Shielded from the real world: Perspectives on internet cancer support groups by Asian Americans

Cancer Nursing

Volumn 33, Issue 3, 2010, Pages

  Im, Eun Ok ^a   Lee, Bokim ^a   Chee, Wonshik ^b  

^a UNIVERSITY OF TEXAS AT AUSTIN   (United States)

^b The University of Texas at Austin   (United States)

Author keywords

Asian Americans; Attitudes; Cancer; Ethnic minorities; Groups; Internet cancer support

Indexed keywords

ADULT; ARTICLE; ASIAN AMERICAN; ATTITUDE TO ILLNESS; CLINICAL ARTICLE; CULTURAL VALUE; FEMALE; HEALTH BELIEF; HUMAN; INTERNET; MALE; NEOPLASM; PRIORITY JOURNAL; SUPPORT GROUP;

ADAPTATION, PSYCHOLOGICAL; ADULT; ASIAN AMERICANS; CULTURAL COMPETENCY; FAMILY; FEMALE; FEMINISM; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INTERNET; MALE; MIDDLE AGED; NEOPLASMS; NURSING METHODOLOGY RESEARCH; PATIENT ACCEPTANCE OF HEALTH CARE; PATIENT EDUCATION AS TOPIC; PILOT PROJECTS; QUALITATIVE RESEARCH; SELF-HELP GROUPS; SOCIAL SUPPORT; SOCIAL VALUES;

EID: 77951766631     PISSN: 0162220X     EISSN: None     Source Type: Journal    
DOI: 10.1097/NCC.0b013e3181c8e5d5     Document Type: Article

References (46)

