Rare diseases and orphan drugs in Eastern European countries

Italian Journal of Public Health

Volumn 6, Issue 4, 2009, Pages 289-293

  Stefanov, Rumen ^a   Taruscio, Domenica ^b  

^a MEDICAL UNIVERSITY OF PLOVDIV   (Bulgaria)

^b ISS   (Italy)

Author keywords

Eastern europe; Health policy; Orphan drugs; Rare diseases

Indexed keywords

EID: 76549129260     PISSN: 17237815     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (15)

1. Council Recommendation on an action in the field of rare diseases (2009). Available from: http://eurlex.europa.eu/LexUriServ/LexUriServ.do?uri=OJ:C:2009:151:0007:0010:EN:PDF. [Accessed on October 10, 2009].
2. Stefanov R, Daina E. Rare diseases as a clinical and public health problem. Medical review 2004; 40(2):5-8 [In Bulgarian].
3. Taruscio D, Trama A, Stefanov R. Tackling rare diseases at European level: why do we need a harmonized framework? Folia Med (Plovdiv) 2007;49(1-2):59-67.
4. United Nations Statistics Division. Standard Country and Area Codes Classifications (M49). Available from: http://unstats.un.org/unsd/methods/m49/m49regin.htm#europe. [Accessed on October 10, 2009].
5. Vejvalkova S. Czech Republic. In: Proceedings of the 4th Eastern European Conference for Rare Diseases and Orphan Drugs; 2009 June 13-14; Plovdiv (Bulgaria). BAPES, 2009:50-2.
6. Sandor J. Hungary. In: Proceedings of the 4th Eastern European Conference for Rare Diseases and Orphan Drugs; 2009 June 13-14; Plovdiv (Bulgaria). BAPES, 2009:55-7.
7. Wegrzyn G. Poland. In: Proceedings of the 4th Eastern European Conference for Rare Diseases and Orphan Drugs; 2009 June 13-14; Plovdiv (Bulgaria). BAPES, 2009:64-65
8. Dan D. Romania. In: Proceedings of the 4th Eastern European Conference for Rare Diseases and Orphan Drugs; 2009 June 13-14; Plovdiv (Bulgaria). BAPES, 2009:66-7.
9. Sokolov A. Russian Federation. In: Proceedings of the 4th Eastern European Conference for Rare Diseases and Orphan Drugs; 2009 June 13-14; Plovdiv (Bulgaria). BAPES, 2009:68-70.
10. Rare Disease Day 2009. Available from: http://www.rarediseaseday.org [Accessed on October 10, 2009].
11. Loeber JG. Neonatal screening, the European perspective. Preamble of President, International Society for Neonatal Screening (ISNS). Cex-Slov Pediat. 2009;64(4):159-61.
12. Austrian Health Institute (GÖG/ÖBIG). PPRI Report - Executive Summary. Vienna, Austria: PPRI Secretariat, June 2008.
13. Stefanov R. Policy on rare diseases: the case of Bulgaria. In: Proceedings of the 4th Eastern European Conference for Rare Diseases and Orphan Drugs; 2009 June 13-14; Plovdiv (Bulgaria). BAPES, 2009:40-1.
14. Eurordis - National Rare Disease Alliances. Available from: http://www.eurordis.org/article.php3?id_article=255. [Accessed on October 10, 2009].
15. Health Ministries home pages. Available from: http://euro.who.int/. [Accessed on October 10, 2009].