"La Lucha": The experiences of Latino family caregivers of patients with Alzheimer's disease

Clinical Gerontologist

Volumn 33, Issue 3, 2010, Pages 181-193

  Gelman, Caroline Rosenthal ^a  

^a CITY UNIVERSITY OF NEW YORK   (United States)

Author keywords

Alzheimer's disease; Familismo; Latino family caregivers

Indexed keywords

EID: 77953573510     PISSN: 07317115     EISSN: 15452301     Source Type: Journal    
DOI: 10.1080/07317111003773643     Document Type: Article

References (35)

1. Alzheimer's Association. (2004). Hispanics/Latinos and Alzheimer's disease. Chicago, IL: Alzheimer's Association.
2. Andrews, J. W., Lyons, B., & Rowland, D. (1992). Life satisfaction and peace of mind: A comparative analysis of elderly Hispanic and other elderly Americans. Clinical Gerontologist, 11 (3/4), 21-42.
3. Angel, J. L., Angel, R. J., Aranda, M. P., & Miles, T. P. (2004). Can the family still cope? Social support and health as determinants of nursing home use in the older Mexican-origin population. Journal of Aging and Health, 16 (3), 338-354.
4. Aranda, M. P., & Knight, B. G. (1997). The influence of ethnicity and culture on the caregiver stress and coping process: A sociocultural review and analysis. Gerontologist, 37 (3), 342-354.
5. Aranda, M. P., Villa, V. M., Trejo, L. Ramirez, R., & Ranney, M. (2003). El Portal Latino Alzheimer's Project: Model program for Latino caregivers of Alzheimer's disease-affected people. Social Work, 48(2), 259-271.
6. Ayalon, L, & Arean, P. (2004). Knowledge of Alzheimer's disease in four ethnic groups of older adults. International Journal of Geriatric Psychiatry, 19, 51-57.
7. Ayalon, L., & Huyck, M. H. (2001). Latino caregivers of relatives with Alzheimer's disease. Clinical Gerontologist, 24 (3/4), 93-106.
8. Boise, L., Morgan, D. L., Kaye, J., & Camicioli, R. (1999). Delays in the diagnosis of dementia: Perspectives of family caregivers. American Journal of Alzheimer's Disease and Other Dementias, 14, 20-26.
9. Connell, C. M., Roberts, J. S., & McLaughlin, S. J. (2007). Public opinion about Alzheimer disease among Blacks, Hispanics, and Whites: Results from a national survey. Alzheimer Disease and Associated Disorders, 21 (3), 232-240.
10. Coon, D.W., Rubert, M., Solano, N., Mausbach, B., Kraemer, H., Arguelles, T., et al. (2004). Well-being, appraisal, and coping in Latina and Caucasian female dementia caregivers: Findings from the REACH study. Aging and Mental Health, 8 (4), 330-345.
11. Cox, C., & Gelfand, D. E. (1987). Familial assistance, exchange, and satisfaction among Hispanic, Portuguese, and Vietnamese elderly. Journal of Cross-Cultural Gerontology, 2 (3), 241-255.
12. Depp, C., Sorocco, K., Kasl-Godley, J., Thompson, L., Rabinowitz, Y., & Gallagher-Thompson, D. (2005). Caregivers self-efficacy, ethnicity, and kinship differences in dementia caregivers. American Journal of Geriatric Psychiatry, 13 (9), 787-794.
13. Derose, K. P., & Baker, D.W. (2000). Limited English proficiency and Latinos' use of physician services. Medical Care Research and Review, 57 (1), 76-91.
14. Gallagher-Thompson, D., Solano, N., Coon, D., & Arean, P. (2003). Recruitment and retention of Latino dementia family caregivers in intervention research: Issues to face, lessons to learn. Gerontologist, 43, 45-51.
15. Haley, W. E., & Bailey, S. (1999). Research on family caregiving in Alzheimer's disease: Implications for practice and policy. In B. Vellas & J. L. Fitten (Eds.), Research and practice in Alzheimer's disease (Vol. 2) (pp. 321-332). Paris, France: Serdi Publisher.
16. Harwood, D. G., Barker, W. W., Cantillon, M., Loewenstein, D. A., Ownby, R., & Duara, R. (1998). Depressive symptomatology in? rst-degree family caregivers of Alzheimer disease patients: A cross-ethnic comparison. Alzheimer Disease and Associated Disorders, 12, 340-346.
