Pediatric Rehabilitation: 3. Facilitating Family-Centered Treatment Decisions

PM and R

Volumn 2, Issue 3, 2010, Pages

  Moberg Wolff, Elizabeth ^a   Kim, Chong Tae ^b   Murphy, Nancy ^c   Trovato, Melissa ^d   Kim, Heakyung ^b  

^a MEDICAL COLLEGE OF WISCONSIN   (United States)

^b UNIVERSITY OF PENNSYLVANIA   (United States)

^c UNIVERSITY OF UTAH SCHOOL OF MEDICINE   (United States)

^d JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ANTIDEPRESSANT AGENT; BACLOFEN; BENZODIAZEPINE DERIVATIVE; BOTULINUM TOXIN; DANTROLENE; DULOXETINE; EPHEDRINE; ERGOT ALKALOID; GABAPENTIN; HERBACEOUS AGENT; HYPNOTIC SEDATIVE AGENT; MELATONIN; MUSCLE RELAXANT AGENT; NONSTEROID ANTIINFLAMMATORY AGENT; OMEGA 3 FATTY ACID; OPIATE; PHENOL; TIZANIDINE; TRYPTOPHAN; VALERIAN; VENLAFAXINE;

ABSENCE OF SIDE EFFECTS; ACUPUNCTURE; ALTERNATIVE MEDICINE; ARTICLE; BEHAVIOR THERAPY; BLEEDING TIME; BRAIN HYPOXIA; BRAIN INJURY; BREATHING DISORDER; CEREBRAL PALSY; CHILD PARENT RELATION; CHRONIC PAIN; CLINICAL DECISION MAKING; COMPLEX REGIONAL PAIN SYNDROME; DIET SUPPLEMENTATION; EOSINOPHILIA MYALGIA SYNDROME; EXERCISE; FAMILY CENTERED CARE; FAMILY COUNSELING; FEEDBACK SYSTEM; FINANCIAL MANAGEMENT; FOOT PAIN; GARLIC; GINKGO BILOBA; GINSENG; HANDICAPPED CHILD; HEALTH CARE COST; HUMAN; HYPERBARIC OXYGEN; HYPNOSIS; INSOMNIA; IRRITABILITY; MAJOR DEPRESSION; MEDICAL EDUCATION; MEDICAL ETHICS; MEDICOLEGAL ASPECT; NEUROPATHIC PAIN; NEUROSURGERY; ORTHOSIS; PAIN; PATIENT EDUCATION; PEDIATRIC REHABILITATION; PRIORITY JOURNAL; PSYCHOTHERAPY; SEIZURE; SIDE EFFECT; SLEEP; SLEEP DISORDER; SPASTICITY; STEM CELL TRANSPLANTATION; TREATMENT FAILURE; TREATMENT OUTCOME; TREATMENT PLANNING; WEAKNESS;

ADOLESCENT; CEREBRAL PALSY; CHILD; CHILD, PRESCHOOL; COMPLEMENTARY THERAPIES; COMPLEX REGIONAL PAIN SYNDROMES; FAMILY; FEMALE; HUMANS; HYPOXIA, BRAIN; MALE; PATIENT CARE PLANNING;

EID: 77950230678     PISSN: 19341482     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pmrj.2009.12.003     Document Type: Article

References (63)

