Molecular medicine and concepts of disease: The ethical value of a conceptual analysis of emerging biomedical technologies

Medicine, Health Care and Philosophy

Volumn 13, Issue 1, 2010, Pages 11-23

  Boenink, Marianne ^a  

^a UNIVERSITY OF TWENTE   (Netherlands)

Author keywords

Concept of disease; Emerging technology; Epistemology; Ethics; Health technology assessment; Molecular medicine; Personalized medicine

Indexed keywords

ARTICLE; BIOMEDICAL TECHNOLOGY ASSESSMENT; DIAGNOSIS; ETHICS; HUMAN; MEDICAL TECHNOLOGY; MEDICINE; METHODOLOGY; MOLECULAR BIOLOGY; MONITORING; PHILOSOPHY;

BIOMEDICAL TECHNOLOGY; DIAGNOSIS; HUMANS; MEDICINE; MOLECULAR BIOLOGY; MONITORING, PHYSIOLOGIC; PHILOSOPHY, MEDICAL; TECHNOLOGY ASSESSMENT, BIOMEDICAL;

EID: 77949502457     PISSN: 13867423     EISSN: 15728633     Source Type: Journal    
DOI: 10.1007/s11019-009-9223-x     Document Type: Article

References (53)

1. Boenink, Marianne. 2008. Genetic diagnostics for hereditary breast cancer-displacement of uncertainty and responsibility. In Genetics from laboratory to society, ed. Gerard de Vries and Klasien Horstman, 37-63. Houndmills Basingstoke: Palgrave/Macmillan.
2. Bowker, Geoffrey C., and Susan Leigh Star. 2000. Sorting things out classification and its consequences. Cambridge: The MIT Press.
3. Chadwick, Ruth. 1997. The philosophy of the right to know and the right not to know. In The right to know and the right not to know, ed. R. Chadwick, M. Levitt, and D. Shickle, 13-22. Averbury: Aldershot.
4. Chadwick, Ruth, and Sarah Wilson. 2004. Genomic databases as public goods? Res Publica 10 (2): 123-134.
5. Chanock, Stephen, and Sholom Wacholder. 2002. One gene and one outcome? No way. Trends in Molecular Medicine 8 (6): 266-269.
6. Collingridge, D. 1980. The social control of technology. London: Pinter.
7. CTMM Working Group. 2006. Business plan center for translational molecular medicine. Den Haag: Center for Translational Molecular Medicine.
8. Davis, Audrey B. 1981. Medicine and its technology. An introduction to the history of medical instrumentation. Westport: Greenwood.
9. Decker, Michael. 2004. The role of ethics in interdisciplinary technology assessment. Poiesis & Praxis 2: 139-156.
10. Dillmann, Robert J. M. 1990. Alzheimer's disease: The concept of disease and the construction of medical knowledge. Amsterdam: Vrije Univeristeit.
11. Engelhardt, H. Tristram and Kevin W. M. Wildes. 2003. Health and disease. IV: Philosophical perspectives. In Encyclopedia of bioethics, ed. Stephen G. Post, 1075-1081. Gale Cengage Learning.
12. European Group on Ethics. 2007. Opinion on the ethical aspects of nanomedicine. Brussels: European Group on Ethics in Science and New Technologies to the European Commission.
13. Fortina, Paolo, Larry J. Kricka, Saul Surrey, and Piotr Grodzinski. 2005. Nanobiotechnology: The promise and reality of new approaches to molecular recognition. Trends in Biotechnology 23 (4): 168-173.
14. Freitas, Robert A. 2007. Personal choice in the coming era of nanomedicine. In Nanoethics. The ethical and social implications of nanotechnology, ed. Fritz Allhoff, Patrick Lin, James Moor, and John Weckert, 161-172. Hoboken: Wiley.
15. Grin, John, and Armin Grunwald. 2000. Vision assessment: Shaping technology in 21st century society. Heidelberg: Springer.
16. Grunwald, Armin. 1999. Technology assessment or ethics of technology? Reflections on technology development between social sciences and philosophy. Ethical perspectives 6 (2): 170-182.
17. Grunwald, Armin. 2000. Against over-estimating the role of ethics in technology development. Science and Engineering Ethics 6 (2): 181-196.
18. Health Council of the Netherlands. 2006. Health significance of nanotechnologies. The Hague: Health Council of the Netherlands.
19. Hoedemaekers, Rogeer, and Henk ten Have. 1999. The concept of abnormality in medical genetics. Theoretical Medicine and Bioethics 20 (6): 537-561.
20. Hofmann, Bjorn. 2001a. Complexity of the concept of disease as shown through rival theoretical frameworks. Theoretical Medicine and Bioethics 22: 211-236.
21. Hofmann, Bjorn. 2001b. The technological invention of disease. Journal of Medical Ethics: Medical Humanities 27: 10-19.
22. Hofmann, Bjorn. 2005. Toward a procedure for integrating moral issues in health technology assessment. International Journal of Technology Assessment in Health Care 21 (3): 312-318.
23. Hofmann, Bjorn Morten. 2008. Why ethics should be part of health technology assessment. International Journal of Technology Assessment in Health Care 24 (4): 423-429.
