Using focus groups in community-based participatory research: Challenges and resolutions

Qualitative Health Research

Volumn 20, Issue 5, 2010, Pages 697-706

  Makosky Daley, Christine ^a   James, Aimee S ^b   Ulrey, Ezekiel ^a   Joseph, Stephanie ^a   Talawyma, Angelia ^a   Choi, Won S ^a   Greiner, K Allen ^a   Coe, M Kathryn ^c  

^a UNIVERSITY OF KANSAS MEDICAL CENTER   (United States)

^b WASHINGTON UNIVERSITY   (United States)

^c UNIVERSITY OF ARIZONA   (United States)

Author keywords

Cancer; Community partnerships; Disparities; Health care; Race and racism; Racial; Research participation; Technology; Use in research

Indexed keywords

AMERICAN INDIAN; ARTICLE; HUMAN; INFORMATION PROCESSING; METHODOLOGY; ORGANIZATION AND MANAGEMENT; PARTICIPATORY RESEARCH; UNITED STATES;

COMMUNITY-BASED PARTICIPATORY RESEARCH; FOCUS GROUPS; HUMANS; INDIANS, NORTH AMERICAN; KANSAS; MISSOURI;

EID: 77952330641     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732310361468     Document Type: Article

References (48)

1. American Cancer Society. (2004). Cancer facts & figures 2004. Atlanta, GA: Author.
2. American Cancer Society. (2008). Cancer facts & figures 2008. Atlanta, GA: Author.
3. Arcury, T.A., Quandt, S.A., & Dearry, A. (2001). Farmworker pesticide exposure and community-based participatory research: Rationale and practical applications. Environmental Health Perspectives, 109 (Suppl. 3). 429-434.
4. Begaye, J., Deal, A., Braiuca, S., Daley, C.M., & Choi, W.S. (2007, September). Strategies for involving youth in tobacco prevention in a Native community in the heartland. Poster presentation at the Spirit of Eagles 7th National Changing Patterns of Cancer in Native Communities: The Power of Partnerships, Minneapolis, MN.
5. Bernard, H.R. (2006). Research methods in anthropology: Qualitative and quantitative approaches (4 th ed.). Lanham, MD: AltaMira Press.
6. Bogart, L.M., & Uyeda, K. (2009). Community-based participatory research: Partnering with communities for effective and sustainable behavioral health interventions. Health Psychology, 28 (4). 391-393.
7. Braiuca, S., Choi, W.S., Nazir, N., Yount, J., Kaur, B., Weir, M., et al. (2008, November). Patterns of breast and colorectal cancer screening among American Indians in Kansas and Kansas City, MO. Poster presentation at the University of Kansas Cancer Center Fall Symposium, Kansas City, KS.
8. Briscoe, J., Prue, R., Weir, M., Begaye, J., Greiner, K.A., & Daley, C.M. (2008, October). Colorectal cancer screening barriers among American Indians in the Kansas City area. Poster presentation at the Kansas Department of Health and Environment, Center for Health Disparities, "Healthy Cultures, Healthy Kansas," Topeka, KS.
9. Burhansstipanov, L., Christopher, S., & Schumacher, S.A. (2005). Lessons learned from community-based participatory research in Indian country. Cancer Control, 12 (Suppl. 2). 70-76.
10. Caldwell, J.Y., Davis, J.D., Du Bois, B., Echo-Hawk, H., Erickson, J.S., Goins, R.T., et al. (2005). Culturally competent research with American Indians and Alaska Natives: Findings and recommendations of the first symposium of the work group on American Indian research and program evaluation methodology. American Indian and Alaska Native Mental Health Research, 12 (1). 1-21.
11. Choi, W., Barnoskie, R., Schupbach, R., Wilkett, D., Daley, C.M., & Ahluwalia, J.S. (2004, October). Focus groups of Native American smokers. Paper presented at the Indian Health Service Summit: Healthier Indian Communities through Partnerships and Prevention, Washington, DC.
12. Choi, W., & Daley, C.M. (2006, November). Creating a culturally-appropriate smoking cessation program for American Indians/Alaska Natives using CMA to tailor at all levels. Paper presented at the Annual Meeting of the American Anthropological Association, San Jose, CA.
13. Choi, W., Daley, C.M., Nazir, N., Braiuca, S.L., Brokenleg, S.L., Talawyma, M., et al. (2010, February). Baseline characteristics of American Indian smokers in a pilot cessation study. Poster presentation at the Society for Research on Nicotine & Tobacco Annual Meeting, Baltimore, MD.
