Genetic nondiscrimination and health care as an entitlement

Journal of Medicine and Philosophy

Volumn 35, Issue 2, 2010, Pages 86-100

  Kious, Brent M ^a  

^a UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Genetic discrimination; Genetic exceptionalism; Genetic Information Nondiscrimination Act; Health care; Insurance

Indexed keywords

ARTICLE; GENETIC PRIVACY; HEALTH CARE DELIVERY; HUMAN; HUMAN RIGHTS; INSURANCE; LEGAL ASPECT; PHILOSOPHY; SOCIAL PSYCHOLOGY; UNITED STATES;

GENETIC PRIVACY; HEALTH SERVICES ACCESSIBILITY; HUMAN RIGHTS; HUMANS; INSURANCE SELECTION BIAS; PHILOSOPHY, MEDICAL; PREJUDICE; UNITED STATES;

EID: 77949448102     PISSN: 03605310     EISSN: 17445019     Source Type: Journal    
DOI: 10.1093/jmp/jhq005     Document Type: Article

References (20)

1. Alper, J. S., and J. Beckwith. 1998. Distinguishing genetic from non-genetic medical tests: some implications for antidiscrimination legislation. Science and Engineering Ethics 4:141-150
2. Asch, A. 2000. Why I haven't changed my mind about prenatal diagnoses: reflections and refinements. In Prenatal testing and disability rights (pp. 234-58), eds E. Parens, and A. Asch. Washington: Georgetown University Press.
3. Billings, P. R., M. A. Kohn, M. de Cuevas, J. Beckwith, J. S. Alper, and M. R. Natowicz. 1992. Discrimination as a consequence of genetic testing. American Journal of Human Genetics 50:476-482
4. Collins, F. S. 2003. Genetic discrimination: Time to act. Science 302:745. Genetic Information Non-Discrimination Act of 2008: Public Law 110-233. http://frwebgate.access.gpo.gov/cgi-bin/getdoc.cgi?dbname=110-cong-public- laws&docid=f:publ233.110.pdf (accessed August 14, 2008).
5. Hadley, D. W., J. Jenkins, E. Dimond, K. Nakahara, L. Grogan, D. J. Liewehr, S. M. Steinberg, and I. Kirsch. 2003. Genetic counseling and testing in families with hereditary nonpolyposis colon cancer. Archives of Internal Medicine 163:573-582
6. Hellman, D. 2003. What makes genetic discrimination exceptional? American Journal of Law and Medicine 29:77-116.
7. Holtzman, N. A., and M. A. Rothstein. 1992. Eugenics and discrimination. American Journal of Human Genetics 50:457-9.
8. Kinsley, M. May 8, 2008. Genetic discrimination: unfair or natural? Time, http://www.time.com/time/magazine/article/0,9171,1738513,00.html (accessed September 27, 2008).
9. Korobkin, R., and R. Rajkumar. 2008. The Genetic Information Nondiscrimination Act-A half-step toward risk sharing. New England Journal of Medicine 359:335-337
10. Launis, V. 2000. The use of genetic information in insurance: the argument from indistinguishability reconsidered. Science and Engineering Ethics 6:299-310.
11. ---. 2003. Solidarity, genetic discrimination, and insurance: a defense of weak genetic exceptionalism. Social Theory and Practice 29:87-111.
12. Mackie, J. L. 1990. Ethics: Inventing right and wrong. London: Penguin Books.
13. McCabe, L., and E. R. B. McCabe. 2008. DNA: Promise and peril. Berkeley: University of California Press.
14. Murray, T. 1992. Genetics and the moral mission of health insurance. Hastings Center Report 22:12-17
15. National Institutes of Health, Department of Energy Working Group on Ethical, Legal, and Social Implications of Human Genome Research. 1993. Genetic information and health insurance report of the Task Force on Genetic Information and Insurance. Bethesda, MD: National Institutes of Health. http://www.genome.gov/10001750 (accessed August 12, 2008).
16. Nelson, J. L. 2000. The meaning of the act: Reflections on the expressive force of reproductive decision making and policies. In Prenatal testing and disability rights (pp. 196-213), eds E. Parens, and A. Asch. Washington: Georgetown University Press.
17. Parens, E., and A. Asch. 2000. The disability rights critique of prenatal genetic testing: reflections and recommendations. In Prenatal testing and disability rights (pp. 3-43), eds E. Parens, and A. Asch. Washington: Georgetown University Press.
18. Rawls, J. 2005. A theory of justice: Original edition. Cambridge: Belknap Press.
19. Rothstein, M. 2005. Genetic exceptionalism and legislative pragmatism. Hastings Center Report 35:27-33.
20. Scanlon, T. M. 1999. What we owe to each other. Cambridge: Belknap Press.