Development and validation of the Asthma Life Impact Scale (ALIS)

Respiratory Medicine

Volumn 104, Issue 5, 2010, Pages 633-643

  Meads, David M ^a   McKenna, Stephen P ^a   Doward, Lynda C ^a   Pokrzywinski, Robin ^b   Revicki, Dennis ^b   Hunter, Cameron ^c   Glendenning, G Alastair ^d  

^a GALEN RESEARCH   (United Kingdom)

^b UNITED BIOSOURCE CORPORATION   (United States)

^c PETERBOROUGH DISTRICT HOSPITAL   (United Kingdom)

^d Global Health Economics and Outcomes Research   (United Kingdom)

Author keywords

Asthma; Patient reported outcome; Quality of life; Questionnaire

Indexed keywords

ADULT; AGED; ARTICLE; ASTHMA; ASTHMA LIFE IMPACT SCALE; CONSTRUCT VALIDITY; CONTROLLED STUDY; CRONBACH ALPHA COEFFICIENT; DISEASE SEVERITY; FEMALE; HOLISTIC CARE; HUMAN; INFORMATION PROCESSING; INTERNAL CONSISTENCY; INTERVIEW; MAJOR CLINICAL STUDY; MALE; OUTCOMES RESEARCH; PRIORITY JOURNAL; QUALITATIVE RESEARCH; QUALITY OF LIFE; RATING SCALE; REPRODUCIBILITY; TEST RETEST RELIABILITY; UNITED KINGDOM; UNITED STATES; VALIDATION PROCESS; ADOLESCENT; ALGORITHM; MIDDLE AGED; OUTCOME ASSESSMENT; PATIENT SATISFACTION; PSYCHOLOGY; PSYCHOMETRY; SICKNESS IMPACT PROFILE; TREATMENT OUTCOME; VALIDATION STUDY; VERY ELDERLY; YOUNG ADULT;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; ALGORITHMS; ASTHMA; FEMALE; FOCUS GROUPS; GREAT BRITAIN; HUMANS; MALE; MIDDLE AGED; OUTCOME ASSESSMENT (HEALTH CARE); PATIENT SATISFACTION; PSYCHOMETRICS; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS; SICKNESS IMPACT PROFILE; TREATMENT OUTCOME; UNITED STATES; YOUNG ADULT;

EID: 77951620593     PISSN: 09546111     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.rmed.2009.11.023     Document Type: Article

References (40)

