-
1
-
-
84909107403
-
Indigenous health needs to be addressed with a holistic rights-based approach
-
available online at, accessed 20 May 2006
-
Australian Human Rights and Equal Opportunity Commission (2006) 'Indigenous health needs to be addressed with a holistic rights-based approach', available online at www.humanrights.gov.au/media_releases/2006/20_06.htm (accessed 20 May 2006).
-
(2006)
-
-
-
2
-
-
3042681436
-
-
Sydney: Commonwealth of Australia. Available online at, accessed 20 May 2006
-
Australian Law Reform Commission and Australian Health Ethics Committee (2003) Essentially Yours: The Protection of Human Genetic Information in Australia, Report 96. Sydney: Commonwealth of Australia. Available online at www.austlii.edu.au/au/other/alrc/publications/reports/96/ (accessed 20 May 2006).
-
(2003)
Essentially Yours: The Protection of Human Genetic Information in Australia
-
-
-
3
-
-
23944517504
-
-
Reykjavík: University of Iceland Press and Centre for Ethics. Avon Longitudinal Study of Parents and Children (ALSPAC). Available online at, accessed 19 May 2006
-
Árnason, G., Nordal, S. and Árnason, V. (eds) (2004) Blood and Data: Ethical, Legal and Social Aspects of Human Genetic Databases. Reykjavík: University of Iceland Press and Centre for Ethics. Avon Longitudinal Study of Parents and Children (ALSPAC). Available online at www.alspac.bristol.ac.uk/welcome/index.shtml (accessed 19 May 2006).
-
(2004)
Blood and Data: Ethical, Legal and Social Aspects of Human Genetic Databases.
-
-
Árnason, G.1
Nordal, S.2
Árnason, V.3
-
4
-
-
33645702033
-
Rich databases and poor people: opportunities for developing countries
-
Bhardwaj, M. (2004) 'Rich databases and poor people: opportunities for developing countries', TRAMES, 8 (1/2): 90-105.
-
(2004)
TRAMES
, vol.8
, Issue.1-2
, pp. 90-105
-
-
Bhardwaj, M.1
-
6
-
-
84909427138
-
Blood donation for genetic research: what can we learn from donors' narratives?
-
in R. Tutton and O. Corrigan (eds), London and New York: Routledge
-
Bushby, H. (2004) 'Blood donation for genetic research: what can we learn from donors' narratives?', in R. Tutton and O. Corrigan (eds), Genetic Databases: Socio-ethical Issues in the Collection and Use of DNA. London and New York: Routledge.
-
(2004)
Genetic Databases: Socio-ethical Issues in the Collection and Use of DNA
-
-
Bushby, H.1
-
8
-
-
26944437969
-
Genetic epidemiology and public health: hope, hype and future prospects
-
Davey Smith, G., Ebrahim, S., Lewis, S., Hansell, A.L., Palmer, L.J. and Burton, P.R. (2005) 'Genetic epidemiology and public health: hope, hype and future prospects', Lancet, 366: 1484-98.
-
(2005)
Lancet
, vol.366
, pp. 1484-1498
-
-
Davey Smith, G.1
Ebrahim, S.2
Lewis, S.3
Hansell, A.L.4
Palmer, L.J.5
Burton, P.R.6
-
9
-
-
0345742333
-
Beyond public perceptions of gene technology: community participation in public policy in Australia
-
Dietrich, D. and Schibeci, R. (2003) 'Beyond public perceptions of gene technology: community participation in public policy in Australia', Public Understanding of Science, 12: 381-401.
-
(2003)
Public Understanding of Science
, vol.12
, pp. 381-401
-
-
Dietrich, D.1
Schibeci, R.2
-
10
-
-
84908930699
-
Family support study astounding
-
Autumn Perth: Western Australian Institute of Medical Research
-
DNAge (2006) 'Family support study astounding'. Autumn Perth: Western Australian Institute of Medical Research.
