Collection of data on patients' race and ethnic group by physician practices

New England Journal of Medicine

Volumn 362, Issue 9, 2010, Pages 846-

  Wynia, Matthew K ^a,b   Ivey, Susan L ^d   Hasnain Wynia, Romana ^c  

^a AMERICAN MEDICAL ASSOCIATION   (United States)

^b UNIVERSITY OF CHICAGO   (United States)

^c NORTHWESTERN UNIVERSITY   (United States)

^d University of California Berkeley   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CLINICAL DECISION MAKING; CLINICAL PRACTICE; ETHNIC DIFFERENCE; ETHNIC GROUP; HEALTH CARE QUALITY; HUMAN; INFORMATION PROCESSING; PATIENT INFORMATION; PRIORITY JOURNAL; RACE; RACE DIFFERENCE; REVIEW; ARTICLE; DEMOGRAPHY; ETHICS; HEALTH CARE DISPARITY; METHODOLOGY; PHARMACOGENETICS; PHYSICIAN; STATISTICS; UNITED STATES;

CONTINENTAL POPULATION GROUPS; DATA COLLECTION; DEMOGRAPHY; ETHNIC GROUPS; HEALTHCARE DISPARITIES; HUMANS; PHARMACOGENETICS; PHYSICIAN'S PRACTICE PATTERNS; PHYSICIANS; UNITED STATES;

EID: 77649324494     PISSN: 00284793     EISSN: 15334406     Source Type: Journal    
DOI: 10.1056/NEJMsb0910799     Document Type: Article

References (56)

