Antiretroviral Therapy Adherence Among Transgender Women Living With HIV

Journal of the Association of Nurses in AIDS Care

Volumn 21, Issue 3, 2010, Pages 256-264

  Sevelius, Jae M ^a   Carrico, Adam ^a   Johnson, Mallory O ^a  

^a NONE

Author keywords

adherence; AIDS; antiretroviral therapy; HIV; transgender; women

Indexed keywords

ANTI HUMAN IMMUNODEFICIENCY VIRUS AGENT;

ADAPTIVE BEHAVIOR; ADULT; AFRICAN AMERICAN; ARTICLE; CAUCASIAN; CHI SQUARE DISTRIBUTION; CULTURAL COMPETENCE; DEPRESSION; EDUCATION; ETHNOLOGY; FEMALE; HISPANIC; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; HUMAN RELATION; NURSING METHODOLOGY RESEARCH; PATIENT COMPLIANCE; PSYCHOLOGICAL ASPECT; SELF CONCEPT; SEXUALITY; STATISTICAL MODEL; STATISTICS; TRANSSEXUALISM; UNITED STATES;

ADAPTATION, PSYCHOLOGICAL; ADULT; AFRICAN AMERICANS; ANTI-HIV AGENTS; CHI-SQUARE DISTRIBUTION; CULTURAL COMPETENCY; DEPRESSION; EUROPEAN CONTINENTAL ANCESTRY GROUP; FEMALE; HISPANIC AMERICANS; HIV INFECTIONS; HUMANS; LOGISTIC MODELS; MEDICATION ADHERENCE; NURSING METHODOLOGY RESEARCH; PROFESSIONAL-PATIENT RELATIONS; SELF EFFICACY; SEXUALITY; TRANSSEXUALISM; UNITED STATES; WOMEN;

EID: 77950943172     PISSN: 10553290     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jana.2010.01.005     Document Type: Article

References (38)

