'The alien baby': Risk, blame and prenatal indeterminacy

Health, Risk and Society

Volumn 12, Issue 1, 2010, Pages 21-31

  Gross, Sky E ^a  

^a HEBREW UNIVERSITY OF JERUSALEM   (Israel)

Author keywords

Diagnostic test; Disability; Down Syndrome; Risk; Screening; Uncertainty

Indexed keywords

ARTICLE; CHILD HEALTH; CHILDBIRTH; CONGENITAL MALFORMATION; DOWN SYNDROME; FETUS RISK; GENETIC SCREENING; HUMAN; MATERNAL ATTITUDE; PREGNANCY; PRENATAL SCREENING; PROBABILITY; QUANTUM MECHANICS; RISK ASSESSMENT; RISK MANAGEMENT; UNCERTAINTY;

EID: 77950978495     PISSN: 13698575     EISSN: 14698331     Source Type: Journal    
DOI: 10.1080/13698570903508713     Document Type: Article

References (51)

1. Adam, B., Beck, U., and Van Loon, J., eds., 2000. The risk society and beyond: critical issues for social theory. London: Sage.
2. Apple, R.D., 1995. Constructing mothers: scientific motherhood in the nineteenth and twentieth centuries. Social history of medicine, 8, 161-178.
3. Bauman, R., 1986. Story, performance and event. Cambridge, UK: Cambridge University Press.
4. Beck, U., 1992. Risk society: towards a new modernity. London: Sage.
5. Becker, G. and Kaufman, S.R., 1995. Managing an uncertain illness trajectory in old-age - patients and physicians views of stroke. Medical anthropology quarterly, 9, 165-187.
6. Brown, N. and Webster, A., 2002. A sociology of new medical technology. Cambridge, MA: Polity Press.
7. Browner, C.H. and Press, N., 1995. The normalization of prenatal diagnostic screening. In: F.D. Ginsburg and R. Rapp, eds. Conceiving a new world order. Berkeley: University of California Press, 307-322.
8. Browner, C.H. and Press, N., 1996. The production of authoritative knowledge in American prenatal care. Medical anthropology quarterly, 10, 141-156.
9. Chadwick, R., 1999. Genetics, choice and responsibility. Health, risk & society, 1, 293-300.
10. Clarke, A.E., et al., 2003. Biomedicalization: technoscientific transformations of health, illness, and US biomedicine. American sociological review, 68, 161-194.
11. Conrad, P. and Schneider, J.W., 1992. Deviance and medicalization: from badness to sickness. Philadelphia: Temple University Press.
12. Cowan, R., 1994. Women's role in the history of amniocentesis and chorionic villi sampling. In: K.H. Rothenberg and E.J. Thompson, eds. Women and prenatal screening: facing the challenges of prenatal testing. Columbus, OH: Ohio State University Press, 120-142.
13. Douglas, M., 1966. Purity and danger; an analysis of concepts of pollution and taboo. New York: Praeger.
14. Douglas, M., 1992. Risk and blame: essays in cultural theory. London: Routledge.
15. Douglas, M. and Wildavsky, A.B., 1982. Risk and culture: an essay on the selection of technical and environmental dangers. Berkeley: University of California Press.
16. Duden, B., 1993. Disembodying women: perspectives on pregnancy and the unborn. Cambridge, MA: Harvard University Press.
17. Ewing, K.P., 1990. The illusion of wholeness: culture, self, and the experience of inconsistency. Ethos, 18, 251-278.
18. Giddens, A., 1990. The consequences of modernity. Stanford, CA: Stanford University Press.
19. Giddens, A., 1991. Modernity and self-identity: self and society in the late modern age. Stanford, CA: Stanford University Press.
20. Green, J., Snowdon, C., and Statham, H., 1993. Pregnant women's attitudes to abortion and prenatal screening. Journal of reproductive and infant psychology, 11, 31-39.
21. Gross, S.E. and Shuval, J.T., 2008. On knowing and believing: prenatal genetic screening and resistance to 'risk-medicine'. Health, risk & society, 10, 549-564.
22. Haraway, D.J., 1991. Simians, cyborgs, and women: the reinvention of nature. New York: Routledge.
23. Hardyment, C., 1995. Perfect parents: baby-care advice past and present. Oxford: Oxford University Press.
