Autonomy; Best interests; Children; Genetic testing; Guidelines
Indexed keywords
CLINICAL PRACTICE;
GENETIC SCREENING;
HEALTH CARE PERSONNEL;
HUMAN;
MEDICAL DECISION MAKING;
MEDICAL ETHICS;
PRACTICE GUIDELINE;
PRIORITY JOURNAL;
SHORT SURVEY;
AGE FACTORS;
CHILD;
CHILD DEVELOPMENT;
COGNITION;
CONFIDENTIALITY;
DATABASES, FACTUAL;
DECISION MAKING;
ETHICAL ANALYSIS;
ETHICS, MEDICAL;
FAMILY HEALTH;
GENETIC COUNSELING;
GENETIC PREDISPOSITION TO DISEASE;
GENETIC PRIVACY;
GENETIC TESTING;
GUIDELINES AS TOPIC;
HUMANS;
INFORMED CONSENT;
MANDATORY PROGRAMS;
PHYSICIAN'S ROLE;
PRACTICE GUIDELINES AS TOPIC;
RISK ASSESSMENT;
SELF CONCEPT;
SOCIETIES, MEDICAL;
Presymptomatic and predictive genetic testing in minors: A systematic review of guidelines and position papers
DOI 10.1111/j.1399-0004.2006.00692.x
P Borry L Stultiens H Nys, et al. 2006 Presymptomatic and predictive genetic testing in minors: a systematic review of guidelines and position Papers Clin Genet 70 5 374 381 10.1111/j.1399-0004.2006.00692.x 1:STN:280: DC%2BD28rpsFCgtQ%3D%3D 17026616 (Pubitemid 44515636)
J. Feinberg (eds). Princeton University Press Princeton, NJ
Feinberg J (1992) A child's right to an open future. In: Feinberg J (ed) Freedom and fulfillment, philosophical essays. Princeton University Press, Princeton, NJ, pp 76-97
J Harris K Keywood 2001 Ignorance, information and autonomy Theor Med 22 415 436 10.1023/A:1013058801622 1:STN:280:DC%2BD38%2Fot1Chtg%3D%3D (Pubitemid 34036706)
"Family matters": A conceptual framework for genetic testing in children
DOI 10.1023/B:JOGC.0000013379.90587.ef
A McConkie-Rosell GA Spiridigliozzi 2004 "Family matters": a conceptual framework for genetic testing in children J Genet Couns 13 1 9 29 10.1023/B:JOGC.0000013379.90587.ef 19739280 (Pubitemid 39024181)
An international survey of predictive genetic testing in children for adult onset conditions
DOI 10.1097/01.GIM.0000170775.39092.44
R Duncan J Savulescu L Gillam 2005 An international survey of predictive genetic testing in children for adult onset conditions Genet Med 7 6 390 396 10.1097/01.GIM.0000170775.39092.44 16024970 (Pubitemid 41139622)
European Society of Human Genetics (2008) Genetic testing in asymptomatic minors: recommendations of the European Society of Human Genetics. Available via ESHG http://www.eshg.org/documents/TestingInMinorsRecommendations.pdf. Cited 1/3/2009