Implants and ethnocide: Learning from the cochlear implant controversy

Disability and Society

Volumn 25, Issue 4, 2010, Pages 455-466

  Sparrow, Robert ^a  

^a MONASH UNIVERSITY   (Australia)

Author keywords

Cochlear implants; Deaf culture; Deafness; Ethics; Genetic testing; PGD; Preimplantation genetic diagnosis

Indexed keywords

EID: 77953307885     PISSN: 09687599     EISSN: 13600508     Source Type: Journal    
DOI: 10.1080/09687591003755849     Document Type: Article

References (61)

1. Adams, D. 1979. The hitchhiker's guide to the galaxy. London: Pan Books.
2. Anstey, K. 2002. Are attempts to have impaired children justifiable? Journal of Medical Ethics 28: 286-8.
3. Balkany, T.J., A.V. Hodges, and K.W. Goodman. 1996. Ethics of cochlear implantation in young children. Otolaryngology - Head and Neck Surgery 114: 748-55.
4. Balkany, T.J., A.V. Hodges, and K.W. Goodman. 1998. Additional comments: Ethics of cochlear implantation in young children. Otolaryngology - Head and Neck Surgery 119: 312-3.
5. Balkany, T.J., A.V. Hodges, R.T. Miyamoto, K. Gibbin, and O. Odabasi. 2001. Cochlear implants in children. Otolaryngologic Clinics of North America 34: 455-67.
6. Barringer, F. 1993. Pride in a soundless world: Deaf oppose a hearing aid. New York Times, May 16, A1.
7. Boorse, C. 1975. On the distinction between disease and illness. Philosophy and Public Affairs 5: 49-68.
8. Boorse, C. 1977. Health as a theoretical concept. Philosophy of Science 44: 542-73.
9. Christiansen, J.B., and I.W. Leigh. 2006. The dilemma of paediatric cochlear implants. In The deaf way II reader, ed. H. Goodstein, 363-9. Washington, DC: Gallaudet University Press.
10. Cochlear Limited. 2006. Cochlear Limited wins gold in New York. Cochlear Limited. http://www.cochlear.com/PDFs/Announcement_MDEA_June_06.pdf.
11. Cochlear Limited. 2007a. Cochlear wins 2007 DHL Australian Exporter of the Year Award. Cochlear Limited. http://www.cochlear.com/PDFs/Cochlear_Exporter_of_Year_Nov_2007.pdf.
12. Cochlear Limited. 2007b. Annual Report 2007. Cochlear Limited. http://www.cochlear.com/ PDFs/AR07_Editorial_070921.pdf.
13. Conrad, P., and J.W. Schneider. 1980. Deviance and medicalization: From badness to sickness. St Louis, MO: Mosby.
14. Cooper, R. 2007. Can it be a good thing to be deaf? Journal of Medicine and Philosophy 32: 563-83.
15. Copeland, B.J., and H.C. Pillsbury. 2004. Cochlear implantation for the treatment of deafness. Annual Review of Medicine 55: 157-67.
16. Crouch, R.A. 1997. Letting the deaf be deaf: Reconsidering the use of cochlear implants in prelingually deaf children. Hastings Center Report 27, no. 4: 14-21.
17. Daniels, N. 1985. Just health care. New York: Cambridge University Press.
18. Davis, L.J. 2007. Deafness and the riddle of identity. The Chronicle of Higher Education 53, no. 19: B5-B8.
19. Dillehay, J., and K. Arnos. 2006. The impact of genetics research on the deaf community. In The deaf way II reader, ed. H. Goodstein, 370-5. Washington, DC: Gallaudet University Press.
20. Doe, L. 2007. Cochlear implants: Are they really a threat to the deaf community? Deaf Worlds 23: 1-17.
21. Dolnick, E. 1993. Deafness as culture. The Atlantic Monthly 272, no. 3: 37-53.
22. Edwards, R.A.R. 2005. Sound and fury; or, much ado about nothing? Cochlear implants in historical perspective. The Journal of American History 92: 892-920.
23. Fukuyama, F. 2003. Our post-human future: Consequences of the biotechnology revolution. London: Profile Books.
24. Goodstein, H. 2006. Preface. The deaf way II reader, xiii-xxii. Washington, DC: Gallaudet University Press.
25. Gould, S.J. 1981. The mismeasure of man. Harmondsworth, UK: Penguin.
26. Harris, J. 2001. One principle and three fallacies of disability studies. Journal of Medical Ethics 27: 383-7.
27. Hintermair, M., and J.A. Albertini. 2005. Ethics, deafness, and new medical technologies. The Journal of Deaf Studies and Deaf Education 10: 184-92.
28. Kauppinen, L. 2006. Our inalienable rights: Global realisation of the human rights of deaf people. In The deaf way II reader, ed. H. Goodstein, 10-16. Washington, DC: Gallaudet University Press.
29. Kubo, T., T. Iwaki, and T. Sasaki. 2008. Auditory perception and speech production skills of children with cochlear implant assessed by means of questionnaire batteries. ORL 70: 224-8.
30. Kukathas, C. 2003. The liberal archipelago. Oxford, UK: Oxford University Press.
