Ethical issues in cancer register follow-up of hormone treatment in adolescence

Public Health Ethics

Volumn 2, Issue 1, 2009, Pages 30-36

  Hultman, Christina M ^a,c   Lindgren, Ann Christin ^a   Hansson, Mats G ^b   Carlstedt Duke, Jan ^a   Ritzen, Martin ^a   Persson, Ingemar ^a   Kieler, Helle ^a  

^a KAROLINSKA INSTITUTE   (Sweden)

^b UPPSALA UNIVERSITY   (Sweden)

^c Uppsala University ^*  (Sweden)

Author keywords

[No Author keywords available]

Indexed keywords

ESTROGEN; HORMONE;

ADOLESCENT; ADULT; ARTICLE; ATTITUDE; BODY HEIGHT; CANCER REGISTRY; CLINICAL ARTICLE; FEMALE; FOLLOW UP; FRUSTRATION; HORMONAL THERAPY; HUMAN; INFORMED CONSENT; MEDICAL ETHICS; MEDICAL RESEARCH; PATIENT PARTICIPATION; PRIORITY JOURNAL; PRIVACY; QUALITATIVE RESEARCH; STRUCTURED INTERVIEW; TELEPHONE;

EID: 77953442998     PISSN: 17549973     EISSN: 17549981     Source Type: Journal    
DOI: 10.1093/phe/php003     Document Type: Article

References (21)

1. Collaborative Group on Hormonal Factors in Breast Cancer. (1996). Breast Cancer and Hormonal Contraceptives: Further Results. Contraception, 54, 1S- 106S.
2. Corrigan, O. (2003). Empty Ethics: The Problem with Informed Consent. Sociology of Health and Illness, 25, 768-792.
3. Dressler, L. G. and Juengst, E. T. (2006). Thresholds and Boundaries in the Disclosure of Individual Genetic Research Results. American Journal of Bioethics, 6, 18- 20.
4. Evans, H. M. (2007). Do Patients Have Duties? Journal of Medical Ethics, 33, 689-694.
5. Hansson, M. (1998). Balancing the Quality of Consent. Journal of Medical Ethics, 24, 182-187.
6. Hansson, M. G. (2005). Building on Relationships of Trust in Biobank Research. Journal of Medical Ethics, 31, 415-418.
7. Hansson, M. G. (2008). The Private Sphere: Emotional Territory and Its Agent (Philosophical Studies in Contemporary Culture), vol. 15. Springer.
8. Harris, J. (2005). Scientific Research Is a Moral Duty. Journal of Medical Ethics, 31, 242-248.
9. Harrison, J. E. (1996). Patients Should Not Be Discouraged from Entering Trials. BMJ, 313, 1488. Helgesson,G., Dillner, J., Carlson, J., Bartram, C. R. and
10. Hansson, M. G. (2007). Ethical Framework for Previously Collected Biobank Samples. Nature Biotechnology, 25, 973-976.
11. Hisamichi, S. (2004). Science and Ethics in Epidemiology. Journal of Epidemiology, 14, 105-111.
12. IARC Monographs on the Evaluation of Carcinogenic Risks to Humans. (2007). Combined Estrogen- Progestogen Contraceptives and Combined Estrogen- Progestogen Menopausal Therapy. 91, 1-528.
13. IARC Working Group on the Evaluation of Carcinogenic Risks to Humans.
14. Kaijser, M. (2003). Examples from Swedish Biobank Research. In Hansson, M. G. and Levin, M. (eds), Biobanks as Resources for Health. Uppsala, Sweden: Uppsala University, pp. 33-50.
15. McKinney, P. A., Jones, S., Parslow, R., Davey, N., Darowski, M., Chaudhry, B. et al. (2005). A Feasibility Study of Signed Consent for the Collection of Patient Identifiable Information for a National Paediatric Clinical Audit Database. BMJ, 330, 877- 879.
16. Olsson, H., Moller, T. R. and Ranstam, J. (1989). Early OralContraceptiveUse and BreastCancer among Premenopausal Women: Final Report from a Study in Southern Sweden. Journal of the National Cancer Institute, 81, 1000-1004. Principles of Interactions. Between EMEA and FDA
17. Pediatric Therapeutics. (2007). Available from http://www.emea.europa.eu. pdfs/general/direct/pr/interactions.pdf. Pyett, P., Rayner, J., Venn, A., Bruinsma, F., Werther, G. and Lumley, J. (2005). Using Hormone Treatment to Reduce the AdultHeight of Tall Girls: AreWomen Satisfied with the Decision in Later Years? Social Science and Medicine, 61, 1629-1639.
18. Sankila, R., Martinez, C., Parkin, D. M., Storm, H. and Teppo, L. (2001). Informed Consent in Cancer Registries. Lancet, 357, 1536.
19. Strauss, A. and Corbin, J. (1994). Grounded Theory Methodology - An Overview. In Denzin, N. K. and Lincoln, Y. S. (eds), Handbook of Qualitative Research. Thousand Oaks, CA: Sage Publications, pp. 273- 285.
20. Tamakoshi, A. (2004). Informed Consent in Epidemiologic Research before the Implementation of Ethical Guidelines. Journal of Epidemiology, 14, 177-181.
21. Tu, J. V., Willson, D. J., Silver, F. L., Fang, J., Richards, J. A., Laupacis, A., Kapral, M. K. Investigators in the Registry of the Canadian Stroke Network. McKinney P. A., Jones S., Parslow R., Davey N., Darowski M., ChaudhryB., StackC.,ParryG.,Draper E. S.,PICANet Consent Study Group. (2004). Impracticability of InformedConsent in theRegistry of theCanadian Stroke Network.NewEngland Journal ofMedicine, 350, 1414- 1421.