Attitude to extended use and long-term storage of newborn screening blood spots in Japan

Pediatrics International

Volumn 52, Issue 3, 2010, Pages 393-397

  Fujii, Chieko ^a   Sato, Yuki ^a   Harada, Shohei ^b   Kakee, Naoko ^c   Gu, Yan Hong ^c   Kato, Tadaaki ^c   Shintaku, Haruo ^d   Owada, Misao ^e   Hirahara, Fumiki ^f   Umehashi, Hozo ^g   Yoshino, Makoto ^a  

^a KURUME UNIVERSITY SCHOOL OF MEDICINE   (Japan)

^b NATIONAL INSTITUTE FOR ENVIRONMENTAL STUDIES   (Japan)

^c NATIONAL CENTER FOR CHILD HEALTH AND DEVELOPMENT   (Japan)

^d Osaka Prefecture University   (Japan)

^e KAGAWA NUTRITION UNIVERSITY   (Japan)

^f YOKOHAMA CITY UNIVERSITY   (Japan)

^g KUMAMOTO HEALTH SCIENCE UNIVERSITY   (Japan)

Author keywords

Biobank; Dried blood spots; Long term storage; Newborn screening; Text mining

Indexed keywords

ADULT; AGED; ARTICLE; AWARENESS; BLOOD SAMPLING; BLOOD STORAGE; FEMALE; FORENSIC IDENTIFICATION; FORENSIC SCIENCE; GENERAL HOSPITAL; GYNECOLOGY; HEALTH BELIEF; HEALTH SCIENCE; HUMAN; JAPAN; MAJOR CLINICAL STUDY; MALE; MEDICAL STAFF; NEWBORN; NEWBORN SCREENING; PEDIATRIC HOSPITAL; PEDIATRICIAN; PRIORITY JOURNAL; PUBLIC HEALTH PROBLEM; QUESTIONNAIRE; TECHNOLOGY;

ATTITUDE OF HEALTH PERSONNEL; BLOOD PRESERVATION; BLOOD SPECIMEN COLLECTION; FEMALE; HUMANS; INFANT, NEWBORN; JAPAN; MALE; NEONATAL SCREENING; PUBLIC OPINION; QUALITY CONTROL; QUESTIONNAIRES; SPECIMEN HANDLING; TIME FACTORS;

EID: 77953644974     PISSN: 13288067     EISSN: 1442200X     Source Type: Journal    
DOI: 10.1111/j.1442-200X.2009.03018.x     Document Type: Article

References (13)

1. Matsuda I. Bioethical issues in newborn mass screening; Experiences in Japan. Acta Paediatr. 1999 432 (Suppl. 104 105.
2. Austin MA, Harding S, McElroy C. Genebanks: A comparison of eight proposed international genetic databases. Community Genet. 2003 6 : 37 45.
3. Nørdgaard-Pedersen B, Simonsen H. Biological specimen banks in neonatal screening. Acta Paediatr. 1999 88 (Suppl. 106 109.
4. Nørgaard-Pederson B, Hougaard DM. Storage policies and use of the Danish Newborn Screening Biobank. J. Inherit. Metab. Dis. 2007 30 : 530 536.
5. Oliver S, Stewart R, Hargreaves K, Dezateux C. The Storage and Use of Newborn Babies' Blood Cards: A Public Consultation. Social Science Research Unit, Institute of Education, University of London
6. Webster D. Storage and use of residual dried blood spots. Southeast Asian J. Trop. Med. Public Health 2003 34 (Suppl. 3 49 51.
7. Olney RS, Moore CA, Ojodu JA, Lindegren ML, Hannon WH. Storage and use of residual dried blood spots from state newborn screening programs. J. Pediatr. 2006 148 : 618 622.
8. Therrell BL, Johnson A, Williams D. Status of newborn screening programs in the United States. Pediatrics 2006 117 : S212 S252.
9. Matsuda I. The implementation guideline for newborn screening. J. Jpn. Soc. Massscreen. 1998 8 (Suppl. 2 1 5 (in Japanese).
10. Couzin-Frankel J. Science gold mine, ethical minefield. Science 2009 324 : 166 168.
11. Directorate for Science, Technology and Industry, Organization for Economic Cooperation and Development (OECD). Guidelines for Human Biobanks and Genetic Research Databases (HBGRDs). DST1/STP/BIO(2008)31/REV1. OECD
12. Umehashi H, Tazaki R, Kuroda Y, Fukushi M, Umehashi M, Sumiyoshi Y. A study on the management and use of residual blood card with attention to ethical issues. The Ministry of Health, Labor and Welfare of Japan, Term 2001 (Research on Children and Families)
13. Detmar S, Hosli E, Dijkstra N, Nijsingh N, Rijnders M, Verweij M. Information and informed consent for neonatal screening: Options and preference of parents. Birth 2007 34 : 238 244.