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Chernoff 2002 {published data only} * Chernoff RG, Ireys HT, DeVet KA, Kim Y. A randomized, controlled trial of a community-based support program for families of children with chronic illness: Pediatric outcomes. Archives of Pediatrics & Adolescent Medicine 2002;156(6):533-539. [MEDLINE: 11]
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Cheuvront 1998 {published data only} * Cheuvront B, Sorenson JR, Callanan NP, Stearns SC, DeVellis BM. Psychosocial and educational outcomes associated with home- and clinic-based pretest education and cystic fibrosis carrier testing among a population of at-risk relatives. American Journal of Medical Genetics 1998;75(5):461-8.
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Cheuvront 1998 {published data only} * Cheuvront B, Sorenson JR, Callanan NP, Stearns SC, DeVellis BM. Psychosocial and educational outcomes associated with home- and clinic-based pretest education and cystic fibrosis carrier testing among a population of at-risk relatives. American Journal of Medical Genetics 1998;75(5):461-8.
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Davis 2002 {published data only} Davis MA, Quittner AL, Stack CM. Controlled evaluation of the STARBRIGHT Explorer Series CD-ROM program for children and adolescents with cystic fibrosis. Pediatric Pulmonology 2002, issue Suppl 24:351. [MEDLINE: 6]
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Quittner AL, Drotar D. Controlled trial of family interventions for cystic fibrosis. NIH Research Grant, Oct 1997 to Aug 2003 1997.
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Delk 1994 {published data only} * Delk KK, Gevirtz R, Hicks DA, Carden F, Rucker R. The effects of biofeedback assisted breathing retraining on lung functions in patients with cystic fibrosis. Chest 1994;105(1):23-8.
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Delk 1994 {published data only} * Delk KK, Gevirtz R, Hicks DA, Carden F, Rucker R. The effects of biofeedback assisted breathing retraining on lung functions in patients with cystic fibrosis. Chest 1994;105(1):23-8.
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Downs 2006 {published data only} * Downs JA, Roberts CM, Blackmore AM, Le Souëf PN, Jenkins SC. Benefits of an education programme on the self-management of aerosol and airway treatments for children with cystic fibrosis. Chronic Respiratory Disease 2006;3:19-27.
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Downs 2006 {published data only} * Downs JA, Roberts CM, Blackmore AM, Le Souëf PN, Jenkins SC. Benefits of an education programme on the self-management of aerosol and airway treatments for children with cystic fibrosis. Chronic Respiratory Disease 2006;3:19-27.
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Grasso 2000 {published data only} * Grasso MC, Button BM, Allison DJ, Sawyer SM. Benefits of music therapy as an adjunct to chest physiotherapy in infants and toddles with cystic fibrosis. Pediatric Pulmonology 2000;29(5):371-81.
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Grasso 2000 {published data only} * Grasso MC, Button BM, Allison DJ, Sawyer SM. Benefits of music therapy as an adjunct to chest physiotherapy in infants and toddles with cystic fibrosis. Pediatric Pulmonology 2000;29(5):371-81.
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Grasso MC, Button BM, Sawyer SM, Allison DJ. Music: Meeting the challenge of adherence to chest physiotherapy for infants and toddlers with cystic fibrosis [abstract]. Pediatric Pulmonology 1998;Suppl 17:397.
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Hernandez-Reif 1999 {published data only} * Hernandez-Reif M, Field T, Krasnegor J, Martinez E, Schwartzman M, Mavunda K. Children with cystic fibrosis benefit from massage therapy. Journal of Pediatric Psychology 1999;24(2):175-81.
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Hernandez-Reif 1999 {published data only} * Hernandez-Reif M, Field T, Krasnegor J, Martinez E, Schwartzman M, Mavunda K. Children with cystic fibrosis benefit from massage therapy. Journal of Pediatric Psychology 1999;24(2):175-81.
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Powers 2003 {published and unpublished data} Powers SW, Byars KC, Mitchell MJ, Schindler T, Patton SR, Zeller MH. A randomized pilot study of behavioral treatment to increase calorie intake in toddlers with cystic fibrosis. Child Health Care 2003;32:297-311.
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Powers 2003 {published and unpublished data} Powers SW, Byars KC, Mitchell MJ, Schindler T, Patton SR, Zeller MH. A randomized pilot study of behavioral treatment to increase calorie intake in toddlers with cystic fibrosis. Child Health Care 2003;32:297-311.
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Powers SW, Byars KC, Mitchell MJ, Schindler T, Patton SR, Zeller MH. Nutritional benefits of two early intervention programs for toddlers with cystic fibrosis: A randomized pilot study. personal communication 2001.
