Research on ethics in nursing care for older people: A literature review

Nursing Ethics

Volumn 17, Issue 3, 2010, Pages 337-352

  Suhonen, Riitta ^a   Stolt, Minna ^a   Launis, Veikko ^a   Leino Kilpi, Helena ^a  

^a UNIVERSITY OF TURKU   (Finland)

Author keywords

Care of older people; Ethics; Literature review; Nursing

Indexed keywords

AGED; EMPATHY; ETHICS; GERIATRIC NURSING; HUMAN; INFORMED CONSENT; METHODOLOGY; NURSE ATTITUDE; NURSING RESEARCH; ORGANIZATION AND MANAGEMENT; PATIENT ADVOCACY; PERSONAL AUTONOMY; PERSONHOOD; PHILOSOPHY; REPRODUCIBILITY; REVIEW;

AGED; EMPATHY; GERIATRIC NURSING; HUMANS; INFORMED CONSENT; NURSE'S ROLE; NURSING RESEARCH; PATIENT ADVOCACY; PERSONAL AUTONOMY; PERSONHOOD; PHILOSOPHY, NURSING; REPRODUCIBILITY OF RESULTS; RESEARCH DESIGN;

EID: 77952160879     PISSN: 09697330     EISSN: 14770989     Source Type: Journal    
DOI: 10.1177/0969733010361445     Document Type: Review

References (87)

