Uncertain futures: Individual risk and social context in decision-making in cancer screening

Health, Risk and Society

Volumn 12, Issue 2, 2010, Pages 101-117

  Lee Simon, Craddock ^a  

^a UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER   (United States)

Author keywords

Cancer; Risk; Risk perception; Screening; Uncertainty

Indexed keywords

ARTICLE; BREAST CANCER; CANCER CONTROL; CANCER RISK; CANCER SCREENING; COLON CANCER; COLONOSCOPY; COLORECTAL CANCER; DIAGNOSTIC ACCURACY; HEALTH BEHAVIOR; HIGH RISK POPULATION; HUMAN; MAMMOGRAPHY; MASS SCREENING; MEDICAL DECISION MAKING; OCCULT BLOOD TEST; RISK ASSESSMENT; RISK FACTOR; SOCIAL ENVIRONMENT;

EID: 77951747764     PISSN: 13698575     EISSN: 14698331     Source Type: Journal    
DOI: 10.1080/13698571003637048     Document Type: Article

References (67)

1. Armstrong, D., 1995. The rise of surveillance medicine. Sociology of health & illness, 17, 393-404.
2. Aronowitz, R.A., 2009. The converged experience of risk and disease. Milbank quarterly, 87 (2), 417-442.
3. Benowitz, S., 2008. Busting cancer clusters: Realities often differ from perceptions. Journal of the national cancer institute, 100 (9), 614-621.
4. Breen, N. and Meissner, H.I., 2005. Toward a system of cancer screening in the United States: Trends and opportunities. Annual review of public health, 26, 561-582.
5. Brewer, N., et al., 2007. Meta-analysis of the relationship between risk perception and health behavior. Health psychology, 26, 136-145.
6. Carpenter, R., 2005. Perceived threat in compliance and adherence research. Nursing inquiry, 12 (3), 192-199.
7. Chavez, L.R., et al., 1997. The influence of fatalism on self-reported use of Papanicolaou smears. American journal of preventive medicine, 13, 418-424.
8. Consedine, N.S., et al., 2004. Fear, anxiety, worry, and breast cancer screening: A critical review. Cancer epidemiology biomarkers prevention, 13 (4), 501-510.
9. Douglas, M., 1985. Risk acceptability according to the social sciences. New York: Russell Sage Foundation.
10. Douglas, M., 1990. Risk as a forensic resource. Daedalus, 119, 1-16.
11. Douglas, M., 2002. Purity and danger: An analysis of the concepts of pollution and taboo. London & NewYork: Routledge.
12. Douglas, M. and Wildavsky, A., 1982. Risk and culture. Berkeley: University of California.
13. Edwards, A.G., et al., 2006. Personalised risk communication for informed decision making about taking screening tests. Cochrane database of systematic reviews, 18 (4), CD001865.
14. Facione, N.C. and Giancarlo, C.A., 1998. Narratives of breast symptom discovery: Implications for early detection. Cancer nursing, 21, 430-440.
15. Finucane, M.L., Alhakami, A., et al., 2000. The affect heuristic in judgements of risks and benefits. Journal of behavioral decision-making, 13, 1-17.
16. Forde, O.H., 1998. Is imposing risk awareness cultural imperialism? Social science & medicine, 47 (9), 1155-1159.
17. Freedman, A.N., et al., 2009. A colorectal cancer risk prediction tool for white men and women without known susceptibility. Journal of clinical oncology, 27 (5), 686-693.
18. Giddens, A., 1990. The consequences of modernity. Cambridge: Polity Press.
19. Gregory, R.S. and Satterfield, T.A., 2002. Beyond perception: The experience of risk and stigma in community contexts. Risk analysis, 22 (2), 347-358.
20. Haggstrom, D.A. and Schapira, M.M., 2006. Black-white differences in risk perceptions of breast cancer survival and screening mammography benefit. Journal of general internal medicine, 21, 371-377.
21. Halpern, J. and Arnold, R., 2008. Affective forecasting: An unrecognized challenge in making serious health decisions. Journal of general internal medicine, 23 (10), 1708-1712.