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Mitchell, M.J.3
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Patton, S.R.5
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Powers SW, Schindler T, Schwarber L, Deeks CM, Byars KC, Arthur S, et al.Behavioral treatment to improve nutrition in toddlers with cystic fibrosis [abstract]. Pediatric Pulmonology. 1999; Vol. Suppl 19:329.
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Powers 2005 {published data only} Powers SW. Nutrition in early childhood: focus on parent interaction [abstract]. Pediatric Pulmonology 2003;Suppl 25:138.
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Powers 2005 {published data only} Powers SW. Nutrition in early childhood: focus on parent interaction [abstract]. Pediatric Pulmonology 2003;Suppl 25:138.
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* Powers SW, Jones JS, Ferguson KS, Piazza-Waggoner C, Daines C, Acton JD. Randomized clinical trial of behavioral and nutrition treatment to improve energy intake and growth in toddlers and preschoolers with cystic fibrosis. Pediatrics 2005;116(6):1442-50.
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Powers SW, Piazza-Waggoner C, Jones J, Daines C, Acton J. Impact of behavioral and nutrition treatment for toddlers and preschoolers with CF on erergy intake and growth maintains for 12 and 18 months [abstract]. Pediatric Pulmonology 2005;40(Suppll 28):372.
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Stapleton 2001 {published data only} Stapleton D, Tunnicliffe L, McGuiness D, Sheriff J, Sly P. Development of a nutrition and behaviour intervention program: Go and Grow with CF. Australian Journal of Nutrition and Diet 1998;55:130-7.
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Stapleton 2001 {published data only} Stapleton D, Tunnicliffe L, McGuiness D, Sheriff J, Sly P. Development of a nutrition and behaviour intervention program: Go and Grow with CF. Australian Journal of Nutrition and Diet 1998;55:130-7.
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What do children with cystic fibrosis and their parents know about nutrition and pancreatic enzymes?
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* Stapleton DR, Gurrin LC, Zubrick SR, Silburn SR, Sly PD. The effect of 'Go and Grow with CF' on nutrition and pancreatic enzyme knowledge of children with cystic fibrosis. Australian Journal of Nutrition and Dietetics 2001;58(3):164-168. [MEDLINE: 7]
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* Stapleton DR, Gurrin LC, Zubrick SR, Silburn SR, Sly PD. The effect of 'Go and Grow with CF' on nutrition and pancreatic enzyme knowledge of children with cystic fibrosis. Australian Journal of Nutrition and Dietetics 2001;58(3):164-168. [MEDLINE: 7]
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Stark 1996 {published data only} * Stark LJ, Mulvihill MM, Powers SW, Jelalian E, Keating K, Creveling S, et al.Behavioral intervention to improve calorie intake of children with cystic fibrosis: Treatment versus wait list control. Journal of Pediatric Gastroenterology and Nutrition 1996;22(3):240-53.
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Stark 1996 {published data only} * Stark LJ, Mulvihill MM, Powers SW, Jelalian E, Keating K, Creveling S, et al.Behavioral intervention to improve calorie intake of children with cystic fibrosis: Treatment versus wait list control. Journal of Pediatric Gastroenterology and Nutrition 1996;22(3):240-53.
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* Stark LJ, Opipari LC, Spieth LE, Jelalian E, Quittner AL, Higgins L, Mackner L, B K, Lapey A, Stallings VA, Duggan C. Contribution of behavior therapy to dietary treatment in cystic fibrosis: A randomized controlled study within 2-year follow-up. Behavior Therapy 2003;34(2):237-258. [MEDLINE: 4]
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* Stark LJ, Opipari LC, Spieth LE, Jelalian E, Quittner AL, Higgins L, Mackner L, B K, Lapey A, Stallings VA, Duggan C. Contribution of behavior therapy to dietary treatment in cystic fibrosis: A randomized controlled study within 2-year follow-up. Behavior Therapy 2003;34(2):237-258. [MEDLINE: 4]
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Trapp 1998 {published and unpublished data} * Trapp M, Barton S, Morgan H, Lockyer L. Self-administration of drugs for cystic fibrosis. Professional Nurse 1998;14(3):199-203.
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Barbero 1996 {published data only} Barbero GJ. The science and humanity of cystic fibrosis. Current Problems in Pediatrics 1996;26(10):345-54.
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Barbero 1996 {published data only} Barbero GJ. The science and humanity of cystic fibrosis. Current Problems in Pediatrics 1996;26(10):345-54.
