From cure to community: Transforming notions of autism

Ethos

Volumn 38, Issue 1, 2010, Pages 33-55

  Bagatell, Nancy ^a  

^a QUINNIPIAC UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 77950676790     PISSN: 00912131     EISSN: 15481352     Source Type: Journal    
DOI: 10.1111/j.1548-1352.2009.01080.x     Document Type: Review

References (71)

1. Abberley, Paul 1987 The Concept of Oppression and the Development of a Social Theory of Disability. Disability, Handicap and Society 2 (1) : 5 21.
2. American Psychiatric Association (APA) 1994 Diagnostic and Statistical Manual of Mental Disorders, Fourth edition.
3. Akshoomoff, Natasha, Karen Pierce Eric Courchesne 2002 The Neurobiological Basis of Autism from a Developmental Perspective. Development and Psychopathology 14 (3) : 613 634.
4. Autism Information Library 2004 In Support of Michelle Dawson and Her Work. Electronic document, accessed May 3, 2008.
5. Autism National Committee (AUTCOM) 2007 Homepage. Electronic document, accessed May 15, 2008.
6. Autism Network International (ANI) 2000 Philosophy and Goals. Electronic document, accessed September 28, 2001.
7. Autism Speaks 2007 Homepage. Electronic document, accessed September 10, 2007.
8. Autistic Self Advocacy Network 2007 About Us. Electronic document, accessed May 15, 2008.
9. The Auton Case: The Intervener's Factum N.d. An Autistic at the Supreme Court. Electronic document, accessed March 20, 2008.
10. Ayres, A. Jean 2005 Sensory Integration and the Child.
11. Bagatell, Nancy 2003 Constructing Identities in Social Worlds: Stories of Four Adults with Autism. Ph.D. dissertation, Division of Occupational Science and Occupational Therapy, University of Southern California.
12. Baggs, Amanda 2007 A Few Thoughts on Dissents and Communities and Crap. Electronic document, accessed October 12, 2007.
13. Baranek, Grace, Fabian J. David, Michele D. Poe, Wendy D. Stone Linda R. Watson 2005 Sensory Experiences Questionnaire: Discriminating Sensory Features in Young Children with Autism, Developmental Delays, and Typical Development. Journal of Child Psychology and Psychiatry 47 (6) : 591 601.
14. Bauman, Margaret Thomas L. Kemper 2005 The Neurobiology of Autism, 2nd edition.
15. Bettleheim, Bruno 1967 The Empty Fortress: Infantile Autism and the Birth of the Self.
16. Biklen, Douglas 1990 Communication Unbound: Autism and Praxis. Harvard Educational Review 60 (Fall) : 291 314.
17. Biklen, Douglas Donald Cardinal 1997 Contested Words, Contested Science: Unraveling the Facilitated Communication Controversy.
18. Blume, Harvey 1997a Connections: Autistics are Communicating in Cyberspace. New York Times, June 30. Electronic document, accessed March 13, 2002.
19. Blume, Harvey 1997b "Autism and the Internet," or "It's the Wiring, Stupid." MIT Communications Forum. Electronic document, accessed March 13, 2002.
20. Center for Disease Control 2007 CDC Releases New Data on Autism Spectrum Disorders (ASDs) from Multiple Communities in the United States. Electronic document, accessed June 13, 2007.
21. Clark, Florence, Diane Parham, Michael E. Carlson, Gelya Frank, Jeanne Jackson, Doris Pierce, Robert J. Wolfe Ruth Zemke 1991 Occupational Science: Academic Innovation in the Science of Occupational Therapy's Future. American Journal of Occupational Therapy 45 (4) : 300 310.