1. Bruehl S., and Chung O.Y. Psychological and behavioral aspects of complex regional pain syndrome management. Clin J Pain 22 (2006) 430-437
2. **Indicates key references.
3. *
4. Gallagher R.M. Rational integration of pharmacologic, behavioral, and rehabilitation strategies in the treatment of chronic pain. Am J Phys Med Rehabil 84 3 Suppl (2005) S64-S76
5. Harden R.N., and Cole P.A. New developments in rehabilitation of neuropathic pain syndromes. Neurol Clin 16 (1998) 937-950
6. *
7. Roth-Isigkeit A., Thyen U., Stoven H., Schwarzenberger J., and Schmucker P. Pain among children and adolescents: restrictions in daily living and triggering factors. Pediatrics 115 (2005) e152-e162
8. Lynch M.E. Psychological aspects of reflex sympathetic dystrophy: a review of the adult and paediatric literature. Pain 49 (1992) 337-347
9. Cimaz R., Matucci-Cerinic M., Zulian F., and Falcini F. Reflex sympathetic dystrophy in children. J Child Neurol 14 (1999) 363-367
10. *
11. Laxer R.M., Allen R.C., Malleson P.N., Morrison R.T., and Petty R.E. Technetium 99m-methylene diphosphonate bone scans in children with reflex neurovascular dystrophy. J Pediatr 106 (1985) 437-440
12. Driessens M., Blockx P., Geuens G., Diji H., Verheyen G., and Stassijns G. Pseudoatrophy. A conversion disorder mimicking reflex sympathetic dystrophy. Acta Orthopead Belgica 68 (2002) 330-336
13. Stanton R.P., Malcolm J.R., Wesdock K.A., and Singsen B.H. Reflex sympathetic dystrophy in children: an orthopedic perspective. Orthopedics 16 (1993) 773-779
14. Meighen K.G. Duloxetine treatment of pediatric chronic pain and co-morbid major depressive disorder. J Child Adolescent Psychopharmacol 17 (2007) 121-127
15. *
16. Kirwin J.L., and Goren J.L. Duloxetine: A dual serotonin-norepinephrine reuptake inhibitor for treatment of major depressive disorder. Pharmacotherapy 25 (2005) 396-410
17. Kozlowska K., Rose D., Khan R., Kram S., Lane L., and Collins J. Family-based assessment and treatment: A conceptual model and practice framework for managing chronic pain in children and adolescents. Harvard Rev Psychiatry 16 (2008) 136-150
18. *
19. Wu W.H., Bandilla E., Ciccone D.S., et al. Effects of qigong on late-stage complex regional pain syndrome. Alternative Therap Health Med 5 (1999) 45-54
20. Gainer M.J. Somatization of dissociated traumatic memories in a case of reflex sympathetic dystrophy. Am J Clin Hypnosis 36 (1993) 124-131
21. Wong C.S., Kuo C.P., Fan Y.M., and Ko S.C. Collateral meridian therapy dramatically attenuates pain and improves functional activity of a patient with complex regional pain syndrome. Anesth Analg 104 (2007) 452
22. Hill S.D., Lin M.S., and Chandler Jr. P.J. Reflex sympathetic dystrophy and electroacupuncture. Texas Med 87 (1991) 76-81
23. Barowsky E.I., Zweig J.B., and Moskowitz J. Thermal biofeedback in the treatment of symptoms associated with reflex sympathetic dystrophy. J Child Neurol 2 (1987) 229
24. Dietz F.R., Mathews K.D., and Montgomery W.J. Reflex sympathetic dystrophy in children. Clin Orthop Related Res 258 (1990) 225-231
25. Sherry D.D., Wallace C.A., Kelley C., Kidder M., and Sapp L. Short- and long-term outcomes of children with complex regional pain syndrome type I treated with exercise therapy. Clin J Pain 15 (1999) 218-223
26. Murray C.S., Cohen A., Perkins T., Davidson J.E., and Sills J.A. Morbidity in reflex sympathetic dystrophy. Arch Dis Childhood 82 (2000) 231-233
27. *
28. Martin A.L., McGrath P.A., Brown S.C., and Katz J. Children with chronic pain: impact of sex and age on long-term outcomes. Pain 128 (2007) 13-19
29. *
30. Flato B., Aasland A., Vandvik I.H., and Forre O. Outcome and predictive factors in children with chronic idiopathic musculoskeletal pain. Clin Exp Rheumatol 15 (1997) 569-577
31. Rosenbaum P., Paneth N., Leviton A., Goldstein M., Box M., Damiano D., Dan B., and Jacobsson B. Dev Med Child Neurol 109 (2007) 8-14 Erratum in Dev Med Child Neurol 49:480
32. *
33. Tilton A.H. Management of spasticity in children with cerebral palsy. Semin Pediatr Neurol 11 (2004) 58-65
34. *
35. Doran S.M., Harvey M.T., and Horner R.H. Sleep and developmental disabilities: assessment, treatment, and outcome measures. Ment Retard 44 (2006) 13-27