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Bartholomew 1997 {published data only} Bartholomew LK, Czyzewski DI, Parcel GS, Swank PR, Sockrider MM, Mariotto MJ, Schidlow DV, Fink RJ. Self-management of cystic fibrosis: Short-term outcomes of the Cystic Fibrosis Family Education Program. Health Education and Behavior 1997;24(5):652-666.
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Bartholomew 1997 {published data only} Bartholomew LK, Czyzewski DI, Parcel GS, Swank PR, Sockrider MM, Mariotto MJ, Schidlow DV, Fink RJ. Self-management of cystic fibrosis: Short-term outcomes of the Cystic Fibrosis Family Education Program. Health Education and Behavior 1997;24(5):652-666.
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Brady 1991 {published data only} Brady MS, Rickard K, Yu PL, Eigen H. Effectiveness and safety of small vs. large doses of enteric coated pancreatic enzymes in reducing steatorrhea in children with cystic fibrosis. Pediatric Pulmonology 1991;10(2):79-85.
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Brandt 1996 {published data only} Brandt NJ, Schwartz M, Skovby F, Clausen H. A follow-up study of carriers of cystic fibrosis. Ugeskrift for laeger 1996;158(33):4623-7.
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Clayton 1995 {published data only} Clayton EW, Hannig VL, Pfotenhauer JP, Parker RA, Campbell PW, Phillips JA. Teaching about cystic fibrosis carrier screening by using written and video information. American Journal of Human Genetics 1995;57(1):171-81.
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Clayton 1995 {published data only} Clayton EW, Hannig VL, Pfotenhauer JP, Parker RA, Campbell PW, Phillips JA. Teaching about cystic fibrosis carrier screening by using written and video information. American Journal of Human Genetics 1995;57(1):171-81.
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Dodd 1997 {published data only} Dodd ME, Abbott J, Haworth CS, Moorcroft AJ, Webb AK. Validity of a visual numerical general quality of life scale and chest scale in adults with cystic fibrosis [abstract]. Thorax 1997;52(Suppl 6):A45.
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Dodd 1997 {published data only} Dodd ME, Abbott J, Haworth CS, Moorcroft AJ, Webb AK. Validity of a visual numerical general quality of life scale and chest scale in adults with cystic fibrosis [abstract]. Thorax 1997;52(Suppl 6):A45.
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Donaldson 1995 {published data only} Donaldson C, Shackley P, Abdalla M, Miedzybrodzka Z. Willingness to pay for antenatal carrier screening for cystic fibrosis. Health Economics 1995;4(6):439-52.
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Eng 1997 {published data only} Eng CM, Schechter C, Robinowitz J, Fulop G, Burgert T, Levy B, et al.Prenatal genetic carrier testing using triple disease screening. Journal of the American Medical Association 1997;278(15):1268-72.
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Gee 2000 {published data only} Gee L, Abbott J, Conway SP, Etherington C, Webb AK. Development of a disease specific health related quality of life measure for adults and adolescents with cystic fibrosis. Thorax 2000;55(11):946-54.
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Gonciartz 1988 {published data only} Gonciartz Z, Besser P, Lelek E, Gundermann KJ, Johannes KJ. Randomised placebo-controlled double blind trial on 'essential' phospholipids in the treatment of fatty liver associated with diabetes. Medicine & Chirurgie Digestives 1988;17:61-5.
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-
Green 1995 {published data only} Green JM. Obstetricians' views on prenatal diagnosis and termination of pregnancy: 1980 compared with 1993. British Journal of Obstetrics and Gynaecology 1995;102(3): 228-32.
-
Green 1995 {published data only} Green JM. Obstetricians' views on prenatal diagnosis and termination of pregnancy: 1980 compared with 1993. British Journal of Obstetrics and Gynaecology 1995;102(3): 228-32.
-
-
-
-
50
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Gremse 1998 {published data only} Gremse DA, Lytle JM, Sacks AI, Balistreri WF. Characterization of failure to imbibe in infants. Clinical Pediatrics 1998;37(5):305-9.
-
Gremse 1998 {published data only} Gremse DA, Lytle JM, Sacks AI, Balistreri WF. Characterization of failure to imbibe in infants. Clinical Pediatrics 1998;37(5):305-9.
-
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51
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0030960787
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Grody 1997 {published data only} Grody WW, Dunkel-Schetter C, Tatsugawa ZH, Fox MA, Fang CY, Cantor RM, et al.PCR based screening for cystic fibrosis carrier mutations in an ethnically diverse pregnant population. American Journal of Human Genetics 1997;60(4):935-47.