22. Cooper, John O., Timothy E. Heron William Heward 1989 Applied Behavior Analysis.
23. Dawson, Michelle 2005 An Autistic Victory: The True Meaning of the Auton Case. Electronic document, accessed January 21, 2008.
24. DeGrace, Beth Werner 2004 The Everyday Occupation of Families with Children with Autism. American Journal of Occupational Therapy 58 (5) : 543 550.
25. Dewey, John 1916 Democracy and Education.
26. Dreidger, Diane 1989 The Last Civil Rights Movement.
27. Eikeseth, Svein, Tristram Smith, Erik Jahr Sigmund Eldevik 2007 Outcome for Children with Autism who Began Intensive Behavioral Treatment Between Ages 4 and 7. Behavior Modification 31 (3) : 264 278.
28. Englehardt, Tristam 1997 Defining Occupational Therapy: The Meaning of Therapy and the Virtues of Occupation. American Journal of Occupational Therapy 31 (10) : 666 672.
29. Gernsbacher, Morton Ann. 2004 Autistic Need Acceptance, Not Cure. Wisconsin State Journal, A6. Electronic document, accessed March 3, 2008.
30. Gillberg, Christopher 1998 Asperger Syndrome and High-Functioning Autism. British Journal of Psychiatry 172 (3) : 200 209.
31. Goffman, Erving 1963 The Presentation of Self in Everyday Life.
32. Grinker, Roy Richard 2007 Unstrange Minds: Remapping the World of Autism.
33. Harmon, Amy 2004 How About Not "Curing" Us, Some Autistics are Pleading. New York Times. Electronic document, accessed June 14, 2005.
34. Harris, Sandra L. Sharlene A. Wolchik 1979 Suppression of Self-Stimulation: Three Alternative Strategies. Journal of Applied Behavior Analysis 12 (2) : 185 198.
35. Holland, Dorothy, William J. Lachiocotte, Debra Skinner Carole Cain 1998 Identity and Agency in Cultural Worlds.
36. Jackson, Jeanne 1996 Living a Meaningful Existence in Old Age. In Occupational Science: The Evolving Discipline. Ruth Zemke Florence Clark, eds. Pp. 339 361.
37. Joyce, Brian A 2006 A Shocking Form of Therapy. Boston Globe, Electronic document, accessed May 12, 2007.
38. Kanner, Leo 1943 Autistic Disturbance of Affective Contact. Nervous Child 2 : 217 250.
39. Kaufman, Joanne 2007 Ransom-Note Ads About Children's Health Are Canceled. New York Times. Electronic Document, accessed March 20, 2008.
40. Kenway, Ian 2009 Blessing or Curse: Autism and the Rise of the Internet. Journal of Religion, Disability and Health 13 (2) : 94 103.
41. Kielhofner, Gary 2005 Rethinking Disability and What to Do about It: Disability Studies and Its Implications for Occupational Therapy. American Journal of Occupational Therapy 59 (5) : 487 496.
42. Klin, Ami, Sara S. Sparrow, Wendy D. Marans, Alice Carter Fred R. Volkmar 2000 Assessment Issues in Children and Adolescents with Asperger Syndrome. In Asperger Syndrome. Ami Klin, Fred R. Volkmar Sara S. Sparrow, eds. Pp. 309 339.
43. Law, Mary, Sue Baptiste Jan Mills 1995 Client-Centered Practice: What Does It Mean and Does It Make a Difference? Canadian Journal of Occupational Therapy 62 (5) : 250 257.
44. McDermott, Ray Herve Varenne 1995 Culture as Disability. Anthropology and Education Quarterly 26 (3) : 324 348.
45. Mostert, Mark P. 2001 Facilitated Communication since 1995: A Review of Published Studies. Journal of Autism and Developmental Disorders 31 (3) : 287 313.
46. Oliver, Michael 1992 Changing the Social Relations of Research Production. Disability, Handicap and Society 7 (2) : 101 114.
47. Oliver, Michael 1996 Understanding Disability: From Theory to Practice.