14. Choi, W., Daley, C.M., Segraves, M., Barnoskie, R., James, A.S., & Schupbach, R. (2006, February). Addressing smoking cessation among Native Americans. Poster presentation at the Society for Research on Nicotine and Tobacco Annual Meeting, Orlando, FL.
15. Christopher, S., Smith, A., & McCormick, A.K. (2005). Participatory development of a cervical health brochure for Apsaalooke women. Journal of Cancer Education: The Official Journal of the American Association for Cancer Education, 20 (3). 173-176.
16. Coe, K., Wilson, C., Eisenberg, M., Attakai, A., & Lobell, M. (2006). Creating the environment for a successful community partnership. Cancer, 107 (Suppl. 8). 1980-1986.
17. Cristancho, S., Garces, D.M., Peters, K.E., & Mueller, B.C. (2008). Listening to rural Hispanic immigrants in the Midwest: A community-based participatory assessment of major barriers to health care access and use. Qualitative Health Research, 18, 633-646.
18. Daley, C. (2009, November). American Indians & tobacco: Sacred use, abuse, and treatment. Paper presented at the Cancer Center Research Symposium, Kansas City, KS.
19. Daley, C., Choi, W.S., James, A.S., Schupbach, R., Barnoskie, R., Coachman, C., et al. (2005, March). A Pan-Indian smoking cessation program: Is this even possible? Paper presented at the National Association for Native American Studies Annual Meeting, Houston, Texas.
20. Daley, C., Filippi-Franz, M., James, A.S., Weir, M.M., Braiuca, S.L., Kaur, B., et al. (2009). Provider and community leader views of needs and barriers to mammography among American Indians. Manuscript submitted for publication.
21. Daley, C., Filippi-Franz, M., Nazir, N., James, A., Greiner, K.A., & Choi, W.S. (2009). Patterns of breast cancer screening among American Indians in the Midwest. Manuscript submitted for publication.
22. Daley, C., James, A.S., McCloskey, C., Wilkett, D., & Choi, W.S. (2005, November). Challenges in developing an evidence-based smoking cessation program for a heterogeneous American Indian population. Paper presented at the American Public Health Association Annual Meeting, Philadelphia, PA.
23. Daley, C., James, A.S., Weir, M.M., Filippi-Franz, M., Braiuca, S.L., Kaur, B., et al. (2009). American Indian community leader and provider views of needs and barriers to colon cancer screening. Manuscript submitted for publication.
24. Daley, C., Nazir, N.N., Greiner, K.A., James, A.S., & Choi, W.S. (2009). Colon cancer screening behaviors among American Indians in the Midwest. Manuscript submitted for publication.
25. Daley, C., Weir, M., Prue, R., Briscoe, J., Casey, G., & Greiner, K.A. (2007, November). American Indian community leader and provider views of needs and barriers to breast and colorectal cancer screening. Paper presented at the KUMC Faculty Research Day, Kansas City, KS.
26. Daley, C.M., Cowan, P., Nollen, N.L., Greiner, K.A., & Choi, W.S. (2009). Assessing the scientific accuracy, readability, and cultural appropriateness of a culturally-targeted smoking cessation program for American Indians. Health Promotion Practice, 10 (3). 386-393.
27. Daley, C.M., Prue, R., Briscoe, J., James, A.S., & Greiner, K.A. (2007, September). Community leader and provider views of breast and colorectal cancer screening needs and barriers for Native people in the heartland. Paper presented at the Spirit of Eagles 7th National Changing Patterns of Cancer in Native Communities: The Power of Partnerships, Minneapolis, MN.
28. English, K.C., Fairbanks, J., Finster, C.E., Rafelito, A., Luna, J., & Kennedy, M. (2008). A socioecological approach to improving mammography rates in a tribal community. Health Education & Behavior: The Official Publication of the Society for Public Health Education, 35 (3). 396-409.
29. Erickson, K., & Stull, D. (1998). Doing team ethnography: Warnings and advice (Vol. 42). Thousand Oaks: Sage.
30. Forster, J.L., Rhodes, K.L., Poupart, J., Baker, L.O., & Davey, C. (2007). Patterns of tobacco use in a sample of American Indians in Minneapolis-St. Paul. Nicotine & Tobacco Research: Official Journal of the Society for Research on Nicotine and Tobacco, 9 (Suppl. 1). S29 - S37.