24. Heyman, B., et al., 2006. On being at higher risk: a qualitative study of prenatal screening for chromosomal anomalies. Social science & medicine, 62, 2360-2372.
25. Higgs, P., 2003. The limits and boundaries to medical knowledge. In: G. Scambler, ed. Sociology as applied to medicine. London: Saunders, 193-204.
26. Jallinoja, P., 2001. Genetic screening in maternity care: preventive aims and voluntary choices. Sociology of health & illness, 23, 286-307.
27. Kolker, A. and Burke, B.M., 1994. Prenatal testing: a sociological perspective. Westport, CT: Bergin & Garvey.
28. Ladd-Taylor, M. and Umansky, L., 1998. 'Bad' mothers: the politics of blame in twentiethcentury America. New York: New York University Press.
29. Liamputtong, P., et al., 2003. Why do women decline prenatal screening and diagnosis: Australian women's perspectives. Women and health, 37, 89-108.
30. Lippman, A., 1994. The genetic construction of prenatal testing. In: K.H. Rothenberg and E.J. Thompson, eds. Women and prenatal screening: facing the challenges of prenatal testing. Columbus, OH: Ohio State University Press, 96-105.
31. Lippman, A., 1999. Choice as a risk to women's health. Health, risk & society, 1, 281-291.
32. Lupton, D., ed., 1999. Risk and sociocultural theory: new directions and perspectives. Cambridge, MA: Cambridge University Press.
33. Mattingly, C., 1998. In search of the good: narrative reasoning in clinical practice. Medical anthropology quarterly, 12, 273-297.
34. Mattingly, C., 2008. Reading minds and telling tales in a cultural borderland. Ethos, 36, 136-154.
35. Mythen, G., 2004. Ulrich Beck: a critical introduction to the risk society. London: Pluto Press.
36. Petersen, A., 1999. Counseling the genetically at risk: the poetics and politics of nondirectiveness. Health, risk & society, 1, 253-265.
37. Polanyi, L., 1985. Telling the American story: a structural and cultural analysis of conversational storytelling. Norwood, NJ: Ablex Publishers.
38. Poutanen, S., 2002. The first genetic screening in Finland: its execution, evaluation and some possible implications for liberal government. Critical public health, 12, 251-264.
39. Press, N. and Browner, C.H., 1993. 'Collective fictions': similarities in reasons for accepting maternal serum alpha-fetoprotein screening among women of diverse ethnic and social class backgrounds. Fetal diagnosis and therapy, 8, 97-106.
40. Rabinow, P., 1984. The Foucault reader. New York: Pantheon Books.
41. Raz, A., 2004. 'Important to test, important to support': attitudes toward disability rights and prenatal diagnosis among leaders of support groups for genetic disorders in Israel. Social science & medicine, 59, 1857-1866.
42. Rothman, B.K., 1986. The tentative pregnancy: prenatal diagnosis and the future of motherhood. New York: Viking.
43. Shakespeare, T., 1998. Choices and rights: eugenics, genetics and disability equality. Disability & society, 13, 665-681.
44. Shildrick, M., 1997. Leaky bodies and boundaries: feminism, postmodernism and (bio)ethics. London: Routledge.
45. Tsing, A.L., 1990. Monster stories: women charged with perinatal endangerment. In: F. Ginsburg and A.L. Tsing, eds. Uncertain terms: negotiating gender in American culture, Vols 80-107. Cambridge, MA: Beacon.
46. Turner, V.W., 1967. The forest of symbols; aspects of Ndembu ritual. Ithaca, NY: Cornell University Press.
47. Turner, V.W., 1969. The ritual process: structure and anti-structure. Chicago: Aldine.
48. Van Gennep, A., 1960. The rites of passage. Chicago: University of Chicago Press.
49. Webster, A., 2002. Innovative health technologies and the social: redefining health, medicine and the body. Current sociology, 50, 443-457.
50. William, G., 2008. The genesis of chronic illness: narrative re-construction. Sociology of health and illness, 6 (2), 175-200.
51. Zola, I.K., 1972. Medicine as an institution of social control. The sociological review, 20, 487-504.