Adaptation and quality of life in anorectal malformation: Empirical findings, theoretical concept, ppsychometric assessment, and cognitive-behavioral intervention;Adaptation und lebensqualität bei anorektaler malformation: Empirische befunde, theoretisches modell, psychodiagnostische erfassung und verhaltensmedizinische intervention

Praxis der Kinderpsychologie und Kinderpsychiatrie

Volumn 59, Issue 1, 2010, Pages 52-70

  Noeker, Meinolf ^a  

^a UNIVERSITY OF BONN   (Germany)

Author keywords

Adaptation; Anorectal malformation; Body schema; Continence; Coping; Self esteem

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; AGED; ANUS ATRESIA; ARTICLE; CHILD; COGNITIVE THERAPY; CONSTIPATION; COPING BEHAVIOR; FECES INCONTINENCE; FEMALE; HUMAN; INFANT; MALE; METHODOLOGY; MIDDLE AGED; MULTIPLE MALFORMATION SYNDROME; NEWBORN; PATIENT ATTITUDE; PERSONALITY TEST; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; SELF CONCEPT; STATISTICS;

ABNORMALITIES, MULTIPLE; ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; ANUS, IMPERFORATE; CHILD; CHILD, PRESCHOOL; COGNITIVE THERAPY; CONSTIPATION; FECAL INCONTINENCE; FEMALE; HUMANS; INFANT; INFANT, NEWBORN; MALE; MIDDLE AGED; PERSONALITY ASSESSMENT; QUALITY OF LIFE; RESILIENCE, PSYCHOLOGICAL; SELF CONCEPT; SICK ROLE; YOUNG ADULT;

EID: 77951234589     PISSN: 00327034     EISSN: None     Source Type: Journal    
DOI: 10.13109/prkk.2010.59.1.52     Document Type: Article

References (36)