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Grody 1997 {published data only} Grody WW, Dunkel-Schetter C, Tatsugawa ZH, Fox MA, Fang CY, Cantor RM, et al.PCR based screening for cystic fibrosis carrier mutations in an ethnically diverse pregnant population. American Journal of Human Genetics 1997;60(4):935-47.
-
-
-
-
52
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-
0032977121
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-
Gulmans 1999 {published data only} Gulmans VA, de Meer K, Brackel HJL, Faber JAJ, Berger R, Helders PJM. Outpatient Exercise training in Children with Cystic Fibrosis: Physiological Effects, Perceived Competence, and Acceptability. Pediatric Pulmonology 1999;28(1):39-46.
-
Gulmans 1999 {published data only} Gulmans VA, de Meer K, Brackel HJL, Faber JAJ, Berger R, Helders PJM. Outpatient Exercise training in Children with Cystic Fibrosis: Physiological Effects, Perceived Competence, and Acceptability. Pediatric Pulmonology 1999;28(1):39-46.
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53
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0033064962
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Haddow 1999 {published data only} Haddow JE, Bradley LA, Palomaki GE, Doherty RA. Issues for implementing prenatal screening for cystic fibrosis: results of a working conference. Journal of Medical Screening 1999;6(2):60-6.
-
Haddow 1999 {published data only} Haddow JE, Bradley LA, Palomaki GE, Doherty RA. Issues for implementing prenatal screening for cystic fibrosis: results of a working conference. Journal of Medical Screening 1999;6(2):60-6.
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54
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0035169122
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Hains 2001 {published data only} Hains AA, Davies WH, Behrens D, Freeman ME, Biller JA. Effectiveness of a cognitive behavioral intervention for adults with cystic fibrosis. Journal of Clinical Psychology in Medical Settings 2001.
-
Hains 2001 {published data only} Hains AA, Davies WH, Behrens D, Freeman ME, Biller JA. Effectiveness of a cognitive behavioral intervention for adults with cystic fibrosis. Journal of Clinical Psychology in Medical Settings 2001.
-
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55
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0030782249
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Hains 1997 {published data only} Hains AA, Davies WH, Behrens D, Biller JA. Cognitive behavioral interventions for adolescents with cystic fibrosis. Journal of Pediatric Psychology 1997;22(5):669- 87.
-
Hains 1997 {published data only} Hains AA, Davies WH, Behrens D, Biller JA. Cognitive behavioral interventions for adolescents with cystic fibrosis. Journal of Pediatric Psychology 1997;22(5):669- 87.
-
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56
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0031297962
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Hodson 1997 {published data only} Hodson ME. Psychosocial aspects for the management of adults with cystic fibrosis. Pediatric Pulmonology 1997;Suppl 16:113-4.
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Hodson 1997 {published data only} Hodson ME. Psychosocial aspects for the management of adults with cystic fibrosis. Pediatric Pulmonology 1997;Suppl 16:113-4.
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57
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85119786763
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Jelalian 1998 {published data only} Jelalian E, Stark LJ, Reynolds L, Seifer R. Nutrition intervention for weight gain in cystic fibrosis: A meta-analysis. Journal of Pediatrics 1998;132(3 Pt 1):486-92.
-
Jelalian 1998 {published data only} Jelalian E, Stark LJ, Reynolds L, Seifer R. Nutrition intervention for weight gain in cystic fibrosis: A meta-analysis. Journal of Pediatrics 1998;132(3 Pt 1):486-92.
-
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58
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55049131049
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Johnson 2001 {published data only} Johnson KB, Ravert RD, Everton A. Hopkins Teen Central: Assessment of an internet-based support system for children with cystic fibrosis. Pediatrics 2001;107(2):E24.
-
Johnson 2001 {published data only} Johnson KB, Ravert RD, Everton A. Hopkins Teen Central: Assessment of an internet-based support system for children with cystic fibrosis. Pediatrics 2001;107(2):E24.
-
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59
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0020470770
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Kollberg 1982 {published data only} Kollberg H. Sociomedical conditions for Swedish patients with cystic fibrosis. A review of the past twelve years. International Journal of Rehabilitation Research 1982;5(3):345-61.
-
Kollberg 1982 {published data only} Kollberg H. Sociomedical conditions for Swedish patients with cystic fibrosis. A review of the past twelve years. International Journal of Rehabilitation Research 1982;5(3):345-61.
-
-
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60
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0033568925
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-
Krauth 1999 {published data only} Krauth C, Busse R, Smaczny C, Ullrich G, Wagner TO, Weber J, et al.Cost comparison of hospital and ambulatory I.V. therapy in adult cystic fibrosis patients: Results of a controlled prospective study. Medizinische Klinik 1999;94(10):541- 8.
