'Containment' as an analytical framework for understanding patient delay: A qualitative study of cancer patients' symptom interpretation processes

Social Science and Medicine

Volumn 71, Issue 2, 2010, Pages 378-385

  Andersen, Rikke Sand ^a   Paarup, Bjarke ^a   Vedsted, Peter ^a   Bro, Flemming ^a   Soendergaard, Jens ^b  

^a AARHUS UNIVERSITY   (Denmark)

^b UNIVERSITY OF SOUTHERN DENMARK   (Denmark)

Author keywords

Cancer; Care seeking; Denmark; Patient delay; Sensations; Symptom interpretation

Indexed keywords

ANALYTICAL FRAMEWORK; CANCER; HEALTH CARE; LIFE EXPECTANCY; MORTALITY; SURVIVAL;

ADULT; AGED; ARTICLE; ATTITUDE TO ILLNESS; CANCER PATIENT; CLINICAL ARTICLE; CONCEPTUAL FRAMEWORK; DENMARK; FEMALE; HELP SEEKING BEHAVIOR; HUMAN; MALE; PATIENT ATTITUDE; PATIENT CARE; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; SYMPTOM; THERAPY DELAY;

AGED; DENMARK; FAMILY; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERVIEWS AS TOPIC; MALE; MENTAL PROCESSES; MIDDLE AGED; NEOPLASMS; PATIENT ACCEPTANCE OF HEALTH CARE; QUALITATIVE RESEARCH; TIME FACTORS;

DENMARK;

EID: 77953683027     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.socscimed.2010.03.044     Document Type: Article

References (61)

