Addressing low literacy and health literacy in clinical oncology practice

Journal of Supportive Oncology

Volumn 8, Issue 2, 2010, Pages 64-69

  Garcia, Sofia F ^a   Hahn, Elizabeth A ^a   Jacobs, Elizabeth A ^b  

^a NORTHWESTERN UNIVERSITY   (United States)

^b RUSH UNIVERSITY MEDICAL CENTER   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CANCER RESEARCH; CLINICAL PRACTICE; CLINICAL RESEARCH; HEALTH CARE DELIVERY; HEALTH CARE NEED; HEALTH CARE SYSTEM; HEALTH EDUCATION; HEALTH SERVICE; ONCOLOGY; OUTCOME ASSESSMENT; SKILL; VERBAL COMMUNICATION; ATTITUDE TO HEALTH; CONSUMER HEALTH INFORMATION; HUMAN; INTERPERSONAL COMMUNICATION; PATIENT EDUCATION; PRACTICE GUIDELINE; STANDARD; UTILIZATION REVIEW;

COMMUNICATION; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH LITERACY; HEALTH SERVICES; HUMANS; MEDICAL ONCOLOGY; PATIENT EDUCATION AS TOPIC; PRACTICE GUIDELINES AS TOPIC;

EID: 77953059229     PISSN: 15446794     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (33)

