Medical end-of-life decisions in children in Flanders, Belgium: A population-based postmortem survey

Archives of Pediatrics and Adolescent Medicine

Volumn 164, Issue 6, 2010, Pages 547-553

  Pousset, Geert ^a,b   Bilsen, Johan ^a   Cohen, Joachim ^a,c   Chambaere, Kenneth ^a   Deliens, Luc ^a,c   Mortier, Freddy ^b  

^a VRIJE UNIVERSITEIT BRUSSEL   (Belgium)

^b GHENT UNIVERSITY   (Belgium)

^c VU UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ANALGESIA; ARTICLE; AUTOPSY; BELGIUM; CHILD; CHILD DEATH; COMATOSE PATIENT; DEATH CERTIFICATE; DRUG USE; EUTHANASIA; FEMALE; HUMAN; LIFESPAN; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; PARENTAL CONSENT; PHYSICIAN; POPULATION RESEARCH; PRESCHOOL CHILD; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SCHOOL CHILD; TERMINAL CARE;

ADOLESCENT; ATTITUDE OF HEALTH PERSONNEL; BELGIUM; CHILD; CHILD, PRESCHOOL; DECISION MAKING; FEMALE; HEALTH CARE SURVEYS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INFANT; MALE; MINORS; PALLIATIVE CARE; PARENTS; PATIENT PARTICIPATION; PHYSICIAN-PATIENT RELATIONS; PREVALENCE; PROFESSIONAL-FAMILY RELATIONS; QUALITY OF LIFE; TERMINAL CARE;

EID: 77953308368     PISSN: 10724710     EISSN: 15383628     Source Type: Journal    
DOI: 10.1001/archpediatrics.2010.59     Document Type: Article

References (31)

1. Deliens L, Mortier F, Bilsen J, et al. End-of-life decisions in medical practice in Flanders, Belgium: a nationwide survey. Lancet. 2000;356(9244):1806- 1811.
2. van der Heide A, Deliens L, Faisst K, et al; EURELD consortium. End-of-life decision-making in six European countries: descriptive study. Lancet. 2003;362(9381): 345-350.
3. van der Heide A, Onwuteaka-Philipsen BD, Rurup ML, et al. End-of-life practices in the Netherlands under the Euthanasia Act. N Engl J Med. 2007;356(19): 1957-1965.
4. Bilsen J, Cohen J, Chambaere K, et al. Medical end-of-life practices under the euthanasia law in Belgium. N Engl J Med. 2009;361(11):1119-1121.
5. Burns JP, Mitchell C, Outwater KM, et al. End-of-life care in the pediatric intensive care unit after the forgoing of life-sustaining treatment. Crit Care Med. 2000; 28(8):3060-3066.
6. Provoost V, Cools F, Mortier F, et al; Neonatal Intensive Care Consortium. Medical end-of-life decisions in neonates and infants in Flanders. Lancet. 2005; 365(9467):1315-1320.
7. Vrakking AM, van der Heide A, Onwuteaka-Philipsen BD, Keij-Deerenberg IM, van der Maas PJ, van der Wal G. Medical end-of-life decisions made for neonates and infants in the Netherlands, 1995-2001. Lancet. 2005;365(9467): 1329-1331.
8. Sarnaik AP, Meert KL. End-of-life issues in paediatric intensive care. Paediatr Child Health (Oxford). 2007;17(3):104-107.
9. Vrakking AM, van der Heide A, Provoost V, Bilsen J, van der Wal G, Deliens L. End-of-life decision making in neonates and infants: comparison of the Netherlands and Belgium (Flanders). Acta Paediatr. 2007;96(6):820-824.
10. Lago PM, Piva JP, Garcia PC, et al; Brazilian Pediatric Center of Studies on Ethics. End-of-life practices in seven Brazilian pediatric intensive care units. Pediatr Crit Care Med. 2008;9(1):26-31.
11. Vrakking AM, van der Heide A, Arts WF, et al. Medical end-of-life decisions for children in the Netherlands. Arch Pediatr Adolesc Med. 2005;159(9):802-809.
12. Verhagen AA, Dorscheidt JH, Engels B, Hubben JH, Sauer PJ. End-of-life decisions in Dutch neonatal intensive care units. Arch Pediatr Adolesc Med. 2009; 163(10):895-901.
13. Tates K, Meeuwesen L. Doctor-parent-child communication: a (re)view of the literature. Soc Sci Med. 2001;52(6):839-851.
14. Evans JL. Are children competent to make decisions about their own deaths? Behav Sci Law. 1995;13(1):27-41.
15. Kenyon BL. Current research in children's conceptions of death: a critical review. Omega. 2001;43(1):69-91.
16. Liben S, Papadatou D, Wolfe J. Paediatric palliative care: challenges and emerging ideas. Lancet. 2008;371(9615):852-864.
17. Baines P. Medical ethics for children: applying the four principles to paediatrics. J Med Ethics. 2008;34(3):141-145.
18. Doyal L, Doyal L. Why active euthanasia and physician assisted suicide should be legalised. BMJ. 2001;323(7321):1079-1080.
19. Bernheim JL. Euthanasia in Europe. Lancet. 2001;357(9261):1038.
20. Gillon R. Euthanasia in the Netherlands: down the slippery slope? J Med Ethics. 1999;25(1):3-4.
21. Deliens L, van der Wal G. The euthanasia law in Belgium and the Netherlands. Lancet. 2003;362(9391):1239-1240.
22. Burkhardt S, La Harpe R, Harding TW, Sobel J. Euthanasia and assisted suicide: comparison of legal aspects in Switzerland and other countries. Med Sci Law. 2006;46(4):287-294.
23. Chin AE, Hedberg K, Higginson GK, Fleming DW. Legalized physician-assisted suicide in Oregon: the first year's experience. N Engl J Med. 1999;340(7):577-583. (Pubitemid 29093304)
24. Verhagen E, Sauer PJ. The Groningen protocol: euthanasia in severely ill newborns. N Engl J Med. 2005;352(10):959-962.
25. Detiège M. Bill to supplement the law of 28 May 2002 concerning euthanasia, with regard to minors [in Dutch]. 0611/001. December 19, 2007. Ref Type: Unenacted Bill/Resolution.
26. De Gucht JJ, Wille P, Vankrunkelsven P, Taelman M. Bill to adapt article 3 of the law of 28 May 2002 concerning euthanasia, with regard to euthanasia in minors [in Dutch]. 4-920/1. September 16, 2008. Ref Type: Unenacted Bill/Resolution.
27. Dillman DA. The design and administration of mail surveys. Annu Rev Sociol. 1991;17:225-249.
28. Chambaere K, Bilsen J, Cohen J, et al. A post-mortem survey on end-of-life decisions using a representative sample of death certificates in Flanders, Belgium: research protocol. BMC Public Health. 2008;8(1):299.
29. Provoost V, Cools F, Deconinck P, et al. Consultation of parents in actual endof- life decision-making in neonates and infants. Eur J Pediatr. 2006;165(12): 859-866.
30. Sykes N, Thorns A. The use of opioids and sedatives at the end of life. Lancet Oncol. 2003;4(5):312-318.
31. Thorns A, Sykes N. Opioid use in last week of life and implications for end-of-life decision-making. Lancet. 2000;356(9227):398-399.