1. Alonzo A.A. Everyday illness behavior: a situational approach to health status deviations. Social Science & Medicine 1979, 13A(4):397-404.
2. Alonzo A.A. An illness behavior paradigm: a conceptual exploration of a situational-adaptation perspective. Social Science & Medicine 1984, 19(5):499-510.
3. Andersen B.L., Cacioppo J.T. Delay in seeking a cancer diagnosis: delay stages and psychophysiological comparison processes. British Journal of Social Psychology 1995, 34:33-52.
4. Andersen R.S., Vedsted P., Olesen F., Bro F., Sondergaard J. Patient delay in cancer studies: a discussion of methods and measures. BMC Health Services Research 2009, 9:189.
5. Antonovsky A., Hartman H. Delay in the detection of cancer: a review of the literature. Health Education Monographs 1974, 2:98-128.
6. Bendelow G.A., Williams S.J. Natural for women, abnormal for men. Beliefs about pain and gender. The body in everyday life 1998, 199-217. Routledge, London. S. Nettleton, J. Watson (Eds.).
7. Berrino F., De Angelis R., Sant M., Rosso S., Lasota M.B., Coebergh J.W., et al. Survival for eight major cancers and all cancers combined for European adults diagnosed in 1995-1999: results of the EUROCARE-4 study. Lancet Oncopgy 2007, 8(9):773-783.
8. Bourdieu P. The logic of practice 1980, Polity Press, Cambridge.
9. Burgess C.C., Potts H.W., Hamed H., Bish A.M., Hunter M.S., Richards M.A., et al. Why do older women delay presentation with breast cancer symptoms?. Psychooncology 2006, 15(11):962-968.
10. Burgess C.C., Ramirez A.J., Richards M.A., Love S.B. Who and what influences delayed presentation in breast cancer?. British Journal of Cancer 1998, 77(8):1343-1348.
11. Campbell S.M., Roland M.O. Why do people consult the doctor?. Family Practice 1996, 13(1):75-83.
12. Cardol M., Groenewegen P.P., De Bakker D.H., Spreeuwenberg P., van Dijk L., van den Bosch W. Shared help seeking behaviour within families: a retrospective cohort study. British Medical Journal 2005, 330(7496):882.
13. Chapple A., Ziebland S., McPherson A. Qualitative study of men's perceptions of why treatment delays occur in the UK for those with testicular cancer. British Journal of General Practice 2004, 54(498):25-32.
14. Charmaz K. The body, identity and self. Adapting to impairment. Sociological Quarterly 1995, 36(4):657-680.
15. Corner J., Hopkinson J., Fitzsimmons D., Barclay S., Muers M. Is late diagnosis of lung cancer inevitable? Interview study of patients' recollections of symptoms before diagnosis. Thorax 2005, 60(4):314-319.
16. Corner J., Hopkinson J., Roffe L. Experience of health changes and reasons for delay in seeking care: a UK study of the months prior to the diagnosis of lung cancer. Social Science & Medicine 2006, 62:1381-1391.
17. Csordas T. Introduction: the body as representation and being-in-the-world. Embodiment and experience. The existential ground of culture and self 1994, 1-24. Cambridge University Press, Cambridge. T. Csordas (Ed.).
18. Emerson R.M., Fretz R.L., Shaw L.L. Writing ethnographic fieldnotes 1995, The University of Chigaco Press, Chicago.
19. Facione N.C., Facione P.A. The cognitive structuring of patient delay in breast cancer. Social Science & Medicine 2006, 63:3137-3149.
20. Gannik D.E. Situationel sygdom. Fragmenter til en social sygdomsteory baseret på en undersøgelse af ryglidelser 1999, Central Forskningsenhed for Almen Praksis.
21. Garro L.C. On the rationality of decision-making studies: part 1: decision models of treatment choice. Medical Anthropology Quaterly 1998, 12(3):319-340.
22. Gascoigne P., Mason M.D., Roberts E. Factors affecting presentation and delay in patients with testicular cancer: results of a qualitative study. Psychooncology 1999, 8(2):144-154.
23. Good B. Medicine, rationality and experience: An anthropological perspective 1996, Cambridge University Press, Cambridge.
24. Hammersley M., Atkinson P. Ethnography. Principles in practice 1983, Tavistock Publications, London.
25. Hansen R.P., Olesen F., Sorensen H.T., Sokolowski I., Sondergaard J. Socioeconomic patient characteristics predict delay in cancer diagnosis: a Danish cohort study. BMC Health Services Research 2008, 8:49.
26. Hay M.C. Reading sensations: understanding the process of distinguishing 'fine' from 'sick'. Transcultural Psychiatry 2008, 45(2):198-229.
27. Hepworth M., Featherstone M. The male meonpause. Lay accounts and the cultural reconstruction of midlife. The body in everyday life 1998, 276-301. Routledge, London. S. Nettleton, J. Watson (Eds.).
28. Hunt L.M. Moral reasoning and the meaning of cancer: causal explanations of oncologists and patients in Southern Mexico. Medical Anthropology Quarterly 1998, 12(3):298-318.
29. Hunt L.M. Strategic suffering: illness narratives as social empowerment among Mexican cancer patients. Narrative and the cultural construction of illness and healing 2000, 88-107. University of California Press, Berkely. C. Mattingly, L.C. Garro (Eds.).
30. Hunt L.M., Jordan B., Irwin S., Browner C.H. Compliance and the patient's perspective: controlling symptoms in everyday life. Cultural Medical Psychiatry 1989, 13(3):315-334.
31. Hunter M.S., Grunfeld E.A., Ramirez A.J. Help-seeking intentions for breast-cancer symptoms: a comparison of the self-regulation model and the theory of planned behaviour. British Journal of Health Psychology 2003, 8(Pt 3):319-333.