22. Halpern, J. and Little, M., 2008. Motivating health: Empathy and the normative activity of coping. In: H. Lindemann, M. Verkerk, and M.U. Walker, eds. Naturalized bioethics. New York: Cambridge University Press.
23. Han, P.K.J., Klein, W.M.P., et al., 2009. Laypersons' responses to the communication of uncertainty regarding cancer risk estimates. Medical decision making, 29 (3), 391-403.
24. Han, P.K.J., et al., 2007. Perceived ambiguity about screening mammography recommenda-tions: Association with future mammography uptake and perceptions. Cancer epidemiol-ogy biomarkers and prevention, 16 (3), 458-466.
25. Han, P.K.J., Lehman, T., et al., 2009. Conceptual problems in laypersons' understanding of individualized cancer risk: A qualitative study. Health expectations, 12 (1), 4-17.
26. Harries, T., 2008. Feeling secure or being secure? Why it can seem better not to protect yourself against a natural hazard. Health, risk & society, 10, 479-490.
27. Hay, J.L. and Craddock Lee, S.J., 2009. Theory building through qualitative research: Marshalling opportunities to advance cancer screening efforts. Health, education and behaviour, 36 (5_suppl), 145S-149S.
28. Hayes, M.V., 1992. On the epistemology of risk: Language, logic and social science. Social science & medicine, 35 (4), 401-407.
29. Henwood, K., et al., 2008. Risk, framing and everyday life: Epistemological and methodological reflections from three socio-cultural projects. Health, risk & society, 10, 421-438.
30. Joseph, G., et al., 2009. Perceived susceptibility to illness and perceived benefits of preventive care: An exploration of behavioral theory constructs in a transcultural context. Health, education and behaviour, 36 (5_suppl), 71S-90S.
31. Kahneman, D., et al., 1982. Judgment under uncertainty: Heuristics and biases. Cambridge: Cambridge University Press.
32. Kahneman, D. and Tversky, A., 1973. Availability: A heuristic for judging frequency and probability. Cognitive psychology, 5, 207-302.
33. Kreuter, M., et al., 2007. Narrative communication in cancer prevention and control: A framework to guide research and application. Annals of behavioral medicine, 33 (3), 221-235.
34. Laws, M.B. and Mayo, S.J., 1998. The Latina breast cancer control study, year one: Factors predicting screening mammography utilization by urban Latina women in Massachusetts. Journal of community health, 23, 251-267.
35. Malaby, T.M., 2002. Odds and ends: Risk, mortality, and the politics of contingency. Culture, medicine and psychiatry, 26 (3), 283-312.
36. Mapes, R.E., 1979. Verbal and numerical estimates of probability in therapeutic contexts. Social science & medicine, 13A, 277.
37. McCaul, K.D., et al., 1996. What is the relationship between breast cancer risk and mammography screening? A meta-analytic review. Health psychology, 15, 423-429.
38. McGoey, L., 2009. Pharmaceutical controversies and the performative value of uncertainty. Science as culture, 18 (2), 151-164.
39. Moscovici, S., 1984. The phenomenon of social representations. In: R.M. Farr and S. Moscovici, eds. Social representations. Cambridge: Cambridge University Press, 3-70.
40. O'Byrne, P., 2008. The dissection of risk: A conceptual analysis. Nursing inquiry, 15 (1), 30-39.
41. Parsons, T., 1951. Social structure and dynamic process: The case of the modern medical practice. The social system. London: Routledge, 288-324.
42. Pasick, R.J., et al., 2009. Intention, subjective norms, and cancer screening in the context of relational culture. Health, education and behaviour, 36 (5_suppl), 91S-110S.
