Individualized vs. global assessments of quality of life after head injury and their susceptibility to response shift

Brain Injury

Volumn 24, Issue 6, 2010, Pages 833-843

  Blair, Hannah ^a   Wilson, Lindsay ^a   Gouick, Jo ^b   Gentleman, Douglas ^c  

^a UNIVERSITY OF STIRLING   (United Kingdom)

^b ASTLEY AINSLIE HOSPITAL   (United Kingdom)

^c ROYAL VICTORIA HOSPITAL   (United Kingdom)

Author keywords

Quality of life; Response shift; Traumatic brain injury

Indexed keywords

ADULT; AGED; ARTICLE; CLINICAL ARTICLE; CONTROLLED STUDY; FEMALE; HUMAN; INTERMETHOD COMPARISON; MALE; QUALITY OF LIFE; RATING SCALE; RETROSPECTIVE STUDY; SHORT FORM 36; TRAUMATIC BRAIN INJURY; VALIDITY;

EID: 77952281933     PISSN: 02699052     EISSN: 1362301X     Source Type: Journal    
DOI: 10.3109/02699051003789203     Document Type: Article

References (41)

1. Dijkers M. Quality of life after traumatic brain injury: A review of research approaches and findings. Archives of Physical Medicine and Rehabilitation 2004; 85 (4 Suppl. 2) : S21-S35.
2. Hadorn DC, Uebersax J. Large scale health outcomes evaluation: How should quality of life be measured? Part I-Calibration of a brief questionnaire and a search for preference solutions. Journal of Clinical Epidemiology 1995;48:607-618.
3. Hadorn DC, Sorensen J, Holte J. Large-scale health outcomes evaluation: How should quality of life be measured? Part II-Questionnaire validation in a cohort of patients with advanced cancer. Journal of Clinical Epidemiology 1995;48:619-629.
4. Dijkers M. Individualization in quality of life measurement: Instruments and approaches. Archives of Physical Medicine and Rehabilitation 2003; 84: S3-S14.
5. Hickey A, Bury G, O'Boyle C, Bradley F, O'Kelly F, Shannon W. A new short-form individual quality of life measure (SEIQoL-DW) : Application in a cohort of individuals with HIV/AIDS. British Medical Journal 1996;313:29-33.
6. Le Vasseur SA, Green S, Talman P. The SEIQoL-DW is a valid method for measuring individual quality of life in stroke survivors attending a secondary prevention clinic. Quality of Life Research 2005;14:779-788.
7. Moons P, Marquet K, Budts W, De Geest S. Validity, reliability and responsiveness of the 'Schedule for the Evaluation of Individual Quality of Life - Direct Weighting' (SEIQoL-DW) in congenital heart disease. Health and Quality of Life Outcomes 2004;2:27.
8. Mountain L, Campbell S, Seymour D, Primrose W, Whyte M. Assessment of individual quality of life using the SEIQoL-DW in older medical patients. Quarterly Journal of Medicine 2004;97:519-524.
9. O'Boyle CA, McGee HM, Hickey A, O'Malley K, Joyce C. Individual quality of life in patients undergoing hip replacement. The Lancet 1992;339:1088-1091.
10. Moules S, Chandler BJ. A study of the health and social needs of carers of traumatically brain injured individuals served by one community rehabilitation team. Brain Injury 1999;13:983-993.
11. Hickey A, O'Boyle C, McGee HM, McDonald NJ. The relationship between post-trauma problem reporting and carer quality of life after severe head injury. Psychology and Health 1997;12:827-838.
12. Wagner J, Abbott G, Lett S. Age related differences in individual quality of life domains in youth with type 1 diabetes. Health and Quality of Life Outcomes 2004;2:54.
13. Jenkinson C, Layte R, Wright L, Coulter A. The UK SF-36: An analysis and interpretation manual. Oxford: Health Services Research Unit, Department of Public Health and Primary Care, University of Oxford; 1996.
14. Zigmond A, Snaith R. The Hospital Anxiety and Depression Scale. Acta Psychiatrica Scandinavica 1983;67:361-370.
15. Wilson J, Pettigrew L, Teasdale G. Structured interviews for the Glasgow Outcome Scale and the Extended Glasgow Outcome Scale: Guidelines for their use. Journal of Neurotrauma 1998;15:573-585.
16. Sprangers M, Schwartz C. Integrating response shift into health related quality of life research: A theoretical model. Social Science and Medicine 1999;48:1507-1515.
17. Wilson I. Clinical understanding and clinical implications of response shift. Social Science and Medicine 1999;48:1577-1588.
18. Korfage I, de Koning H, Essink-Bot M-L. Response Shift due to diagnosis and primary treatment of localized prostate cancer: A then test and a vignette study. Quality of Life Research 2007;16:1627-1634.