32. Karasz A., Dempsey K. Health seeking for ambiguous symptoms in two cultural groups: a comparative study. Transcultural Psychiatry 2008, 45(3):415-438.
33. Karim-Kos H.E., de Vries E., Soerjomataram I., Lemmens V., Siesling S., Coebergh J.W. Recent trends of cancer in Europe: a combined approach of incidence, survival and mortality for 17 cancer sites since the 1990s. European Journal of Cancer 2008, 44(10):1345-1389.
34. Kleinman A. Patients and healers in the context of culture 1980, University of California Press, Berkeley, CA.
35. Kvale S. The qualitative research interview: a phenomenological and a hermeneutical mode of understanding. Journal of Phenomenological Psychology 1983, 171-196.
36. Leder D. The absent body 1999, University of Chicago Press, Chicago.
37. Lock M., Kaufert P. Menopause, local biologies, and cultures of aging. American Journal of Human Biology 2001, 13(4):494-504.
38. Low S.M. Culturally interpreted symptoms or culture-bound syndromes: a cross-cultural review of nerves. Social Science & Medicine 1985, 21(2):187-196.
39. Lupton D. Risk as moral danger: the social and political functions of risk discourse in public health. International Journal of Health Services 1993, 23(3):425-435.
40. Lupton D. The lay perspectives on illness and disease. Medicine as culture. Illness, disease and the body in western societies 2003, 84-113. Sage Publications, London/Thousand Oaks/New Delhi. D. Lupton (Ed.).
41. Macleod U., Mitchell E.D., Burgess C., Macdonald S., Ramirez A.J. Risk factors for delayed presentation and referral of symptomatic cancer: evidence for common cancers. British Journal of Cancer 2009, 101(Suppl 2):S92-S101.
42. Mitchell E., Macdonald S., Campbell N.C., Weller D., Macleod U. Influences on pre-hospital delay in the diagnosis of colorectal cancer: a systematic review. British Journal of Cancer 2008, 98(1):60-70.
43. Mor V., Masterson-Allen S., Goldberg R., Guadagnoli E., Wool M.S. Pre-diagnostic symptom recognition and help seeking among cancer patients. Journal of Community Health 1990, 15:253-266.
44. Neal R.D., Allgar V.L. Sociodemographic factors and delays in the diagnosis of six cancers: analysis of data from the 'National survey of NHS patients: cancer'. British Journal of Cancer 2005, 92(11):1971-1975.
45. Neal R.D., Pasterfield D., Wilkinson C., Hood K., Makin M., Lawrence H. Determining patient and primary care delay in the diagnosis of cancer - lessons from a pilot study of patients referred for suspected cancer. BMC Family Practice 2008, 9(9):9.
46. de Nooijer J., Lechner L., de Vries H. Help-seeking behaviour for cancer symptoms: perceptions of patients and general practitioners. Psychooncology 2001, 10(6):469-478.
47. de Nooijer J., Lechner L., de Vries H. Social psychological correlates of paying attention to cancer symptoms and seeking medical help. Social Science & Medicine 2003, 56(5):915-920.
48. Radley A. Style, discourse and constraint in adjustment to chronic illness. Sociology of Health and Illness 1989, 11(3):230-252.
49. Radley A. Making sense of illness. The social psychology of health and disease 1994, Sage Publications, London/Thousand Oaks/New Delhi.
50. Ramirez A.J., Westcombe A.M., Burgess C.C., Sutton S., Littlejohns P., Richards M.A. Factors predicting delayed presentation of symptomatic breast cancer: a systematic review. Lancet 1999, 353:1127-1131.
51. Ristvedt S.L., Trinkaus K.M. Psychological factors related to delay in consultation for cancer symptoms. Psychooncology 2005, 14(5):339-350.
52. Ruiter R.A., de Noijer J., van Breukelen G., Ockhuysen-Vermey C.F., de Vries H. Intended coping responses to cancer symptoms in healthy adults: the roles of symptom knowledge, detection behavior, and perceived threat. Cancer Epidemiology Biomarkers & Prevention 2008, 17(4):818-826.
53. Safer M.A., Tharps Q.J., Jackson T.C., Leventhal H. Determinants of three stages of delay in seeking care at a medical clinic. Medical Care 1979, 17(1):11-29.
54. Sant M., Aareleid T., Berrino F., Bielska L.M., Carli P.M., Faivre J., et al. EUROCARE-3: survival of cancer patients diagnosed 1990-94-results and commentary. Annals of Oncology 2003, 14(Suppl 5):61-118.
55. Scott S.E., Grunfeld E.A., Main J., McGurk M. Patient delay in oral cancer: a qualitative study of patients' experiences. Psychooncology 2006, 15(6):474-485.
56. Smith L.K., Pope C., Botha J.L. Patients' help-seeking experiences and delay in cancer presentation: a qualitative synthesis. Lancet 2005, 366(9488):825-831.
57. Sontag S. Illness as metaphor 1983, Penguin.
58. Storm H.H., Dickman P.W., Engeland A., Haldorsen T., Hakulinen T. Do morphology and stage explain the inferior lung cancer survival in Denmark?. European Respiratory Journal 1999, 13(2):430-435.
59. Tishelman C., Sachs L. The diagnostic process and the boundaries of normality. Qualitative Health Research 1998, 8(1):48-60.
60. Zervas I.M., Augustine A., Fricchione G.L. Patient delay in cancer. A view from the crisis model. General Hospital Psychiatry 1993, 15(1):9-13.
61. Zola I.K. Pathways to the doctor - from person to patient. Social Science & Medicine 1973, 7(9):677-689.