Patients' perspectives on informal caregiver involvement in HIV health care appointments

AIDS Patient Care and STDs

Volumn 23, Issue 12, 2009, Pages 1043-1051

  Mosack, Katie E ^a,b   Petroll, Andrew ^b  

^a UNIVERSITY OF WISCONSIN MILWAUKEE   (United States)

^b MEDICAL COLLEGE OF WISCONSIN   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CAREGIVER; CLINICAL ARTICLE; CONTROLLED STUDY; EMOTION; FAMILY; FAMILY HEALTH; FEMALE; HEALTH CARE; HEALTH CARE DELIVERY; HEALTH CARE PERSONNEL; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTED PATIENT; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; MALE; MEDICAL INFORMATION; MEDICAL RESEARCH; QUALITATIVE ANALYSIS; SEMI STRUCTURED INTERVIEW; TREATMENT OUTCOME; TREATMENT PLANNING;

ADULT; CAREGIVERS; DELIVERY OF HEALTH CARE; FEMALE; HIV INFECTIONS; HUMANS; MALE; PATIENT CARE PLANNING;

EID: 77149157800     PISSN: 10872914     EISSN: None     Source Type: Journal    
DOI: 10.1089/apc.2009.0020     Document Type: Article

References (46)

1. Fang CT, Chang YY, Hsu HM, et al. Life expectancy of patients with newly-diagnosed HIV infection in the era of highly active antiretroviral therapy. Q J Med 2007;100:97-105.
2. King JT, Justice AC, Roberts MS, Chang CH, Fusco JS. Long term HIV=AIDS survival estimation in the highly active antiretroviral therapy era. Med Decis Making 2003;23:9-20.
3. Lohse N, Hansen A-BN, Pedersen G, et al. Survival of persons with and without HIV Infection in Denmark, 1995-2005. Ann Intern Med 2007;146:87-95.
4. Paterson DL, Swindells S, Mohr J, et al. Adherence to protease inhibitor therapy and outcomes in patients with HIV infection. Ann Intern Med 2000;133:21-30.
5. Centers for Disease Control and Prevention. HIV=AIDS Surveillance Report Rockville, MD: Centers for Disease Control and Prevention, 2005.
6. Garcia de Olalla P, Knobel H, Carmona A, Guelar A, Lopez- Colomes JL, Cayla JA. Impact of adherence and highly active antiretroviral therapy on survival in HIV-infected patients. J Acquir Immune Defic Syndr 2002;30:105-110.
7. Hogg RS, Heath K, Bangsberg D, et al. Intermittent use of triple-combination therapy is predictive of mortality at baseline and after 1 year of follow-up. AIDS 2002;16:1051-1058.
8. Maisels L, Steinberg J, Tobias C. An investigation of why eligible patients do not receive HAART. AIDS Patient Care STDs 2001;15:185-191.
9. Sollitto S, Mehlman M, Youngner S, Lederman MM. Should physicians withhold highly active antiretroviral therapies from HIV-AIDS patients who are thought to be poorly adherent to treatment? AIDS 2001;15:153-159.
10. Bangsberg DR. Less than 95% adherence to nonnucleoside reverse-transcriptase inhibitor therapy can lead to viral suppression. Clin Infect Dis 2006;43:939-941.
11. Centers for Disease Control and Prevention. HIV=AIDS Surveillance Report, 2007. Vol.19. Atlanta: U.S. Department of Health and Human Services, Center for Disease Control and Prevention, 2009.www.cdc.gov=hiv=topics=surveillance= resources=reports=2007report=pdf=2007SurveillanceReport .pdf (Last accessed September 19, 2009).
12. Mosack KE, Abbott M, Singer M, Weeks MR, Rohena L. (2005). If I didn't have HIV, I'd be dead now: Illness narratives of drug users living with HIV=AIDS. Qual Health Res 2005;15:586-605.
13. Gerbet B, Bronstone A, Clanon K, Abercrombie P, Bangsberg D. Combination of antiretroviral therapy: Health care providers confront emerging dilemmas. AIDS Care 2000;12:409-421.
14. Wong MD, Cunningham WE, Shapiro MF, et al. Disparities in HIV treatment and physician attitudes about delaying protease inhibitors for nonadherent patients. J Gen Intern Med 2004;19:366-374.
15. King WD, Wong MD, Shapiro MF, Landon BE, Cunningham WE. Does racial concordance between HIV-positive patients and their physicians affect the time to receipt of protease inhibitors? J Gen Intern Med 2004;19:1146-1153.
16. Bogart LM, Catz SL, Kelly JA, Benotsch EG. Factors influencing physicians' judgments of adherence and treatment decisions for patients with HIV disease. Med Decis Making 2001;21:28-36.
17. Burgess DJ, Fu SS, van Ryn M. Why do providers contribute to disparities and what can be done about it? J Gen Intern Med 2004;19:1154-1159.
18. Johnson RL, Roter D, Powe NR, Cooper LA. Patient race=ethnicity and quality of patient-physician communication during medical visits. Am J Public Health 2004;94: 2084-2090.
19. Stone VE. Physician contributions to disparities in HIV= AIDS care: The role of provider perceptions regarding adherence. Curr HIV=AIDS Rep 2005;2:189-193.
20. Bangsberg DR, Hecht FM, Clague H, Charlebois ED, Ciccarone D, Chesney M, Moss A. Provider assessment of adherence to HIV antiretroviral therapy. J Acquir Immune Defic Syndr 2001;26:435-442.
