Trends impacting public policy support for caregiving families

Journal of Family Social Work

Volumn 13, Issue 3, 2010, Pages 191-207

  Singer, George H S ^a   Biegel, David E ^b   Ethridge, Brandy L ^a  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b CASE WESTERN RESERVE UNIVERSITY   (United States)

Author keywords

Caregiving; Families; Policy

Indexed keywords

EID: 77953372633     PISSN: 10522158     EISSN: 15404072     Source Type: Journal    
DOI: 10.1080/10522151003773867     Document Type: Article

References (53)

1. Access to Respite Care and Help, National Respite Coalition. (2006). National, state and local organizations endorsing the "Lifespan Respite Care Act of 2005". Retrieved March 11, 2010, from http://www.archrespite.org/JointEndorsingList.pdf
2. Access to Respite Care and Help, National Respite Coalition. (2009). National Respite Coalition Lifespan Respite Task Force. Retrieved March 11, 2010, from http://chtop.org/ARCH/Lifespan-Respite-Task-Force.html
3. ADA Amendments Act of 2008, 42 U.S.C. x12101 et seq.
4. Americans with Disabilities Act of 1990, 42 U.S.C. x12101 et seq.
5. Aron, L., Honberg, R., Duckworth, K., Kimball, A., Edgar, E., Carolla, B., et al. (2009). Grading the states 2009: A report on America's health care system for adults with serious mental illness. Retrieved March 10, 2010, from the National Alliance on Mental Illness Web site: http://www.nami.org/gtsTemplate09.cfm?Section=Grading_the_States_2009 &Template=/ContentManagement/ContentDisplay.cfm&ContentID=75459
6. Aronson, J., & Neysmith, S. M. (1997). The retreat of the state and long-term care provision: Implications for frail elderly people, unpaid family carers and paid home care workers. Studies in Political Economy, 53, 37-66.
7. Baker, J. (2008). All things considered, should feminists embrace basic income? Basic Income Studies, 3(3), Article 6. Retrieved March 11, 2010, from http://www. bepress.com/bis/vol3/iss3/art6
8. Biegel, D. E., Sales, E., & Schulz, R. (1991). Family caregiving in chronic illness: Alzheimer's disease, cancer, heart disease, mental illness and stroke. Newbury Park, CA: Sage.
9. Biegel, D. E. & Schulz, R. (Series Eds.). (1991-1996). Family caregiver applications (Vols. 1-7). Newbury Park, CA: Sage.
10. Bureau of Labor Statistics. (2009). Women in the labor force: A Databook (Report 1018). Retrieved March 10, 2010, from http://www.bls.gov/cps/wlf-databook-2009.pdf
11. Coltrane, S. (2000). Research on household labor: Modeling and measuring the social embeddedness of routine family work. Journal of Marriage and the Family, 62(4), 1208-1233.
12. Community Living Assistance Services and Supports Act of 2009. H.R. 1721, 111th Cong. (2009).
13. Community Living Assistance Services and Supports Act of 2009. S. 697. 111th Cong. (2009).
14. Doty, P. (2000). Cost-effectiveness of home and community-based long-term care services. Retrieved March 10, 2010, from US Department of Health and Human Services Web site: http://aspe.hhs.gov/daltcp/reports/costeff.htm
15. Doty, P. J. (1998). The Cash and Counseling Demonstration: An experiment in consumer-directed personal assistance services. American Rehabilitation, 24(3),27-30.
16. Feinberg, L. F., & Newman, S. L. (2004). A study of 10 states since passage of the National Family Caregiver Support Program: Policies, perceptions, and program development. Gerontologist, 44(6), 760-769.
17. Feinberg, L. F., Wolkwitz, K., & Goldstein, C. (2006). Ahead of the curve: Emerging trends and practices in family caregiver support (AARP Public Policy Institute Issue Paper #2006-09). Washington, DC: AARP. Retrieved March 11, 2010, from http://assets.aarp.org/rgcenter/il/inb120_caregiver.pdf
18. Gaugler, J. E., Leach, C. R., Clay, T., & Newcomer, R. C. (2004). Predictors of nursing home placement in African Americans with dementia. Journal of the American Geriatrics Society, 52(3), 445-452.
19. Hammer, L. B., & Neal, M. B. (2008). Working sandwiched-generation caregivers: Prevalence, characteristics, and outcomes. The Psychologist-Manager, 11(1), 93-112.
20. Hareven, T. K. (1977). Family time and historical time. Deadelus, 106(2), 57-70.
21. Hastings, R. P., & Taunt, H. M. (2002). Positive perceptions in families of children with developmental disabilities. American Journal on Mental Retardation, 107(2),116-127.
22. Houser, A., & Gibson, M. J. (2008). Valuing the invaluable: The economic value of family caregiving, 2008 update. AARP Public Policy Institute: Insight on the Issues, 13. Retrieved March 11, 2010, from http://assets.aarp.org/rgcenter/il/ i13_caregiving.pdf
23. Hughes, S. L., Gobbie-Hurder, A., Weaver, F. M., & Hendersen, W. (1999). Relationship between caregiver burden and health-related quality of life. Gerontologist, 39(5),534-545.
24. Kant, A. K., & Graubard, B. I. (2004). Eating out in America, 1987-2000: Trends and nutritional correlates. Preventive Medicine, 38(2), 243-249.
25. Kerber, L. K. (1988). Separate spheres, female worlds, woman's place: The rhetoric of women's history. Journal of American History, 75(1), 9-39.
26. Kramer, B. J., & Kipnis, S. (1995). Eldercare and work-role conflict: Toward an understanding of gender differences in caregiver burden. Gerontologist, 35(3), 340-348.
27. Krantz-Kent, R. (2009). Measuring time spent in unpaid household work: Results from the American Time Use Survey. Monthly Labor Review, 132(7), 46-59.