1. Bandura A. Self-efficacy mechanism in physiological activation and health-promoting behavior. In: Madden I.J. (Ed). Neurobiology of learning, emotion and affect (1991), Raven, New York, NY 229-270
2. Bangsberg D.R., Hecht F.M., Charlebois E.D., Zolopa A.R., Holodniy M., Sheiner L., et al., Moss A. Adherence to protease inhibitors, HIV-1 viral load, and development of drug resistance in an indigent population. AIDS 14 4 (2000) 357-366
3. Beck A.T. Depression: Causes and treatment (1967), University of Pennsylvania Press, Philadelphia, PA
4. Blower S.M., Aschenbach A.N., Gershengorn H.B., and Kahn J.O. Predicting the unpredictable: Transmission of drug-resistant HIV. Nature Medicine 7 9 (2001) 1016-1020
5. Chesney M.A. Factors affecting adherence to antiretroviral therapy. Clinical Infectious Diseases 30 Suppl. 2 (2000) S171-S176
6. Chesney M.A., Ickovics J.R., Chambers D.B., Gifford A.L., Neidig J., Zwickl B., and The Patient Care Committee & Adherence Working Group of the Outcomes Committee of the Adult AIDS Clinical Trials Group (AACTG). Self-reported adherence to antiretroviral medications among participants in HIV clinical trials: The AACTG adherence instruments. AIDS Care 12 3 (2000) 255-266
7. Clements K., Wilkinson W., Kitano K., and Marx R. HIV prevention and health service needs of the transgender community in San Francisco. International Journal of Transgenderism 3 1 + 2 (1999). http://www.symposion.com/ijt/hiv_risk/clements.htm Retrieved from
8. Cochran S., Mays V., and Sullivan J. Prevalence of mental disorders, psychological distress, and mental health services use among lesbian, gay, and bisexual adults in the United States. Journal of Consulting and Clinical Psychology 71 1 (2003) 53-61 10.1037/0022-006X.71.1.53
9. Connolly, E., & Kohler, L. (2006). Special populations, Case Study 4: Discussion. Retrieved from http://depts.washington.edu/hivaids/spop/case4/discussion.html
10. Fogarty L., Roter D., Larson S., Burke J., Gillespie J., and Levy R. Patient adherence to HIV medication regimens: A review of published and abstract reports. [review]. Patient Education & Counseling 46 2 (2002) 93-108 10.1016/S0738-3991(01)00219-1
11. Garafalo R., Deleon J., Osmer E., Doll M., and Harper G. Overlooked, misunderstood, and at-risk: Exploring the lives and HIV risk of ethnic minority male-to-female transgender youth. Journal of Adolescent Health 38 (2006) 230-236 10.1016/j.jadohealth.2005.03.023
12. Garcia de Olalla P., Knobel H., Carmona A., Guelar A., Lopez-Colomes J.L., and Cayla J.A. Impact of adherence and highly active antiretroviral therapy on survival in HIV-infected patients. Journal of Acquired Immune Deficiency Syndromes 30 1 (2002) 105-110
13. Grimaldi J., and Jacobs J. The HIV hormone bridge: Connecting impoverished HIV + transsexual sex workers to HIV medical care. Paper presented at the XII International Conference on AIDS (1998), Switzerland, Geneva. Abstract retrieved from http://gateway.nlm.nih.gov/MeetingAbstracts/ma?f=102231858.html
14. Herbst J., Jacobs E., Finlayson T., McKleroy V., Neumann M., Crepaz N., and The HIV/AIDS Prevention Research Synthesis Team. Estimating HIV prevalence and risk behaviors of transgender persons in the United States: A systematic review. AIDS and Behavior 12 1 (2008) 1-17 10.1007/s10461-007-9299-3
15. Hogg R.S., Heath K., Bangsberg D., Yip B., Press N., O'Shaughnessy M.V., and Montaner J. Intermittent use of triple-combination therapy is predictive of mortality at baseline and after 1 year of follow-up. AIDS 16 7 (2002) 1051-1058
16. Israel G.E., and Tarver D.E. Transgender care: Recommended guidelines, practical information, and personal accounts (1997), Temple University Press, Philadelphia, PA
17. Johnson M.O., Catz S., Remien R., Rotheram-Borus M., Morin S., Charlebois E., and the NIMH Healthy Living Project Team. Theory guided, empirically supported avenues for intervention on HIV medication nonadherence: Findings from the Healthy Living Project. AIDS Patient Care & STDS 17 12 (2003) 645-656 10.1089/108729103771928708
18. Johnson M.O., Chesney M., Goldstein R., Remien R., Catz S., Gore-Felton C., and Morin S.F. Positive provider interactions, adherence self-efficacy, and adherence to antiretroviral medications among HIV-infected adults: A mediation model. AIDS Patient Care and STDs 20 4 (2006) 258-268 10.1089/apc.2006.20.258
19. Johnson M.O., Neilands T.B., Dilworth S., Morin S.F., Remien R.H., and Chesney M.A. The role of self-efficacy in HIV treatment adherence: Validation of the HIV Treatment Adherence Self-Efficacy Scale (HIV-ASES). Journal of Behavioral Medicine 30 (2007) 359-370 10.1007/s10865-007-9118-3
