The influence of selected personal and environmental factors on leisure activities in adults with cerebral palsy

Disability and Rehabilitation

Volumn 32, Issue 16, 2010, Pages 1328-1338

  Boucher, Normand ^a,b   Dumas, Francine ^a,b   B Maltais, Désirée ^a,b   Richards, Carol L ^a,b  

^a INSTITUT DE RÉADAPTATION EN DÉFICIENCE PHYSIQUE DE QUÉBEC   (Canada)

^b UNIVERSITÉ LAVAL   (Canada)

Author keywords

Adult; Cerebral palsy; Leisure; Social participation

Indexed keywords

ADOLESCENT; ADULT; AGE; ARTICLE; CEREBRAL PALSY; CONSTRUCTION WORK AND ARCHITECTURAL PHENOMENA; DEMOGRAPHY; ENVIRONMENT; FEMALE; HOSPITALIZATION; HUMAN; LEISURE; MALE; MIDDLE AGED; PATHOPHYSIOLOGY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SOCIAL ENVIRONMENT;

ADOLESCENT; ADULT; AGE FACTORS; ARCHITECTURAL ACCESSIBILITY; CEREBRAL PALSY; ENVIRONMENT; FEMALE; HUMANS; LEISURE ACTIVITIES; MALE; MIDDLE AGED; QUESTIONNAIRES; RESIDENCE CHARACTERISTICS; SEVERITY OF ILLNESS INDEX; SOCIAL ENVIRONMENT; YOUNG ADULT;

EID: 77953605620     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638280903514713     Document Type: Article

References (57)