1. World Health Organisation. Asthma. Fact sheet No. 307 (August 2006), World Health Organization, Geneva
2. Miles J.F., Garden G.M., Tunnicliffe W.S., Cayton R.M., and Ayres J.G. Psychological morbidity and coping skills in patients with brittle and non-brittle asthma: a case-control study. Clin Exp Allergy 27 10 (1997 Oct) 1151-1159
3. Ten Thoren C., and Petermann F. Reviewing asthma and anxiety. Respir Med 94 5 (2000 May) 409-415
4. Ampon R.D., Williamson M., Correll P.K., and Marks G.B. Impact of asthma on self-reported health status and quality of life: a population based study of Australians aged 18-64. Thorax 60 9 (2005 Sep) 735-739
5. Nocon A., and Booth T. The social impact of asthma. Fam Pract 8 1 (1991 Mar) 37-41
6. Milton B., Whitehead M., Holland P., and Hamilton V. The social and economic consequences of childhood asthma across the lifecourse: a systematic review. Child Care Health Dev 30 6 (2004 Nov) 711-728
7. Kaptein A.A., van Klink R.C., de Kok F., Scharloo M., Snoei L., Broadbent E., et al. Sexuality in patients with asthma and COPD. Respir Med 102 2 (2008 Feb) 198-204
8. McClellan V.E., and Garrett J.E. Asthma and the employment experience. N Z Med J 103 896 (1990 Aug 22) 399-401
9. Carpentier M.Y., Mullins L.L., and Van Pelt J.C. Psychological, academic, and work functioning in college students with childhood-onset asthma. J Asthma 44 2 (2007 Mar) 119-124
10. Juniper E.F., Johnston P.R., Borkhoff C.M., Guyatt G.H., Boulet L.P., and Haukioja A. Quality of life in asthma clinical trials: comparison of salmeterol and salbutamol. Am J Respir Crit Care Med 151 1 (1995 Jan) 66-70
11. Aburuz S., Gamble J., and Heaney L.G. Assessment of impairment in health-related quality of life in patients with difficult asthma: psychometric performance of the asthma quality of life questionnaire. Respirology 12 2 (2007 Mar) 227-233
12. Carranza Rosenzweig J.R., Edwards L., Lincourt W., Dorinsky P., and ZuWallack R.L. The relationship between health-related quality of life, lung function and daily symptoms in patients with persistent asthma. Respir Med 98 12 (2004 Dec) 1157-1165
13. Juniper E.F., Guyatt G.H., Epstein R.S., Ferrie P.J., Jaeschke R., and Hiller T.K. Evaluation of impairment of health related quality of life in asthma: development of a questionnaire for use in clinical trials. Thorax 47 2 (1992 Feb) 76-83
14. Barley E.A., Quirk F.H., and Jones P.W. Asthma health status measurement in clinical practice: validity of a new short and simple instrument. Respir Med 92 10 (1998 Oct) 1207-1214
15. Marks G.B., Dunn S.M., and Woolcock A.J. A scale for the measurement of quality of life in adults with asthma. J Clin Epidemiol 45 (1992) 461-472
16. McKenna S.P., and Hunt S.M. A new measure of quality of life in depression: testing the reliability and construct validity of the QLDS. Health Policy 22 3 (1992 Oct) 321-330
17. McKenna S.P., Cook S.A., Whalley D., et al. Development of the PSORIQoL, a psoriasis-specific measure of quality of life designed for use in clinical practice and trials. Br J Dermatol 149 2 (2003) 323-331
18. McKenna S.P., Doughty N., Meads D.M., Doward L.C., and Pepke-Zaba J. The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR): a measure of health-related quality of life and quality of life for patients with pulmonary hypertension. Qual Life Res 15 1 (2006 Feb) 103-115
19. Leplege A., Rude N., Ecosse E., Ceinos R., Dohin E., and Pouchot J. Measuring quality of life from the point of view of HIV-positive subjects: the HIV-QL31. Qual Life Res 6 (1997) 585-594
20. McFarland C., Ross M., and DeCourville N. Women's theories of menstruation and biases in recall of menstrual symptoms. J Pers Soc Psychol 57 3 (1989 Sep) 522-531
21. Rasch G. Probabilistic models for some intelligence and attainment tests (1960/1980), Danish Institute for Educational Research, Copenhagen 1960. (Expanded edition, Chicago: The University of Chicago Press, 1980.)
22. Andrich D., Sheridan B., and Ludo G. Rasch unidimensional measurement models: a windows-based item analysis program employing rasch models (RUMM2020) (2003), Murdoch University, Perth, Australia
23. Vidotto G., Bertolotti G., Carone M., Arpinelli F., Bellia V., Jones P.W., et al. A new questionnaire specifically designed for patients affected by chronic obstructive pulmonary disease; the Italian health status questionnaire. Respir Med 100 5 (2006 May) 862-870
24. Meguro M., Barley E.A., Spencer S., and Jones P.W. Development and validation of an improved, COPD-specific version of the St. George respiratory questionnaire. Chest 132 2 (2007 Aug) 456-463
25. Petersen M.A., Groenvold M., Aaronson N., Blazeby J., Brandberg Y., de Graeff A., et al. For the European organisation for research and treatment of cancer quality of life group. Item response theory was used to shorten EORTC QLQ-C30 scales for use in palliative care. J Clin Epidemiol 59 1 (2006 Jan) 36-44
26. Tennant A., McKenna S.P., and Hagell P. Application of Rasch analysis in the development and application of quality of life instruments. Value Health 7 Suppl. 1 (2004) S22-S26
27. Wright B.D. Comparing Rasch measurement and factor analysis. Struct Equation Model 3 (1996) 3-24
28. Wright B.D. Fundamental measurement for psychology. In: Embretson S.E., and Hershberger S.L. (Eds). The new rules of measurement: what every psychologist and educator should know (1999), Lawrence Erlbaum, Mahwah, NJ 65-104
29. Prieto L., Alonso J., and Lamarca R. Classical test theory versus Rasch analysis for quality of life questionnaire reduction. Health Qual Life Outcome 28 1 1 (2003) 27
30. Waugh R.F., and Chapman E.S. An analysis of dimensionality using factor analysis (true-score theory) and Rasch measurement: what is the difference? Which method is better?. J Appl Meas 6 1 (2005) 80-99
31. Pallant J.F., and Tennant A. An introduction to the Rasch measurement model: an example using the hospital anxiety and depression scale (HADS). Br J Clin Psychol 46 1 (2007) 1-18
32. Meads D.M., and Bentall R.P. Rasch analysis and item reduction of the hypomanic personality scale. Personality and Individual Differences 44 8 (2008) 1772-1783
33. Wright B.D. Local dependency, correlations and principal components. Rasch Meas Trans 1996 10 (1999) 509-511
34. In: Holland P.W., and Wainer H. (Eds). Differential item functioning (1993), Lawrence Erlbaum Associates, New Jersey
35. Smith Jr. E.V. Detecting and evaluating the impact of multidimensionality using item fit statistics and principal components analysis of residuals. J Appl Meas 3 2 (2002) 205-231
36. Streiner D., and Norman G. Health measurement scales (1989), Oxford University Press, Oxford
37. Nunnally J.C., and Bernstein I.H. Psychometric theory (1994), McGraw-Hill Inc., New York
38. Fayers P.M., and Machin D. Quality of life: the assessment, analysis and interpretation of patient-reported outcomes. 2nd ed. (2007), Wiley, Chichester, West Sussex pp. 4-8
39. Schneider A., Löwe B., Meyer F.J., Biessecker K., Joos S., and Szecsenyi J. Depression and panic disorder as predictors of health outcomes for patients with asthma in primary care. Respir Med 102 3 (2008 Mar) 359-366
40. Ekici A., Ekici M., Kara T., Keles H., and Kocyigit P. Negative mood and quality of life in patients with asthma. Qual Life Res 15 (2006) 49-56