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Krauth 1999 {published data only} Krauth C, Busse R, Smaczny C, Ullrich G, Wagner TO, Weber J, et al.Cost comparison of hospital and ambulatory I.V. therapy in adult cystic fibrosis patients: Results of a controlled prospective study. Medizinische Klinik 1999;94(10):541- 8.
-
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61
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0031297757
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Le Heuzey 1997 {published data only} Le Heuzey MF, Mouren-Simeoni MC, Navarro J. Psychological adjustment of children and adolescents with cystic fibrosis [abstract]. Pediatric Pulmonology 1997;Suppl 16:259.
-
Le Heuzey 1997 {published data only} Le Heuzey MF, Mouren-Simeoni MC, Navarro J. Psychological adjustment of children and adolescents with cystic fibrosis [abstract]. Pediatric Pulmonology 1997;Suppl 16:259.
-
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62
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0346481010
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Leonard 1995 {published data only} Leonard KP, Bartholomew LK, Swank PR, Parcel GS. A comparison of two approaches to education about carrier testing for cystic fibrosis. Journal of Genetic Counselling 1995;4(2):97-113.
-
Leonard 1995 {published data only} Leonard KP, Bartholomew LK, Swank PR, Parcel GS. A comparison of two approaches to education about carrier testing for cystic fibrosis. Journal of Genetic Counselling 1995;4(2):97-113.
-
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63
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55049119354
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Lindström 1994 {published data only} Lindström B. The essence of existence. On the quality of life of children in the Nordic countries. Thesis - NHV - Report, The Nordic School of Public Health, Göteborg, Sweden 1994.
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Lindström 1994 {published data only} Lindström B. The essence of existence. On the quality of life of children in the Nordic countries. Thesis - NHV - Report, The Nordic School of Public Health, Göteborg, Sweden 1994.
-
-
-
-
64
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-
0029943005
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Loader 1996 {published data only} Loader S, Caldwell P, Kozyra A, Levenkron JC, Boehm CD, Kazazian HH, et al.Cystic fibrosis carrier population screening in the primary care setting. American Journal of Human Genetics 1996;59(1):234-47.
-
Loader 1996 {published data only} Loader S, Caldwell P, Kozyra A, Levenkron JC, Boehm CD, Kazazian HH, et al.Cystic fibrosis carrier population screening in the primary care setting. American Journal of Human Genetics 1996;59(1):234-47.
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65
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0026441228
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Magnussen 1992 {published data only} Magnussen H, Scheidt Mackes M. The effect of flupertine on respiratory drive in healthy probands and patients with various lung diseases. Pneumologie 1992;46:580-6.
-
Magnussen 1992 {published data only} Magnussen H, Scheidt Mackes M. The effect of flupertine on respiratory drive in healthy probands and patients with various lung diseases. Pneumologie 1992;46:580-6.
-
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66
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0033979258
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Phillipson 2000 {published data only} Phillipson GT, Petrucco OM, Matthews CD. Congenital bilateral absence of the vas deferens, cystic fibrosis mutation analysis and intracytoplasmic sperm injection. Human Reproduction 2000;15(2):431-5.
-
Phillipson 2000 {published data only} Phillipson GT, Petrucco OM, Matthews CD. Congenital bilateral absence of the vas deferens, cystic fibrosis mutation analysis and intracytoplasmic sperm injection. Human Reproduction 2000;15(2):431-5.
-
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67
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17144470109
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Pollitt 1997 {published data only} Pollitt RJ, Green A, McCabe CJ, Booth A, Cooper NJ, Leonard JV, et al.Neonatal screening for inborn errors of metabolism: cost, yield and outcome. Health Technology Assessment 1997; 1, issue 7: i-iv:1-202.
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Pollitt 1997 {published data only} Pollitt RJ, Green A, McCabe CJ, Booth A, Cooper NJ, Leonard JV, et al.Neonatal screening for inborn errors of metabolism: cost, yield and outcome. Health Technology Assessment 1997; Vol. 1, issue 7: i-iv:1-202.
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68
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0034527748
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Ramström 2000 {published data only} Ramström H, Erwander I, Mared L, Kornfält R, Seiving B. Pharmaceutical intervention in the care of cystic fibrosis patients. Journal of Clinical Pharmaceutical Therapy 2000;25(6):427-34.
