Baseline Quality of Life in patients with Klippel-Trenaunay syndrome

Journal of Plastic, Reconstructive and Aesthetic Surgery

Volumn 63, Issue 4, 2010, Pages 603-609

  Oduber, Charlène E U ^a   Khemlani, Kavita ^a   Sillevis Smitt, J Henk ^b   Hennekam, Raoul C M ^a,c   van der Horst, Chantal M A M ^a  

^a ACADEMIC MEDICAL CENTER   (Netherlands)

^b UNIVERSITY OF AMSTERDAM   (Netherlands)

^c UNIVERSITY COLLEGE LONDON   (United Kingdom)

Author keywords

Klippel Trenaunay syndrome; Klippel Trenaunay Weber syndrome; Quality of Life; Severity; Sub classification

Indexed keywords

ADOLESCENT; ADULT; AGED; ANGIOOSTEOHYPERTROPHY SYNDROME; ARTICLE; CONTROLLED STUDY; DISEASE SEVERITY; EPIPHYSIODESIS; ERYSIPELAS; FEMALE; HEALTH SURVEY; HUMAN; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SOCIAL INTERACTION;

ADOLESCENT; ADULT; AGED; CHILD; DISEASE PROGRESSION; FEMALE; FOLLOW-UP STUDIES; HEALTH STATUS; HUMANS; KLIPPEL-TRENAUNAY-WEBER SYNDROME; MALE; MIDDLE AGED; MOTOR ACTIVITY; NETHERLANDS; PROGNOSIS; QUALITY OF LIFE; SEVERITY OF ILLNESS INDEX; YOUNG ADULT;

EID: 77649232477     PISSN: 17486815     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.bjps.2009.01.055     Document Type: Article

References (36)

