Palliative Care for People with End Stage Renal Disease

Palliative Nursing: Across the Spectrum of Care

Volumn , Issue , 2009, Pages 204-219

  Noble, Helen ^a  

^a NONE

Author keywords

Fatigue and lethargy; International perspectives; Nausea, vomiting and anorexia; Renal supportive and palliative care services; Symptom management; Symptom management at the end of life; Which renal patients need palliative care?; Withdrawing and withholding dialysis

Indexed keywords

EID: 77949867853     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1002/9781444322705.ch12     Document Type: Chapter

References (43)

1. Ashby M, op't Hoog C, Kellehear A, Kerr PG, Brooks D, Nicholls K and Forrest M (2005) Renal dialysis abatement: lessons from a social study. Palliative Medicine. 19(5):389-396.
2. Chambers EJ, Germain MJ and Brown E (Eds) (2004) Supportive Care for the Renal Patient. Oxford: Oxford University Press.
3. Chan CH, Noble H, Lo SH, Kwan TH, Lee SL and Sze WK (2007) Palliative care for patients with end-stage renal disease: experiences from Hong Kong. International Journal of Palliative Nursing. 13(7):310-314.
4. Chesser A (2005) Palliative care in advanced renal disease. In: Faull C, Carter Y and Daniels L (Eds), Handbook of Palliative Care (2nd edition). Oxford: Blackwell Publishing.
5. Cohen LM and Germain MJ (2004) Measuring quality of dying in end-stage renal disease. Seminars in Dialysis. 17(5):376-379.
6. Cohen LM and Germain MJ (2005) The psychiatric landscape of withdrawal. Seminars in Dialysis. 18(2):147-153.
7. Cohen LM, Moss AH, Weisbord SD and Germain MJ (2006) Renal palliative care. Journal of Palliative Medicine. 9(4):977-992.
8. Davison SN (2003) Pain in hemodialysis patients: prevalence, cause, severity, and management. American Journal of Kidney Diseases. 42(6):1239-1247.
9. Davison SN and Simpson C (2006) Hope and advance care planning in patients with end stage renal disease: qualitative interview study. British Medical Journal. 333(7574):886.
10. Do H (2005) National Service Framework for Renal Services: Part Two. London: The Stationery Office.
11. Douglas C, Murtagh F and Ellershaw J (2007) Symptom control for the patient dying with ESRD-development of evidence based guidelines based on the LCP. Abstract accepted at the 10th EAPC Conference, 2007. Available at http://www.eapcnet.org/budapest2007/pdf/thursday poster.pdf. Accessed on 22 November 2008.
12. Fainsinger RL, Davison SN and Brennis C (2003) A supportive care model for dialysis patients. Palliative Medicine. 17(1):81-82.
13. Ferro CJ, Chambers J and Davison SN (2004) Management of pain in renal failure. In: Chambers EJ, Germain M and Brown E (Eds), Supportive Care for the Renal Patient. Oxford: Oxford University Press.
14. Galla J (2000) Clinical practice guideline on shared decision-making in the appropriate initiation of and withdrawal fromdialysis. Journal of the American Society of Nephrology. 11(7):1340-1342.
15. Germain M and McCarthy S (2004) Symptoms of renal disease: dialysis-related problems. In: Chambers EJ, Germain M and Brown E (Eds), Supportive Care for the Renal Patient. Oxford: Oxford University Press.
16. Germain MJ, Cohen LM and Davison SN (2007) Withholding and withdrawal from dialysis: what we know about how our patients die. Seminars in Dialysis. 20(3):195-199.
17. Horowitz M, Wilner N and Alvarez W (1979) Impact of event scale: a measure of subjective stress. Psychosomatic Medicine. 41(3):209-218.
18. International Society of Nephrology and International Federation of Kidney Foundations (2007) World Kidney Day. Available at http://www.worldkidneyday.org/pages/why.php. Accessed on 22 November 2008.
19. Kilner JF (1990) Ethical issues in the initiation and termination of treatment. American Journal of Kidney Diseases. 15(3):218-227.
20. Levy JB, Chambers EJ and Brown EA (2004) Supportive care for the renal patient. Nephrology Dialysis and Transplantation. 19(6):1357-1360.
21. Marie Curie Palliative Care Institute (2008) Guidelines for LCP drug prescribing in advanced chronic kidney disease. Liverpool: Marie Curie Palliative Care Institute. Available at http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH 085320?IdcService=GET FILE&dID=166616&Rendition=Web. Accessed on 22 November 2008.
