Chronological patterns and issues precipitating grieving over the course of caregiving among family caregivers of persons with dementia

Clinical Gerontologist

Volumn 32, Issue 4, 2009, Pages 358-370

  Diwan, Sadhna ^a   Hougham, Gavin W ^b   Sachs, Greg A ^c  

^a School of Social Work   (United States)

^b The John A Hartford Foundation   (United States)

^c INDIANA UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Alzheimer's disease; Bereavement; Loss and Grief; Palliative care

Indexed keywords

EID: 77649096184     PISSN: 07317115     EISSN: 15452301     Source Type: Journal    
DOI: 10.1080/07317110903110179     Document Type: Article

References (32)

1. Adams, K., & Sanders, S. (2004). Alzheimer's caregiver differences in experience of loss, grief reactions and depressive symptoms across stage of disease: A mixed- methods analysis. Dementia, 3(2), 195-210.
2. Blumer, H. (1969). Symbolic interactionism: Perspective and method. Englewood Cliffs, NJ: Prentice-Hall.
3. Boss, P. (1999). Ambiguous loss: Learning to live with unresolved grief. Cambridge, MA: Harvard University Press.
4. Center for the Advancement of Health. (2003). Report on bereavement and grief research. Retrieved September 13, 2005 from www.cfah.org/pdfs/griefreport.pdf
5. Doka, K. (2004a). Grief and dementia. In Living with grief: Alzheimer's disease. In: K. Doka (Ed.). Hospice Foundation of America: Washington, DC. (Chapter 10). Retrieved January 21, 2006 from: http://www.hospicefoundation.org/teleconference/2004/documents/doka5.pdf
6. Doka, K. (2004b). Grief, loss, and caregiving. In: K. Doka (Ed.), Living with grief: Alzheimer's disease (chapter 9). Washington, DC: Hospice Foundation of America. Retrieved January 21, 2006 from http://www.hospicefoundation.org/caregivers/documents/chapter9.pdf
7. Folkman, S. (2001). Revised coping theory and the process of bereavement. In: M. S. Stroebe, R. O. Hansson, W. Stroebe, & H. Schut (Eds.), Handbook of bereavement research: Consequences, coping, and care (pp. 563-584). Washington, DC: American Psychological Association Press.
8. Fulton, R. (2003). Anticipatory mourning: A critique of the concept. Mortality, 8(4), 342-351.
9. Grant, I., Adler, K., Patterson, T., Dimsdale, J., Ziegler, M., & Irwin, M. (2002). Health consequences of Alzheimer's caregiving transitions: Effects of place- ment & bereavement. Psychosomatic Medicine, 64, 477-486.
10. Huberman, A. M. and M. Miles. (1994). Data management and analysis methods. In: N. Denzin and Y. Lincoln (eds.) Handbook of qualitative research. (pp. 428-444). Thousand Oaks, CA: Sage.
11. Lincoln, Y. & Guba, E. (1985). Naturalistic inquiry. Beverly Hills, CA: Sage.
12. Martin, T., & Doka, K. (2000). Men don't cry...Women do: Transcending gender stereotypes of grief. Philadelphia, PA: Taylor & Francis.
13. Meuser, T.M., & Marwit, S.J. (2001). A comprehensive, stage-sensitive model of grief in dementia caregiving. The Gerontologist, 41, 658-670.
14. Miller, B., Campbell, R., Farran, C., Kaufman, J., & Davis L. (1995). Race, control, mastery, and caregiver distress. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 50(6), S374-S382.
15. Murphy, K., Hanrahan, P., Luchins, D. (1997). A survey of grief and bereavement in nursing homes: the importance of hospice grief and bereavement for the end- stage Alzheimer's disease patient and family. Journal of the American Geriat- rics Society, 45(9):1104-1107.
16. National Hospice and Palliative Care Organization. (2004). NHPCO facts and figures. Retrieved September 13, 2005 from http://www.nhpco.org/files/public/Facts%20Figures%20Feb04.pdf
17. Neimeyer, R. (1998). Lessons of loss: A guide to coping. New York: Mc-Graw-Hill.
18. Ponder R. & Pomeroy E. (1996). The grief of caregivers: How pervasive is it? Journal of Gerontological Social Work, 27, 3-21.
19. Rabins P. V., (1984). Management of dementia in the family context. Psychosomatics 25, 369-375.
20. Rando, T. (2000). Clinical dimensions of anticipatory mourning: Theory and practice in working with the dying, their loved ones and their caregivers. Champaign, IL: Research Press.
21. Rosenblatt, P. C. (2001). A social constructionist perspective on cultural differences in grief. In: M. S. Stroebe, R. O. Hansson, W. Stroebe, & H. Schut (Eds.), Hand- book of bereavement research: Consequences, coping, and care (pp. 285-300). Washington, DC: American Psychological Association Press.
22. nd ed.). Thousand Oaks, CA: Sage Publications.
23. Sanders, S. & Corley, C. (2003). Are they grieving? A qualitative analysis examining grief in caregivers of individuals with Alzheimer's disease. Social Work in Health Care, 37, 35-53.
24. Schulz, R., Belle, S., Czaja, S., McGinnis, K., Stevens, A., & Zhang, S. (2004). Long- term care placement of dementia patients and caregiver health and well-being. JAMA: Journal of the American Medical Association, 292(8), 961-967.
25. Schulz R., Mendelsohn A., Haley, W., Mahoney, D., Allen R., Zhang, S., et al. (2003). End-of-life care and the effects of bereavement on family caregivers of persons with dementia. New England Journal of Medicine. 349(20):1936-1942.
26. Shega, J.W., Levin, A., Hougham, G.W., Cox-Hayley, D., Luchins, D., Hanrahan, P., et al. (2003). Palliative Excellence in Alzheimer Care Efforts (PEACE): A program description. Journal of Palliative Medicine, 6(2), 315-321.
27. Stroebe, M.S., Hanson, R.O., Stroebe, W., & Schut, H. (2001). Introduction: Concepts and issues in contemporary research on bereavement. In: M. S. Stroebe, R. O. Hanson, W. Stroebe, & H. Schut (Eds.), Handbook of bereavement research: Consequences, coping, and care (pp. 3-22). Washington, DC: American Psychological Association.
28. Stroebe, M.S., & Schut, H. (1999). The dual process model of coping with bereavement: Rationale and description. Death Studies, 23, 197-224.
29. Twaddle, M. L. (2003). The trend to move palliative care upstream. Journal of Palliative Medicine, 6(2), 193-194.
30. Walker, R.J., & Pomeroy, E.C. (1996). Depression or grief? The experiences of caregivers of persons with dementia. Health & Social Work, 21, 247-254.
31. Wortman, C., & Silver, R. (1989). The myths of coping with loss. Journal of Consulting and Clinical Psychology, 57(3), 349-357.
32. Zhang A.Y., & Siminoff, L. (2003). The role of the family in treatment decision making by patients with cancer. Oncology Nursing Forum, 30(6):1022-1028.