17. Henderson, J. N., & Gutierrez-Mayka, M. (1992). Ethnocultural themes in caregiving to Alzheimer's disease patients in Hispanic families. Clinical Gerontologist, 11 (3/4), 59-74.
18. Hinton, W. L., Fox, K., & Levkoff, S. (1999). Introduction: Exploring the relationships among aging, ethnicity, and family dementia caregiving. Culture, Medicine & Psychiatry, 23, 403-413.
19. Hinton, W. L., & Levkoff, S. (1999). Constructing Alzheimer's: Narratives of lost identities, confusion and loneliness in old age. Culture, Medicine & Psychiatry, 23, 453-475.
20. Hinton, W. L., Franz, C. E., Yeo, G., & Levkoff, S. (2005). Conceptions of dementia in a multiethnic sample of family caregivers. Journal of the American Geriatric Society, 53, 1405-1410.
21. Janevic, M. R., & Connell, C. M. (2001). Racial, ethnic, and cultural differences in the dementia caregiving experience: Recent findings. Gerontologist, 41 (3), 334-347.
22. John, R., & McMillan, B. (1998). Exploring caregiver burden among Mexican-Americans:Cultural prescriptions, family dilemmas. Journal of Aging and Ethnicity, 1, 93-111.
23. Lieblich, A., Tuval-Mashiach, R., & Zilber, T. (1998). Narrative research: Reading, analysis, and interpretation. Thousand Oaks, CA: Sage.
24. Losada, A., Robinson-Shurgot, G., Knight, B. G., Margquez, M., Montorio, I., Izal, M., & Ruiz, M. A. (2006). Cross-cultural study comparing the association of familism with burden and depressive symptoms in two samples of Hispanic dementia caregivers. Aging and Mental Health, 10 (1), 69-76.
25. Mahoney, D. F., Cloutterbuck, J., Neary, S., & Zhan, L. (2005). African American, Chinese, and Latino family caregivers' impressions of the onset and diagnosis of dementia: Cross-cultural similarities and differences. Gerontologist, 45 (6), 783-792.
26. National Alliance for Caregiving/American Association of Retired Persons. (1997). Family caregiving in the U.S.: Findings from a national survey. Washington, D.C.: Author.
27. Navaie-Waliser, M., Feldman, P. H., Gould, D. A., Levine, C., Kuerbis, A. N., & Donelan, K. (2001). The experiences and challenges of informal caregivers: Common themes and differences among Whites, Black and Hispanics. Gerontologist, 41 (6), 733-741.
28. Neary, S. R., & Mahoney, D. F. (2005). Dementia caregiving: The experiences of Hispanic/Latino caregivers. Journal of Transcultural Nursing, 16, 163-170.
29. Ortiz, F., & Fitten, L. J. (2000). Barriers to healthcare access for cognitively impaired older Hispanics. Alzheimer Disease and Associated Disorders, 14 (3), 141-150.
30. Ortiz, A., Simmons, J., & Hinton, W. L. (1999). Locations of remorse and home-lands of resilience: Notes on grief and sense of loss of place of Latino and Irish-American caregivers of demented elders. Culture, Medicine and Psychiatry, 23, 477-500.
31. Pinquart, M., & Sorensen, S. (2003). Differences between caregivers and noncare givers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18, 250-267.
32. Polich, T., & Gallagher-Thompson, D. (1997). Preliminary study investigating psychological distress among female Hispanic caregivers. Journal of Clinical Geropsychology, 3, 1-15.
33. Sabogal, F., Marin, G., Otero-Sabogal, R., Marin, B.V.O., & Perez-Stable, E. J. (1987). Hispanic familism and acculturation: What changes and what doesn't? Hispanic Journal of Behavioral Sciences, 9, 397-412.
34. Valle, R., Yamada, A. M., & Matiella, A. C. (2006). Fotonovelas: A health literacy tool for educating Latino older adults about dementia. Clinical Gerontologist, 30(1), 71-88.
35. Valle, R., Yamada, A. M., & Barrio, D. (2004). Ethnic differences in social network help-seeking strategies among Latino and Euro-American dementia caregivers. Aging & Mental Health, 8 (6), 535-543.