1. Bandman E., Bandman B. Nursing ethics through the life span, fourth edition. Upper Saddle River: Prentice Hall, 2002.
2. Thompson IE, Melia KM, Boyd KM, Horsburgh D. Nursing ethics, fifth edition. Edinburgh: Churchill Livingstone, 2007.
3. Smith KV Ethical issues related to health care: the older adult's perspective. J Gerontol Nurs 2005; 31(2): 32-9.*.
4. Leino-Kilpi H., Välimäki M., Dassen T.,et al.Perceptions of autonomy, privacy and informed consent in the care of elderly people in five European countries: general overview. Nurs Ethics 2003; 10: 18-27.*.
5. Enes SPD, de Vries K. A survey of ethical issues experienced by nurses caring for terminally ill elderly people. Nurs Ethics 2004; 11: 150-64.*.
6. Haggström E., Kihlgren A. Experiences of caregivers and relatives in public nursing homes. Nurs Ethics 2007; 14: 691-701.*.
7. Davidson B., Vander Laan R., Davis A.,et al.Ethical reasoning associated with the feeding of terminally ill elderly cancer patients: an international perspective. Cancer Nurs 1991; 13: 286-92.*.
8. Kuuppelomäki M., Lauri S. Dementiapotilaiden ja terminaalivaiheessa olevien iäkkäiden syöpäpotilaiden syöttämiseen liittyvä hoitotyön eettinen päätöksenteko eri maissa. (Ethical decision making of nurses associated with the feeding of patients with dementia and terminally ill elderly cancer patients in seven countries.) Hoitotiede 1991; 3: 146-53.*.
9. Leino-Kilpi H., Välimäki M., Dassen T.,et al.Perceptions of autonomy, privacy and informed consent in the care of elderly people in five European countries: comparison and implications for the future. Nurs Ethics 2003; 10: 58-66.*.
10. Schopp A., Leino-Kilpi H., Välimäki M.,et al.Perceptions of privacy in the care of elderly people in five European countries. Nurs Ethics 2003; 10: 39-47.*.
11. Schopp A., Välimäki M., Leino-Kilpi H.,et al.Perceptions of informed consent in the care of elderly people in five European countries. Nurs Ethics 2003; 10: 48-57.*.
12. Scott PA, Välimäki M., Leino-Kilpi H.,et al.Perceptions of autonomy in the care of elderly people in five European countries. Nurs Ethics 2003; 10: 28-38.*.
13. United Nations. World population ageing. Department of Economic and Social Affairs, Population Division. http://www.un.org/esa/population/publications/ageing/ageing2006.htm (2006, accessed December 2009).
14. European Union. A new strategic approach to health for the EU (2008-2013). http://europa.eu/scadplus/leg/en/cha/c11579.htm (2008, accessed October 2008).
15. Sanderson W., Scherbov S. Rethinking age and ageing: a publication of the Population Reference Bureau. Popul Bull 2008; 63(4): 1-16. http://www.prb.org/pdf08/63.4aging.pdf (2008, accessed February 2009).
16. World Health Organization. Working together for health. The world health report 2006. WHO. http://www.who.int/whr/2006/whr06_en.pdf (2006, accessed January 2009).
17. Organisation for Economic Co-operation and Development. Long term care (LTC). http://www.oecd.org/document/61/0,3343,en_2649_33929_35490493_1_1_1_1,00.html (n.d., accessed December 2009).
18. Gordon M. Ethical challenges in end-of-life therapies in the elderly. Drugs Aging 2002; 19: 321-9.
19. Elander G., Drechsler K., Persson KW Ethical dilemmas in long-term care settings: interviews with nurses in Sweden and England. Int J Nurs Stud 1993; 30: 91-7.*.
20. Ehrenfeld M., Tabak N., Bronner G., Bergman R. Ethical dilemmas concerning sexuality of elderly patients suffering from dementia. Int J Nurs Pract 1997; 3: 255-9.*.
21. Nordam A., Torjuul K., Sorlie V. Ethical challenges in the care of older people and risk of being burned out among male nurses. J Clin Nurs 2005; 14: 1248-56.*.
22. Teeri S., Leino-Kilpi H., Välimäki M. Long-term nursing care of elderly people: identifying ethically problematic experiences among patients, relatives and nurses in Finland. Nurs Ethics 2006; 13: 116-29.*.
23. Elsner RJ, Quinn ME, Fanning SD, Gueldner SH, Poon LW Ethical and policy considerations for centenarians: the oldest old. Image J Nurs Sch 1999; 31: 263-7.*.
24. Hellstrom UW, Sarvimaki A. Experiences of self-determination by older persons living in sheltered housing. Nurs Ethics 2007; 14: 413-24.*.
25. Stabell A., Eide H., Solheim GA, Solberg KN, Rustoen T. Nursing home residents' dependence and independence. J Clin Nurs 2004; 13: 677-86.*.
26. Raholm MB, Lindholm L. Being in the world of the suffering patient: a challenge to nursing ethics. Nurs Ethics 1999; 6: 528-39.
27. Suominen T., Savikko N., Kiviniemi K., Doran DI, Leino-Kilpi H. Work-empowerment as experienced by nurses in elderly care. J Prof Nurs 2008; 24(1): 42-5.
28. Grant MJ, Booth A. A typology of reviews: an analysis of 14 review types and associated methodologies. Health Inform Libraries J 2009; 26: 91-108.*.