24. Horstman, K., G. H. de Vries, and O. Haveman. 1999. Gezondheidspolitiek in een risicocultuur. Burgerschap in het tijdperk van de 'voorspellende geneeskunde'. Den Haag: Rathenau Instituut.
25. Ihde, Don. 1990. Technology and the lifeworld: From garden to earth. Bloomington: Indiana University Press.
26. Johnson, Julie A., and William E. Evans. 2002. Molecular diagnostics as a predictive tool: Genetics of drug efficacy and toxicity. Trends in Molecular Medicine 8 (6): 300-305.
27. Kushf, George. 2006. An agenda for future debate on concepts of health and disease. Medicine, Health Care and Philosophy 10: 19-27.
28. Lehoux, Pascale, and Bryn Williams-Jones. 2007. Mapping the integration of social and ethical issues in health technology assessment. International Journal of Technology Assessment in Health Care 23 (1): 9-16.
29. Lock, Margaret. 2005. Eclipse of the gene and the return of divination. Current Anthropology 46 (Supplement): S47-S60.
30. Mol, Annemarie, and Ruud Hendriks. 1995. De hele wereld één Hb? - Universaliteit, lokaliteit en bloedarmoede. Krisis: tijdschrift voor filosofie 58: 56-73.
31. Nordenfelt, Lennart. 2007. The concepts of health and illness revisited. Medicine, Health Care and Philosophy 10: 5-10.
32. Nordmann, Alfred. 2007. If and then: A critique of speculative nanoethics. Nanoethics 1 (1): 31-46.
33. Oortwijn, Wija, Rob Reuzel, and Michael Decker. 2004. Introduction. Poiesis & Praxis 2: 97-101.
34. Pagon, Roberta A. 2002. Genetic testing for disease susceptibilities: Consequences for genetic counselling. Trends in Molecular Medicine 8 (6): 306-307.
35. Pasveer, Bernike. 1992. Shadows of knowledge. Making a representing practice in medicine: X-ray pictures and pulmonary tuberculosis, 1895-1930. Amsterdam: University of Amsterdam.
36. Philippe, P., and O. Mansi. 1998. Nonlinearity in the epidemiology of complex health and disease processes. Theoretical Medicine and Bioethics 19: 591-607.
37. Reiser, Stanley Joel. 1978. Medicine and the reign of technology. Cambridge: Cambridge University Press.
38. Roszek, B., W. H. de Jong, and R. E. Geertsma. 2005. Nanotechnology in medical applications: State-of-the-art in materials and devices. Bilthoven: RijksInsttiuut voor Volksgezondheid en Milieuhygiëne.
39. Schaffner, Kenneth F. 2000. Medical informatics and the concept of disease. Theoretical Medicine and Bioethics 21: 85-101.
40. Schramme, Thomas. 2007. Lennart Nordenfelt's theory of health: Introduction to the theme. Medicine, Health Care and Philosophy 10: 3-4.
41. Schuurman, J., F. Moelaert El-Hadidy, A. Krom, and B. Walhout. 2007. Ambient intelligence. Toekomst van de zorg of zorg van de toekomst?. Den Haag: Rathenau Instituut.
42. Signaleringscommissie Kanker. 2007. Biomarkers en kanker. Amsterdam: KWF Kankerbestrijding.
43. Stempsey, William E. 2006a. The geneticization of diagnostics. Medicine, Health Care and Philosophy 9: 193-200.
44. Stempsey, William E. 2006b. Emerging medical technologies and emerging conceptions of health. Theoretical Medicine and Bioethics 27: 227-243.
45. Swierstra, Tsjalling. 2004. Slachtoffer of burger? Een essay over het nader gebruik van lichaamsmateriaal ten behoeve van het genomics onderzoek. Preadvies uitgebracht ten behoeve van de jaarvergadering van de Nederlandse Vereniging voor Bio-ethiek op 30 September 2004. In Bio-ethiek, ed. NederlandseVereniging voor. Amsterdam: NVBe.
46. Swierstra, Tsjalling, and Arie Rip. 2007. Nano-ethics as NEST-ethics: Patterns of moral argumentation about new and emerging science and technology. Nanoethics 1 (1): 3-20.
47. Tengland, Per-Anders. 2007. A two-dimensional theory of health. Theoretical Medicine and Bioethics 28: 257-284.
48. Tijmstra, Tjeerd. 2004. Humane genetica en samenleving. Bouwstenen voor een ander debat. Den Haag: Raad voor Maatschappelijke Ontwikkeling.
49. Torres, Juan Manuel. 2002. The importance of genetic services for the theory of health: A basis for an integrating view of health. Medicine, Health Care and Philosophy 5: 43-51.
50. TWA Netwerk. 2006. Technologische innovaties in de (preventieve) gezondheidssector. TWA Nieuws 44(5): 1-66.
51. Verbeek, Peter-Paul. 2005. What things do: Philosophical reflections on technology, agency and design. University Park: Penn State University Press.
52. Vos, Rein, and Dick L. Willems. 2000. Technology in medicine: Ontology epistemology, ethics and social philosophy at the crossroads. Theoretical Medicine and Bioethics 21: 1-7.
53. Willems, Dick L. 1995. Tools of care: Explorations into the semiotics of medical technology. PhD thesis Rijksuniversiteit Limburg, Maastricht.