Baseline quality of life before intensive care: A comparison of patient versus proxy responses

Critical Care Medicine

Volumn 38, Issue 3, 2010, Pages 855-860

  Gifford, Jeneen M ^a   Husain, Nadia ^b   Dinglas, Victor D ^c   Colantuoni, Elizabeth ^b,d   Needham, Dale M ^c,e  

^a JOHNS HOPKINS BAYVIEW MEDICAL CENTER   (United States)

^b JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^c Division of Pulmonary and Critical Care Medicine   (United States)

^d Department of Anesthesiology and Critical Care Medicine ^*  (United States)

^e JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Acute lung injury; Adult; Critical care; Health status; Proxy; Quality of life; Respiratory distress syndrome

Indexed keywords

ACUTE LUNG INJURY; ADULT; ARTICLE; CONTROLLED STUDY; FEMALE; HOSPITAL ADMISSION; HUMAN; INTENSIVE CARE; INTERMETHOD COMPARISON; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; QUALITY OF LIFE; SCORING SYSTEM; SELF REPORT; SHORT FORM 36;

EID: 77249161156     PISSN: 00903493     EISSN: 15300293     Source Type: Journal    
DOI: 10.1097/CCM.0b013e3181cd10c7     Document Type: Article

References (41)

1. Dowdy DW, Eid MP, Dennison CR, et al: Quality of life after acute respiratory distress syndrome: A meta-analysis. Intensive Care Med 2006; 32:1115-1124
2. Dowdy DW, Eid MP, Sedrakyan A, et al: Quality of life in adult survivors of critical illness: A systematic review of the literature. Intensive Care Med 2005; 31:611-620
3. Hofhuis JG, van Stel HF, Schrijvers AJ, et al: Conceptual issues specifically related to health-related quality of life in critically ill patients. Crit Care 2009; 13:118
4. Cuthbertson BH, Rattray J, Johnston M, et al: A pragmatic randomised, controlled trial of intensive care follow up programmes in improving longer-term outcomes from critical illness. The PRACTICAL study. BMC Health Serv Res 2007; 7:116
5. Boyle M, Murgo M, Adamson H, et al: The effect of chronic pain on health related quality of life amongst intensive care survivors. Aust Crit Care 2004; 17:104-113
6. Graf J, Wagner J, Graf C, et al: Five-year survival, quality of life, and individual costs of 303 consecutive medical intensive care patients-a cost-utility analysis. Crit Care Med 2005; 33:547-555
7. Chaboyer W, Elliott D: Health-related quality of life of ICU survivors: Review of the literature. Intensive Crit Care Nurs 2000; 16: 88-97
8. Hofhuis JG, Spronk PE, van Stel HF, et al: The impact of critical illness on perceived health-related quality of life during ICU treatment, hospital stay, and after hospital discharge: A long-term follow-up study. Chest 2008; 133:377-385
9. Kaarlola A, Pettila V, Kekki P: Quality of life six years after intensive care. Intensive Care Med 2003; 29:1294-1299
10. Herridge MS, Cheung AM, Tansey CM, Matte, et al: One-year outcomes in survivors of the acute respiratory distress syndrome. N Engl J Med 2003; 348:683-693
11. Cheung AM, Tansey CM, Tomlinson G, et al: Two-year outcomes, health care use, and costs of survivors of acute respiratory distress syndrome. Am J Respir Crit Care Med 2006; 174:538-544
12. Davydow DS, Desai SV, Needham DM, et al: Psychiatric morbidity in survivors of the acute respiratory distress syndrome: A systematic review. Psychosom Med 2008; 70: 512-519
13. Hofhuis JG, Spronk PE, van Stel HF, et al: Quality of life before intensive care unit admission is a predictor of survival. Crit Care 2007; 11:R78
14. Scales DC, Tansey CM, Matte A, et al: Difference in reported pre-morbid health-related quality of life between ARDS survivors and their substitute decision makers. Intensive Care Med 2006; 32:1826-1831
15. Sneeuw KC, Sprangers MA, Aaronson NK: The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease. J Clin Epidemiol 2002; 55:1130-1143
16. Capuzzo M, Grasselli C, Carrer S, et al: Quality of life before intensive care admission: Agreement between patient and relative assessment. Intensive Care Med 2000; 26: 1288-1295
17. Elliott D, Lazarus R, Leeder SR: Proxy respondents reliably assessed the quality of life of elective cardiac surgery patients. J Clin Epidemiol 2006; 59:153-159
