Physician views on barriers to primary care for young adults with childhood-onset chronic disease

Pediatrics

Volumn 125, Issue 4, 2010, Pages

  Okumura, Megumi J ^a   Kerr, Eve A ^b,c   Cabana, Michael D ^a,d   Davis, Matthew M ^b,e   Demonner, Sonya ^b,c   Heisler, Michele ^b,c,e  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b UNIVERSITY OF MICHIGAN HEALTH SYSTEM   (United States)

^c VA ANN ARBOR HEALTHCARE SYSTEM   (United States)

^d UNIVERSITY OF CALIFORNIA   (United States)

^e UNIVERSITY OF MICHIGAN   (United States)

Author keywords

Adolescents; Children with special health care needs; Cystic fibrosis; Primary care; Sickle cell disease; Transitional care; Young adults

Indexed keywords

ARTICLE; CHILDHOOD DISEASE; CHRONIC DISEASE; GENERAL PRACTITIONER; HEALTH CARE DELIVERY; HEALTH CARE QUALITY; MEDICAL SPECIALIST; PATIENT CARE; PEDIATRICIAN; PHYSICIAN ATTITUDE; POSTAL MAIL; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; REIMBURSEMENT; TIME;

ADULT; AGE FACTORS; AGE OF ONSET; ATTITUDE OF HEALTH PERSONNEL; CHRONIC DISEASE; DATA COLLECTION; DELIVERY OF HEALTH CARE; FEMALE; HUMANS; MALE; MIDDLE AGED; PHYSICIANS, FAMILY; PRIMARY HEALTH CARE;

EID: 77950566347     PISSN: 00314005     EISSN: 10984275     Source Type: Journal    
DOI: 10.1542/peds.2008-3451     Document Type: Article

References (35)