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Ramström 2000 {published data only} Ramström H, Erwander I, Mared L, Kornfält R, Seiving B. Pharmaceutical intervention in the care of cystic fibrosis patients. Journal of Clinical Pharmaceutical Therapy 2000;25(6):427-34.
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69
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0025614782
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Thompson 1990 {published data only} Thompson RJ, Hodges K, Hamlett KW. A matched comparison of adjustment in children with cystic fibrosis and psychiatrically referred and nonreferred children. Journal of Pediatric Psychology 1990;15(6):745-59.
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Thompson 1990 {published data only} Thompson RJ, Hodges K, Hamlett KW. A matched comparison of adjustment in children with cystic fibrosis and psychiatrically referred and nonreferred children. Journal of Pediatric Psychology 1990;15(6):745-59.
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70
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0028825102
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Thornton 1995 {published data only} Thornton JG, Hewison J, Lilford RJ, Vail A. A randomised trial of three methods of giving information about prenatal testing. British Medical Journal 1995;311(7013): 1127-30.
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Thornton 1995 {published data only} Thornton JG, Hewison J, Lilford RJ, Vail A. A randomised trial of three methods of giving information about prenatal testing. British Medical Journal 1995;311(7013): 1127-30.
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71
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0029069491
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Tullis 1995 {published data only} Tullis DE, Guyatt GH. Quality of life in cystic fibrosis. Pharmacoeconomics 1995;8(1):23-33.
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Tullis 1995 {published data only} Tullis DE, Guyatt GH. Quality of life in cystic fibrosis. Pharmacoeconomics 1995;8(1):23-33.
-
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72
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0028453556
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Villari 1994 {published data only} Villari B, Hess OM, Piscione F, Vassalli G, Weber KT, Chiariello M. Heart function in chronic pressure overload caused by aortic stenosis: The role of collagen tissue. Cardiologia 1994;39(6):411-20.
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Villari 1994 {published data only} Villari B, Hess OM, Piscione F, Vassalli G, Weber KT, Chiariello M. Heart function in chronic pressure overload caused by aortic stenosis: The role of collagen tissue. Cardiologia 1994;39(6):411-20.
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73
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0032963215
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Ward 1999 {published data only} Ward SA, Tomezsko JL, Holsclaw DS, Paolone AM. Energy expenditure and substrate utilization in adults with cystic fibrosis and diabetes mellitus. American Journal of Clinical Nutrition 1999;69(5):913-9.
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Ward 1999 {published data only} Ward SA, Tomezsko JL, Holsclaw DS, Paolone AM. Energy expenditure and substrate utilization in adults with cystic fibrosis and diabetes mellitus. American Journal of Clinical Nutrition 1999;69(5):913-9.
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74
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0029981253
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Welkenhuysen 1996 {published data only} Welkenhuysen M, Evers-Kiebooms G, Decruyenaere M, Van-den-Berghe H, Bande-Knops J, Van-Gerven V. Adolescents' attitudes towards carrier testing for cystic fibrosis and its relative stability over time. European Journal of Human Genetics 1996;4(1):52-62.
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Welkenhuysen 1996 {published data only} Welkenhuysen M, Evers-Kiebooms G, Decruyenaere M, Van-den-Berghe H, Bande-Knops J, Van-Gerven V. Adolescents' attitudes towards carrier testing for cystic fibrosis and its relative stability over time. European Journal of Human Genetics 1996;4(1):52-62.
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75
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0031183295
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Williams 1997 {published data only} Williams PD, Hanson S, Karlin R, Liebergen A, Olson J, Barnard MU, et al.Outcomes of a nursing intervention for siblings of chronically ill children: A pilot study. Journal of Social Pediatric Nursing 1997;2(3):127-37.
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Williams 1997 {published data only} Williams PD, Hanson S, Karlin R, Liebergen A, Olson J, Barnard MU, et al.Outcomes of a nursing intervention for siblings of chronically ill children: A pilot study. Journal of Social Pediatric Nursing 1997;2(3):127-37.
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76
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55049123390
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Wolter 1997 {published data only} Wolter JM, Bowler SD, McCormack JG, Nolan PJ. Home versus hospital therapy including intravenous antibiotics in cystic fibrosis [abstract]. Proceedings of the Annual Scientific Meeting of the 11th Thoracic Society of Australia and New Zealand (TSANZ). 1994:148.
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Wolter 1997 {published data only} Wolter JM, Bowler SD, McCormack JG, Nolan PJ. Home versus hospital therapy including intravenous antibiotics in cystic fibrosis [abstract]. Proceedings of the Annual Scientific Meeting of the 11th Thoracic Society of Australia and New Zealand (TSANZ). 1994:148.