-
(2006)
DNAge
-
-
-
11
-
-
84905764064
-
Emerging forms of governance in genomics and post-genomics: structures, trends, perspectives
-
in R. Bunton and A. Petersen (eds), London and New York: Routledge
-
Gottweiss, H. (2005) 'Emerging forms of governance in genomics and post-genomics: structures, trends, perspectives', in R. Bunton and A. Petersen (eds), Genetic Governance: Health, Risk and Ethics in the Biotech Era. London and New York: Routledge.
-
(2005)
Genetic Governance: Health, Risk and Ethics in the Biotech Era.
-
-
Gottweiss, H.1
-
12
-
-
0032851098
-
Populationbased linkage of health records in Western Australia: development of a health services research linked database
-
Holman C. D. J., Bass, A. J., Rouse, I. L. and Hobbs, M. S. T. (1999) 'Populationbased linkage of health records in Western Australia: development of a health services research linked database', Australian and New Zealand Journal of Public Health, 23 (5): 453-9.
-
(1999)
Australian and New Zealand Journal of Public Health
, vol.23
, Issue.5
, pp. 453-459
-
-
Holman, C.D.J.1
Bass, A.J.2
Rouse, I.L.3
Hobbs, M.S.T.4
-
14
-
-
33644913130
-
The politics of talk: coming to terms with the "new" scientific governance
-
Irwin, A. (2006) 'The politics of talk: coming to terms with the "new" scientific governance', Social Studies of Science, 36 (2): 299-320.
-
(2006)
Social Studies of Science
, vol.36
, Issue.2
, pp. 299-320
-
-
Irwin, A.1
-
16
-
-
84908930698
-
-
Available online at, accessed 20 May 2006
-
Joondalup Family Health Study (JFHS). Available online at www.jfhs.org.au (accessed 20 May 2006).
-
-
-
-
18
-
-
10344260590
-
The Estonian Genome Project and economic development
-
Kattel, R. and Anton, R. (2004) 'The Estonian Genome Project and economic development', in TRAMES, 8 (1/2): 106-28.
-
(2004)
TRAMES
, vol.8
, Issue.1-2
, pp. 106-128
-
-
Kattel, R.1
Anton, R.2
-
19
-
-
0142126177
-
Genetics and citizenship
-
September/October
-
Kerr, A. (2003) 'Genetics and citizenship', Society, September/October: 44-50.
-
(2003)
Society
, pp. 44-50
-
-
Kerr, A.1
-
22
-
-
33644829844
-
A well placed trust? Public perceptions of the governance of DNA databases
-
Levitt, M. and Weldon, S. (2005) 'A well placed trust? Public perceptions of the governance of DNA databases', Critical Public Health, 15 (4): 311-21.
-
(2005)
Critical Public Health
, vol.15
, Issue.4
, pp. 311-321
-
-
Levitt, M.1
Weldon, S.2
-
23
-
-
33748574208
-
The WA Genome Project: Why do we need it?
-
(September), available online at, accessed 20 May 2006
-
McEvoy, R. (2005) 'The WA Genome Project: Why do we need it?', WA Medical Forum (September), available online at www.genepi.com.au/media (accessed 20 May 2006).
-
(2005)
WA Medical Forum
-
-
McEvoy, R.1
-
24
-
-
84908930696
-
Analyzing multiple discourses in the establishment of genetic databases
-
in G. Árnason, S. Nordal and V. Árnason (eds), Reykjavík: University of Iceland Press and Centre for Ethics
-
Marsden, W. (2004) 'Analyzing multiple discourses in the establishment of genetic databases', in G. Árnason, S. Nordal and V. Árnason (eds), Blood and Data: Ethical, Legal and Social Aspects of Human Genetic Databases. Reykjavík: University of Iceland Press and Centre for Ethics.
-
(2004)
Blood and Data: Ethical, Legal and Social Aspects of Human Genetic Databases.
-
-
Marsden, W.1
-
25
-
-
0002597497
-
Interest group strategies and journalistic norms: news media framing of environmental issues
-
in S. Allan, B. Adam and C. Carter (eds), London and New York: Routledge
-
Miller, M. M. and Riechert, B. P. (2000) 'Interest group strategies and journalistic norms: news media framing of environmental issues', in S. Allan, B. Adam and C. Carter (eds), Environmental Risks and the Media. London and New York: Routledge.