36. Phillips L., and Appleton R.E. Systematic review of melatonin treatment in children with neurodevelopmental disabilities and sleep impairment. Dev Med Child Neurol 46 (2004) 771-775
37. Houlihan C.M., O'Donnell M., Conaway M., and Stevenson R.D. Bodily pain and health-related quality of life in children with cerebral palsy. Dev Med Child Neurol 46 (2004) 305-310
38. *
39. Brehaut J.C., Kohen D.E., Raina P., et al. The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers?. Pediatrics 114 (2004) e182-e191
40. Murphy N.A., Christian B., Caplin D.A., and Young P.C. The health of caregivers for children with disabilities: Caregiver perspectives. Child Care Health Dev 33 (2007) 180-187
41. Samdup D.Z., Smith R.G., and Il Song S. The use of complementary and alternative medicine in children with chronic medical conditions. Am J Phys Med Rehabil 85 (2006) 842-846
42. Eisenberg D.M., David R.B., Ettner S.L., et al. Trends in alternative medicine use in the US, 1990-1997. JAMA 280 (1998) 1569-1575
43. Counseling Families Who Choose Complementary and Alternative Medicine for Their Child With Chronic Illness or Disability. Committee on Children with Disabilities. Pediatrics 107 (2001) 598-601. aappolicy.aappublications.org/cgi/reprint/pediatrics;107/3/598.pdf Accessed March 1, 2009
44. National Center for Complementary and Alternative Medicine. www.nccam.nih.gov/nccam/resources/cam Accessed March 1, 2009
45. Siblinga E.M., Ottolini M.C., Duggan A.K., and Wilson M.H. Parent-pediatrician communication about complementary and alternative medicine use for children. Clin Pediatr 45 (2004) 367073
46. Moore D., and Kowalske K. Neuromuscular rehabilitation and electrodiagnosis: myopathy. Arch Phys Med Rehab 81 (2000) S34-S35
47. Messina B. Herbal supplements: Facts and myths-talking to your patients about herbal supplements. J Perianesthesia Nurs 21 (2006) 268-278
48. Physicians Desk Reference for Herbal Medicines. 4th ed. (2007), Thomson Healthcare Inc, Atlanta, GA
49. McDonagh M., Helfand M., Carson S., and Russman B.S. Hyperbaric oxygen therapy for traumatic brain injury: A systematic review of the evidence. Arch Phy Med Rehabil 85 (2004) 1198-1204
50. McDonagh M, Carson S, Ash J, et al. Hyperbaric oxygen therapy for brain injury, cerebral palsy and stroke. Evidence Report Number 85. Agency for Healthcare Research and Quality. U.S. Department of Health and Human Services. September 2003. AHRQ Pub No 03-E050.
51. Inter American Conductive Education Association. www.iacea.org Accessed March 1, 2009
52. Reddihough D.S., King J., Coleman G., and Catanese T. Efficacy of programs based on conductive education for young children with cerebral palsy. Dev Med Child Neurol 40 (1998) 763-767
53. The Adeli Suit Update. Cerebral Palsy International Research Foundation. Fact Sheet 226 (November 1, 2004). www.cpirf.org/fact-sheets-226 Accessed March 1, 2009
54. Bar-Haim S., Harries N., Belokopytox M., et al. Comparison of efficacy of Adeli suit and neurodevelopmental treatments in children with cerebral palsy. Dev Med Chid Neurol 48 (2006) 325-330
55. Mehta T., Feroz A., Thakkar U., Vanikar A., et al. Subarachnoid placement of stem cells in neurological disorders. Transplant Proc 40 (2008) 1145-1147
56. Harting M.T., Sloan L.E., Jimenez F., Baumgartners J., and Cox Jr. C.S. Subacute neural stem cell therapy for traumatic brain injury. J Surg Res (2008 Apr 23) (epub). PMID 18694578
57. Cohen M. Legal and Ethical issues relating to Use of Complementary therapies in pediatric hematology/oncology. J Pediatr Hematol Oncol 28 (2006) 190-193
58. *
59. Centre for Evidence Based Medicine. www.cebm.net Accessed March 1, 2009
60. *
61. Stacin T., Wade S., Walz N., Yeastes K., and Taylor G. Traumatic brain injuries in early childhood: Initial impact on the family. J Dev Behavior 29 (2008) 253-261
62. Wade S., Taylor G., Yeates K., Drotar D., et al. Long term parental and family adaptation following pediatric brain injury. J Pediatr Psych 21 (2006) 1072-1083
63. Institute of Medicine at the National Academy of Sciences. Report on Use of Complementary and Alternative Medical Therapies (2005), NAS Press, Washington, DC