18. Hofhuis J, Hautvast JL, Schrijvers AJ, et al: Quality of life on admission to the intensive care: Can we query the relatives? Intensive Care Med 2003; 29:974-979 (Pubitemid 36783171)
19. Badia X, Diaz-Prieto A, Rue M, et al: Measuring health and health state preferences among critically ill patients. Intensive Care Med 1996; 22:1379-1384
20. Rogers J, Ridley S, Chrispin P, et al: Reliability of the next of kins' estimates of critically ill patients' quality of life. Anaesthesia 1997; 52:1137-1143 (Pubitemid 27511250)
21. Needham DM, Dennison CR, Dowdy DW, et al: Study protocol: The Improving Care of Acute Lung Injury Patients (ICAP) study. Crit Care 2006; 10:R9
22. Bernard GR, Artigas A, Brigham KL, et al: The American-European Consensus Conference on ARDS. Definitions, mechanisms, relevant outcomes, and clinical trial coordination. Am J Respir Crit Care Med 1994; 149(3Pt1):818-824 (Pubitemid 24082248)
23. Fan E, Shahid S, Kondreddi VP, et al: Informed consent in the critically ill: A two-step approach incorporating delirium screening. Crit Care Med 2008; 36:94-99
24. McPhail S, Beller E, Haines T: Two perspectives of proxy reporting of health-related quality of life using the Euroqol-5D, an investigation of agreement. Med Care 2008; 46:1140-1148
25. Pickard AS, Knight SJ: Proxy evaluation of health-related quality of life: A conceptual framework for understanding multiple proxy perspectives. Med Care 2005; 43:493-499
26. Mahler DA, Mackowiak JI: Evaluation of the short-form 36-item questionnaire to measure health-related quality of life in patients with COPD. Chest 1995; 107:1585-1589
27. Cuthbertson BH, Scott J, Strachan M, et al: Quality of life before and after intensive care. Anaesthesia 2005; 60:332-339
28. Wehler M, Geise A, Hadzionerovic D, et al: Health-related quality of life of patients with multiple organ dysfunction: individual changes and comparison with normative population. Crit Care Med 2003; 31:1094-1101
29. Ridley SA, Chrispin PS, Scotton H, et al: Changes in quality of life after intensive care: Comparison with normal data. Anaesthesia 1997; 52:195-202
30. Wyrwich KW, Fihn SD, Tierney WM, et al: Clinically important changes in health-related quality of life for patients with chronic obstructive pulmonary disease: An expert consensus panel report. J Gen Intern Med 2003; 18:196-202
31. Wyrwich KW, Tierney WM, Babu AN, et al: A comparison of clinically important differences in health-related quality of life for patients with chronic lung disease, asthma, or heart disease. Health Serv Res 2005; 40: 577-591
32. Walters SJ, Campbell MJ, Lall R: Design and analysis of trials with quality of life as an outcome: A practical guide. J Biopharm Stat 2001; 11:155-176
33. Walters SJ: Sample size and power estimation for studies with health related quality of life outcomes: A comparison of four methods using the SF-36. Health Qual Life Outcomes 2004; 25;2:26
34. Cicchetti DV, Allison T: A new procedure for assessing reliability of scoring EEG sleep recordings. Am J EEG Technol 1971; 11: 101-109
35. Landis JR, Koch GG: The measurement of observer agreement for categorical data. Biometrics 1977; 33:159-174
36. Bland JM, Altman DG: Statistical methods for assessing agreement between two methods of clinical measurement. Lancet 1986; 1:307-310
37. Graf J, Koch M, Dujardin R, et al: Health related quality of life before, 1 month after, and 9 months after intensive care in medical cardiovascular and pulmonary patients. Crit Care Med 2003; 31:2163-2169
38. Diaz-Prieto A, Gorriz MT, Badia X, et al: Proxy-perceived prior health status and hospital outcome among the critically ill: Is there any relationship? Intensive Care Med 1998; 24:691-698
39. Hopkins RO, Weaver LK, Pope D, et al: Neu-ropsychological sequelae and impaired health status in survivors of severe acute respiratory distress syndrome. Am J Respir Crit Care Med 1999; 160:50-56
40. Hanmer J, Hays RD, Fryback DG: Mode of administration is important in US national estimates of health-related quality of life. Med Care 2007; 45:1171-1179
41. Ware JE Jr, Kosinski M, Dewey JE: How to Score Version 2 of the SF-36 Health Survey. Lincoln, RI, QualityMetric, Inc, 2000