Perceptions of psychological issues related to dysphagia differ in acute and chronic patients

Dysphagia

Volumn 25, Issue 1, 2010, Pages 26-34

  Martino, Rosemary ^a,b   Beaton, Dorcas ^c   Diamant, Nicholas E ^a,b  

^a UNIVERSITY OF TORONTO   (Canada)

^b UNIVERSITY HEALTH NETWORK   (Canada)

^c ST MICHAEL'S HOSPITAL   (Canada)

Author keywords

Acute; Chronic; Deglutition; Deglutition disorders; Outcome; Psychology; Qualitative research

Indexed keywords

ADULT; AGED; AIRWAY OBSTRUCTION; ANXIETY; ARTICLE; ASPIRATION PNEUMONIA; CAREGIVER; CHRONIC PATIENT; CLINICAL ARTICLE; CONTROLLED STUDY; CONVALESCENCE; DEPRESSION; DYSPHAGIA; DYSPNEA; FEMALE; FRUSTRATION; GROUNDED THEORY; HUMAN; INFORMATION PROCESSING; MALE; MALNUTRITION; MENTAL HEALTH CARE; PATIENT ATTITUDE; PHYSICIAN ATTITUDE; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; QUALITATIVE ANALYSIS; SAMPLING; SOCIAL BEHAVIOR;

ACUTE DISEASE; ANXIETY DISORDERS; CHRONIC DISEASE; DEGLUTITION DISORDERS; FEAR; HUMANS;

EID: 77953290119     PISSN: 0179051X     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00455-009-9225-0     Document Type: Article

References (32)