-
(2000)
Environmental Risks and the Media
-
-
Miller, M.M.1
Riechert, B.P.2
-
26
-
-
84909323519
-
-
available online at, accessed 25 May 2006
-
Ministry of Health and Social Security (2006) Act on a Health Sector Database No. 139/1998, available online at http://eng.heilbrigdisraduneyti.is/laws-and-regulations/nr/659 (accessed 25 May 2006).
-
(2006)
Act on a Health Sector Database No. 139/1998
-
-
-
28
-
-
26044479218
-
Biotechnology and the American media: the policy process and the elite press, 1970 to 1999
-
Nisbet, M. C. and Lewenstein, B. V. (2002) 'Biotechnology and the American media: the policy process and the elite press, 1970 to 1999', Science Communication, 23 (4): 359-91.
-
(2002)
Science Communication
, vol.23
, Issue.4
, pp. 359-391
-
-
Nisbet, M.C.1
Lewenstein, B.V.2
-
29
-
-
17844362437
-
Securing our genetic health: engendering trust in UK Biobank
-
Petersen, A. (2005) 'Securing our genetic health: engendering trust in UK Biobank', Sociology of Health and Illness, 27 (2): 271-92.
-
(2005)
Sociology of Health and Illness
, vol.27
, Issue.2
, pp. 271-292
-
-
Petersen, A.1
-
30
-
-
53149117252
-
Biobanks' "engagements": engendering trust or engineering consent?
-
Petersen, A. (2007) 'Biobanks' "engagements": engendering trust or engineering consent?', Genomics, Society and Policy, 3 (1): 31-43.
-
(2007)
Genomics, Society and Policy
, vol.3
, Issue.1
, pp. 31-43
-
-
Petersen, A.1
-
31
-
-
84908930695
-
-
Available online at accessed 15 May 2006
-
Public Population Project in Genomics (P3G). Available online at www.p3gconsortium.org/waghp.cfm (accessed 15 May 2006).
-
-
-
-
32
-
-
0038752858
-
A need for discourse on citizen participation: objectives and structure of the book
-
in P. Renn, T. Webler and P. Wiedmann (eds), Dordrecht: Kluwer Academic Publishers
-
Renn, O., Webler, T. and Wiedmann, P. (1995) 'A need for discourse on citizen participation: objectives and structure of the book', in P. Renn, T. Webler and P. Wiedmann (eds), Fairness and Competence in Citizen Participation: Evaluating Models of Environmental Discourse. Dordrecht: Kluwer Academic Publishers.
-
(1995)
Fairness and Competence in Citizen Participation: Evaluating Models of Environmental Discourse
-
-
Renn, O.1
Webler, T.2
Wiedmann, P.3
-
33
-
-
0002094897
-
Risk, trust and scepticism in the age of new genetics
-
in B. Adam, U. Beck and J. van Loon (eds), London: Sage
-
Rose, H. (2000) 'Risk, trust and scepticism in the age of new genetics', in B. Adam, U. Beck and J. van Loon (eds), The Risk Society and Beyond. London: Sage.
-
(2000)
The Risk Society and Beyond.
-
-
Rose, H.1
-
35
-
-
0035542315
-
The politics of life itself
-
Rose, N. (2001) 'The politics of life itself', Theory, Culture and Society, 18 (6): 1-30.
-
(2001)
Theory, Culture and Society
, vol.18
, Issue.6
, pp. 1-30
-
-
Rose, N.1
-
36
-
-
84909072187
-
-
London: The Stationery Office. Cited in A. Irwin and M. Michael (2003) Science, Social Theory and Public Knowledge. Maidenhead: Open University Press
-
Royal Commission on Environmental Pollution (1988) 21st Century: Setting Environmental Standards. London: The Stationery Office. Cited in A. Irwin and M. Michael (2003) Science, Social Theory and Public Knowledge. Maidenhead: Open University Press.
