메뉴 건너뛰기




Volumn 35, Issue 4, 2010, Pages 787-794

Health-related quality of life and unmet needs in patients with primary ciliary dyskinesia

Author keywords

Medical outcomes study short form 36; Primary ciliary dyskinesia; Quality of life; St George's respiratory questionnaire; Unmet needs

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CILIARY DYSKINESIA; DISEASE COURSE; FEMALE; HEALTH CARE NEED; HUMAN; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH; PATIENT COMPLIANCE; PATIENT IDENTIFICATION; PHYSIOTHERAPY; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SCHOOL CHILD; SHORT FORM 36; TREATMENT OUTCOME;

EID: 77951178665     PISSN: 09031936     EISSN: 13993003     Source Type: Journal    
DOI: 10.1183/09031936.00051509     Document Type: Article
Times cited : (54)

References (30)
  • 2
    • 0028607956 scopus 로고
    • Primary ciliary dyskinesia (the immotile cilia syndrome)
    • Schidlow DV. Primary ciliary dyskinesia (the immotile cilia syndrome). Ann Allergy 1994; 73: 457-468.
    • (1994) Ann Allergy , vol.73 , pp. 457-468
    • Schidlow, D.V.1
  • 4
    • 0030698259 scopus 로고    scopus 로고
    • Longitudinal study of lung function in a cohort of primary ciliary dyskinesia
    • DOI 10.1183/09031936.97.10102376
    • Ellerman A, Bisgaard H. Longitudinal study of lung function in a cohort of primary ciliary dyskinesia. Eur Respir J 1997; 10: 2376-2379. (Pubitemid 27479564)
    • (1997) European Respiratory Journal , vol.10 , Issue.10 , pp. 2376-2379
    • Ellerman, A.1    Bisgaard, H.2
  • 5
    • 0031958060 scopus 로고    scopus 로고
    • Primary ciliary dyskinesia: Evolution of pulmonary function
    • DOI 10.1007/s004310050843
    • Hellinckx J, Demedts M, De Boeck K. Primary ciliary dyskinesia: evolution of pulmonary function. Eur J Pediatr 1998; 157: 422-426. (Pubitemid 28225448)
    • (1998) European Journal of Pediatrics , vol.157 , Issue.5 , pp. 422-426
    • Hellinckx, J.1    Demedts, M.2    De Boeck, K.3
  • 6
    • 38349018369 scopus 로고    scopus 로고
    • The cell biological basis of ciliary disease
    • Marshall WF. The cell biological basis of ciliary disease. J Cell Biol 2008; 180: 17-21.
    • (2008) J Cell Biol , vol.180 , pp. 17-21
    • Marshall, W.F.1
  • 7
    • 1542644325 scopus 로고    scopus 로고
    • Primary ciliary dyskinesia (Siewert's/Kartagener's syndrome): Respiratory symptoms and psycho-social impact
    • McManus IC, Mitchison HM, Chung EM, et al. Primary ciliary dyskinesia (Siewert's/Kartagener's syndrome): respiratory symptoms and psycho-social impact. BMC Pulm Med 2003; 3: 4.
    • (2003) BMC Pulm Med , vol.3 , pp. 4
    • McManus, I.C.1    Mitchison, H.M.2    Chung, E.M.3
  • 8
    • 0026028924 scopus 로고
    • Development and testing of a new measure of health status for clinical trials in rhinoconjunctivitis
    • Juniper EF, Guyatt GH. Development and testing of a new measure of health status for clinical trials in rhinoconjunctivitis. Clin Exp Allergy 1990; 21: 77-83.
    • (1990) Clin Exp Allergy , vol.21 , pp. 77-83
    • Juniper, E.F.1    Guyatt, G.H.2
  • 11
    • 0030753764 scopus 로고    scopus 로고
    • Validation of the St. George's Respiratory Questionnaire in bronchiectasis
    • Wilson CB, Jones PW, O'Leary CJ, et al. Validation of the St. George's Respiratory Questionnaire in bronchiectasis. Am J Respir Crit Care Med 1997; 156: 536-541.
    • (1997) Am J Respir Crit Care Med , vol.156 , pp. 536-541
    • Wilson, C.B.1    Jones, P.W.2    O'Leary, C.J.3
  • 12
    • 0002673617 scopus 로고    scopus 로고
    • The St. George's Respiratory Questionnaire (SGRQ): Italian version
    • Carone M, Bertolotti G, Anchisi F, et al. The St. George's Respiratory Questionnaire (SGRQ): Italian version. Rassegna Patol App Respir 1999; 14: 31-37.
    • (1999) Rassegna Patol App Respir , vol.14 , pp. 31-37
    • Carone, M.1    Bertolotti, G.2    Anchisi, F.3
  • 13
    • 0032212680 scopus 로고    scopus 로고
    • The Italian SF-36 Health Survey: Translation, validation and norming
    • DOI 10.1016/S0895-4356(98)00094-8, PII S0895435698000948
    • Apolone G, Mosconi P. The Italian SF-36 Health Survey: translation, validation and norming. J Clin Epidemiol 1998; 51: 1025-1036. (Pubitemid 28527158)
    • (1998) Journal of Clinical Epidemiology , vol.51 , Issue.11 , pp. 1025-1036
    • Apolone, G.1    Mosconi, P.2
  • 14
    • 0025886867 scopus 로고
    • The St. George's Respiratory Questionnaire
    • Jones PW, Quirk FH, Baveystock CM. The St. George's Respiratory Questionnaire. Resp Med 1991; 85: 25-31.
