Lewy body dementia: Caregiver burden and unmet needs

Alzheimer Disease and Associated Disorders

Volumn 24, Issue 2, 2010, Pages 177-181

  Galvin, James E ^a   Duda, John E ^b   Kaufer, Daniel I ^c   Lippa, Carol F ^d   Taylor, Angela ^e   Zarit, Steven H ^f  

^a WASHINGTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b UNIVERSITY OF PENNSYLVANIA   (United States)

^c UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

^d DREXEL UNIVERSITY COLLEGE OF MEDICINE   (United States)

^e Lewy Body Dementia Association   (United States)

^f PENNSYLVANIA STATE UNIVERSITY   (United States)

Author keywords

Caregiver burden; Lewy body dementia; Stress

Indexed keywords

ADULT; ARTICLE; CAREGIVER BURDEN; CAREGIVER SUPPORT; CASE MANAGER; COGNITIVE DEFECT; DAY CARE; DIFFUSE LEWY BODY DISEASE; EMERGENCY CARE; EMOTIONAL STRESS; FEAR; FEMALE; GERIATRIC CARE; HEALTH CARE NEED; HEALTH CARE ORGANIZATION; HEALTH CARE UTILIZATION; HUMAN; INTERNET; LAW ENFORCEMENT; MALE; MARRIAGE; MEDICAL INFORMATION; MEDICAL RESEARCH; MENTAL HEALTH CARE; MOTOR DYSFUNCTION; NORMAL HUMAN; PRIORITY JOURNAL; RESPITE CARE; SOCIAL ASPECT; SOCIAL ISOLATION; SOCIAL SUPPORT; SUPPORT GROUP; UNCERTAINTY;

CAREGIVERS; COST OF ILLNESS; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; LEWY BODY DISEASE; MALE; MIDDLE AGED; SOCIAL SUPPORT;

EID: 77953275669     PISSN: 08930341     EISSN: None     Source Type: Journal    
DOI: 10.1097/WAD.0b013e3181c72b5d     Document Type: Article

References (28)

1. Lippa CF, Duda JE, Grossman M, et al. DLB/PDD Working Group. DLB and PDD boundary issues: diagnosis, treatment, molecular pathology, and biomarkers. Neurology. 2007;68:812-819.
2. Lewy Body Dementia Association website (www. LBDA.org). [Accessed on: August 28, 2009].
3. McKeith IG, Dickson DW, Lowe J, et al. Consortium on DLB. Diagnosis and management of dementia with Lewy bodies: third report of the DLB Consortium. Neurology. 2005;65:1863-1872.
4. Emre M, Aarsland D, Brown R, et al. Clinical diagnostic criteria for dementia associated with Parkinson's disease. Mov Disord. 2007;22:1689-1707. (Pubitemid 47597592)
5. Sanders S, Ott CH, Kelber ST, et al. The experience of high levels of grief in caregivers of persons with Alzheimer's disease and related dementia. Death Stud. 2008;32:495-523.
6. Gruffydd E, Randle J. Alzheimer's disease and the psychosocial burden for caregivers. Community Pract. 2006;79:15-18.
7. Roth DL, Mittelman MS, Clay OJ, et al. Changes in social support as mediators of the impact of a psychosocial intervention for spouse caregivers of persons with Alzheimer's disease. Psychol Aging. 2005;20:634-644.
8. Mittelman MS, Roth DL, Clay OJ, et al. Preserving health of Alzheimer caregivers: impact of a spouse caregiver intervention. Am J Geriatr Psychiatry. 2007;15:780-789.
9. Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980;20:649-655.
10. Alzheimer Association website (www.alz.org). [Accessed on: August 28, 2009].
11. Williams MM, Xiong C, Morris JC, et al. Survival and mortality differences between dementia with Lewy bodies vs. Alzheimer disease. Neurology. 2006;67:1935-1941.
12. McKeith IG, Rowan E, Askew K, et al. More severe functional impairment in dementia with Lewy bodies than Alzheimer disease is related to extrapyramidal motor dysfunction. Am J Geriatr Psychiatry. 2006;14:582-588.
13. Bostrom F, Jonsson L, Minthon L, et al. Patients with Lewy body dementia use more resources than those with Alzheimer disease. Int J Geriatr Psychiatry. 2007;22:713-719.
14. Ricci M, Guidoni SV, Sepe-Monti M, et al. Clinical findings, functional abilities and caregiver distress in the early stage of dementia with Lewy bodies (DLB) and Alzheimer's disease (AD). Arch Gerontol Geriatr. 2009;49:E101-e104.
15. Boström F, Jönsson L, Minthon L, et al. Patients with dementia with Lewy bodies have more impaired quality of life than patients with Alzheimer disease. Alzheimer Dis Assoc Disord. 2007;21:150-154.
16. Sussman T. The influence of service factors on spousal caregivers' perceptions of community services. J Gerontol Soc Work. 2009;52:406-422.
17. Sussman T, Regehr C. The influence of community-based services on the burden of spouses caring for their partners with dementia. Health Soc Work. 2009;34:29-39.
18. Mioshi E, Bristow M, Cook R, et al. Factors underlying caregiver stress in frontotemporal dementia and Alzheimer's disease. Dement Geriatr Cogn Disord. 2009;27:76-81.
19. Stella F, Banzato CE, Quagliato EM, et al. Psychopathological features in patients with Parkinson's disease and related caregivers' burden. Int J Geriatr Psychiatry. 2009;24:1158-1165.
20. Yilmaz A, Turan E, Gundogar D. Predictors of burnout in the family caregivers of Alzheimer's disease: evidence from Turkey. Australas J Ageing. 2009;28:16-21.
21. Molyneux GJ, McCarthy GM, McEniff S, et al. Prevalence and predictors of carer burden and depression in carers of patients referred to an old age psychiatric service. Int Psychogeriatr. 2008;20:1193-1202.
22. Ferrara M, Langiano E, Di Brango T, et al. Prevalence of stress, anxiety and depression in with Alzheimer caregivers. Health Qual Life Outcomes. 2008;6:93.
23. Di Mattei VE, Prunas A, Novella L, et al. The burden of distress in caregivers of elderly demented patients and its relationship with coping strategies. Neurol Sci. 2008;29:383-389.
24. Etters L, Goodall D, Harrison BE. Caregiver burden among dementia patient caregivers: a review of the literature. J Am Acad Nurse Pract. 2008;20:423-428.
25. Dang S, Badiye A, Kelkar G. The dementia caregiver-a primary care approach. South Med J. 2008;101:1246-1251.
26. Fortinsky RH, Kulldorff M, Kleppinger A, et al. Dementia care consultation for family caregivers: collaborative model linking an Alzheimer's association chapter with primary care physicians. Aging Ment Health. 2009;13:162-170.
27. Andrén S, Elmståhl S. The relationship between caregiver burden, caregivers' perceived health and their sense of coherence in caring for elders with dementia. J Clin Nurs. 2008;17:790-799.
28. Holley CK, Mast BT. The impact of anticipatory grief on caregiver burden in dementia caregivers. Gerontologist. 2009;49:388-396.