-
(1988)
21st Century: Setting Environmental Standards
-
-
-
37
-
-
33644832673
-
Capital, trust and consultation: databanks and regulation in Australia
-
Stranger, M., Chalmers, D. and Nicol, D. (2005) 'Capital, trust and consultation: databanks and regulation in Australia', Critical Public Health, 15 (4): 349-58.
-
(2005)
Critical Public Health
, vol.15
, Issue.4
, pp. 349-358
-
-
Stranger, M.1
Chalmers, D.2
Nicol, D.3
-
38
-
-
0035377859
-
The erosion of citizenship
-
Turner, B. (2001) 'The erosion of citizenship', British Journal of Sociology, 52: 189-209.
-
(2001)
British Journal of Sociology
, vol.52
, pp. 189-209
-
-
Turner, B.1
-
40
-
-
84908930694
-
The Busselton Health Study
-
Available online at, accessed 20 May 2006
-
The Busselton Health Study. Available online at http://bsn.uwa.edu.au/ (accessed 20 May 2006).
-
-
-
-
41
-
-
84908930693
-
Survey receives health support for study of Joondalup families
-
18 December
-
The West Australian (2005) 'Survey receives health support for study of Joondalup families', 18 December.
-
(2005)
The West Australian
-
-
-
42
-
-
84909439795
-
"Public consent" or "scientific citizenship"? What counts as public participation in population-based DNA collections?
-
in R. Tutton, and O. Corrigan (eds), London and New York: Routledge
-
Weldon, S. (2004) '"Public consent" or "scientific citizenship"? What counts as public participation in population-based DNA collections?', in R. Tutton, and O. Corrigan (eds), Genetic Databases: Socio-ethical Issues in the Collection and Use of DNA. London and New York: Routledge.
-
(2004)
Genetic Databases: Socio-ethical Issues in the Collection and Use of DNA
-
-
Weldon, S.1
-
43
-
-
0037396563
-
The Australian joint inquiry into the protection of human genetic information
-
Weisbrot, D. (2003) 'The Australian joint inquiry into the protection of human genetic information', New Genetics and Society, 22 (1): 89-113.
-
(2003)
New Genetics and Society
, vol.22
, Issue.1
, pp. 89-113
-
-
Weisbrot, D.1
-
44
-
-
84888321991
-
University of Western Australia
-
Available online at, accessed 20 May 2006
-
Western Australian Data Linkage System (WADLS), University of Western Australia. Available online at www.meddent.uwa.edu.au/go/sph (accessed 20 May 2006).
-
-
-
-
46
-
-
84908930692
-
Joondalup Family Health Study: Report on the results from the initial community survey and from the community workshop deliberative survey
-
Perth: WAIMR. Available online at, accessed 20 May 2006
-
Western Australian Institute of Medical Research (2006b) 'Joondalup Family Health Study: Report on the results from the initial community survey and from the community workshop deliberative survey'. Perth: WAIMR. Available online at www.jfhs.org.au (accessed 20 May 2006).
-
(2006)
-
-
-
47
-
-
84909060267
-
Western Australian Institute for Medical Research Laboratory for Genetic Epidemiology
-
Available at, accessed 20 May 2006
-
Western Australian Institute for Medical Research Laboratory for Genetic Epidemiology. Available at: www.wager.org.au (accessed 20 May 2006).
-
-
-
-
48
-
-
84909203533
-
First Biannual Report (1 July 2003 to 1 July 2005)
-
University of Western Australia
-
Western Australian Institute for Medical Research Laboratory for Genetic Epidemiology (2005) First Biannual Report (1 July 2003 to 1 July 2005). University of Western Australia.
-
(2005)
-
-
-
49
-
-
33744950995
-
Public engagement as a means of restoring public trust in science: hitting the notes, but missing the music?
-
Wynne, B. (2006) 'Public engagement as a means of restoring public trust in science: hitting the notes, but missing the music?', Community Genetics, 9: 211-20.
-
(2006)
Community Genetics
, vol.9
, pp. 211-220
-
-
Wynne, B.1
|