1. Bai, Y., Yuan, Z., Wang, W., Zhao, Y., Wang, H., Wang, W. (2000). Quality of life for children with fecal incontinence after surgically corrected anorectal malformation. Journal of Pediatric Surgery, 35, 462-464.
2. Berglein, J. (2010). Anorektale Fehlbildung: Von der Schwierigkeit darüber zu reden Ergebnisse einer qualitativen Studie. Praxis der Kinderpsychologie und Kinderpsychiatrie, 59, 22-37.
3. Brandt, M. L., Daigneau, C., Graviss, E. A., Naik-Mathuria, B., Fitch, M. E., Washburn, K. K. (2007). Validation of the Baylor Continence Scale in children with anorectal malformations. Journal of Pediatric Surgery, 42, 1015-1021.
4. Bugg, G. J., Kiff, E. S, Hosker, G. (2001). A new condition-specific health-related quality of life questionnaire for the assessment of women with anal incontinence. BJOG, 108, 1057-1067.
5. Diseth, T. H., Egeland, T., Emblem, R. (1998). Effects of anal invasive treatment and incontinence on mental health and psychosocial functioning of adolescents with Hirschsprung's disease and low anorectal anomalies. Journal of Pediatric Surgery, 33, 468-475.
6. Ditesheim, J.A., Templeton, J. M. Jr. (1987). Short-term v long-term quality of life in children following repair of high imperforate anus. Journal of Pediatric Surgery, 22, 581-587.
7. Eypasch, E., Williams, J. I., Wood-Dauphinee, S. (1995). Gastrointestinal quality of life index: development, validation and application of a new instrument. British Journal of Surgery, 82, 216-222.
8. Grano, C., Aminoff, D., Lucidi, F., Arpante, A., Violani, C. (2008). Self-efficacy, postoperative care satisfaction, body image and sexual functioning in ARM patients. Pediatrcis Surgery International, 24, 1201-1205.
9. Hamid, C. H., Holland, A. J., Martin, H. C. (2007). Long-term outcome of anorectal malformations: the patient perspective. Pediatric Surgery International, 23, 97-102.
10. Hanneman, M. J. G., Sprangers, M. A., De Mik, E. L. (2001). Quality of life in patients with anorectal malformations or Hirschsprung's disease: the development of a disease-specific questionnaire. Disease of Colon and Rectum, 44, 1650-1660.
11. Hartman, E.E., Oort, F.J., Aronson, D.C. (2004). Critical factors affecting quality of life of adult patients with anorectal malformations or Hirschsprung's disease. American Journal of Gastroenteroly, 99, 907-913.
12. Hartman, E. E., Oort, F. J., Aronson, D. C. (2007). Explaining change in quality of life of children and adolescents with anorectal malformations or Hirschsprung disease. Pediatrics, 119, e374-e383.
13. Hartman, E. E., Oort, F. J., Sprangers, M. A., Hanneman, M. J., van Heurn, W., de Langen, Z. J., Madern, G. C., Rieu, P. N., van der Zee, D. C., Looyaard, N., van Silfhout-Bezemer, M., Aronson, D. C. (2008). Factors affecting quality of life of children and adolescents with anorectal malformations or Hitrschsprung disease. Journal of Pediatric Gastroenterology and Nutrition, 47, 463-471.
14. Hassink, E. A., Rieu, P. N., Brugman, A. T., Festen C. (1994). Quality of life after operatively corrected high anorectal malformation: a long-term follow-up study of patients aged 18 years and older. Journal of Pediatric Surgery, 29, 773-776.
15. Jenetzky, E. (2007). Prevalence estimation of anorectal malformations using German diagnoses related groups system. Pediatric Surgery International, 23, 1161-1165.
16. Jenetzky, E., Schwarzer, N. (2006). ARM: Aftercare and impact from the perspective of the family. In A. M. Holschneider, J. M., Hutson (Hrsg.), Anorectal malformations in children. Embryology, diagnosis,surgical therapy, follow up (S.469-469). Heidelberg: Springer.
17. Jenetzky, E., Schwarzer, N. (2008). Nicht allein mit einer seltenen Erkrankung - Die Bedeutung von Selbsthilfe am Beispiel anorektaler Fehlbildungen. Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz, 51, 529-538.
18. Loening-Baucke V. (1997). Fecal incontinence in children. American Family Physician, 55, 2229-2238.
19. Ludman, L, Spitz, L., Kiely, E.M. (1994). Social and emotional impact of faecal incontinence after surgery for anorectal abnormalities. Archives of Disesase in Childhood, 71, 194-200.
20. Nisell, M., Brodin, U., Christensson, K., Rydelius, P. A. (2009). The Imperforate Anus Psychsocial Questionnaire (IAPSQ): Its construction and psychometric properties. Child and Adolescent Psychiatry and Mental Health, 14, 15-23.
21. Noeker, M., Petermann, F. (2003). Entwicklungsorientierte Betrachtung chronischer Krankheiten im Kindes-und Jugendalter. Zeitschrift für Klinische Psychologie, Psychopathologie und Psychotherapie, 51, 191-229.
22. Noeker, M., Petermann, F. (2008). Chronisch-körperliche Erkrankungen. In F. Petermann (Hrsg.), Lehrbuch Klinische Kinderpsychologie. 6., vollständig überarbeitete Auflage (515-531). Göttingen: Hogrefe.
23. Noeker, M., Petermann, F. (2008a). Chronische Erkrankungen. In F. Petermann, S. Schneider (Hrsg.). Enzyklopädie der Psychologie. Band C/V/7 Angewandte Entwicklungspsychologie (635-676). Göttingen: Hogrefe.
24. Noeker, M., Petermann, F. (2008c). Resilienz: Funktionale Adaptation an widrige Umgebungs-bedingungen. Zeitschrift für Psychiatrie, Psychologie und Psychotherapie, 56, 255-263.
25. Noeker, M. (2009). Verhaltenstherapie in der Pädiatrie. In S. Schneider, J. Margraf (Hrsg.). Lehrbuch der Verhaltenstherapie: Störungen des Kindes-und Jugendalters (Band 3, S. 937-957). Berlin: Springer.
26. Peña, A., Grasshoff, S., Levitt, M. (2007). Reoperations in anorectal malformations. Journal of Pediatric Surgery, 42, 318-312.
27. Poley, M. J., Stolk E. A, Tibboel, D., Molenaar, J. C., Busschbach, J. J. V. (2004). Short term and long term health related quality of life after congenital anorectal malformations and congenital diaphragmatic hernia. Archives of Disease Childhood, 89, 836-841.
28. Reifferscheid, P. (2007). Anorektale Malformationen: Formen, Diagnostik, chirurgische Erstbehandlung. Kinderärztliche Praxis, 78, 72-79.
29. Rintala, R. J., Lindahl, H. G. (2001). Fecal continence in patients having undergone posterior sagittal anorectoplasty procedure for a high anorectal malformation improves at adolescence, as constipation disappears. Journal of Pediatric Surgery, 36, 1218-1221.
30. Rockwood, T. H., Church, J. M., Fleshman, J. W. (2000). Fecal Incontinence Quality of Life Scale: quality of life instrument for patients with fecal incontinence. Disease of Colon and Rectum, 43, 9-16.
31. Schmidt, D., Märzheuser, S., Jenetzky, E., Lenz, K., Lehmkuhl, U., Mau, H., Winter, S. (2010). Psychiatrische Komorbidität und psychosozialer Betreuungsbedarf bei Kindern und Jugendlichen mit anorektalen Malformationen. Praxis der Kinderpsychologie und Kinderpsychiatrie, 59, 38-51.
32. Schmiedeke, E., Busch, M., Stamatopoulos, E., Lorenz, C. (2008). Multidisciplinary behavioural treatment of fecal incontinence and constipation after correction of anorectal malformation. World Journal of Pediatrics, 4, 206-210.
33. Schwarzer, N. (2010). Wie kann Selbsthilfe Patienten mit anorektalen Fehlbildungen und ihre Familien unterstützen? Psychosoziale Hilfsangebote von SoMA e.V. Praxis der Kinderpsychologie und Kinderpsychiatrie, 59, 5-21.
34. Trajanovska, M., Catto-Smith, A. G. (2005). Quality of life measures for fecal incontinence and their use in children. Journal of Gastroenterology and Hepatology, 20, 919-928.
35. Van Kuyk, E. M., Brugman-Boezeman, A. T., Wissink-Essink, M. (2001). Defecation problems in children with Hirschsprung's disease: a prospective controlled study of a multidisciplinary behavioral treatment. Acta Paediatrica, 90, 1153-1159.
36. van Kuyk, E. M., Brugman-Boezeman, A. T., Wissink-Essink, M., Severijnen, R. S., Festen, C., Bleijenberg, G. (2000). Biopsychosocial treatment of defecation problems in children with anal atresia: a retrospective study. Pediatric Surgery International, 16, 317-321.