    • (1991) Resp Med , vol.85 , pp. 25-31
    • Jones, P.W.1    Quirk, F.H.2    Baveystock, C.M.3
  • 16
    • 0037320133 scopus 로고    scopus 로고
    • Development of the Cystic Fibrosis Questionnaire (CFQ) for assessing quality of life in pediatric and adult patients
    • DOI 10.1023/A:1022037320039
    • Henry B, Aussage P, Grosskopf C, et al. Development of the Cystic Fibrosis Questionnaire (CFQ) for assessing quality of life in pediatric and adult patients. Qual Life Res 2003; 12: 63-76. (Pubitemid 36223007)
    • (2003) Quality of Life Research , vol.12 , Issue.1 , pp. 63-76
    • Henry, B.1    Aussage, P.2    Grosskopf, C.3    Goehrs, J.-M.4
  • 18
    • 3042792538 scopus 로고    scopus 로고
    • The impact of treatment of pulmonary exacerbations on the health-related quality of life of patients with cystic fibrosis: Does hospitalization make a difference?
    • Yi MS, Tsevat J, Wilmott RW, et al. The impact of treatment of pulmonary exacerbations on the health-related quality of life of patients with cystic fibrosis: does hospitalization make a difference? J Pediatr 2004; 144: 711-718.
    • (2004) J Pediatr , vol.144 , pp. 711-718
    • Yi, M.S.1    Tsevat, J.2    Wilmott, R.W.3
  • 19
    • 0028211680 scopus 로고
    • Quality of life, symptoms and pulmonary function in asthma: Long-term treatment with nedocromil sodium examined in a controlled multicentre trial. Nedocromil Sodium Quality of Life Study Group
    • Jones PW. Quality of life, symptoms and pulmonary function in asthma: long-term treatment with nedocromil sodium examined in a controlled multicentre trial. Nedocromil Sodium Quality of Life Study Group. Eur Respir J 1994; 7: 55-62.
    • (1994) Eur Respir J , vol.7 , pp. 55-62
    • Jones, P.W.1
  • 21
    • 0033027599 scopus 로고    scopus 로고
    • The assessment of shoulder instability. the development and validation of a questionnaire
    • Dawson J, Fitzpatrick R, Carr A. The assessment of shoulder instability. The development and validation of a questionnaire. J Bone Joint Surg Br 1999; 81: 420-426.
    • (1999) J Bone Joint Surg Br , vol.81 , pp. 420-426
    • Dawson, J.1    Fitzpatrick, R.2    Carr, A.3
  • 22
    • 33645515843 scopus 로고    scopus 로고
    • Maximising response to postal questionnaires - A systematic review of randomised trials in health research
    • Nakash RA, Hutton JL, Jørstad-Stein EC, et al. Maximising response to postal questionnaires - a systematic review of randomised trials in health research. BMC Med Res Methodol 2006; 6: 5.
    • (2006) BMC Med Res Methodol , vol.6 , pp. 5
    • Nakash, R.A.1    Hutton, J.L.2    Jørstad-Stein, E.C.3
  • 23
    • 34247261595 scopus 로고    scopus 로고
    • Health coaching: A new and exciting technique to enhance patient self-management and improve outcomes
    • Huffman M. Health coaching: a new and exciting technique to enhance patient self-management and improve outcomes. Home Healthc Nurse 2007; 25: 271-274.
    • (2007) Home Healthc Nurse , vol.25 , pp. 271-274
    • Huffman, M.1
  • 25
    • 0025874382 scopus 로고
    • The Yentl syndrome
    • Healy B. The Yentl syndrome. N Engl J Med 1991; 325: 274-276.
    • (1991) N Engl J Med , vol.325 , pp. 274-276
    • Healy, B.1
  • 27
    • 0025374834 scopus 로고
    • Passive smoking in childhood-tobacco smoke
    • Ronchetti R, Bonci E, Martinez FD. Passive smoking in childhood-tobacco smoke. Lung 1990; 168: Suppl, 313-319.
    • (1990) Lung , vol.168 , Issue.SUPPL. , pp. 313-319
    • Ronchetti, R.1    Bonci, E.2    Martinez, F.D.3
  • 28
  • 29
    • 0041384525 scopus 로고    scopus 로고
    • Meeting the challenge of chronic illness in general practice
    • Veale BM. Meeting the challenge of chronic illness in general practice. Med J Aust 2003; 179: 247-249. (Pubitemid 37098399)
    • (2003) Medical Journal of Australia , vol.179 , Issue.5 , pp. 247-249
    • Veale, B.M.1
  • 30
    • 33751007555 scopus 로고    scopus 로고
    • Living with primary ciliary dyskinesia: A prospective qualitative study of knowledge sharing, sympton concealment, embarrassment, mistrust, and stigma
    • DOI 10.1186/1471-2466-6-25
    • Whalley S, McManus IC. Living with primary ciliary dyskinesia: a prospective qualitative study of knowledge sharing, symptom concealment, embarrassment, mistrust, and stigma. BMC Pulm Med 2006; 6: 2. (Pubitemid 44742619)
    • (2006) BMC Pulmonary Medicine , vol.6 , pp. 25
    • Whalley, S.1    McManus, I.C.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.