1. 1. Lakdawalla DN, Bhattacharya J, Goldman DP. Are the young becoming more disabled? Health AfT (Millwood). 2004;23(1):168-176 (Pubitemid 39115295)
2. Newacheck PW, McManus MA, Fox HB. Prevalence and impact of chronic illness among adolescents. Am J Dis Child. 1991;145(12): 1367-1373
3. 3. Newacheck PW, Strickland B, Shonkoff JP, et al. An epidemiologic profile of children with special health care needs. Pediatrics. 1998; 102(1 pt 1):117-123 (Pubitemid 28309255)
4. 4. van der Lee JH, Mokkink LB, Grootenhuis MA, Heymans HS, Offringa M. Definitions and measurement of chronic health conditions in childhood: a systematic review. JAMA. 2007;297(24):2741-2751 (Pubitemid 47001100)
5. Elborn JS, Shale DJ, Britton JR. Cystic fibrosis: current survival and population estimates to the year 2000. Thorax. 1991; 46(12):881-885
6. 6.PiattOS,BrambillaDJ,RosseWF,etal.Mortalityinsicklecelldisease: lifeexpectancyandriskfactorsforearlydeath.NEnglJMed.1994;330(23): 1639-1644(Pubitemid124005049)
7. Reid GJ, Webb GD, Barzel M, McCrindle BW, Irvine MJ, Siu SC. Estimates of life expectancy by adolescents and young adults with congenital heart disease. JAm Coll Cardiol. 2006;48(2):349-355
8. 8. Blum RW, Garell D, Hodgman CH, et al. Transition from child-centered to adult healthcare systems for adolescents with chronic conditions: position paper of the Society for Adolescent Medicine. J Adolesc Health. 1993;14(7):570-576 (Pubitemid 23345069)
9. Foster E, Graham TP Jr, Driscoll DJ, et al. Task force 2: special health care needs of adults with congenital heart disease. J Am Coll Cardiol. 2001;37(5):1176-1183
10. Landzberg MJ, Murphy DJ Jr, Davidson WR Jr, et al. Task force 4: organization of delivery systems for adults with congenital heart disease. JAm Coll Cardiol 2001;37(5): 1187-1193
11. American Academy of Pediatric, American Academy of Family Physicians, American College of Physicians-American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002;110(6 pt 2):1304-1306
12. Freed GL, Hudson EJ. Transitioning children with chronic diseases to adult care: current knowledge, practices, and directions. J Pediatr. 2006;148(6):824-827
13. Okumura MJ, Heisler M, Davis MM, Cabana MD, Demonner S, Kerr EA. Comfort of general internists and general pediatricians in providing care for young adults with chronic illnesses of childhood. J Gen Intern Med 2008;23(10):1621-1627
14. 14.CooleyWC,McAllisterJW.Buildingmedicalhomes: improvementstrategiesinprimarycareforchildrenwithspecialhealthcareneeds. Pediatrics.2004;113(5suppl):1499-1506(Pubitemid38580671)
15. Wagner EH. The role of patient care teams in chronic disease management. BMJ. 2000; 320(7234):569-572
16. 16. Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A. Improving chronic illness care: translating evidence into action. Health Aff (Millwood). 2001;20(6):64-78 (Pubitemid 33707442)
17. Medical Home Initiatives for Children With Special Needs Project Advisory Committee. American Academy of Pediatrics. The medical home. Pediatrics. 2002;110(1 pt 1): 184-186
18. 18. Knauth A, Verstappen A, Reiss J, Webb GD. Transition and transfer from pediatric to adult care of the young adult with complex congenital heart disease. Cardiol Clin. 2006; 24(4):619-629, vi (Pubitemid 44708572)
19. 19.McPhersonM,WeissmanG,StricklandBB,vanDyckPC,BlumbergSJ,NewacheckPW. Implementingcommunity- basedsystemsofservicesforchildrenandyouthswithspecialhealthcareneeds: howwellarewedoing?Pediatries.2004;113(5suppl):1538-1544(Pubitemid38580675)
20. Ziring PR, Brazdziunas D, Cooley WC, et al. American Academy of Pediatrics. Committee on Children With Disabilities. Care coordination: integrating health and related systems of care for children with special health care needs. Pediatrics. 1999; 104(4 pt 1):978-981
21. 21.KellyAM,KratzB,BielskiM,RinehartPM. Implementingtransitionsforyouthwithcomplexchronicconditionsusingthemedica lhomemodel.Pediatrics.2002;110(6pt2):1322-1327(Pubitemid35425174)
22. American Academy of Pediatrics Medical Home Initiatives for Children With Special Needs Project Advisory Committee. Policy statement: organizational principles to guide and define the child health care system and/or improve the health of all children. Pediatrics. 2004;113(5 suppl): 1545-1547
23. 23. Lotstein DS, McPherson M, Strickland B, Newacheck PW. Transition planning for youth with special health care needs: results from the National Survey of Children with Special Health Care Needs. Pediatrics. 2005;115(6):1562-1568 (Pubitemid 43843164)
24. 24. Stille CJ, Antonelli RC. Coordination of care for children with special health care needs. Curr Opin Pediatr. 2004;16(6):700-705 (Pubitemid 39552222)
25. Cystic Fibrosis Foundation guidelines for patient services, evaluation, and monitoring in cystic fibrosis centers. The Cystic Fibrosis Foundation Center Committee and Guidelines Subcommittee. Am J Dis Child. 1990;144(12):1311-1312
26. 26.GortmakerSL,SappenfieldW.Chronicchildhooddisorders: prevalenceandimpact.PediatrClinNorthAm.1984;31(1):3-18(Pubitemid14082194)
27. Frankel LR. On the Definition of Response Rates: A Special Report of the CASRO Task Force on Completion Rates. Port Jefferson, NY: Council of American Survey Research Organizations; 1982
28. 28.RothmanAA,WagnerEH.Chronicillnessmanagement: whatistheroleofprimarycare?AnnInternMed.2003;138(3):256-261(Pubitemid36231639)
29. 29.BodenheimerT,WagnerEH,GrumbachK. Improvingprimarycareforpatientswithchronicillness:thechroniccaremodelpart2.JAMA. 2002;288(15):1909-1914(Pubitemid35168149)
30. Bodenheimer T, Wagner EH, Grumbach K. Improving primary care for patients with chronic illness. JAMA. 2002;288(14): 1775-1779
31. Kelly A. The primary care provider's role in caring for young people with chronic illness. J Adolesc Health. 1995;17(1):32-36
32. Rosen D. Between two worlds: bridging the cultures of child health and adult medicine. J Adolesc Health. 1995;17(1):10-16
33. Sia C, Tonniges TF, Osterhus E, Taba S. History of the medical home concept. Pediatrics. 2004;113(5 suppl):1473-1478
34. Cummings SM, Savitz LA, Konrad TR. Reported response rates to mailed physician questionnaires. Health Serv Res. 2001; 35(6):1347-1355
35. Rosen DS, Blum RW, Britto M, Sawyer SM, Siegel DM, Society for Adolescent Medicine. Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent Medicine. J Adolesc Health. 2003;33(4):309-311