20. Justice A.C., Holmes W., Gifford A.L., Rabeneck L., Zackin R., Sinclair G., and The Adult AIDS Clinical Trials Unit Outcomes Committee. Development and validation of a self-completed HIV symptom index. Journal of Clinical Epidemiology 54 12, Suppl. 1 (2001) S77-S90 10.1016/S0895-4356(01)00449-8
21. Kalichman S.C., Cain D., Fuhrel A., Eaton L., Di Fonzo K., and Ertl T. Assessing medication adherence self-efficacy among low-literacy patients: Development of a pictographic visual analogue scale. Health Education Research 20 1 (2005) 24-35 10.1093/her/cyg106
22. Kalichman S.C., Rompa D., and Cage M. Distinguishing between overlapping somatic symptoms of depression and HIV disease in people living with HIV-AIDS. The Journal of Nervous and Mental Disease 188 10 (2000) 662-670
23. Kammerer N., Mason T., Connors M., and Durkee R. Transgender health and social service needs in the context of HIV risk. In: Bockting W., and Kirk S. (Eds). Transgender and HIV: Risks, prevention, and care (2001), Haworth, Binghamton, NY 39-57
24. Kenagy G. Transgender health: Findings from two needs assessment studies in Philadelphia. Health & Social Work 30 1 (2005) 19-26
25. Lombardi E. Public health and trans-people: Barriers to care and strategies to improve treatment. In: Meyer I.H., and Northridge M.E. (Eds). The health of sexual minorities: Public health perspectives on lesbian, gay, bisexual, and transgender populations (2007), Springer, New York, NY 638-652
26. Melendez R., Exner T., Ehrhardt A., Dodge B., Remien R., Rotheram-Borus M., and Hong D. Health and health care among male-to-female transgender persons who are HIV positive. American Journal of Public Health 96 6 (2006) 1034-1037 10.2105/AJPH.2004.042010
27. Panel on Antiretroviral Guidelines for Adults and Adolescents. (2009). Guidelines for the use of antiretroviral agents in HIV-1-infected adults and adolescents. Retrieved from http://www.aidsinfo.nih.gov/ContentFiles/AdultandAdolescentGL.pdf
28. Paterson D.L., Swindells S., Mohr J., Brester M., Vergis E.N., Squier C., and Singh N. Adherence to protease inhibitor therapy and outcomes in patients with HIV infection. Annals of Internal Medicine 133 1 (2000) 21-30
29. Remien R.H., Hirky A.E., Johnson M.O., Weinhardt L.S., Whittier D., and Minh-Le G. Adherence to medication treatment: A qualitative study of facilitators and barriers among a diverse sample of HIV + men and women in four U.S. cities. AIDS and Behavior 7 1 (2003) 61-72 10.1023/A:1022513507669
30. Sanchez N.F., Sanchez J.P., and Danoff A. Health care utilization, barriers to care, and hormone usage among male-to-female transgender persons in New York City. American Journal of Public Health 99 4 (2009) 713-719 10.2105/AJPH.2007.132035
31. Simoni J.M., Frick P.A., and Huang B. A longitudinal evaluation of a social support model of medication adherence among HIV-positive men and women on antiretroviral therapy. Health Psychology 25 1 (2006) 74-81 10.1037/0278-6133.25.1.74
32. Tom Waddell Health Center Transgender Team. (2006). Protocols for hormonal reassignment of gender. Retrieved from http://www.sfdph.org/dph/comupg/oservices/medSvs/hlthCtrs/TransGendprotocols122006.pdf
33. Transgender Law Center's Health Care Access Project. (2004). Transgender health and the law: Identifying and fighting health care discrimination. Retrieved from http://www.transgenderlawcenter.org/pdf/Health%20Law%20fact%20sheet.pdf
34. van Dulmen S., Sluijs E., van Dijk L., de Ridder D., Heerdink R., and Bensing J. Patient adherence to medical treatment: A review of reviews. [online]. BMC Health Services Research 7 (2007) 55 10.1186/1472-6963-7-55
35. Vanhove G.F., Schapiro J.M., Winters M.A., Merigan T.C., and Blaschke T.F. Patient compliance and drug failure in protease inhibitor monotherapy. Journal of the American Medical Association 276 24 (1996) 1955-1956
36. Vázquez, E. (2008a). A transgender therapy primer: Basic information for hormonal treatment and drugs interactions. Retrieved from http://www.positivelyaware.com/2008/08_04/transgender_therapy_primer.html
37. Vázquez, E. (2008b). Transgender therapy and HIV: Two complicated conditions rolled into one. Retrieved from http://www.thebody.com/content/whatis/art48406.html
38. Zevin, B., & Martinez, L. (2007). HIV infection and transgender medicine [slide presentation]. Retrieved from http://hivinsite.ucsf.edu/InSite?page=cfphp-zevinmartinez-sl