28. Kuttner, R. (2008). Obama's challenge: America's economic crisis and the power of a transformative presidency. White River Junction, VT: Chelsea Green Publishing.
29. Lakin, K. C., & Prouty, R. (2003). Medicaid home and community-based services: The first 20 years. (Policy Research Brief, 14(3)). Minneapolis, MN: University of Minnesota, Institute on Community Integration. Retrieved March 10, 2010, from University of Minnesota, Institute on Community Integration Web site: http:// ici.umn.edu/products/prb/143/143.pdf
30. Lesthaeghe, R. (2003). The second demographic transition in Western countries: An interpretation. In K. O. Mason & A.-M. Jensen (Eds.), Gender and family change in industrialized countries (pp. 17-62). New York: Oxford University Press.
31. Lifespan Respite Care Act of 2006, 101, Pub. L. No. 109-442. 1, 42 USC 201 (2006).
32. MetLife Mature Market Institute. (2006). The MetLife study of Alzheimer's disease: The caregiving experience. Westport, CT: MetLife Mature Market Institute. Retrieved March 1, 2010, from http://www.metlife.com/assets/cao/mmi/publications/studies/mmi-alzheimer s-disease-caregiving-experience-study.pdf
33. MetLife Mature Market Institute. (2010). The MetLife study of working caregivers and employer health care costs. Westport, CT: MetLife Mature Market Institute. Retrieved March 1, 2010, from http://www.metlife.com/assets/cao/mmi/publications/studies/2010/mmi-work ing-caregivers-employers-health-care-costs. pdf
34. MetLife Mature Market Institute, & National Alliance for Caregiving. (2006). The MetLife caregiving cost study: Productivity losses to U.S. business. Westport, CT: MetLife Mature Market Institute. Retrieved from National Alliance for Caregiving Web site April 27, 2010, from http://www.caregiving.org/data/Caregiver%20Cost%20Study.pdf
35. National Alliance for Caregiving. (2009). Caregiving in the U.S. 2009. Retrieved February 2, 2010, from http://assets.aarp.org/rgcenter/il/caregiving_09_fr.pdf
36. Olmstead v. L. C., 527 U.S. 581 (1999).
37. Orloff, A. S. (2002). Explaining US welfare reform: Power, gender, race and the US policy legacy. Critical Social Policy, 22(1), 96-118.
38. Parish, S. L., Pomeranz-Essley, A., & Braddock, D. (2003). Family support in the United States: Financing trends and emerging initiatives. Mental Retardation, 41(3),174-187.
39. Pinquart, M., & Sorensen, S. (2004). Associations of caregiver stressors and uplifts with subjective well-being and depressive mood: A meta-analytic comparison. Aging and Mental Health, 8(5), 438-449.
40. Powers, L. E., Sowers, J.-A., & Singer, G. H. S. (2006). A cross-disability analysis of person-directed, long-term services. Journal of Disability Policy Studies, 17(2), 66-76.
41. Rae, H. M. (1998). Managing feelings caregiving as emotion work. Research on Aging, 20(1), 137-160.
42. Rizzolo, M. C., Hemp, R., Braddock, D., & Schindler, A. (2009). Family support services for persons with intellectual and developmental disabilities: Recent national trends. Intellectual and Developmental Disabilities, 47(2), 152-155.
43. Rubin, L. B. (2007). Sand castles and snake pits: Homelessness, public policy, and the law of unintended consequences. Dissent, 54(5), 51-56.
44. Sciegaj, M., Simone, K., & Mahoney, K. (2007). State experiences with implementing the Cash and Counseling Demonstration and Evaluation project. Journal of Aging & Social Policy, 20(1), 81-98.
45. Schulze, B., & Rossler, W. (2005). Caregiver burden in mental illness: Review of measurement, findings and interventions in 2004-2005. Current Opinion in Psychiatry, 18(6), 684-691.
46. Seltzer, M. A., Greenberg, J. S., Floyd, F. J., Pettee, Y., & Hong, J. (2001). Life course impacts of parenting a child with a disability. American Journal on Mental Retardation, 106(3), 265-286.
47. Singer, G. H. S. (2006). Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. American Journal on Mental Retardation, 111(3), 155-169.
48. Singer, G. H. S., & Powers, L. E. (1993). Contributing to resilience in families: An overview. In G. H. S. Singer & L. E. Powers (Eds.), Families, disability, and empowerment: Active coping skills and strategies for family interventions (pp. 1-26). Baltimore, MD: Paul H. Brookes Publishing.
49. Social Security Administration. (2009). A summary of the 2009 Annual Reports: Social Security and Medicare Boards of Trustees. Retrieved March 9, 2010, from http://www.socialsecurity.gov/OACT/TRSUM/
50. Social Security Administration. (2010). Reference Supplemental Security Income (SSI) in California (SSA Publication No. 05-11125). Retrieved March 10, 2010, from http://ftp.ssa.gov/pubs/11125.pdf
51. Stone, R. I., & Wiener, J. M. (2001). Who will care for us? Addressing the long-term care workforce crisis. Washington, DC: Urban Institute and American Association of Homes and Services for the Aging. Retrieved March 9, 2010, from http://www.urban.org/UploadedPDF/Who_will_Care_for_Us.pdf
52. Teplin, L. A. (1990). The prevalence of severe mental disorder among male urban jail detainees: Comparison with the Epidemiologic Catchment Area program. American Journal of Public Health, 80(6), 663-669.
53. Wolfensberger, W. (1972). The principle of normalization in human services. Toronto, Canada: National Institute on Mental Retardation.