21. Gross R, Bilker WB, Friedman HM, Coyne JC, Strom BL. Provider inaccuracy in assessing adherence and outcomes with newly initiated antiretroviral therapy. AIDS 2002;16: 1835-1837.
22. Lerner BH, Gulikc RM, Dubler NN. Rethinking nonadherence: Historical perspectives on triple-drug therapy for HIV disease. Ann Intern Med 1998;129:573-578.
23. Prachakul W, Grant JS. Informal caregivers of persons with HIV=AIDS: A review and analysis. J Assoc Nurses AIDS Care 2003;14:55-71.
24. Johnson MO, Catz SL, Remien RH, et al. Theory-guided, empirically supported avenues for intervention of HIV medication non-adherence: Findings from the Healthy Living Project. AIDS Patient Care STDs 2003;17:645-656.
25. Knowlton AR, Arnsten JH, Gourevitch, MN, et al. Microsocial environmental influences on highly active antiretroviral therapy outcomes among active injection drug users: The role of informal caregiving and household factors. J Acquir Immune Defic Syndr 2007;46: S110-119.
26. Power R, Koopman C, Volk J, et al. Social support, substance use, and denial in relationship to antiretroviral treatment adherence among HIV-infected persons. AIDS Patient Care STDs 2003;17:245-252.
27. Remien RH, Hirky AE, Johnson MO, et al. Adherence to medication treatment: A qualitative study of facilitators and barriers among a diverse sample of HIV+ men and women in four U.S. cities. AIDS Behav.2003;7:61-72.
28. Mosack KE. The involvement of family in HIV treatment planning discussions: Barriers and facilitators. Paper presented at the NIMH Annual International Research Conference on the Role of Families in Preventing and Adapting to HIV=AIDS. San Juan, Puerto Rico: July 2006.
29. QSR International. NVivo Qualitative Data Analysis Software; Version 7. 2006.
30. Strauss A, Corbin J. Grounded Theory in Practice. Thousand Oaks, CA: Sage, 1997.
31. Sandelowski M, Barroso J. Classifying the findings in qualitative studies. Qual Health Res 2003;13:905-923.
32. Smith JA, Osborn M, Osborn M. 1999. Doing interpretative phenomenological analysis. In: Murray M, Chamberlain K, eds. Qualitative Health Psychology: Theories & Methods. London: Sage, 1999:218-240.
33. Bogdan RC, Biklen SK. Qualitative Research for Education: An Introduction to Theories and Methods, 4th ed. New York: Allyn & Bacon, 2003.
34. Joffe H, Yardley L. Content and thematic analysis. In: Marks DF, Yardley L, eds. Research Methods for Clinical and Health Psychology. London: Sage, 2004:56-68.
35. Gubrium JF, Holstein JA. Analyzing interpretative performance. In: Denzin NK, Lincoln YS, eds. Handbook of Qualitative Research, 2nd ed. Thousand Oaks, CA: Sage, 2005: 487-508.
36. Sandelowski M. The problem of rigor in qualitative research. Adv Nurs Sci 1986;8:27-37.
37. Hall J, Stevens P. Rigor in feminist research. Adv Nurs Sci 1991;13:16-29.
38. Bakken S, Holzemer WL, Brown M-A, et al. Relationships between perception of engagement with health care provider and demographic characteristics, health status, and adherence to therapeutic regimen in persons with HIV= AIDS. AIDS Patient Care STDs 2000;14:189-197.
39. Beach MC, Keruly J, Moore RD. Is the quality of the patientprovider relationship associated with better adherence and health outcomes for patients with HIV? J Gen Intern Med 2006;21:661-665.
40. Heckman BD, Catz SL, Heckman TG, Miller JG, Kalichman SC. Adherence to antiretroviral therapy in rural persons living with HIV disease in the United States. AIDS Care STDs 2004;16:219.
41. Schneider J, Kaplan SH, Greenfield S, et al. Better physicianpatient relationships are associated with higher reported adherence to antiretroviral therapy in patients with HIV infection. J Gen Intern Med 2004;19:1096-1103.
42. Zukoski AP, Thorburn S. Experiences of stigma and discrimination among adults living with HIV in a low HIVprevalence context: A qualitative analysis. AIDS Patient Care STDs 2009;23:267-276.
43. Kang SY, Goldstein MF, Deren S. Gender differences in health status and care among HIV-infected minority drug users. AIDS Care 2008;20:1146-1151.
44. Rothman G, Anderson BJ, Stein MD. Gender, drug use, and perceived social support among HIV positive patients. AIDS Behav 2008;12:695-704.
45. Malta M, Strathdee SA, Magnanini MM, Bastos FI. Adherence to antiretroviral therapy for human immunodeficiency virus=acquired immune deficiency syndrome among drug users: A systematic review. Addiction 2008;103:1242-1257.
46. Wrubel J, Stumbo S, Johnson MO. Antiretroviral medication support practices among partners of men who have sex with men: A qualitative study. AIDS Patient Care STDS 2008; 22:851-858.