1. Lorda-Sanchez I., Prieto L., Rodriguez-Pinilla E., et al. Increased parental age and number of pregnancies in Klippel-Trenaunay-Weber syndrome. Ann Hum Genet 62 (1998) 235
2. Higurashi M., Oda M., Iijima K., et al. Livebirth prevalence and follow-up of malformation syndromes in 27,472 newborns. Brain Dev 12 (1990) 770
3. Klippel M., and Trenaunay P. Memoires originaux: du naevus variqeux osteo-hypertrophique. Arch Gen Med Tome III (1900) 641
4. Oduber C.E., van der Horst C.M., and Hennekam R.C. Klippel-Trenaunay syndrome: diagnostic criteria and hypothesis on etiology. Ann Plast Surg 60 (2008) 217
5. van der Ploeg H.M., van der Ploeg M.N.S., and van der Ploeg-Stapert J.D. Psychological aspects of the Klippel-Trenaunay syndrome. J Psychosom Res 39 (1995) 183
6. van der Ploeg M.N., Hulsmans R.F., van der Ploeg H.M., et al. Klippel-Trenaunay-type congenital angiodysplasia syndrome; medical and psychological aspects. Ned Tijdschr Geneeskd 140 (1996) 2502
7. Jacob A.G., Driscoll D.J., Shaughnessy W.J., et al. Klippel Trenaunay syndrome: spectrum and management. Mayo Clin Proc 73 (1998) 28
8. Baskerville P.A., Ackroyd J.S., and Lea Thomas M. The Klippel-Trenaunay syndrome: clinical, radiological and haemodynamic features and management. Br J Surg 72 (1985) 232
9. Oduber C.E., Gerdes V.E., van der Horst C.M., et al. Vascular malformations as underlying cause of chronic thromboembolism and pulmonary hypertension. J Plast Reconstr Aesthet Surg 62 (2009) 684-689
10. Breugem C.C., Merkus M.P., Smitt H.S., et al. Quality of life in patients with vascular malformations of the lower extremity. Br J Plast Surg 57 (2004) 754
11. Finlay A.Y. Quality of life assessment in dermatology. Semin Cutan Med Surg 17 (1998) 291
12. Van der Horst C.M.A.M., de Borgie C.A.J.M., Knopper J.L., et al. Psychosocial adjustment of children and adults with port wine stains. Br J Plast Surg 50 (1997) 463
13. Shakespeare V., Shakespeare P., and Cole R.P. Measuring patient satisfaction with pulsed dye laser treatment of vascular lesions. Lasers Med Sci 13 (1998) 253
14. Pasculli G., Resta F., Guastamacchia E., et al. Health-related quality of life in a rare disease: Hereditary hemorrhagic telangiectasia (HHT) or Rendu-Osler-Weber disease. Qual Life Res 13 (2004) 1715
15. Page P.Z., Page G.P., Ecosse E., et al. Impact of neurofibromatosis 1 on quality of life: a cross-sectional study of 176 American cases. Am J Med Gen Part A 140A (2006) 1893
16. Wolkenstein P., Zeller J., Revuz J., et al. Quality-of-life impairment in neurofibromatosis type 1. Arch Dermatol 137 (2001) 1421
17. Sampogna F., Tabolli S., Söderfeldt B., et al., IDI Multipurpose Psoriasis Research on Vital Experiences (IMPROVE) investigators. Measuring quality of life of patients with different clinical types of psoriasis using the SF-36. Br J Dermatol 154 (2006) 844
18. Ware Jr. J.E., and Sherbourne C.D. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 30 (1992) 473
19. Available from:. http://www.sf-36.com
20. The Dutch Version of the Skindex-29 Manual. Een dermatologiespecifieke kwaliteit-van-leven vragenlijst (May 2005), Stichting Aquamarijn. http://www.stichtingaquamarijn.nl Version 1
21. Legierse C.M., de Korte J., and Prinsen C.A.C. Quality of Life Assessment in Dermatological Practice using the Dutch Version of the (Electronic) Skindex-29 - a Manual (June 2008), Stichting Aquamarijn. Available from: www.stichtingaquamarijn.nl Version 1
22. Chren M.M., Lasek R.J., Quinn L.M., et al. Skindex, a quality-of-life measure for patients with skin disease: reliability, validity, and responsiveness. J Invest Dermatol 107 (1996) 707
23. Abeni D., Picardi A., Pasquini P., et al. Further evidence of the validity and reliability of the Skindex-29: an Italian study on 2,242 dermatological outpatients. Dermatology 204 (2002) 43
24. Boetes C., Boll A.P., Hartman P.H., et al. Comment on: psychological aspects of the Klippel-Trenaunay syndrome. Ned Tijdschr Geneeskd 141 (1997) 650
25. Book: Mulliken JB, Young AE, editors. Vascular Birthmarks: Hemangiomas and Malformations. Philadelphia: W.B. Saunders Company.
26. Touw C.R., Hakkaart-Van Roijen L., Verboom P., et al. Quality of life and clinical outcome in psoriasis patients using intermittent cyclosporine. Br J Dermatol 144 (2001) 967
27. Fortune D.G., Main C.J., O'Sullivan T.M., et al. Assessing illness-related stress in psoriasis: the psychometric properties of the psoriasis life stress inventory. J Psychosom Res 42 (1997) 467
28. Weiss S.C., Kimball A.B., Liewehr D.J., et al. Quantifying the harmful effect of psoriasis on health-related quality of life. J Am Acad Dermatol 47 (2002) 512
29. Finlay A.Y., and Kelly S.E. Psoriasis: an index of disability. Clin Exp Dermatol 12 (1987) 8
30. Finlay A.Y., Khan G.K., Luscombe D.K., et al. Validation of sickness impact profile and psoriasis disability index in psoriasis. Br J Dermatol 123 (1990) 751
31. Salek M.S., Finlay A.Y., Luscombe D.K., et al. Cyclosporin greatly improves the quality of life of adults with severe atopic dermatitis. A randomized, double-blind, placebo-controlled trial. Br J Dermatol 129 (1993) 422
32. Fortune D.G., Main C.J., O'Sullivan T.M., et al. Quality of life in patients with psoriasis: the contribution of clinical variables and psoriasis-specific stress. Br J Dermatol 137 (1997) 755
33. McKenna K.E., and Stern R.S. The impact of psoriasis on the quality of life of patients from the 16-center PUVA follow-up cohort. J Am Acad Dermatol 36 (1997) 388
34. De Korte J., Mombers F.M., Sprangers M.A., et al. The suitability of quality-of-life questionnaires for psoriasis research: a systematic literature review. Arch Dermatol 138 (2002) 1221 [discussion 1227]
35. Sampogna F., Picardi A., Chren M.M., et al. Association between poorer quality of life and psychiatric morbidity in patients with different dermatological conditions. Psychosom Med 66 (2004) 620
36. Both H., Essink-Bot M.L., Busschbach J., et al. Critical review of generic and dermatology-specific health-related quality of life instruments. J Invest Dermatol 127 (2007) 2726