29. Scott PA, Välimäki M., Leino-Kilpi H.,et al.Autonomy, privacy and informed consent 3: elderly care perspective. Br J Nurs 2003; 12: 158-68.*.
30. Saveman BI, Hallberg IR, Norberg A. Narratives by district nurses about elder abuse within families. Clin Nurs Res 1996; 5: 220-36.*.
31. Bužgová R., Ivanová K. Elder abuse and mistreatment in residential settings. Nurs Ethics 2009; 16: 110-26.*.
32. Luke L., Redley M., Clare I., Holland A. Hospital clinicians' attitudes towards a statutory advocacy service for patients lacking mental capacity: implications for implementation. J Health Serv Res Policy 2008; 13(2): 73-8.*.
33. Randers I., Mattiasson AC Autonomy and integrity: upholding older adult patients' dignity. J Adv Nurs 2004; 45: 63-71.*.
34. Whitler JM Ethics of assisted autonomy in the nursing home: types of assisting among long-term care nurses. Nurs Ethics 1996; 3: 224-35.*.
35. Hertz JE Conceptualization of perceived enactment of autonomy in the elderly. Issues Ment Health Nurs 1996; 17: 261-73.*.
36. High DM Who will make health care decisions for me when I can't? J Aging Health 1990; 2: 291-309.*.
37. Välimäki M., Haapsaari H., Katajisto J., Suhonen R. Nursing students' perceptions of self-determination in elderly people. Nurs Ethics 2008; 15: 346-59.*.
38. Bravo G., Paquet M., Dubois MF Knowledge of the legislation governing proxy consent to treatment and research. J Med Ethics 2003; 29: 44-50.*.
39. Mattiasson AC, Andersson L. Staff attitude and experience in dealing with rational nursing home patients who refuse to eat and drink. J Adv Nurs 1994; 20: 822-7.*.
40. Skirton H., Frazier LQ, Calvin AO, Cohen MZ A legacy for the children: attitudes of older adults in the United Kingdom to genetic testing. J Clin Nurs 2006; 15: 565-73.*.
41. Chuang YH, Huang HT Nurses' feelings and thoughts about using physical restraints on hospitalized older patients. J Clin Nurs 2007; 16: 486-94.*.
42. Chien WT The use of physical restraints to psychogeriatric patients in Hong Kong. Issues Ment Health Nurs 1999; 20: 571-86.*.
43. Costello J. Truth telling and the dying patient: a conspiracy of silence? Int J Palliat Nurs 2000; 6: 398-405.*.
44. Pleschberger S. Dignity and the challenge of dying in nursing homes: the residents' view. Age Aging 2007; 36: 197-202.*.
45. Jacelon CS, Connelly TW, Brown R., Proulx K., Vo T. A concept analysis of dignity for older adults. J Adv Nurs 2004; 48: 76-83.*.
46. Teeri S., Välimäki M., Katajisto J., Leino-Kilpi H. Maintaining the integrity of older patients in long-term institutions: relatives' perceptions. J Clin Nurs 2007; 16: 918-27.*.
47. Teeri S., Välimäki M., Katajisto J., Leino-Kilpi H. Nurses' perceptions of older patients' integrity in long-term institutions. Scand J Caring Sci 2007; 21: 490-9.*.
48. Randers I., Olson TH, Mattiasson A-C. Confirming older adult patients' views of who they are and would like to be. Nurs Ethics 2002; 9: 416-31.*.
49. Routasalo P., Isola A. The right to touch and be touched. Nurs Ethics 1996; 3: 165-76.*.
50. Schaffer MA Ethical problems in end-of-life decisions for elderly Norwegians. Nurs Ethics 2007; 14: 242-57.*.
51. Elliot BA, Gessert CE, Peden-McAlpine C. Family decision-making in advanced dementia: narrative and ethics. Scand J Caring Sci 2009; 23: 251-8.*.
52. Rotar-Pavlic D., Svab I., Wetzels R. How do older patients and their GPs evaluate shared decision-making in health-care? BMC Geriatr 2008; 8:9.*.
53. Russ AJ, Shim JK, Kaufman SR The value of 'life at any cost': talk about stopping kidney dialysis. Soc Sci Med 2007; 64: 2236-47.*.
54. Cohen-Mansfield J., Regier NG, Peyser H., Stanton J. Wisdom of generations: a pilot study of the values transmitted in ethical wills of nursing home residents and student volunteers. Gerontologist 2009; 49: 525-35.*.
55. Bolmsjö IA, Sandman L., Andersson E. Everyday ethics in the care of elderly people. Nurs Ethics 2006; 13: 249-63.*.
56. Slettebo A., Haugen Bunch E. Ethics in nursing homes: experience and casuistry. Int J Nurs Pract 2004; 10: 159-65.*.
57. Vig EK, Taylor JS, Starks H., Hopley EK, Fryer-Edwards K. Beyond substituted judgment: how surrogates navigate end-of-life decision-making. J Am Geriatr Soc 2006; 54: 1688-93.*.
58. Kuuppelomäki M. Ethical decision making on starting terminal care in different health-care units. J Adv Nurs 1993; 18: 276-80.*.
59. Forsgärde M., Westman B., Nygren L. Ethical discussion groups as an intervention to improve the climate in inter-professional work with the elderly and disabled. J Interprof Care 2000; 14: 351-61.*.
60. Fjelltun AM, Henriksen N., Norberg A., Gilje F., Normann HK Carers' and nurses' appraisals of needs of nursing home placement for frail older in Norway. J Clin Nurs 2009; 18: 3079-88. Epub 2009 Apr 3.*.
