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Volumn 19, Issue 1, 2010, Pages 110-117

When is my genetic information your business? Biological, emotional, and financial claims to knowledge

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; DECISION MAKING; EMOTION; ETHICS; FAMILY; GENETIC DISORDER; GENETIC PREDISPOSITION; GENETIC PRIVACY; GENETIC SCREENING; GENETICS; HUMAN; PARENT; SEXUALITY; SIBLING; SOCIOECONOMICS; SPOUSE;

EID: 76249096026     PISSN: 09631801     EISSN: 14692147     Source Type: Journal    
DOI: 10.1017/S0963180109990296     Document Type: Review
Times cited : (7)

References (13)
  • 1
    • 0013196755 scopus 로고    scopus 로고
    • Genetic secrets and the family
    • at p. 130
    • Bell D, Bennett B. Genetic secrets and the family. Medical Law Review 2001;9:130-61 at p. 130.
    • (2001) Medical Law Review , vol.9 , pp. 130-161
    • Bell, D.1    Bennett, B.2
  • 4
    • 77952575290 scopus 로고    scopus 로고
    • See note 2, Mill 1985:68
    • See note 2, Mill 1985:68.
  • 5
    • 77952571197 scopus 로고    scopus 로고
    • See note 2, Mill 1985:71
    • See note 2, Mill 1985:71.
  • 6
    • 0034035447 scopus 로고    scopus 로고
    • Who should know about our genetic makeup and why?
    • page 171
    • Takala T, Gylling H. Who should know about our genetic makeup and why? Journal of Medical Ethics 2000;26:171-4 at page 171.
    • (2000) Journal of Medical Ethics , vol.26 , pp. 171-174
    • Takala, T.1    Gylling, H.2
  • 7
    • 77952563392 scopus 로고    scopus 로고
    • This raises an interesting idea. Imagine that I have multiple personalities and that each of my personalities is aware of the others. Should Ruth, the original person, have to take the views of Ruth1, Ruth2, Ruth3, and Ruth4 into account? Furthermore, can we be sure that Ruth has the final say? If Ruth is not in favor of testing, but Ruths1-4 all want a test, how should Ruth decide? What if it is Ruth2 who sought the test in the first place? Can Ruth2 decide? These questions are outside the scope of this paper, but hopefully prove interesting food for thought¡
    • This raises an interesting idea. Imagine that I have multiple personalities and that each of my personalities is aware of the others. Should Ruth, the original person, have to take the views of Ruth1, Ruth2, Ruth3, and Ruth4 into account? Furthermore, can we be sure that Ruth has the final say? If Ruth is not in favor of testing, but Ruths1-4 all want a test, how should Ruth decide? What if it is Ruth2 who sought the test in the first place? Can Ruth2 decide? These questions are outside the scope of this paper, but hopefully prove interesting food for thought¡
  • 8
    • 77952569386 scopus 로고    scopus 로고
    • By which I mean people who are connected to our decisionmaker in different ways
    • By which I mean people who are connected to our decisionmaker in different ways.
  • 9
    • 77952580572 scopus 로고    scopus 로고
    • The question of the nature of arm is a matter for another paper, which would need to discuss whether our relatives could in fact be harmed, and whether being at risk can be considered a harm. For the time being, we can assume that being at risk can be a harm
    • The question of the nature of arm is a matter for another paper, which would need to discuss whether our relatives could in fact be harmed, and whether being at risk can be considered a harm. For the time being, we can assume that being at risk can be a harm.
  • 10
    • 77952569385 scopus 로고    scopus 로고
    • Their change in risk factor would not be as a direct result of your change in status. Your positive test diagnoses your parent, in our example, your mother. Your siblings' risks change because of the change in your mother's status, not the change in your status
    • Their change in risk factor would not be as a direct result of your change in status. Your positive test diagnoses your parent, in our example, your mother. Your siblings' risks change because of the change in your mother's status, not the change in your status.
  • 11
    • 77952577902 scopus 로고    scopus 로고
    • At the moment this particular argument can only apply to heterosexual couples. Once artificial gamete technology has been developed further and it is possible for homosexual couples to have children genetically related to both of them, the argument could be extended
    • At the moment this particular argument can only apply to heterosexual couples. Once artificial gamete technology has been developed further and it is possible for homosexual couples to have children genetically related to both of them, the argument could be extended.
  • 12
    • 77952569127 scopus 로고    scopus 로고
    • I am grateful to Anthony Mark Cutter for raising this issue. There is not enough space in this paper to give it the consideration it deserves
    • I am grateful to Anthony Mark Cutter for raising this issue. There is not enough space in this paper to give it the consideration it deserves.
  • 13
    • 77952557052 scopus 로고    scopus 로고
    • For a detailed discussion of the philosophy of the NHS see chapter 3, 2nd ed. Oxford: Oxford University Press
    • For a detailed discussion of the philosophy of the NHS see chapter 3 of Montgomery J. Health Care Law, 2nd ed. Oxford: Oxford University Press; 2000.
    • (2000) Montgomery J. Health Care Law


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.