1. Agency for Healthcare Research and Quality. 2007 National healthcare disparities report. Rockville, MD: Department of Health and Human Services, February 2008. (AHRQ publication no. 08-0041.)
2. HasnainWynia R, Baker DW. Obtaining data on patient race, ethnicity, and primary language in health care organizations: current challenges and proposed solutions. Health Serv Res 2006;41:1501-8.
3. Siegel B, Nolan L. Leveling the field - ensuring equity through national health care reform. N Engl J Med 2009;361: 2401-3.
4. Perot RT, Youdelman M. Racial, ethnic, and primary language data collection in the health care system: an assessment of federal policies and practices. New York: Commonwealth Fund, 2001. (Accessed February 11, 2010, at http://www.commonwealthfund.org/Content/Publications/Fund-Reports/2001/Sep/ Racial--Ethnic--and-Primary-Language-Data-Collection-in-the-Health-Care-System-- An-Assessment-of-Fed.aspx.)
5. Should your practice collect patients' race & ethnicity data? Fort Dodge, IA: PriMed Patient Education Center. (Accessed February 11, 2010, at http://www.patienteducationcenter.org/aspx/News/news-detail.aspx?newsid=171.)
6. Institute of Medicine. Unequal treatment: confronting racial and ethnic disparities in health care. Washington, DC: National Academy Press, 2003.
7. Ver Ploeg M, Perrins E, eds. Eliminating health disparities: measurement and data needs. Washington, DC: National Academies Press, 2004.
8. Institute of Medicine. Race, ethnicity, and language data: standardization for health care quality improvement. Washington, DC: National Academies Press, 2009.
9. HR 3962. Affordable Health Care for Americans Act. (Accessed February 11, 2010, at http://docs.house.gov/rules/health/111-ahcaa.pdf.)
10. Hasnain-Wynia R, Baker DW. Obtaining data on patient race, ethnicity, and primary language in health care organizations: current challenges and proposed solutions. Health Serv Res 2006;41:1501-18.
11. Nerenz DR, Hunt KA, Escarce JJ. Health care organizations' use of data on race/ethnicity to address disparities in health care. Health Serv Res 2006;41:1444-50.
12. Audet AM, Doty MM, Shamasdin J, Schoenbaum SC. Measure, learn, and improve: physicians' involvement in quality improvement. Health Aff (Millwood) 2005;24:843-53.
13. American Recovery and Reinvestment Act of 2009, Public Law 111-5 § 3002(b)(2)(B)(vii), 111th Cong., 1st sess. (February 17, 2009); Section 13101, adding section 3002(b)(2)(B) to the Public Health Services Act (PHSA). (Accessed February 11, 2010, at http://appropriations.house.gov/pdf/Recovery-Bill-Div-A. pdf.)
14. Department of Health and Human Services, Office of the National Coordinator for Health Information Technology. Meaningful use matrix. (Accessed February 11, 2010, at http://healthit.hhs.gov/portal/server.pt/gateway/PTARGS-0- 11113-872719-0-0-18/Meaningful%20Use%20Matrix.pdf.)
15. Blumenthal D. Launching HITECH. N Engl J Med 2010;362: 382-5.
16. Hasnain-Wynia R. Collecting race, ethnicity, and primary language data in small physician practices. Chicago: Health Research and Educational Trust/AHA, 2007.
17. Abraham C. This human's life, decoded. Toronto: The Globe and Mail. September 3, 2007; updated April 3, 2009. (Accessed February 11, 2010, http://www.theglobeandmail.com/news/technology/science/article779767.ece.)
18. Witzig R. The medicalization of race: scientific legitimization of a flawed social construct. Ann Intern Med 1996;125: 675-9.
19. Braun L, Fausto-Sterling A, Fullwilley D, et al. Racial categories in medical practice: how useful are they? PLoS Med 2007; 4(9):e271.
20. Chin MH, Huminowski CA. When is risk stratification by race or ethnicity justified in medical care? Acad Med 2002; 77:202-8.
21. Tang H, Quertermous T, Rodriguez B, et al. Genetic structure, self-identified race/ethnicity, and confounding in case-control association studies. Am J Hum Genet 2005;76:268-75.
22. Schwartz RS. Racial profiling in medical research. N Engl J Med 2001;344:1392-3.
23. Cooper RS, Kaufman JS, Ward R. Race and genomics. N Engl J Med 2003;348:1166-70.
24. Sankar P, Cho MK, Condit CM, et al. Genetic research and health disparities. JAMA 2004;291:2985-9.
25. Finucane TE, Carrese JS. Racial bias in presentation of cases. J Gen Intern Med 1990;5:120-1.
26. Caldwell SH, Popenoe R. Perceptions and misperceptions of skin color. Ann Intern Med 1995;122:614-7.
27. Anderson MR, Moscou S, Fulchon C, Neuspeil DR. The role of race in clinical presentations. Fam Med 2001;33:430-4.
28. Sabin JA, Rivara FP, Greenwald AG. Physician implicit attitudes and stereotypes about race and quality of medical care. Med Care 2008;46:678-85.
29. Satel SL. I am a racially profiling doctor. New York Times. May 5, 2002. (Accessed February 11, 2010, at http://www.sallysatelmd.com/html/a-nytimes3. html.)
30. Risch N. Dissecting racial and ethnic differences. N Engl J Med 2006;354:408-11.
31. Roan S. Testing for genetic mutations within ethnic groups. Los Angeles Times. August 17, 2009. (Accessed February 11, 2010, at http://www.latimes.com/ features/health/la-he-genetic17-2009aug17,0,1552353,print.story.)