1. Rochette A, Desrosiers J, Noreau L. Association between personal and environmental factors and the occurrence of handicap situations following a stroke. Dis Rehabil 2001;23:559-569.
2. Liptak GS. Health and well being of adults with cerebral palsy. Curr Opin Neurol 2008;21:136-142.
3. Law M, King G, King S, et al. Patterns of participation in recreational and leisure activities among children with complex physical disabilities. Dev Med Child Neurol 2006;48:337-342.
4. Lepage C, Noreau L, Bernard PM. Association between characteristics of locomotion and accomplishment of life habits in children with cerebral palsy. Phys Ther 1998;78:458-469.
5. Castle K, Imms C, Howie L. Being in pain: a phenomenological study of young people with cerebral palsy. Dev Med Child Neurol 2007;49:445-1444
6. Lepage C, Noreau L, Bernard PM, Fougeyrollas P. Profile of handicap situations in children with cerebral palsy. Scand J Rehabil Med 1998;30:263-272.
7. Fougeyrollas P, Cloutier R, Bergeron H, Côté J, St Michel G. The disability creation process. Québec: INCDP/CSCIDIH; 1998.
8. Noreau L, Fougeyrollas P, Boschen KA. Perceived Influence of the environment on social participation among individuals with spinal cord injury. Top Spin Co Inj Rehabil 2002;7:56-72.
9. Whiteneck GG, Harrison-Felix CL, Mellick DC, Charlifue SB, Gerhart KA. Qualifying environmental factors: a measure of physical, attitudinal, service, productivity, and policy barriers. Arch Phys Med Rehabil 2004;85:1324-1335.
10. Gray DB, Hoolingsworth HH, Stark S, Morgan KAA. Subjective measure of environmental facilitators and barriers to participation for people with mobility limitations. Disabil Rehabil 2008;30:434-457.
11. Jönsson G, Ekholm, J, Schult, ML. The International Classification of Functioning, Disability and Health environmental factors as facilitators or barriers used in describing personal and social network: a pilot study of adults with cerebral palsy. Int J Rehabi Res 2008;31:119-129.
12. World Health Organization. International classification of functioning, disability and health. Geneva: World Health Organization; 2001.
13. Bottos M, Feliciangeli A, Scutio L, et al. Functional status of adults with cerebral palsy and implications for treatment of children. Dev Med Child Neurol 2001;43:516-528.
14. Beaty PW, Hagglund KJ, Neri MT, et al. Access to healthcare services among people with chronic or disabling conditions: patterns and predictors. Arch Phys Med Rehabil 2003;84:1417-1425.
15. Young NL, McCormick A, et al. The transition study: a look at youth and adults with cerebral palsy, spina bifida, and acquired brain injury. Phys Occul Ther Pedeaitr 2006;26:25-45.
16. Young NL, Steele C, et al. Use of health care among adults with chronic and complex physical disabilities of childhood. Disabil Rehabil 2005;27:1455-1460.
17. Bakheit AMO, Bower E, et al. Opinion statement on the minimal acceptable standards of healthcare in cerebral palsy. Disabil Rehabil 2001;23:578-582.
18. Donkervoort M, Roebroeck M, Wiegerink D, et al. Determinants of functioning of adolescents and young adults with cerebral palsy. Disabil Rehabil 2007;29:453-463.
19. Richards CL, Boucher N, Dumas F, Maltais D. The Quebec Adult Cerebral Palsy (CP) Study. I. Profile of some personnel factors. Dev Med Chil Neuro 2009;51:4-5.
20. Dumas F, Richards CL, Maltais D. The Quebec adult Cerebral Palsy Study. II. Environmental factors that facilitate and those that are obstacles to social participation. Dev Med Child Neurol 2009;51:89.
21. Richards CL, Boucher N, Dumas F, Maltais D. The Quebec Adult Cerebral Palsy Study. III. Public or community service utilization and user satisfaction. In Cerebral Palsy Conference, Sydney, Australia, 18-21 February, 2009.
22. Fougeyrollas P, Noreau L, Beaulieu M, Dion, SA, Lepage C, Sevigny M, St Michel G, Tremblay J. Assessment of life habits. General Short Form (Life-H 3.1). Quebec: INCDP; 1998. 22p.
23. Noreau L, Fougeyrollas P, in collaboration with Tremblay J. Measure of life habits. Life-H user's manual. Québec: INCDP; 2002b. 50p.
24. Noreau L, Desrosiers J, Robichaud L, Fougeyrollas P, Rochette A, Viscogliosi C. Measuring social participation: reliability of the Life-H in older adults with disabilities. Disabil Rehabil 2004;26:346-352. (Pubitemid 38461185)
25. Desrosiers J, Noreau L, Rochette A, Carbonneau H, Fontaine L, Viscoglisi C, Bravo G. Effect of a home leisure education program after stroke: a randomized controlled trial. Arch Phys Med Rehabil 2007;88:1095-1100.
26. Noreau L, Lepage C, Boissière L, Picard R, Fougeyrollas P, Mathieu J, Desmarais G, Nadeau L. Measuring participation in children with disabilities using the assessment of life habits. Dev Med Child Neurol 2007;49:666-671.
27. Noreau L, Fougeyrollas P, Boschen KA. The measure of quality of environment. Version 2.0. Québec: INCDP; 1999.
28. Boschen K, Noreau L, Fougeyrollas P. A new instrument to measure the quality of environment for persons with physical disabilities. Arch Phys Med of Rehabil 1998;79:1331.
29. Boschen K, Noreau L, Fougeyrollas P. Reliability studies of the measure of the quality of the environment (MQE). Can J Rehabil 1998;11:184-185.
