Unveiling muslim voices: Aging parents with disabilities and their adult children and family caregivers in the United States

Topics in Geriatric Rehabilitation

Volumn 26, Issue 1, 2010, Pages 46-61

  Hasnain, Rooshey ^a   Rana, Shoab ^b  

^a UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

^b TLC Elder Care   (United States)

Author keywords

Aging parents; Caregiving needs; Chronic illness; Cultural brokering; Disability; Muslims

Indexed keywords

AGING; CAREGIVER; CHRONIC DISEASE; DEMOGRAPHY; DISABILITY; FAMILY COUNSELING; GERIATRIC CARE; HEALTH SERVICE; HUMAN; IMMIGRANT; LANGUAGE DISABILITY; MEDICAL LITERATURE; MIGRATION; MOSLEM; PARENT; RELIGION; REVIEW; SOCIAL PSYCHOLOGY; UNITED STATES;

EID: 76849084091     PISSN: 08827524     EISSN: None     Source Type: Journal    
DOI: 10.1097/TGR.0b013e3181cd6988     Document Type: Review

References (40)

1. Ebrahim S. Education and debate: caring for older people: ethnic elders. Br Med J. 1996;313:610-613.
2. The President's Council on Bioethics. Taking Care: Ethical Caregiving in Our Aging Society. Washington, DC: The President's Council on Bioethics; 2005. http://www.bioethics.gov/reports/taking care/taking care.pdf. Accessed September 1, 2008.
3. US Census Bureau. An older and more diverse nation by midcentury. http://www.census.gov/Press- Release/www/releases/archives/population/012496. html. Published August 14, 2008. Accessed September 1, 2008.
4. Gupta R, Pillai VK. Caregiver burden in South Asian families: a systems theory perspective. J Ethn Cult Divers Soc Work. 2000;9(1/2):41-53.
5. Gupta R. Consideration of nursing home care placement for the elderly in South Asian families. J Immigr Health. 2002;4(1):47-56.
6. Spitzer D, Neufeld A, Harrison M, Hughes K, Stewart M. Caregiving in transnational context: "My wings have been cut; where can I fly?" Gend Soc. 2003;17(2):267-286.
7. Ajrouch KJ. Arab-American immigrant elder's views about social support. Ageing Soc. 2005;25:655-673.
8. Katbamna S, Ahmad W, Bhakta P, Baker R, Parker G. Do they look after their own? Informal support for South Asian carers. Health Soc Care Community. 2004;12(5):398-406.
9. Neufeld A, Harrison MJ, Stewart MJ, Hughes KD, Spitzer D. Immigrant women: making connections to community resources for support in family caregiving. Qual Health Res. 2002;12(6):751-768.
10. Willgerodt MA, Killien MG. Family nursing research with Asian families. J Fam Nurs. 2004;10(2):149-172.
11. Gupta R. A path model of elder caregiver burden in Indian/Pakistani families in the United States. Int J Aging Hum Dev. 2000;51(4):295-313.
12. Merrell J, Kinsella F, Murphy F, Philpin S, Ali A. Support needs of carers of dependent adults from a Bangladeshi community. Issues Innov Nur Pract. 2005;51(6):549-557.
13. Clemetson L. US Muslims confront taboo on nursing homes. New York Times. June 13, 2006. http:// www.nytimes.com/2006/06/13/us/13muslim.html. Accessed July 15, 2008.
14. Al-Heeti RM. Why nursing homes will not work: caring for the needs of the aging Muslim American population. Elder Law J. 2007;15:205-231.
15. Salari S. Invisible in aging research: Arab Americans, Middle Eastern immigrants, and Muslims in the United States. Gerontologist. 2002;42(5):580-588.
16. Islam101. The Muslim population in the United States. http://www.islam101.com/history/ population2 usa.html. Accessed July 10, 2008.
17. Pew Research Center. Muslim Americans: middle class and mostly mainstream. http://pewresearch. org/assets/pdf/muslim-americans.pdf. Published 2007. Accessed July 20, 2008.
18. Hasnain R, Cohen L, Shanawani H. Disability and the Muslim Perspective: An Introduction for Rehabilitation and Health Care Providers. Buffalo, NY: Center for International Rehabilitation Research Information & Exchange; 2008. http://cirrie.buffalo. edu/monographs/muslim.pdf. Accessed June 30, 2008.
