A study of patients with a primary malignant brain tumour and their carers: Symptoms and access to services

International Journal of Palliative Nursing

Volumn 16, Issue 1, 2010, Pages 24-30

  Anne, Arber ^a   Faithfull, Sara ^b   Plaskota, Marek ^c   Lucas, Caroline ^d   De Vries, Kay ^e  

^a Faculty of Health and Medical Sciences   (United States)

^b UNIVERSITY OF SURREY   (United Kingdom)

^c Research Nurse   (United Kingdom)

^d PRINCESS ALICE HOSPICE   (United Kingdom)

^e UNIVERSITY OF WORCESTER   (United Kingdom)

Author keywords

Carers; Case notes review; Primary malignant brain tumour; Rehabilitation; Symptoms

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; AGED; ARTICLE; ATTITUDE TO HEALTH; BRAIN TUMOR; CAREGIVER; FEMALE; HEALTH CARE DELIVERY; HUMAN; MALE; MIDDLE AGED; NEEDS ASSESSMENT; NURSING; ORGANIZATION AND MANAGEMENT; PALLIATIVE THERAPY; PSYCHOLOGICAL ASPECT; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; BRAIN NEOPLASMS; CAREGIVERS; FEMALE; HEALTH SERVICES ACCESSIBILITY; HUMANS; MALE; MIDDLE AGED; NEEDS ASSESSMENT; PALLIATIVE CARE; SOCIAL SUPPORT;

EID: 77951891052     PISSN: 13576321     EISSN: None     Source Type: Journal    
DOI: 10.12968/ijpn.2010.16.1.46180     Document Type: Article

References (25)

1. Adelbratt S, Strang P (2000) Death anxiety in brain tumour patients and their spouse.Palliative Medicine 14(6): 499-507
2. Arber A, Hutson N, Faithfull S (2007) The Carers' Journey: Exploring the Experience of Informal Carers of Patients with a Primary Malignant Brain Tumour. Faculty of Health and Medical Sciences, Duke of Kent Building, University of Surrey, Guildford, UK
3. Berrino F, De Angelis R, Sant M et al (2007) Survival for eight major cancers and allcancers combined for European adults diagnosed in 1995-99: results of the EUROCARE-4 study. Lancet Oncol 8(9): 773-83
4. Catt S, Chalmers A, Fallowfield L (2008) Psychosocial and supportive-care needs in high-grade glioma. Lancet Oncol 9: 884-9
5. Chakrabarti I, Cockburn M, Cozen W, Wang YP, Preston Martin S (1999) A population-based description of glioblastoma multiforme in Los Angeles County, 1974-1999. Cancer 104(9): 2798-806
6. Cook KL (2005) The carers' experience: caregiving for primary malignant brain tumour patients with palliativecare needs. Unpublished MSc dissertation, Faculty of Health and Medical Sciences, Duke of Kent Building, University of Surrey, Guilford, UK
7. DH (2008) End of Life Care Strategy Promoting High Quality Care for All Adults at the End of Life. Department of Health, London
8. Davies E, Hall S, Clarke C (2003) Two year survival after malignant cerebral glioma: patient and relative reports of handicap, psychiatric symptoms and rehabilitation. Disability and Rehabilitation 25(6): 259-66
9. Faithfull S, Cook K, Lucas C (2005) Palliative care of patients with a primary malignant brain tumour: case review of service use and support provided. Palliat Medicine 19(7): 545-50
10. Guerrero D (1998) Neuro-Oncology for Nurses. Whurr, London
11. Hudson P (2004) Positive aspects and challenges associated with caring for a dying relative at home. Int J Palliat Nurs 10(2): 58-65
12. Janda M, Steginga S, Dunn J, Langbecker D, Walker D, Eakin E (2008) Unmet supportivecare needs and interest in services among patients with a brain tumour and their carers. Patient Educ Couns 71(2): 251-8
13. Janda M, Steginga S, Langbecker D, Dunn J, Walker D, Eakin E (2007) Quality of life among patients with a brain tumor and their carers. J Psychosom Res 63(3): 617-23
14. Keir ST, Calhoun-Egan RD, Swartrz JJ, Friedman HS (2008) Screening for distress in patients with brain cancer using the NCCN's rapid screening measure. Psychooncology 17(6): 621-5
15. Klein M, Taphoorn MJ, Heimans JJ, van der Ploeg HM, Vandertop WP, Smit EF (2001) Neurobehavioural status and health-related quality of life in newly diagnosed high-grade glioma patients. J Clin Oncol 19(20): 4037-47
16. Lovely MP, Miaskowski C, Dodd M (1999) Relationship between fatigue and quality of life in patients with Glioblastoma Multiformae. Oncol Nurs Forum 26(5): 921-25
17. Mirimanoff RO, Gorlia T, Mason W et al (2006) Radiotherapy and temozolomide for newly diagnosed glioblastoma: recursive partitioning analysis of the EORTC 26981/22981- n cicCE3 phase 111 randomized trial. J Clin Oncol 24(16): 2563-9
18. Osoba D, Brada M, Prados M.D, Yung WKA (2000) Effect of disease burden on health-related quality of life in patients with malignant gliomas. Neurooncology 2(4): 221-8
19. Pelletier G, Verhoef MJ, Khatri N, Hagen N (2002) Quality of life in brain tumor patients: the relative contributions of depression, fatigue, emotional distress, and existential issues. J Neurooncol 57(1): 41-9
20. Pinquart M, Sorensen S (2003) Association of stressors and uplifs of caregiving with caregiver burden and depressive mood: A meta-analysis. J Gerontol B Psychol Sci Soc Sci. 58(2): 112-28
21. Sherwood PR, Given B, Given C, Schiffman R, Murman D, Lovely M (2004) Caregivers of persons with a brain tumor: a conceptual model. Nursing Inquiry 11(1): 43-53
22. Sherwood PR, Given BA, Given CW, Schiffman RF, Murman DL, lovely M, et al (2006) Predictors of distress in caregivers of persons with a primary malignant brain tumour. Res Nurs Health 29(2): 105-20
23. Tucha O, Smely C, Preier M, Lange KW, Klaus W (2000) Cognitive defi cits before treatment among patients with brain tumours. Neurosurg 47(2): 324-34
24. Weitzner MA (1999) Psychosocial and neuropsychiatric aspects of patients with primary brain tumors. Cancer Invest 17(4): 285-9
25. Wideheim AK, Edvardsson T, Pahlson A, Ahlstrom G (2002) A family's perspective on living with a highly malignant brain tumour. Cancer Nurs 25(3): 236-44