19. Sharpe L, Butow P, Smith C, McConnell D, Clarke S. Changes in quality of life in patients with advanced cancer. Evidence of response shift and response restriction. Journal of Psychosomatic Research 2005;58:497-504.
20. Echteld MA, Deliens L, Ooms ME, Ribbe MW, van der Wal G. Quality of life change and response shift in patients admitted to palliative care units: A pilot study. Palliative Medicine 2005;19:381-388.
21. Daltroy L, Larson M, Eaton H, Phillips C, Liang M. Discrepancies between self-reported and observed physical function in the elderly: The influence of response shift and other factors. Social Science and Medicine 1999;48:1549-1561.
22. Rapkin B, Schwartz C. Toward a theoretical model of quality of life appraisal: Implications of findings from studies of response shift. Health and Quality of Outcomes 2004;2:14.
23. Ring L, Höfer S, Heuston F, Harris D, O'Boyle C. Response shift masks the treatment impact on patient reported outcomes (PROs) : The example of individual quality of life in edentulous patients. Health and Quality of Life Outcomes 2005;3:55.
24. Rees J, Clarke M, Waldron D, O'Boyle C, Ewings P, MacDonagh R. The measurement of response shift in patients with advanced prostate cancer and their partners. Health and Quality of Life Outcomes 2005;3:21.
25. Norman G. Hi! How are you? Response shift, implicit theories and differing epistemologies. Quality of Life Research 2003;12:239-249.
26. Brandt J, Folstein MF. Telephone Interview for Cognitive Status (TICS) : Professional manual. Lutz, FL: Psychological Assessment Resources, Inc; 2003.
27. Steadman-Pare D, Colantonio A, Ratcliff G, Chase S, Vernich L. Factors associated with perceived quality of life many years after traumatic brain injury. Journal of Head Trauma Rehabilitation 2001;16:330-342.
28. Jenkinson C, Wright L, Coulter A. Quality of life measurement in health care. A review of measures and population norms for the UK SF-36. Oxford: Health Services Research Unit; 1993.
29. Findler M, Cantor J, Haddad L, Gordon W, Ashman T. The reliability and validity of the SF-36 health survey questionnaire for use with individuals with traumatic brain injury. Brain Injury 2001;15:715-723.
30. Whelan-Goodinson R, Ponsford J, Schönberger M. Validity of the Hospital Anxiety and Depression Scale to assess depression and anxiety following traumatic brain injury as compared with the Structured Clinical Interview for DSM-IV. Journal of Affective Disorders 2009;114:94-102.
31. Dawkins N, Cloherty ME, Gracey F, Evans JJ. The factor structure of the Hospital Anxiety and Depression Scale in acquired brain injury. Brain Injury 2006;20:1235-1239.
32. Herrmann C. International experiences with the Hospital Anxiety and Depression Scale-a review of validation data and clinical results. Journal of Psychosomatic Research 1997;42:17-41.
33. Bjelland I, Dahl AA, Haug TT, Neckelmann D. The validity of the Hospital Anxiety and Depression Scale-an updated literature review. Journal of Psychosomatic Research 2002;52:69-77.
34. Waldron D, O'Boyle CA, Kearney M, Moriarty M, Carney D. Quality of life measurement in advanced cancer: Assessing the individual. Journal of Clinical Oncology 1999;17:3603-3611.
35. Cicerone KD, Azulay J. Perceived self-efficacy and life satisfaction after traumatic brain injury. Journal of Head Trauma Rehabilitation 2007;22:257-266.
36. Bowling A. Measuring health: A review of quality of life measurement scales. 3rd ed. Berkshire: Open University Press; 2005.
37. Mailhan L, Azouvi P, Dazord A. Life satisfaction and disability after severe traumatic brain injury. Brain Injury 2005;19:227-238. (Pubitemid 40260097)
38. Clare L, Halligan PW. Editorial: Pathologies of awareness: Bridging the gap between theory and practice. Neuropsychological Rehabilitation 2006;16:353-355.
39. Wright BA. Developing constructive revaluation of life with a disability. Rehabilitation Literature 1980;41:274-279.
40. Rees J, Waldron D, O'Boyle C, Ewings P, MacDonagh R. Prospective vs retrospective assessment of lower urinary tract symptoms in patients with advanced prostate cancer: The effect of 'response shift'. British Journal of Urology International 2003;92:703-706.
41. Wright BA. Physical disability-a psychological approach. New York and Evanston: Harper and Row; 1960.