30. Palisano R, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. Groos Motor Function Classification System. Dev Med Child Neurol 1997;39:214-223.
31. Michelsen SI, Uldall P, Hansen T, Madsen M. Social integration of adults with cerebral palsy. Dev Med Child Neurol 2006;48:643-649.
32. Murphy KP, Molnar GE, Lankasky K. Employment and social issues in adults with cerebral palsy. Arch Physiol Med Rehabil 2000;81:807-811.
33. Michelsen SI, Uldall P, Kejs AM, Madsen M. Education and employment propescts in cerebral palsy. Dev Med Child Neurol 2005;47:511-517.
34. Holbrook AL, Green MC,Krosnick JA. Telephone versus faceto- face Interviewing of National probability samples with long questionnaires. Comparisons respondents satisfying and social desirability response bias. Publ Opin Q, 2003;67:79-125.
35. Schwarz N, Hippler HJ. Subsequent questions may influence answer to preceding questions in mail surveys. Publ Opin Q 1995;59:93-97.
36. McFarlane B, Garland R. A comparison of mail and face-toface survey methods: New-Zealand health Professionals. Marketing Bulletin 1994;5:71-81.
37. MaltaisDB,DumasF,Boucher N, RichardsCL.Factors related to physical activity in adults with cerebral palsy may differ for walkers and non-walkers. Am J PhysMed Rehabil, in press.
38. Institut de la statistique du Québec. L'incapacité et les limitations d'activités au Québec. Un portrait statistique à partir des données de l'Enquête sur la participation et les limitations d'activités 2001 (EPLA). Québec: Gouvernement du Québec; 2006.
39. Office des personnes handicapées du Québec. La participation sociale des personnes handicapées au Québec: l'É ducation. Québec: Gouvernement du Québec; 2006.
40. Jiang B, Reid S, Lanigan A,Walstab J, Davis E, Reddihough D. Determinants of social participation in young adults with cerebral palsy. Dev Med Child Neurol 2009;51:3.
41. Van Meeteren J, Roebroeck ME, Celen E, Donkervoort M, Stam HJ; Transition Research Group South West Netherlands. Functional activities of the upper extremity of young adults with cerebral palsy: a limiting factor for participation? Disabil Rehabil 2008;30:387-395.
42. Boucher N, Noreau L, Tremblay J, Anderson D, Beauregard L, Swaine B, Nadeau S, Girard AM. Return to the community living: comparing changes in perceived environmental influence on the social participation in people with Spinal Cord Injury (SCI) American Spinal Injury Association's 33th Annual Scientific Meeting. Tampa Bay, FL., May 30-June 2nd, 2007. J Spin Cord Med 2007;30:184-185.
43. Noreau L, Boucher N, Beauregard L, Anderson D, Tremblay J, Swaine B, Nadeau S, Girard AM. Social participation in the initial phase of community living following spinal cord injury. American Spinal Injury Association's 33th Annual Scientific Meeting. Tampa Bay, FL, May 30-June 2nd, 2007. J Spin Cord Med 2007;30:185-186.
44. Jiang B, Davis E, Lanigan A, Walstab J, Reid S, Reddihough D. Quality of life in young adults with cerebral palsy. In Cerebral Palsy Conference, 18-21 February, Sydney Australia, 2009, p 71.
45. Levasseur M, Desrosiers J, St-Cyr TribbleD.Do quality of life, participation and environment of older adults differ according to level of activity? Health Qual Life Outcomes 2008;6:1-11.
46. Brandoo D, Pais Ribeiro LP. Life satisfaction and Psdychological well-being in youth with cerebral palsy: exploratory study. In Cerebral Palsy Conference, 18-21 February, Sydney, Australia, 2009, p 55.
47. Boucher N. Mise en jeu de la différence corporelle au Québec. Pour une sociologieduhandicap.ThèsedeDoctoratensociologie. Université Laval; 2001. 415 p. accessible via ProQuest.
48. Boucher N. La régulation sociopolitique du handicap au Québec. Santé , Société et Solidarité 2005;2:145-154.
49. Office des personnes handicapées du Québec. A part . . . égale. L'intégration sociale des personnes handicapées : un défi pour tous. Québec: Gouvernement du Québec; 1985.
50. Nieuwenhuijsen C, Van der Laar Y, Donkervoort M, Neuwstraten W, Roebroeck ME, Syam HJ. Unmet needs and health care utilization in young adults with cerebral palsy. Disabil Rehabil 2008;30:1254-1262.
51. Specht JKG, Brown E, Foris C. The importance of leisure in the lives of persons with congenital physical disabilities. Am J Occup Ther 2002;56:436-445.
52. Fougeyrollas P, Noreau L, Bergeron H, Cloutier R, Dion, SA, St Michel G. Social consequences of long term impairments and disabilities: conceptual approach and assessment of handicap. Int J Rehab Res 1998;21:127-141
53. Law M. Cooper B, Strong S, Stewart D, Rigby P, Letts L. The person-environment occupation model: a transactive approach to occupational performance. Can J Occup Ther 1996;63:9-23.
54. Badley EM. The genesis of handicap. Definition, models of disablement, and role of external factors. Disabil Rehabil 1995;9:122-125.
55. Kilhofner G. Functional assessment: toward a dialectical view of person-environment relations. Am J Occup Ther 1993;47: 248-251.
56. Law M. The environment: a focus for occupational therapy. Can J Occup Ther 1993;58:171-180.
57. Bronfenbrenner U. Toward an experimental ecology of human development. Am Psychol 1977;32:513-530.