31. Holkup, P.A., Salois, E.M., Tripp-Reimer, T., & Weinert, C. (2007). Drawing on wisdom from the past: An elder abuse intervention with tribal communities. Gerontologist, 47 (2). 248-254.
32. Horn, K., McCracken, L., Dino, G., & Brayboy, M. (2006). Applying community-based participatory research principles to the development of a smoking-cessation program for American Indian teens: "Telling our story." Health Education & Behavior: The Official Publication of the Society for Public Health Education, 35 (1). 44-69.
33. Israel, B.A., Eng, E., Schultz, A.J., & Parker, E.A. (2005). Methods in community-based participatory research for health. San Francisco: Jossey-Bass.
34. Johnson, V.A., Edwards, K.A., Sherman, S.L., Stephens, L.D., Williams, W., Adair, A., et al. (2009). Decisions to participate in fragile X and other genomics-related research: Native American and African American voices. Journal of Cultural Diversity, 16 (3). 127-135.
35. Karnieli-Miller, O., Strier, R., & Pessach, L. (2009). Power relations in qualitative research. Qualitative Health Research, 19, 279-289.
36. Kaur, J.S. (2005). The promise and the challenge of the Spirit of E.A.G.L.E.S. program. Journal of Cancer Education: The Official Journal of the American Association for Cancer Education, 20 (Suppl. 1). 2-6.
37. Kaur, J.S., Dignan, M., Burhansstipanov, L., Baukol, P., & Claus, C. (2006). The "Spirit of Eagles" legacy. Cancer, 107 (Suppl. 8). 1987-1994.
38. Letiecq, B.L., & Bailey, S.J. (2004). Evaluating from the outside: Conducting cross-cultural evaluation research on an American Indian reservation. Evaluation Review, 28 (4). 342-357.
39. Lutz, B.J., Kneipp, S., & Means, D. (2009). Developing a health screening questionnaire for women in welfare transition programs in the United States. Qualitative Health Research, 19, 105-115.
40. Noe, T.D., Manson, S.M., Croy, C., McGough, H., Henderson, J.A., & Buchwald, D.S. (2007). The influence of community-based participatory research principles on the likelihood of participation in health research in American Indian communities. Ethnicity & Disease, 17 (Suppl. 1). S6 - S14.
41. Okuyemi, K., Cox, L.S., Choi, W.S., & Ahluwalia, J.S. (2004). Smoking cessation in U.S. ethnic minority populations. Paper presented at the Vanguard Conference: Building on Success in Smoking Cessation, Washington, DC.
42. Ornelas, I.J., Amell, J., Tran, A.N., Royster, M., Armstrong-Brown, J., & Eng, E. (2009). Understanding African American mens perceptions of racism, male gender socialization, and social capital through photovoice. Qualitative Health Research, 19, 552-565.
43. Segraves, M., Choi, W.S., Daley, C.M., & Barnoskie, R. (2005, November). A smoking cessation program for American Indians. Surviving disparities: Embracing community wellness. Paper presented at the Annual Region VII American Indian Council Symposium, Kansas City, MO.
44. Smith, A., Christopher, S., & McCormick, A.K. (2004). Development and implementation of a culturally sensitive cervical health survey: A community-based participatory approach. Women & Health, 40 (2). 67-86.
45. Strickland, C.J. (2006). Challenges in community-based participatory research implementation: Experiences in cancer prevention with Pacific Northwest American Indian tribes. Cancer Control: Journal of the Moffitt Cancer Center, 13 (3). 230-236.
46. Teufel-Shone, N.I., Siyuja, T., Watahomigie, H.J., & Irwin, S. (2006). Community-based participatory research: Conducting a formative assessment of factors that influence youth wellness in the Hualapai community. American Journal of Public Health, 96 (9). 1623-1628.
47. Weir, M., Braiuca, S., Casey, G., Kaur, B., Greiner, K.A., & Daley, C.M. (2008, November). Breast cancer screening barriers among American Indian women in the Kansas City area. Poster presentation at the Kansas Department of Health and Environment, Center for Health Disparities, "Healthy Cultures, Healthy Kansas," Topeka, KS.
48. Weir, M., Daley, C.M., Braiuca, S.L., Kaur, B., & Greiner, K.A. (2008). Colorectal cancer screening barriers, attitudes, and knowledge among American Indian women over age 50 in Kansas. Poster presentation at the University of Kansas Cancer Center Fall Symposium, Kansas City, KS.