48. Padden, Carol A. Tom L. Humphries 2005 Inside Deaf Culture.
49. Rimland, Bernard 1964 Infantile Autism.
50. Rioux, Marcia H., ed. 1994 Introduction. In Disability Is Not Measles: New Research Paradigms in Disability. Marcia H. Rioux Michael Bach, eds. Pp. 1 7.
51. Rioux, Marcia Michael Bach 1994 Disability is Not Measles: New Research Paradigms in Disability.
52. Rubin, Sue 2005 Acceptance versus Cure. Electronic document, accessed March 22, 2006.
53. Sacks, Harvey, Emanuel A. Schegloff Gail Jefferson 1974 A Simplest Systematics for the Organization of Turn-Taking for Conversation. Language 50 (4) : 696 735.
54. Schall, Carol 2000 Family Perspectives on Raising a Child with Autism. Journal of Child and Family Studies 9 (4) : 409 423.
55. Shafer, Lenny 2005 Somewhere over the Spectrum: Is Asperger Syndrome Autism? Schafer Autism Report 9: 2.
56. Shapiro, Joseph 1993 No Pity.
57. Silverman, Chloe Jeffrey P. Brosco 2007 Understanding Autism: Parents and Pediatricians in Historical Perspective. Archives of Pediatric and Adolescent Medicine 161 (4) : 392 398.
58. Sinclair, Jim 1998 Is Cure a Goal? Electronic document, accessed May 23, 2007.
59. Sinclair, Jim 1999 Why I Dislike "Person First" Language. Electronic document, accessed June 22, 2001.
60. Sinclair, Jim 2005 Autism Network International: The Development of a Community and its Culture. Electronic document, accessed September 15, 2006.
61. Singer, Alison N. d. Cure is Not a Four Letter Word. Electronic document, accessed October 13, 2007.
62. Singer, Judy 1999 "Why Can't You Be Normal for Once in Your Life?" From a "Problem with No Name" to the Emergence of a New Category of Difference. In Disability Discourse. Miriam Corker Sally French, eds. Pp. 57 67.
63. Skinner, Debra, Jaan Valsiner Dorothy Holland. 2001 Discerning the Dialogical Self: A Theoretical and Methodological Examination of a Nepali Adolescent's Narrative. Forum Qualitative Sozialforschung/Forum: Qualitative Social Research 2(3). Electronic document, accessed July 10, 2002.
64. Smith, Sinclair A., Bracha Press, Kristie A. Koenig Moya Kinnealey 2005 Effects of Sensory Integration Intervention on Self-Stimulating and Self-Injurious Behaviors. American Journal of Occupational Therapy 59 (4) : 418 425.
65. Stone, Emma Mark Priestley 1996 Parasites, Pawns, and Partners: Disability Research and the Role of Non-Disabled Researchers. British Journal of Sociology 47 (4) : 699 716.
66. Tantum, Digby 1991 Asperger Syndrome in Adulthood. In Autism and Asperger Syndrome. Uta Frith, ed. Pp. 147 183.
67. Treacy, Daniel N.d. I Don't Feel Defeated. Electronic document, accessed October 13, 2007.
68. Ward, Michael J. Roger N. Meyer 1999 Self-Determination for People with Developmental Disabilities and Autism: Two Advocates' Perspectives. Focus on Autism and Other Developmental Disabilities 14 (3) : 133 139.
69. Weintraub, Kit 2002 A Mother's Perspective. Electronic document, accessed March 12, 2007.
70. Wing, Lorna 1981 Asperger's Disorder: A Clinical Account. Psychological Medicine 11 (1) : 115 130.
71. Yerxa, Elizabeth June, Florence Clark, Gelya Frank, Jeanne Jackson, Diane Parham, Doris Pierce, Carol Stein Ruth Zemke 1990 Occupational Therapy in the Twentieth Century: A Great Idea Whose Time Has Come. Occupational Therapy in Health Care 6 (1) : 1 15. Electronic document, accessed May 21, 2008.