19. Waldrop J, Stern SM. Census 2000 Brief C2KBR- 17: Disability Status: 2000. Washington, DC: US Census Bureau; 2003. http://www.census.gov/prod/ 2003pubs/c2kbr-17.pdf. Accessed August 30, 2008.
20. Robert Wood Johnson Foundation. Fact sheet and statistics about chronic health illness. http://www. restministries.org/invisibleillness/statistics.htm. Published 2004. Accessed September 20, 2008.
21. Anderson G, Horvath J. The growing burden of chronic disease in America. Public Health Rep. 2004;119(3):263-270.
22. Laird DL, Amer MM, Barnett ED, Barnes LL. Muslim patients and health disparities in the UK and the US. Arch Dis Child. 2007;92:922-926.
23. Islam Online. Islam "Q & A": part two. http://www. islamonline.com/news/newsfull.php?newid=657. Accessed September 10, 2008.
24. Stanford Center for Biomedical Ethics. Biomedical ethics in film. Stanford Bioeth. 2003;1(1):1-6.
25. Ypinazar VA, Margolis SA. Delivering culturally sensitive: the perceptions of older Arabian Gulf Arabs concerning religion, health, and disease. Qual Health Res. 2006;16(6):773-787.
26. Shakur Z. The forgotten Ummah: confronting the needs of Muslim seniors. InFocus News. http://www. infocusnews.net/content/view/23321/585/. Published 2008. Accessed September 12, 2008.
27. Pillai VK. Elder care giving in South Asian families: implications for social services. J Comp Fam Stud. 2002;33(4):565-576.
28. Liu K, Manton KG, Aragon C. Changes in home care use by disabled elderly persons: 1982-1994. J Gerontol B Psychol Sci Soc Sci. 2000;55(4):S245-S253.
29. Mercier JM, Shelley MC, Paulson LS. Perception of adult daughters' of their relationships with their older mothers and fathers. Gerontol Soc Am. 1998;38(1):218.
30. Shadlen MF, Larson EB. Unique features of Alzheimer's disease in ethnic minority populations. In: Miles T, Ed. Full-Color Aging: Facts, Goals and Recommendations for America's Diverse Elders. Washington, DC: The Gerontological Society of America, 1994;33-51.
31. Gaugler JE, Edwards AB, Femia EE, et al. Predictors of institutionalization of cognitively impaired elders: family help and timing of placement. J Gerontol B Psychol Sci Soc Sci. 2000;55(4):P247-P255.
32. Shamshad M, Crown LA. A Muslim family's experience in acute care. Fam pract Recertif. 2005;27(1):27-30.
33. Adamson J. Awareness and understanding of dementia in African/Caribbean and South Asian families. Health Soc Care Community. 2001;9(6):391-396.
34. Zhan L. Improving health for older Asian Pacific Islander Americans. In: Zhan L, ed. Vulnerable Populations, Model Interventions, and Clarifying Agendas. Sudbury, MA: Jones and Bartlett Publishers; 2003:283-317.
35. Hughes JV. The color of aging: honoring our elders by respecting their traditions: together we will rise up. Culture hijacking: flattery of thievery. Chicago Tribune. July 11-17, 2008.
36. Periyakoil VS, Mendez JC, Buttar AB. Health and health care for Pakistani American elders. http// www.stanford.edu/group/ethnoger/pakistani.html. Published 2006. Accessed July 20, 2008.
37. Padela AI. Resident portfolio: can you take care of my mother? Reflections on cultural competency and clinical accommodation. Acad Emerg Med. 2007;13(3):275-277.
38. The Commonwealth Fund. Language proficiency and adverse events in US hospitals: a pilot study. http://www.commonwealthfund.org/publications/ publications show.htm?doc id=472804. Accessed September 15, 2008.
39. Jezewski MA, Sotnik P. Cultural Brokering: Providing Culturally Competent Rehabilitation Services to Foreign-Born Persons. Buffalo, NY: Center for International Rehabilitation Research Information & Exchange. http://cirrie.buffalo.edu/monographs/ cb.php. Published 2001. Accessed September 25, 2008.
40. Federal Interagency Forum on Aging Related Statistics. Older Americans: key indicators of well-being. http://agingstats.gov/agingstatsdotnet/Main Site/ Data/Data 2008.aspx. Published 2008. Accessed September 19, 2008.