Kingdom)

^d Blue Ridge Academic Health Group   (United States)

^e MedBiquitous   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

BALANCING; HEALTH CARE; INTEROPERABILITY; INVESTMENTS; PUBLIC HEALTH;

DECISION SUPPORTS; ELECTRONIC HEALTH RECORD (EHRS); ENGINEERING INFORMATION; HEALTH INFORMATION TECHNOLOGIES; HEALTH INFORMATIONS; INFORMATION AND COMMUNICATION; LEARNING ORGANIZATIONS; STANDARDS DEVELOPMENT;

DECISION SUPPORT SYSTEMS;

EID: 77954585308     PISSN: 09269630     EISSN: 18798365     Source Type: Conference Proceeding    
DOI: 10.3233/978-1-60750-533-4-107     Document Type: Conference Paper

References (30)

1. R.B. Altman, The Translational BioinformaticsYear in Review. http://74.125.113.132/search?q=cache:3dY0xTAoHPMJ:files.me.com/russbaltman/ 6jf1pa+russ+altman+year+in+review&cd=4&hl=en&ct=clnk&gl=us, 2008.
2. R.B. Altman, The Translational Bioinformatics Year in Review. http://74.125.113.132/search?q=cache:OucRQGGa31gJ:files.me.com/russbaltman/ 6pfvfo+russ+altman+year+in+review&cd=3&hl=en&ct=clnk&gl=us, 2009.
3. AMIA/AHIMA, Healthcare Terminologies and Classifications: Essential Keys to Interoperability. http://www.amia.org/files/HealthcareTerminologiesand Classifications.pdf, 2007.
4. AMIA, Standard's Standard. http://www.amia.org/amia-standards-standard/ welcome-amias-standards-standar d, 2009.
5. BAH, Toward Health Information Liquidity: Realization of Better, More Efficient Care From the Free Flow of Information. http://www.fah.org/fahCMS/ Documents/On%20The%20Record/Research/2009/Booz-Allen-Toward-Hlth-Info-Liquidity. pdf, 2009.
6. Blue Ridge Academic Health Group, Converging on Consensus. Report No. 8, Available at http://www.whsc.emory.edu/blueridge/reports.cfm], 2004.
7. Blue Ridge Academic Health Group. Health care Quality and Safety in the Academic Health Center. Report Available at http://whsc.emory.edu/blueridge/- pdf/blue-ridge-report-11-2007.pdf, 2007.
8. Blue Ridge Academic Health Group. The Emerging Transformational Role of Informatics. Available at http://whsc.emory.edu/blueridge/pdf/blue-ridge-report- 12-2008.pdf, 2007.
9. Blue Ridge Academic Health Group. Fall 2008 Policy - oposal: A United States Health Board. http://whsc.emory.edu/blueridge/reports.cfm, 2009.
10. M.H. Chang, M.L. Lindegren, M.A. Butler, S.J. Chanock, N.F. Dowling, M. Gallagher, R. Moonesinghe, C.A. Moore, R.M. Ned, M.R. Reichler, C.L. Sanders, R. Welch, A. Yesupriya and M.J. Khoury, CDC/NCI NHANES III Genomics Working Group. Prevalence in the United States of selected candidate gene variants: Third National Health and Nutrition Examination Survey, 1991-1994, Am J Epidemiol 169(1) (2009), 54-66.
11. G.M. Cooper, J.A. Johnson, T.Y. Langaee, H. Feng, I.B. Stanaway, U.I. Schwarz, M.D. Ritchie, C.M. Stein, D.M. Roden, J.D. Smith, D.L. Veenstra, A.E. Rettie and M.J. Rieder, A genome-wide scan for common genetic variants with a large influence on warfarin maintenance dose, Blood 112(4) (2008), 1022-1027.
12. D.E. Detmer, The National Healthcare Information Technology Environment, Testimony to National Committee on Vital and Health Statistics Standards Subcommittee Hearing, Setting the Context for the Evolution of Health IT Standards. (http://www.ncvhs.hhs.gov/090224p2.pdf), 2009.