1. Barry DT. Assessing culture via the Internet: methods and techniques for psychological research. Cyberpsychol Behav. 2001;4(1):17-21.
2. Rozmovits L, Ziebland S. What do patients with prostate or breast cancer want from an Internet site? A qualitative study of information needs. Patient Educ Couns. 2004;53(1):57-64.
3. Newell SA, Sanson-Fisher RW, Savolainen NJ. Systematic review of psychological therapies for cancer patients: overview and recommendation for future research. J Natl Cancer Inst. 2002;94:558-584.
4. Hoybye MT. Storytelling of Breast Cancer in Cyberspace. On-line Counteractions to the Isolation and Demeaning of Illness Experience. Denmark: University of Copenhagen; 2002.
5. Lasker JN, Sogolow D, Sharim RR. The role of an online community for people with a rare disease: content analysis of messages posted on primary biliary cirrhosis mailing list. J Med Internet Res. 2005;7(1):e10.
6. Coulson NS. Receiving social support online: an analysis of a computermediated support group for individuals living with irritable bowel syndrome. Cyberp Behav. 2005;8(6):580-584.
7. Ferguson T. Health Online: How to Find Health Information, Support Groups, and Self-help Communities in Cyberspace. Reading, MA: Perseus; 1996.
8. Braithwaite DO, Waldron VR, Finn J. Communication of social support in computer-mediated groups for people with disabilities. Health Commun. 1999;11:123-151.
9. James N, Daniels H, Rahman R, et al. A study of information seeking by cancer patients and their carers. Clin Oncol (R Coll Radiol). 2008;19(5): 356-362.
10. Markman M, Petersen J, Montgomery R. An examination of the influence of patient race and ethnicity on expressed interest in learning about cancer clinical trials. J Cancer Res Clin Oncol. 2008;134(1):115-118.
11. Kakai H, Maskarinec G, Shumay DM, et al. Ethnic differences in choices of health information by cancer patients using complementary and alternative medicine: an exploratory study with correspondence analysis. Soc Sci Med. 2003;56(4):851-862.
12. Lun KC, Tan TW, Gopalakrishnakone P, et al. Delivering health information databases on World Wide Web at the National University of Singapore. Medinfo. 1995;8(2):1528.
13. Walker AH, Jaffe JM, Gunasegaram S, et al. Characterization of an allelic variant in the nifedipine-specific element of CYP3A4: ethnic distribution and implications for prostate cancer risk. Hum Mutat. 1998; 12(4):289.
14. US Census Bureau (USCB). Basic Facts: Census 2000. http://factfinder. census.gov/bf/-lang=en-vt-name=DEC-2000-SF3-U-DP3-geo-id= 01000US.html. Accessed May 17, 2007.
15. Leary T. The cyberpunk: the individual as reality pilot. In: Bell D, Kennedy B, eds. The Cybercultures Reader. London, UK: Routledge; 2000: 529-539.
16. Turkle S. Life on the Screen: Identity in the Age of the Internet. New York, NY: Simon & Schuster; 1995.
17. Featherstone M. Post-bodies, aging, and virtual reality. In: Bell D, Kennedy B, eds. The Cybercultures Reader. London: Routledge; 2000: 609-618.
18. Waskul D, Douglass M, Edgley C. Cybersex: outercourse and the enselfment of the body. Symb Interact. 2000;23(4):375-398.
19. Im EO, Chee W. The use of Internet cancer support groups by ethnic minorities. J Transcult Nurs. 2008;19(1):74-82.
20. Bassett C. Virtually gendered: life in an on-line world. In: Gelder K, Thorton S, eds. The Subcultures Reader. London, UK: Routledge; 1997: 537-550.
21. Kendall L. Meanings and identity in Fcyberspace-: the performance of gender, class, and race online. Symb Interact. 1998;21(2):129-154. (Pubitemid 128090010)
22. Pitts V. Illness and Internet empowerment: writing and reading breast cancer in cyberspace. Health. 2004;8(1):33-59.
23. Bell D, Kennedy B. The Cybercultures Reader. London, UK: Routledge; 2000.
24. Cartwright L. Reach out and heal someone: telemedicine and the globalization of health care. Health. 2000;4(3):347-377.
25. Sardar Z. Alt.civilizations. FAQ: cyberspace as the darker side of the west. In: Bell D, Kennedy B, eds. The Cybercultures Reader. London, UK: Routledge; 2000:732-752.
26. Mann C, Stewart F. Internet Communication and Qualitative Research: A Handbook for Researching Online. London, UK: Sage; 2000.
27. Im EO, Chee W, Liu Y, et al. Characteristics of cancer patients in Internet cancer support groups. Comput Inform Nurs. 2007;25(6):334-343.
28. Boyatzis RE. Transforming Qualitative Information: Thematic Analysis and Code Development. Thousand Oaks, CA: Sage; 1998.
29. Hall JM, Stevens PE. Rigor in feminist research. Adv Nurs Sci. 1991;13: 16-29.
30. Lipson J, Dibble S. Culture and Critical Care. San Francisco, CA: UCSF Nursing Press; 2005.
31. Chin P. Chinese. In: Lipson JG, Dibble SL, eds. Culture and Clinical Care. San Francisco, CA: UCSF Nursing Press; 2005:98-108.
32. Aroian KJ. Sources of social support and conflict of Polish immigrants. Qual Health Res. 1992;2(2):178-207.
33. Beiser M. Strangers at the Gate: The FBoat People's First Ten Years in Canada. Toronto, Ontario, Canada: University of Toronto Press; 1999.
34. Simich L, Beiser M, Stewart M, et al. Providing social support for immigrants and refugees in Canada: challenges and directions. J Immigr Health. 2005;7(4):259-268.
35. Statistics Canada. Highlights of the Longitudinal Survey of Immigrants to Canada, Wave 1, 2000-2001. Ottawa, Ontario, Canada: Statistics Canada; 2004.
36. Waters CM, Locks S. African Americans. In: Lipson JG, Dibble SL, eds. Culture and Clinical Care. San Francisco, CA: University of California San Francisco Nursing Press; 2005.
37. Appling S, Allen J, Van Zandt S, et al. Knowledge of menopause and hormone replacement therapy use in low-income urban women. J Womens Health Gend Based Med. 2000;9(1):57-64.
38. Espin O. Women Crossing Boundaries: A psychology of Immigration and Transformations of Sexuality. New York, NY: Routledge; 1999.
39. Nixon E, Mansfield PK, Kittel LA, et al. ''Staying strong'': how lowincome African American women manage their menopausal changes. Womens Health. 2001;34(2):81-95.
40. Stack C. All Our Kin: Strategies for Survival in a Black Community. New York, NY: Harper and Row; 1974.
41. Zambrana R. Puerto Rican families and social well-being. In: Zinn MB, Eill BT, eds. Women of Color in U.S. Society. Philadelphia, PA: Temple University Press; 1994:133-146.
42. Simpson P. Hong Kong families and breast cancer: beliefs and adaptation strategies. Psychooncology. 2005;14:671-683.
43. Wellisch D, Kagawa-Singer M, Reid SL, et al. An exploratory study of social support: a cross-cultural comparison of Chinese-, Japanese-, and Anglo- American breast cancer patients. Psychooncology. 1999;8(3):207-219.
44. Ashing K, Padilla G, Tejero J, et al. Understanding the breast cancer experience of Asian American women. Psychooncology. 2003;12(1): 38-58.
45. St Hill PF. African Americans. In: St Hill P, Lipson JG, Meleis AI, eds. Caring for Women Cross-Culturally. Philadelphia, PA: FA Davis; 2003.
46. Burns N, Grove SK. The Practice of Nursing Research: Conduct, Critique, & Utilization. Philadelphia, PA: WB Saunders; 1997.