1. Ekberg O, Hamdy S, Woisard V, Wuttge-Hannig A, Ortega P. Social and psychological burden of dysphagia: Its impact on diagnosis and treatment. Dysphagia. 2002;17(2):139-146 doi: 10.1007/s00455-001-0113-5. (Pubitemid 36919842)
2. Gustafsson B, Theorell T. Adaptedness and coping in dysphagic students. Dysphagia. 1995;10:86-92. doi:10.1007/BF00440077.
3. Jacobsson C, Axelsson K, Osterlind PO, Norberg A. How people with stroke and healthy older people experience the eating process. J Clin Nurs. 2000;9(2):255-264 doi:10.1046/j.1365-2702. 2000.00355.x.
4. Tibbling L, Gustafsson B. Dysphagia and its consequences in the elderly. Dysphagia. 1991;6:200-202 doi:10.1007/BF02493526.
5. McHorney CA, Bricker DE, Kramer AE, Rosenbek JC, Robbins J, Chignell KA, et al. The SWAL-QOL outcomes tool for oropharyngeal dysphagia in adults: I. Conceptual foundation and item development. Dysphagia. 2000;15:115-121 (see comments). (Pubitemid 30411767)
6. Chen AY, Frankowski R, Bishop-Leone J, Hebert T, Leyk S, Lewin J, et al. The development and validation of a dysphagiaspecific quality-of-life questionnaire for patients with head and neck cancer: The MD. Anderson dysphagia inventory. Arch Otolaryngol Head Neck Surg. 2001;127:870-876
7. Gillespie MB, Brodsky MB, Day TA, Lee FS, Martin-Harris B. Swallowing-related quality of life after head and neck cancer treatment. Laryngoscope. 2004;114:1362-7. doi:10.1097/0000 5537-200408000-200500008
8. McHorney CA, Robbins J, Lomax K, Rosenbek JC, Chignell K, Kramer AE, et al. The SWAL-QOL and SWAL-CARE outcomes tool for oropharyngeal dysphagia in adults: III. Documentation of reliability and validity. Dysphagia. 2002;17:97-114. doi:10.1007/s00455-001-0109-1. (Pubitemid 36919838)
9. Martino R, Beaton D, Diamant NE. Using different perspectives to generate items for the MOD: A new scale of medical outcomes for dysphagia. J Clin Epidemiol. 2009;62:518-526
10. Carr AJ, Gibson B, Robinson PG. Measuring quality of life: Is quality of life determined by expectations or experience? BMJ. 2001;322(7296):1240-1243 doi:10.1136/bmj.322.7296.1240.
11. Martino R, Diamant NE. Patients', physicians' views about psychosocial issues related to dysphagia. Dysphagia. 2005;20:84. (abstract).
12. Strauss A, Corbin J. Basics of qualitative research: Techniques and procedures for developing grounded theory. 2nd ed. Thousand Oaks, CA: Sage Publications; 1998.
13. Charmaz K. 'Discovering' chronic illness: Using grounded theory. Soc Sci Med. 1990;30:1161-1172 doi:10.1016/0277-9536(90) 90256-R.
14. Charmaz K. Grounded theory: Objectivist and constructivist methods. In: Denzin NK, Lincoln YS, editors. The handbook of qualitative research. 2nd ed. Thousand Oaks, CA: Sage Publications; 2000. p. 509-535
15. Madriz E. Focus groups in feminist research. In: Denzin NK, Lincoln YS, editors. Handbook of qualitative research. Thousand Oaks, CA: Sage Publications; 2000. p. 835-850
16. Verbrugge LM, Juarez L. Profile of arthritis disability. Public Health Rep. 2001;116(Suppl 1):157-179
17. Miles MB, Huberman AM. Qualitative data analysis: An expanded sourcebook. 2nd ed. Thousand Oaks, CA: Sage Publications; 1994.
18. Krueger RA. Focus groups: A practical guide for applied research. Thousand Oaks, CA: Sage Publications; 1994.
19. Rice PL, Ezzy D. Qualitative research methods: A health focus. Toronto: Oxford University Press; 1999.
20. Krueger RA. Developing questions for focus groups. Thousand Oaks, CA: Sage Publications; 1998.
21. Meadows LM, Morse JM. Constructing evidence within the qualitative project. In: Morse JM, Swanson JM, Kuzel AJ, editors. The nature of qualitative evidence. Thousand Oaks, CA: Sage Publications; 2001. p. 187-202.
22. Kaplan RM. Quality of life: An outcomes perspective. Arch Phys Med Rehabil. 2002;83 Suppl 2(12):S44-50. doi:10.1053/apmr. 2002.36955. (Pubitemid 35424688)
23. McQuellon RP, Russell GB, Rambo TD, Craven BL, Radford J, Perry JJ, et al. Quality of life and psychological distress of bone marrow transplant recipients: The 'time trajectory' to recovery over the first year. Bone Marrow Transplant. 1998;21:477-486 doi:10.1038/sj.bmt.1701115.
24. Hammerlid E, Ahlner-Elmqvist M, Bjordal K, Biorklund A, Evensen J, Boysen M, et al. A prospective multicentre study in Sweden and Norway of mental distress and psychiatric morbidity in head and neck cancer patients. Br J Cancer. 1999;80:766-774 doi:10.1038/sj.bjc.6690420. (Pubitemid 29209839)
25. Hammerlid E, Silander E, Hornestam L, Sullivan M. Healthrelated quality of life three years after diagnosis of head and neck cancer-a longitudinal study. Head Neck. 2001;23:113-125 doi: 10.1002/1097-0347(200102)23:2<113:: AID-HED1006>3.0.CO; 2-W. (Pubitemid 32060662)
26. De Boer MF, McCormick LK, Pruyn JF, Ryckman RM, van den Borne BW. Physical and psychosocial correlates of head and neck cancer: A review of the literature. Otolaryngol Head Neck Surg. 1999;120:427-436 doi:10.1016/S0194- 5998(99)70287-1. (Pubitemid 29135882)
27. Wilkinson PR, Wolfe CD, Warburton FG, Rudd AG, Howard RS, Ross-Russell RW, et al. A long-term follow-up of stroke patients. Stroke. 1997;28:507-512
28. Nguyen NP, Sallah S, Karlsson U, Antoine JE. Combined chemotherapy and radiation therapy for head and neck malignancies: Quality of life issues. Cancer. 2002;94:1131-1141 doi:10.1002/cncr. 10257.
29. Cowan MJ, Pike KC, Budzynski HK. Psychosocial nursing therapy following sudden cardiac arrest: Impact on two-year survival. Nurs Res. 2001;50:68-76. doi:10.1097/00006199-200 103000-200002
30. Alonzo AA. The experience of chronic illness and post-traumatic stress disorder: The consequences of cumulative adversity. Soc Sci Med. 2000;50:1475-1484 doi:10.1016/S0277-9536(99)00399-8. (Pubitemid 30100392)
31. Fife BL, Huster GA, Cornetta KG, Kennedy VN, Akard LP, Broun ER. Longitudinal study of adaptation to the stress of bone marrow transplantation. J Clin Oncol. 2000;18:1539-1549
32. Olson K. Using qualitative research in clinical practice. Thousand Oaks, CA: Sage Publications; 2001.