13. D.E. Detmer, M. Bloomrosen, B. Raymond and P. Tang, Integrated personal health records: Transformative tools for consumer-centric care, BMC Medical Informatics and Decision Making 8 (2008), 45-72.
14. R. Dick and E. Steen, The Computer-based Patient Record: An Essential Technology for Health Care. Washington, DC: National Academies Press, 1991.
15. T.J. Greaney, Movement grows in planning end-of-life strategy, Columbia Daily Tribune, (19 April 2009). http://www.columbiatribune.com/news/2009/apr/19/ movement-grows-in-planning-end-of-life-strategy/.
16. W.A. Hersh, stimulus to define informatics and health information technology, BMC Medical Informatics and Decision Making 9 (2009), 24. http://www.biomedcentral.com/1472-6947/9/24.
17. D.R. Masys, The Year in Review. See http://dbmichair.mc.vanderbilt.edu/ amia2008/; http://dbmichair.mc.vanderbilt.edu/amia2007/; and, http://dbmichair.mc.vanderbilt.edu/amia2006/.
18. D. Mechanic and S. Meyer, Concepts of trust among patients with serious illness, Soc Sci Med 51 (2000), 657-668.
19. S.J. Nass, L.A. Levit and L.O. Gostin, eds, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. Washington, DC: Institute of Medicine, 2009.
20. M. Naylor, Transitional Care of Older Adults, in: Annual Review of Nursing Research, P. Archbold and B. Stewart eds, New York: Springer, 20 (2002), pp. 127-147.
21. M. Naylor, K. Bowles, R. Campbell and K. McCauley, Discharge planning: design and implementation, in: Critical Care Nursing of the Elderly, T.T. Fulmer, M.D. Foreman, M.Walker and K.S. Montgomery, eds, 2nd Edition, New York: Springer, 2001, pp. 197-212.
22. M. Naylor and P. Roe-Prior, (1999). Transitions Between Acute and Long Term Care, in: Advances in Long Term Care, (Volume IV), P.R. Katz, M. Mezey and R. Kane, eds, New York: Springer, 1999, pp. 1-22.
23. S.J. Nass, L.A. Levit and L.O. Gostin eds, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research. National Academy Press, Washington, DC: Institute of Medicine, 2009.
24. J.A. Osheroff, J.M. Teich, B.F. Middleton, E.B. Steen, A. Wright and D.E. Detmer, A Roadmap for National Action on Clinical Decision Support. Released June 13, 2006 on contract with the Office of the National Coordinator of Health Information Technology, JAMIA 14 (2007), 141-155.
25. J.A. Osheroff, ed., Improving Medication Use and Outcomes with Clinical Decision Support: A Step-by-Step Guide. HIMSS, Chicago, 2009.
26. W. Stead, The demise of expert-based practice is inevitable. Evidence-Based Medicine and The Changing Nature Of Health Care: 2007 IOM Annual Meeting Summary. Washington, DC: The National Academies Press, 2008.
27. W. Steed and M. Lin, eds, Computational Technology for Effective Health Care: Immediate Steps and Strategic Directions. Washington, DC: National Academies Press. Available at http://www.nap.edu/catalog.php?record-id=12572, 2009.
28. M.J. Steinberg and E.R. Rubin, The HIPPA Privacy Rule: Lacks Patient Benefit, Impedes Research Growth.Washington, DC: AAHC, 2009.
29. The Wellcome Trust Case Control Consortium. Genome-wide association study of 14,000 cases of seven common diseases and 3,000 shared controls, Nature 447 (2007), 661-678.
30. G.R. Uhl, Promise of pharmacogenomics in smoking cessation, Pharmacogenomics 10(7) (2009), 1123-1125.