43. Pelto, P.J. and Pelto, G.H., 1997. Studying knowledge, culture, and behavior in applied medical anthropology. Medical anthropology quarterly, 11 (2), 147-163.
44. Press, N., et al., 2000. Collective fear, individualized risk: The social and cultural context of genetic testing for breast cancer. Nursing ethics, 7, 237-249.
45. Rapley, T., 2008. Distributed decision-making: The anatomy of decisions-in-action. Sociology of health & illness, 30 (3), 429-444.
46. Reyna, V.F., 2008. A theory of medical decision making and health: Fuzzy trace theory. Medical decision making, 28 (6), 850-865.
47. Rothman, A.J., 2009. Capitalizing on opportunities to refine health behavior theories. Health, education and behaviour, 36 (5_suppl), 150S-155S.
48. Sanders, T., et al., 2003. Risk constructions among people who have a first-degree relative with cancer. Health, risk & society, 5, 53-69.
49. Sanders Thompson, V.L., 2009. Cultural context and modification of behavior change theory. Health, education and behaviour, 36 (5_suppl), 156S-160S.
50. Satterfield, T., et al., 2000. Narrative valuation in a policy judgment context. Ecological economics, 34 (3), 315-331.
51. Schwartz, L.M., et al., 1997. The role of numeracy in understanding the benefit of screening mammography. Annals of internal medicine, 127 (11), 966-972.
52. Scott, S., et al., 2005. Repositioning the patient: The implications of being 'at risk'. Social science & medicine, 60, 1869-1879.
53. Slovic, P., 1999. Trust, emotion, sex, politics, and science: Surveying the risk-assessment battlefield. Risk analysis, 19 (4), 689-701.
54. Slovic, P., et al., 2004. Risk as analysis and risk as feelings: Some thoughts about affect, reason, risk, and rationality. Risk analysis, 24 (2), 311-322.
55. Spasoff, R.A. and McDowell, I.W., 1987. Potential and limitations of data and methods in health risk appraisal: Risk factor selection and measurement. Health services research, 22, 467-497.
56. Sutherland, H.J., et al., 1991. Communicating probabilistic information to cancer patients: Is there 'noise' on the line? Social science & medicine, 32 (6), 725-731.
57. Tauber, A., 2003. Sick autonomy. Perspectives in biology and medicine, 46 (4), 484-495.
58. Van Ness, P.H., 2001. The concept of risk in biomedical research involving human subjects. Bioethics, 15 (4), 364-370.
59. Washington, P.K., et al., 2009. Adult daughters' influence on mothers' health-related decision making: An expansion of the subjective norms construct. Health, education and behaviour, 36 (5_suppl), 129S-144S.
60. Waters, E.A., et al., 2007. Reducing aversion to side effects in preventive medical treatment decision. Journal of experimental psychology: Applied, 13 (1), 11-21.
61. Weed, D.L., 1997. Underdetermination and incommensurability in contemporary epidemiol-ogy. Kennedy institute of ethics, 7 (2), 107-127.
62. Weed, D.L., 2004. Precaution, prevention, and public health ethics. Journal of medicine and philosophy, 29 (3), 313-332.
63. Weed, D.L. and Gorelic, L.S., 1996. Causal inference in cancer epidemiology. Epidemiology, biomarkers, and prevention, 5, 303-311.
64. Welch, H.G., 2009. Overdiagnosis and mammography screening. British medical journal, July 9; 339, b11425.
65. Welch, H.G., et al., 2006. Ramifications of screening for breast cancer: 1 in 4 cancers detected by mammography are pseudocancers. British medical journal, March 25; 332, 727.
66. Wynne, B., 1995. The public understanding of science. In: S. Jasanoff et al., eds. Handbook of science and technology studies. London: Sage, 361-388.
67. Zinn, J.O., 2008. Heading into the unknown: Everyday strategies for managing risk and uncertainty. Health, risk & society, 10, 439-450.