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* Wolter JM, Bowler SD, Nolan PJ, McCormack JG. Home intravenous therapy in cystic fibrosis: a prospective randomized trial examining clinical, quality of life and cost aspects. European Respiratory Journal 1997;10(4):896-900.
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* Wolter JM, Bowler SD, Nolan PJ, McCormack JG. Home intravenous therapy in cystic fibrosis: a prospective randomized trial examining clinical, quality of life and cost aspects. European Respiratory Journal 1997;10(4):896-900.
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Bryon 2000 {published data only} Bryon M, Burton J, Tostevin M, Madge S. A home visit programme to improve health status and psychosocial functioning of families with a child with cystic fibrosis [abstract]. Pediatric Pulmonology 2000;Suppl 20:336.
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Bryon 2000 {published data only} Bryon M, Burton J, Tostevin M, Madge S. A home visit programme to improve health status and psychosocial functioning of families with a child with cystic fibrosis [abstract]. Pediatric Pulmonology 2000;Suppl 20:336.
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80
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Cannon 1999 {published data only} Cannon C, Benitez J, Scarbary J, Taylor K, Guill M. In-home video-conferencing for cystic fibrosis patient education [abstract]. Pediatric Pulmonology 1999;Suppl 19:333.
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Cannon 1999 {published data only} Cannon C, Benitez J, Scarbary J, Taylor K, Guill M. In-home video-conferencing for cystic fibrosis patient education [abstract]. Pediatric Pulmonology 1999;Suppl 19:333.
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81
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55049120231
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Christian 1999 {published data only} Christian BJ, D'Auria JP, Belyea MJ, Retsch-Bogart GZ. Psychosocial status of school-age children with cystic fibrosis [abstract]. Pediatric Pulmonology 1999;Suppl 19:329.
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Christian 1999 {published data only} Christian BJ, D'Auria JP, Belyea MJ, Retsch-Bogart GZ. Psychosocial status of school-age children with cystic fibrosis [abstract]. Pediatric Pulmonology 1999;Suppl 19:329.
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Davis 1990 {published data only} Davis P, Davis S, Mather F, Waring W. A randomized trial of home intravenous antibiotic therapy (HIVAT) in cystic fibrosis (CF): Short-term psychological effects [abstract]. Pediatric Pulmonology 1990;Suppl 5:281-2.
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Davis 1990 {published data only} Davis P, Davis S, Mather F, Waring W. A randomized trial of home intravenous antibiotic therapy (HIVAT) in cystic fibrosis (CF): Short-term psychological effects [abstract]. Pediatric Pulmonology 1990;Suppl 5:281-2.
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Davis S, Mather F, Tankersly P, Waring W. A randomized trial of home intravenous antibiotic therapy (HIVAT) in cystic fibrosis (CF): Short-term safety and efficacy [abstract]. PediatricPulmonology 1990;Suppl 5:245.
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Tankersly, P.3
Waring, W.4
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Klig 1989 {published data only} Klig S, Denning C, Jacoby J, Xia F, Gaerlan P, Bisberg D, et al.Biopsychosocial examination of two methods of pulmonary therapy [abstract]. Pediatric Pulmonology 1989;Suppl 4:145.
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Klig 1989 {published data only} Klig S, Denning C, Jacoby J, Xia F, Gaerlan P, Bisberg D, et al.Biopsychosocial examination of two methods of pulmonary therapy [abstract]. Pediatric Pulmonology 1989;Suppl 4:145.
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Mischler 1998 {published data only} Farrell PM, Kosorok MR, Laxova A, Shen G, Koscik RE, Bruns WT, et al.Nutritional benefits of neonatal screening for cystic fibrosis. The New England Journal of Medicine 1997;337(14):963-9.
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Mischler 1998 {published data only} Farrell PM, Kosorok MR, Laxova A, Shen G, Koscik RE, Bruns WT, et al.Nutritional benefits of neonatal screening for cystic fibrosis. The New England Journal of Medicine 1997;337(14):963-9.
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* Mischler EH, Wilford BS, Fost N, Laxona A, Reiser C, Sauer CM, et al.Cystic fibrosis newborn screening: Impact on reproductive behavior and implications for genetic counseling. Pediatrics 1998;102, issue 1 Pt 1:44-52.
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* Mischler EH, Wilford BS, Fost N, Laxona A, Reiser C, Sauer CM, et al.Cystic fibrosis newborn screening: Impact on reproductive behavior and implications for genetic counseling. Pediatrics 1998;Vol. 102, issue 1 Pt 1:44-52.