31. Kymlicka, W. 1992. Liberal individualism and liberal neutrality. In Communitarianism and Individualism, ed. S. Avineri and A. De-Shalit, 165-85. Oxford, UK: Oxford University Press.
32. Ladd, P. 2002. Emboldening the deaf nation. Deaf Worlds 18: 88-95.
33. Ladd, P. 2006. What is deafhood and why is it important? In The deaf way II reader, ed. H. Goodstein, 245-50. Washington, DC: Gallaudet University Press.
34. Lane, H. 1984. When the mind hears: A history of the deaf. New York: Random House.
35. Lane, H. 1992. The mask of benevolence: Disabling the deaf community. New York: Alfred Knopf.
36. Lane, H. 1994. The cochlear implant controversy. WFD News 2/3: 22-8.
37. Lane, H., and B. Bahan. 1998a. Ethics of cochlear implantation in young children: A review and reply from a deaf-world perspective. Otolaryngology - Head and Neck Surgery 119: 297-308.
38. Lane, H., and B. Bahan. 1998b. Reply to the review: Ethics of cochlear implantation in young children. Otolaryngology - Head and Neck Surgery 119: 309-12.
39. Lane, H., and M. Grodin. 1997. Ethical issues in cochlear implant surgery: An exploration into disease, disability, and the best interests of the child. Kennedy Institute of Ethics Journal 7: 231-51.
40. Lane, H., R. Hoffmeister, and B. Bahan. 1996. A journey into the deaf-world. San Diego, CA: DawnSign Press.
41. Levy, N. 2002a. Reconsidering cochlear implants: The lessons of Martha's Vineyard. Bioethics 16: 134-53.
42. Levy, N. 2002b. Deafness, culture, and choice. Journal of Medical Ethics 28: 284-5.
43. Levy, N. 2007. Must publically funded research be culturally neutral? Virtual Mentor 9: 140-2.
44. Mundy, L. 2002. A world of their own. Washington Post Magazine, March 31, W22.
45. Murray, J.J. 2006. Genetics: A future peril facing the global deaf community. In The deaf way II reader, ed. H. Goodstein, 351-6. Washington, DC: Gallaudet University Press.
46. National Association of the Deaf. 1993. Cochlear implants: A position paper of the National Association of the Deaf. Silver Spring, MD: The National Association of the Deaf.
47. National Association of the Deaf. 2000. Cochlear implants: A position paper of the National Association of the Deaf. Silver Spring, MD: The National Association of the Deaf.
48. National Institute on Deafness and Other Communication Disorders. 2008. Cochlear implants. http://www.nidcd. nih.gov/health/hearing/coch.asp.
49. O'Donoghue, G.M., T.P. Nikolopoulos, and S.M. Archbold. 2000. Determinants of speech perception in children after cochlear implantation. Lancet 356: 466-8.
50. Padden, C., and T. Humphries. 1988. Deaf in America: Voices from a culture. Cambridge, MA: Harvard University Press.
51. Parens, E. 1995. The goodness of fragility: On the prospect of genetic technologies aimed at the enhancement of human capabilities. Kennedy Institute of Ethics Journal 5: 141-3.
52. Sandel, M.J. 2004. The case against perfection: What's wrong with designer children, bionic athletes, and genetic engineering. The Atlantic Monthly 293, no. 3: 51-62.
53. Shannon, R.V. 1998. Review: The ethics of cochlear implantation in young children. Otolaryngology - Head and Neck Surgery 119: 308-9.
54. Silver, A. 1992. Cochlear implants: Sure-fire prescription for long-term disaster. TBC News 53: 4-5.
55. Silver, L.M. 1999. Remaking Eden: Cloning, genetic engineering and the future of human kind. London: Phoenix.
56. Sparrow, R. 2005. Defending deaf culture: The case of cochlear implants. The Journal of Political Philosophy 13: 135-52.
57. Sparrow, R. 2008. Genes, identity, and the expressivist critique. In The sorting society, ed. L. Skene and J. Thompson, 111-32. Cambridge, UK: Cambridge University Press.
58. Taitelbaum-Swead, R., L. Kishon-Rabin, R. Kaplan-Neeman, C. Muchnik, J. Kronenberg, and M. Hildesheimer. 2005. Speech perception of children using Nucleus, Clarion, or Med-El cochlear implants. International Journal of Pediatric Otorhinolaryngology 69: 1675-83.
59. Tucker, B.P. 1998. Deaf culture, cochlear implants, and elective disability. Hastings Center Report 28, no. 4: 6-14.
60. Vermeerbergen, M. 2006. Past and current trends in sign language research. Language & Communication 26: 168-92.
61. Wilson, R. 1997. Bringing them home: Report of the national inquiry into the separation of Aboriginal and Torres Strait Islander children from their families. Sydney: Human Rights and Equal Opportunity Commission.