61. Zweibel NR, Cassel CK Treatment choices at the end of life: a comparison of decisions by older patients and their physician-selected proxies. Gerontologist 1989; 29: 615-21.*.
62. Rees J., King L., Schmitz K. Nurses' perceptions of ethical issues in the care of older people. Nurs Ethics 2009; 16: 436-52.*.
63. Nordberg A., Udén G., Andrén S. Physicians', registered nurses' and enrolled nurses' stories about ethically difficult episodes in the care of older patients. Eur Nurs 1998; 3: 3-13.*.
64. O'Donoghue K., Jooste K., Botes A. Guidelines for the management of unethical behaviour in homes for older persons. Health SA Gesondheid 2004; 9: 79-89.*.
65. Randers I., Mattiasson A. The Aristotelian ethics: grounds for understanding moral actions of experienced registered nurses in the care of elderly individuals. Nordic J Nurs Res Clin Stud (Vård i Norden) 1999; 19(1): 18-23.*.
66. Wilmot S., Legg L., Barratt J. Ethical issues in the feeding of patients suffering from dementia: a focus group study of hospital staff responses to conflicting principles. Nurs Ethics 2002; 9: 599-611.*.
67. Jansson L., Norberg A., Sandman PO, Aström Å G. When the severely ill elderly patient refuses food. Ethical reasoning among nurses. Int J Nurs Stud 1995; 32: 68-78.*.
68. Dill AE The ethics of discharge planning for older adults: an ethnographic analysis. Soc Sci Med 1995; 41: 1289-99.*.
69. Dibelius O. Pflegemanagement im spannungsfeld zwischen ethik und ökonomie: eine qualitative untersuchung in der stationären und teilstationären altenpflege. (Nursing management in conflict between ethics and economy: a qualitative study in institutional and semi community care of older people.) Pflege 2001; 14: 407-13 (in German).*.
70. Sørlie V., Kihlgren AL, Kihlgren M. Meeting ethical challenges in acute care work as narrated by enrolled nurses. Nurs Ethics 2004; 11: 179-88.*.
71. Ellenfield Pinch WJ, Parsons ME Moral orientation of elderly persons: considering ethical dilemmas in health care. Nurs Ethics 1997; 4: 380-93.*.
72. Juthberg C., Eriksson S., Norberg A.,et al.Perceptions of conscience in relation to stress of conscience. Nurs Ethics 2007; 14: 329-43.*.
73. Irving K. Inappropriate restraint practices in Australian teaching hospitals. Aust J Adv Nurs 2004; 21: 23-7.*.
74. Juthberg C., Sundin K. Registered nurses' and nurse assistants' lived experience of troubled conscience in their work in elderly care: a phenomenological hermeneutic study. Int J Nurs Stud 2009; 47: 20-9. Epub 2009 Jul 1.*.
75. Myllykangas M., Ryynänen OP, Kinnunen J., Takala J. Comparison of doctors', nurses', politicians' and public attitudes to health care priorities. J Health Serv Res Policy 1996; 1: 212-6.*.
76. Myllykangas M., Ryynänen OP, Lammintakanen J.,et al.Clinical management and prioritization criteria: Finnish experiences. J Health Organ Manag 2003; 17: 338-48.*.
77. Wagner N., Tabak N. The old get equal care: myth or reality? Int J Nurs Pract 1998; 4: 234-9.*.
78. Barnes LE, Asahara K., Davis AJ, Konishi E. Questions of distributive justice: public health nurses' perceptions of long-term care insurance for elderly Japanese people. Nurs Ethics 2002; 9: 67-79.*.
79. Sävenstedt S., Sandman PO, Zingmark K. The duality in using information and communication technology in elder care. J Adv Nurs 2006; 56: 17-25.*.
80. Blackhall LJ, Frank G., Murphy ST, Michel V., Palmer JM, Azen SP Ethnicity and attitudes towards life sustaining technology. Soc Sci Med 1999; 48: 1779-89.*.
81. Dorsten AM, Sifford KS, Bharucha A., Mecca LP, Wactlar H. Ethical perspectives on emerging assistive technologies: insights from focus groups with stakeholders in long-term care facilities. J Empir Res Hum Res Ethics 2009; 4: 25-36.*.
82. Dehpg. 2007-2009 Strategic Action Plan. Disabled and Elderly Health Programs Group. http://www.cms.hhs.gov/NewFreedomInitiative/downloads/DEHPG%20Strategic%20Plan%202007.pdf (2007, accessed March 2009).
83. Ministry of Social Affairs and Health. National framework for high-quality services for older people. (Ministry of Social Affairs and Health publications 2008:5.) Helsinki: Edita, 2008.
84. World Health Organization. Towards age-friendly primary health care. http://whqlibdoc.who.int/publications/2004/9241492184.pdf (2004, accessed March 2009).
85. Subirana M., Solá I., Garcia JM, Gich I., Urrútia G. A nursing qualitative systematic review required MEDLINE and CINAHL for study identification. J Clin Epidemiol 2005; 58: 20-5.
86. Zander PE Ways of knowing in nursing: the historical evolution of a concept. J Theor Construct Test 2007; 11(1): 7-11.
87. Daatland SO, Herlofson K. 'Lost solidarity' or'changed solidarity': a comparative European view of normative family solidarity. Ageing Soc 2003; 23: 537-60.