1. Kutner M, National Center for Education Statistics. Literacy in Everyday Life: Results from the 2003 National Assessment of Adult Literacy (NCES 2007-480). US Department of Education. Washington, DC: National Center for Education Statistics; 2007.
2. Kutner M, Greenberg E, Jin Y, Paulsen C. The Health Literacy of America's Adults. Washington, DC: National Center for Education Statistics: US Department of Education; 2006. NCES publication 2006-483.
3. US Department of Health and Human Services. Healthy People 2010: Understanding and Improving Health. 2nd ed. Washington, DC: US Government Printing Office; 2000.
4. Committee on Health Literacy, Nielsen- Bohlman L, Panzer AM, Kindig DA. Health Literacy: A Prescription to End Confusion. Washington, DC: The National Academies Press; 2004.
5. Berkman ND, DeWalt DA, Pignone MP, et al. Literacy and Health Outcomes. Evidence Report/ Technology Assessment no. 87. Rockville, MD: Agency for Healthcare Research and Quality; 2004. AHRQ publication 04-E007-2.
6. Hahn EA, Cella D. Health outcomes assessment in vulnerable populations: measurement challenges and recommendations. Arch Phys Med Rehabil 2003;84(suppl 2):S35-S42. [12692770]
7. Baker DW, Gazmararian JA, Williams MV, et al. Functional health literacy and the risk of hospital admission among Medicare managed care enrollees. Am J Public Health 2002;92:1278- 1283. [12144984]
8. Kim SP, Knight SJ, Tomori C, et al. Health literacy and shared decision making for prostate cancer patients with low socioeconomic status. Cancer Invest 2001;19:684-691. [11577809]
9. Scott TL, Gazmararian JA, Williams MV, Baker DW. Health literacy and preventive health care use among Medicare enrollees in a managed care organization. Med Care 2002;40:395- 404. [11961474]
10. Howard DH, Gazmararian J, Parker RM. The impact of low health literacy on the medical costs of Medicare managed care enrollees. Am J Med 2005;118:371-377. [15808134]
11. Baker DW. The meaning and the measure of health literacy. J Gen Intern Med 2006;21:878- 883. [16881951]
12. Westin SN, Bustillos D, Gano JB, et al. Social factors affecting treatment of cervical cancer: ethical issues and policy implications. Obstet Gynecol 2008;111:747-751. [18310380]
13. Foltz A, Sullivan J. Get real: clinical testing of patients' reading abilities. Cancer Nurs 1998;21:162-166. [9615506]
14. Jubelirer SJ, Linton JC, Magnetti SM. Reading versus comprehension: implications for patient education and consent in an outpatient oncology clinic. J Cancer Educ 1994;9:26-29.
15. Davis TC, Long SW, Jackson RH, et al. Rapid estimate of adult literacy in medicine: a shortened screening instrument. Fam Med 1993;25:391-395. [8349060]
16. Parker RM, Baker DW, Williams MV, Nurss JR. The test of functional health literacy in adults: a new instrument for measuring patients' literacy skills. J Gen Intern Med 1995;10:537-541. [8576769]
17. Baker DW, Williams MV, Parker RM, Gazmararian JA, Nurss J. Development of a brief test to measure functional health literacy. Patient Educ Couns 1999;38:33-42. [14528569]
18. Yost KJ, Webster K, Baker DW, Choi SW, Bode RK, Hahn EA. Bilingual health literacy assessment using the Talking Touchscreen/la Pantalla Parlanchina: development and pilot testing. Patient Educ Couns 2009;75:295-301. [19386462]
19. Hahn EA, Cella D, Dobrez DG, et al. Quality of life assessment for low literacy Latinos: a new multimedia program for self-administration. J Oncol Manag 2003;12:9-12. [14619989]
20. Hahn EA, Cella D, Dobrez D, et al. The Talking Touchscreen: a new approach to outcomes assessment in low literacy. Psycho-oncology 2004;13:86-95. [14872527]
21. Rudd RE, Renzulli D, Pereira A, Daltroy L. Literacy demands in health care settings: the patient perspective. In: Schwartzberg JG, VanGeest J, Wang CC, eds. Understanding Health Literacy: Implications for Medicine and Public Health. Chicago, IL: American Medical Association; 2005:69-84.
22. Plain Language Action and Information Network (PLAIN). Improving communication from the Federal Govern ment to the Public. www.plainlanguage.gov/. Accessed March 8, 2010.
23. Centers for Disease Control and Prevention. Scientific and technical information: simply put. 1999. www.cdc.gov/DHDSP/cdcyn-ergy_training/Content/activeinformation/re-sources/simpput.pdf. Accessed March 15, 2010.
24. Doak CC, Doak LG, Root JH. Teaching Patients with Low Literacy Skills. Philadelphia, PA: J.B. Lippincott; 1996.
25. National Cancer Institute. Pink Book- Making Health Communications Programs Work. 1989. www.cancer.gov/pinkbook. Accessed March 8, 2010.
26. Paasche-Orlow MK. The challenges of informed consent for low-literate populations. In: Schwartzberg JG, VanGeest J, Wang CC, eds. Understanding Health Literacy: Implications for Medicine and Public Health. Chicago, IL: American Medical Association; 2005:119-140.
27. Coyne CA, Xu R, Raich P, et al. Randomized, controlled trial of an easy-to-read informed consent statement for clinical trial participation: a study of the Eastern Cooperative Oncology Group. J Clin Oncol 2003;21:836-842. [12610182]
28. Sudore RL, Landefeld CS, Barnes DE, et al. An advance directive redesigned to meet the literacy level of most adults: a randomized trial. Patient Educ Couns 2007;69:165-195. [17942272]
29. Brown RF, Butow PN, Dunn SM, Tattersall MH. Promoting patient participation and shortening cancer consultations: a randomised trial. Br J Cancer 2001;85:1273-1279. [11720460]
30. Surgeon General. Proceedings of the Surgeon General's 2006 Workshop on Improving Health Literacy. 2006. www.surgeongeneral.gov/ topics/healthliteracy/toc.html. Accessed March 8, 2010.
31. US Department of Health and Human Services. Usability Basics. http://www.usability. gov/basics/index.html. Accessed March 8, 2010.
32. US Department of Health and Human Services, Office of Disease Prevention and Health Promotion. Quick guide to health literacy. 2006. www.health.gov/communication/literacy/quick-guide/. Accessed March 8, 2010.
33. The Joint Commission. What did the doctor say? Improving health literacy to protect patient safety. 2007. www.jointcommission.org/ newsroom/presskits/health_literacy. Accessed March 15, 2010.