Paediatric palliative home care by general paediatricians: A multimethod study on perceived barriers and incentives

BMC Palliative Care

Volumn 9, Issue , 2010, Pages

  Jünger, Saskia ^a   Vedder, Andrea E ^a   Milde, Sigurd ^b   Fischbach, Thomas ^b   Zernikow, Boris ^c   Radbruch, Lukas ^a  

^a UNIVERSITY HOSPITAL RWTH AACHEN   (Germany)

^b Landesverband Westfalen Lippe ^*  (Germany)

^c Clinic for Children and Adolescents Datteln   (Germany)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; COMMUNICATION SKILL; COMPETENCE; CONSULTATION; GENERAL PRACTICE; GENERAL PRACTITIONER; HEALTH CARE FACILITY; HEALTH EDUCATION; HOME CARE; HUMAN; MAJOR CLINICAL STUDY; MEDICAL PROFESSION; PALLIATIVE NURSING; PALLIATIVE THERAPY; PEDIATRICIAN; PROFESSIONAL PRACTICE; QUALITATIVE ANALYSIS; QUESTIONNAIRE;

EID: 77953003523     PISSN: None     EISSN: 1472684X     Source Type: Journal    
DOI: 10.1186/1472-684X-9-11     Document Type: Article

References (26)

1. Hospital staff and family perspectives regarding quality of pediatric palliative care. NA Contro J Larson S Scofield B Sourkes HJ Cohen, Pediatrics 2004 114 5 1248 1252 10.1542/peds.2003-0857-L 15520103
2. Pediatric palliative care: an assessment of physicians' confidence in skills, desire for training, and willingness to refer for end-of-life care. MJ Sheetz MA Bowman, Am J Hosp Palliat Care 2008 25 2 100 105 10.1177/ 1049909107312592 18445861
3. ABC of palliative care. Special problems of children. A Goldman, BMJ 1998 316 7124 49 52 9451269
4. The child's journey: Transition from health to ill-health. JL Hynson, Oxford Textbook of Palliative Care for Children Oxford: Oxford University Press, Ann Goldman, Richard Hain, Stephen Liben, 2006 14 27
5. The dying child: how is care different? JL Hynson J Gillis JJ Collins H Irving SJ Trethewie, Med J Aust 2003 179 6 Suppl 20 22 12964930
6. Prevalence and morbidity associated with non-malignant, life-threatening conditions in childhood. S Lenton P Stallard M Lewis K Mastroyannopoulou, Child Care Health Dev 2001 27 5 389 398 10.1046/j.1365-2214.2001.00216.x 11531912
7. When a child cannot be cured - reflections of health professionals. S De Graves S Aranda, Eur J Cancer Care (Engl) 2005 14 2 132 140 10.1111/j.1365-2354. 2005.00520.x 15842460
8. Issues related to providing quality pediatric palliative care in the community. JM Carroll C Torkildson JS Winsness, Pediatr Clin North Am 2007 54 5 813 827 xiii 10.1016/j.pcl.2007.06.002 17933625
9. Barriers to palliative care for children: perceptions of pediatric health care providers. B Davies SA Sehring JC Partridge BA Cooper A Hughes JC Philp A Amidi-Nouri RF Kramer, Pediatrics 2008 121 2 282 288 10.1542/peds.2006-3153 18245419
10. Paediatric palliative care: challenges and emerging ideas. S Liben D Papadatou J Wolfe, Lancet 2008 371 9615 852 864 10.1016/S0140-6736(07)61203-3 17707080
11. American Academy of Pediatrics. Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics 2000 106 2 Pt 1 351 357 10920167
12. A Call for Change: Recommendations to Improve the Care of Children Living with Life-Threatening Conditions. ChiPPS, Alexandria, Virginia: Children's International Project on Palliative/Hospice Services, National Hospice and Palliative Care Organization 2001
13. Modellprojekt "Landesinitiative NRW zur ambulanten Palliativversorgung von Kindern und Jugendlichen". Landesministerium Nordrhein-Westfalen, Düsseldorf: Ministerium für Arbeit Gesundheit und Soziales 2007
14. Experteninterviews und qualitative Inhaltsanalyse. J Gläser G Laudel, 2., durchgesehene Auflage. Wiesbaden: Verlag für Sozialwissenschaften 2006
15. Qualitative Inhaltsanalyse. Grundlagen und Techniken. P Mayring, 8., Auflage. Weinheim und Basel: Beltz Verlag 2003
16. WHO Definition of Palliative Care. http://www.who.int/cancer/palliative/ definition/en/
17. Research Methods In Health. Investigating Health And Health Services. A Bowling, Berkshire: Open University Press. McGraw-Hill Education Second 2007
18. Delphi-Befragungen. Ein Arbeitsbuch. M Häder, 1. Auflage. Wiesbaden: Westdeutscher Verlag 2002
19. A guide to the development of children's palliative care services. Association for Children with Life Threatening or Terminal Conditions and their Families and Royal College of Paediatrics and Child Health, Bristol, London: ACT, RCPCH 1997
20. Current status of pain management in children. RF Howard, JAMA 2003 290 18 2464 2469 10.1001/jama.290.18.2464 14612483
21. Attitudes and beliefs about medication and pain management in children. PJ McGrath GA Finley, J Palliat Care 1996 12 3 46 50 8885571
22. Grundlagen der Palliativversorgung: Strukturelle Grundlagen. B Zernikow E Michel, Palliativversorgung bei Kindern, Jugendlichen und jungen Erwachsenen Heidelberg: Springer Medizin Verlag, Zernikow B, 2008 3 32
23. Parent and physician perspectives on quality of care at the end of life in children with cancer. JW Mack JM Hilden J Watterson C Moore B Turner HE Grier JC Weeks J Wolfe, J Clin Oncol 2005 23 36 9155 9161 10.1200/JCO.2005.04.010 16172457
24. Introduction of a pediatric palliative care curriculum for pediatric residents. JD Schiffman LJ Chamberlain L Palmer N Contro B Sourkes TC Sectish, J Palliat Med 2008 11 2 164 170 10.1089/jpm.2007.0194 18333729
25. Hospiz- und Palliativerhebung 2009 Bericht. G Lindena S Woskanjan R Fahland, Kleinmachnow: CLARA Clinical Analysis, Research and Application 2009 19763633
26. Building capacity to provide palliative care in rural and remote communities: does education make a difference? ML Kelley S Habjan J Aegard, J Palliat Care 2004 20 4 308 315 15690834