32. FDA approves BiDil heart failure drug for black patients. News release of the Food and Drug Administration, Silver Spring, MD, June 23, 2005. (Accessed February 11, 2010, at http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ 2005/ucm108445.htm.)
33. Bloche MG. Race-based therapeutics. N Engl J Med 2004; 351:2035-7.
34. Lurie N, Fremont A, Jain AK, et al. Racial and ethnic disparities in care: the perspectives of cardiologists. Circulation 2005;111:1264-9.
35. Sequist TD, Ayanian JZ, Marshall R, Fitzmaurice GM, Safran DG. Primary-care clinician perceptions of racial disparities in diabetes care. J Gen Intern Med 2008;23:678-84.
36. Sequist TD, Fitzmaurice GM, Marshall R, Shaykevich S, Dafran DG, Ayanian JZ. Physician performance and racial disparities in diabetes mellitus care. Arch Intern Med 2008;168:1145-51.
37. Reschovsky JD, O'Malley AS. Do primary care physicians treating minority patients report problems delivering high quality care? Health Aff (Millwood) 2008;27:w222-w231.
38. Szilagyi PG, Schaffer S, Shone L, et al. Reducing geographic, racial, and ethnic disparities in childhood immunization rates by using reminder/recall interventions in urban primary care practices. Pediatrics 2002;110(5):e58.
39. Nerenz DR. Health care organizations' use of race/ethnicity data to address quality disparities. Health Aff (Millwood) 2005; 24:409-16.
40. Chien AT, Chin MH, Davis AM, Casalino LP. Pay for performance, public reporting, and racial disparities in health care: how are programs being designed? Med Care Res Rev 2007;64: Suppl:283S-304S.
41. Terris DD, Litaker DG. Data quality bias: an unrecognized source of misclassification in pay-for-performance reporting? Qual Manag Health Care 2008;17:19-26.
42. Fiscella K, Epstein RM. So much to do, so little time: care for the socially disadvantaged and the 15-minute visit. Arch Intern Med 2008;168:1843-52.
43. Casalino LP, Elster A, Eisenberg A, Lewis E, Montgomery J, Ramos D. Will pay-for-performance and quality reporting affect health care disparities? Health Aff (Millwood) 2007;26:w405-w414.
44. Rosenthal MB, Frank RG, Li Z, Epstein AM. Early experience with pay-for-performance: from concept to practice. JAMA 2005; 294:1788-93.
45. Epstein AM, Lee TH, Hamel MB. Paying physicians for high-quality care. N Engl J Med 2004;350:406-10.
46. Garreau J. 300 Million and counting: the United States reaches a demographic milestone, thanks largely to immigration. Smithsonian Magazine. October 2006. (Accessed February 11, 2010, at http://www.smithsonianmag.com/ people-places/presence-oct06.html.)
47. Physician perspectives on communication barriers: insights from focus groups with physicians who treat non-English proficient and limited English proficient patients. Princeton, NJ: Robert Wood Johnson Foundation, 2004. (Accessed February 11, 2010, at http://www.hablamosjuntos.org/pdf-files/LSP. Report.Final.pdf.)
48. Marketing to ethnic communities. In: Baum N, Henkel G. Marketing your clinical practice: ethically, effectively, economically. 3rd ed. New York: Aspen, 2010:179-85.
49. South Asian Heart Center, El Camino Hospital. Mission statement. Mountain View, CA: South Asian Heart Center. (Accessed February 11, 2010, at http://www.southasianheartcenter.org/about/mission.html.)
50. Kmetik K. PowerPoint presentation to the IOM Committee on Future Directions for the National Healthcare Quality and Disparities Reports. February 10, 2009. (Accessed February 11, 2010, at http://www.iom.edu/~/media/Files/ Activity%20Files/Quality/QualityDisparities/kmetikslides.ashx.)
51. The National Health Plan Collaborative: overview of its origins, accomplishments, and lessons learned: final report. Rockville, MD: Agency for Healthcare Research and Quality, September 2009. (AHRQ publication no. 09-0078-EF.) (Accessed February 11, 2010, at http://www.ahrq.gov/about/ evaluations/nhpceval/.)
52. Zimmerman D. Setting the stage and prioritizing race, ethnicity and language data collection. HealthPartners PowerPoint presentation. (Accessed February 11, 2010, at http://www.mncm.org/site/assets/ Race%20Ethnicity%20Language%20Data%20Collection%20Webinar%209.15.2009.pdf.)
53. Handbook on the collection of race/ethnicity/language data in medical groups. Minneapolis: MN Community Measurement, 2009. (Accessed February 11, 2010, at http://www.mncm.org/site/assets/resources/Handbook-on-the-Collection- of-6-30-09-FINAL.pdf.)
54. Hasnain-Wynia R, Pierce D, Haque A, Hedges Greising C, Prince V, Reiter J. Health Research and Educational Trust disparities toolkit. 2007. (Accessed February 12, 2010, at http://hretdisparities.org.)
55. Landon BE, Normand SL. Performance measurement in the small office practice: challenges and potential solutions. Ann Intern Med 2008;148:353-7.
56. The Physicians Consortium for Performance Improvement (PCPI) home page. (Accessed February 11, 2010, at http://www.ama-assn.org/ama/pub/physician- resources/clinical-practice-improvement/clinical-quality/physician-consortium- performance-improvement.shtml.)