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Petzel 1991 {published data only} Petzel SV, Finkelstein J, Budd J, Ellis LBM. Adherence in cystic fibrosis [abstract]. Pediatric Pulmonology 1991;Suppl 6:308.
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Petzel 1991 {published data only} Petzel SV, Finkelstein J, Budd J, Ellis LBM. Adherence in cystic fibrosis [abstract]. Pediatric Pulmonology 1991;Suppl 6:308.
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Powers 2003a {published data only} Powers SW. Nutrition in early childhood: Focus on parent interaction. Pediatric Pulmonology 2003, issue Suppl. 25:138-9. [MEDLINE: 5]
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Powers 2003a {published data only} Powers SW. Nutrition in early childhood: Focus on parent interaction. Pediatric Pulmonology 2003, issue Suppl. 25:138-9. [MEDLINE: 5]
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Stark 1998 {published data only} Stark LJ, Quittner AL, Opipari LC, Jones E, Powers SW, Higgins L, et al.The contribution of behavior therapy to enhancing adherence in school-age children with CF: The example of diet [abstract]. Pediatric Pulmonology 1998;Suppl 17:110-1.
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Stark 1998 {published data only} Stark LJ, Quittner AL, Opipari LC, Jones E, Powers SW, Higgins L, et al.The contribution of behavior therapy to enhancing adherence in school-age children with CF: The example of diet [abstract]. Pediatric Pulmonology 1998;Suppl 17:110-1.
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Williams 1987 {published data only} Williams J, Handy DA, Booth IW, Weller PH. Intensive dietary counselling with adolescents with cystic fibrosis: What are the effects? [abstract]. Proceedings of the 10th International Cystic Fibrosis Congress; 1998 March 5-10; Sydney. 1988:165.
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Williams 1987 {published data only} Williams J, Handy DA, Booth IW, Weller PH. Intensive dietary counselling with adolescents with cystic fibrosis: What are the effects? [abstract]. Proceedings of the 10th International Cystic Fibrosis Congress; 1998 March 5-10; Sydney. 1988:165.
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Kalnins 1996 {published data only} * Kalnins D, Durie PR. Oral supplements vs. normal food intake in children and adults [abstract]. Israel Journal of Medical Science 1996;32(Suppl):S120-2.
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Kalnins 1996 {published data only} * Kalnins D, Durie PR. Oral supplements vs. normal food intake in children and adults [abstract]. Israel Journal of Medical Science 1996;32(Suppl):S120-2.
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Corey, M.3
Ellis, L.4
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Tullis, E.6
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Quinn 2004 {published data only} Quinn J, Latchford G, Duff A, Conner M, Pollard K, Morrison L, Conway S, Marsden R. Measuring, predicting and improving adherence to inhalation therapy in patients with CF: Randomised controlled study of motivational interviewing. Pediatric Pulmonology 2004. [MEDLINE: 9]
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Quinn 2004 {published data only} Quinn J, Latchford G, Duff A, Conner M, Pollard K, Morrison L, Conway S, Marsden R. Measuring, predicting and improving adherence to inhalation therapy in patients with CF: Randomised controlled study of motivational interviewing. Pediatric Pulmonology 2004. [MEDLINE: 9]
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Quittner 2000 {published data only} DeLambo KE, Ievers-Landis CE, Drotar D, Quittner AL. Association of observed family relationship quality and problem-solving skills with treatment adherence in older children and adolescents with cystic fibrosis. Journal of Pediatric Psychology 2004;29(5):343-353. [MEDLINE: 3]
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Quittner 2000 {published data only} DeLambo KE, Ievers-Landis CE, Drotar D, Quittner AL. Association of observed family relationship quality and problem-solving skills with treatment adherence in older children and adolescents with cystic fibrosis. Journal of Pediatric Psychology 2004;29(5):343-353. [MEDLINE: 3]
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* Quittner AL, Drotar D, Ievers-Landis C, Slocum N, Seidner D, Jacobsen J. Adherence to medical treatments in adolescents with cystic fibrosis: The development and evaluation of family-based interventions. In: Drotar D editor(s). Promoting adherence to medical treatment in childhood chronic illness: Concepts, methods, and interventions. First Edition. Mahjah NJ: Lawrence Earlbaum Associates, 2000:383-407.
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Watson 2004 {published data only} Watson H, Truby H, Haworth CS, Bilton D. Pilot study to evaluate a home-based behavioural nutrition programme for adults. Journal of Cystic Fibrosis. 3 2004; Vol. 3, issue Suppl. 1:S75. [MEDLINE: 8]
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