Uses and limitations of registry and academic databases

Seminars in Thoracic and Cardiovascular Surgery: Pediatric Cardiac Surgery Annual

Volumn 13, Issue 1, 2010, Pages 66-70

  Williams, William G ^a  

^a HOSPITAL FOR SICK CHILDREN   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ACCURACY; ARTICLE; CLINICAL PRACTICE; CONGENITAL HEART DISEASE; DISEASE REGISTRY; ECONOMIC EVALUATION; FACTUAL DATABASE; HEALTH CARE QUALITY; HEART SURGERY; HUMAN; KNOWLEDGE DISCOVERY; OUTCOME ASSESSMENT; SYSTEMATIC ERROR; VALIDATION PROCESS;

BIOMEDICAL RESEARCH; CARDIOLOGY; DATABASES, FACTUAL; HEART DEFECTS, CONGENITAL; HUMANS; QUALITY OF HEALTH CARE; REGISTRIES;

EID: 77949612067     PISSN: 10929126     EISSN: None     Source Type: Journal    
DOI: 10.1053/j.pcsu.2010.02.007     Document Type: Article

References (14)

1. Williams W.G., McCrindle B.W. Practical experience with databases for congenital heart disease: a registry vs. an academic database. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu 2002, 5:132-142.
2. Stark J.F., Stark J. Databases for congenital heart disease: a beginner's guide. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu 2000, 3:110-116.
3. Lenat D.Cycorp http://www.cyc.com/cyc/company/lenat.
4. Welke K.F., Diggs B.S., Karamlou T. Databases for assessing outcomes of treatment of patients with congenital heart disease - a comparison of administrative and clinical data. Cardiol Young 2008, 18(suppl 2):137-144.
5. Shahian D.M., Blackstone E.H., Edwards F.H., et al. Report from the STS workforce on evidence-based surgery: Cardiac surgery risk models: a position article. Ann Thorac Surg 2004, 78:1868-1877.
6. Gallivan S., Stark J., Pagel C., et al. Dead reckoning: can we trust estimates of mortality rates in clinical databases?. Eur J Cardiothorac Surg 2008, 33:334-340.
7. Gibbs J., Monro J.L., Cunningham D., et al. Survival after surgery of therapeutic catheterization for congenital heart disease in children in the UK: analysis of the central cardiac audit for 2000-1. BMJ 2004, 328:611-615.
8. Treasure T. Congenital heart disease: monitoring intervention after Bristol. BMJ 2004, 328:594-595.
9. Jacobs J.P., Mavroudis C., Jacobs M.L., et al. What is operative mortality? Defining death in a surgical registry database: a report of the STS Congenital Database Taskforce and the Joint EACTS-STS Congenital Database Committee. Ann Thorac Surg 2006, 81:1937-1941.
10. Williams W. Defining operative mortality: it should be easy, but is it?. Ann Thorac Surg 2006, 81:1557-1560.
11. Jenkins KJ, Gauvreau K, Newburger JW, et al. Consensus-based method for risk adjustment for surgery for congenital heart disease J Thorac Cardiovasc Surg 2002, 123:110-118.
12. Lacour-Gayet F.G., Clarke D., Jacobs J.P., et al. The Aristotle Score for congenital heart surgery. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu 2004, 7:185-191.
13. Hickey E., McCrindle B.W., Caldarone C.A., et al. Making sense of congenital heart disease with a research database: the Congenital Heart Surgeons' Society Data Centre. Cardiol Young 2008, 18(suppl 2):152-162.
14. Karamlou T., McCrindle B.W., Blackstone E.H., et al. Lesion-specific outcomes on neonates undergoing congenital heart surgery are related predominantly to patient and management factors rather than institution or surgeon experience: a Congenital Heart Surgeons' Society study. J Thorac Cardiovasc Surg 2010, 139:569-577.