22. Moon JB and Graber GC (1985) When Danny said no! Refusal of treatment by a patient of questionable competence. Journal of Medical Humanities and Bioethics. 6(1):12-27.
23. Moss AH (2001) Recommendations regarding conflict resolution and forgoing dialysis in special patient populations. Nephrology News and Issues. 15(13):51-54.
24. Moss AH, Rettig RA and Cassel CK (1993) A proposal for guidelines for patient acceptance to and withdrawal from dialysis: a follow-up to the IOM report. Anna Journal. 20(5):557-561.
25. Murtagh F (2007) Introduction to end-stage renal disease in palliative and supportive care. NHS National Library for Health. Available at http://www.library.nhs.uk/palliative/ViewResource.aspx?resID=267423&tabID=290. Accessed on 22 November 2008.
26. Murtagh FE, Addington-Hall JM, Donohue P and Higginson IJ (2006) Symptom management in patients with established renal failure managed without dialysis. European Dialysis and Transplant Nurses Association/European Renal Care Association Journal. 32(2):93-98.
27. Murtagh FEM, Murphy E, Shepherd KA, Donohoe P and Edmonds PM (2006) End-of-life care in end-stage renal disease: renal and palliative care collaboration. British Journal of Nursing. 15(1):8-11.
28. Neu S and Kjellstrand CM (1986) Stopping long-term dialysis. An empirical study of withdrawal of life-supporting treatment. New England Journal of Medicine. 314(1):14-20.
29. Noble H (2007) Dialysis decision-making and advance planning-an evidence guide for palliative professionals. NHS National Library for Health. Available at http://www.library.nhs.uk/palliative/ViewResource.aspx?resID=271069&tabID=289. Accessed on 22 November 2008.
30. Noble H, Chesser A and Go J (2007) Developing a Renal Supportive Care Service for patients opting not to dialyse. End of Life Journal. 1(3):51-55.
31. Noble H, Chesser A and Kelly D (2005) The cessation of dialysis in patients with end-stage renal disease: developing an appropriate evidence base for practice. European Dialysis and Transplant Nurses Association/European Renal Care Association Journal. 31(4):208-211.
32. Noble H and Rees K (2006) Caring for people who are dying on renal wards: a retrospective study. European Dialysis and Transplant Nurses Association/European Renal Care Association Journal. 32(2):89-92.
33. Phillips JM, Brennan M, Schwartz CE, and Cohen LM (2005) The long-term impact of dialysis discontinuation on families. Journal of Palliative Medicine. 8(1):79-85.
34. Renal Association (2003) Treatment of Patients with Renal Failure: Recommended Standards and Audit Measures. London: Renal Association and Royal College of Physicians.
35. Rich A, Ellershaw J and Ahmad R (2001) Palliative care involvement in patients stopping haemodialysis. Palliative Medicine. 15(6):513-514.
36. Rombola G (2002) Dialysis for everybody? At any cost? Journal of Nephrology. 15(6):S33-S42.
37. Rutecki GW, Rodriguez L, Cugino A, Jarjoura D, Hastings F and Whittier FC (1994) End of life issues in ESRD. A study of three decision variables that affect patient attitudes. American Society of Artificial Internal Organs Journal. 40(3):M798-M802.
38. Sacred Congregation for the Doctrine of the Faith (1980) Declaration on Euthanasia. Canadian Conference of Catholic Bishops. Ottawa: Publications Service.
39. Shirani S and Finkelstein F (2004) Sexual dysfunction in patients with chronic kidney disease. In: Chambers EJ, Germain M and Brown E (Eds), Supportive Care for the Renal Patient. Oxford: Oxford University Press.
40. Smith C, Da Silva-Gane M, Chandna S, Warwicker P, Greenwood R and Farrington K (2003) Choosing not to dialyse: evaluation of planned non-dialytic management in a cohort of patients with end-stage renal failure. Nephron Clinical Practice. 95(2):c40-c46.
41. Steinberg A (2003) End-of-life decision making process. Harefuah. 142(10):672-673.
42. The Royal College of Physicians (2007) The changing face of renal medicine in the UK: the future of the speciality. Report of a Working Party 2007. London: RCP.
43. Viederman M and Burke D (1974) Case studies in bioethics. Saying 'no' to haemodialysis. Should a minor's decision be respected? Hastings Center Report. 4(4):8-10.