Measuring health-related quality of life in children living in HIV/AIDS-affected families in rural areas in Yunnan, China: Preliminary reliability and validity of the Chinese version of pedsQL 4.0 generic core scales

Journal of Acquired Immune Deficiency Syndromes

Volumn 53, Issue SUPPL. 1, 2010, Pages

  Xu, Tao ^a,b   Wu, Zunyou ^a   Yan, Zhihua ^a   Rou, Keming ^a   Duan, Song ^c  

^a CHINESE CENTER FOR DISEASE CONTROL AND PREVENTION   (China)

^b CHINESE CENTER FOR DISEASE CONTROL AND PREVENTION   (China)

^c Dehong Prefecture Center for Disease Control and Prevention   (China)

Author keywords

Children; Health; Health related quality of life; HIV AIDS; PedsQL

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; ADOLESCENT; ADULT; ARTICLE; CAREGIVER; CHILD; CHINA; CONTROLLED STUDY; CORRELATION ANALYSIS; EMOTION; FAMILY; FEMALE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; RATING SCALE; RELIABILITY; RURAL AREA; SCHOOL CHILD; SELF REPORT; VALIDITY;

ADOLESCENT; ADULT; CHILD; CHILD, PRESCHOOL; CHINA; FAMILY; FAMILY RELATIONS; FEMALE; HIV INFECTIONS; HUMANS; MALE; MIDDLE AGED; PREDICTIVE VALUE OF TESTS; QUALITY OF LIFE; QUESTIONNAIRES; RURAL POPULATION;

EID: 75749150933     PISSN: 15254135     EISSN: None     Source Type: Journal    
DOI: 10.1097/QAI.0b013e3181c7dfa0     Document Type: Article

References (22)

1. UNAIDS. The 2008 Report on Global AIDS Epidemic. UNAIDS, Geneva, Switzerland; 2006
2. UNICEF/UNAIDS. A Call to Action: Children the Missing Face of AIDS. UNICEF, New York, NY; 2005.
3. Enger C, Graham N, Peng Y, et al. Survival from early, intermediate, and late stages of HIV infection. JAMA. 1996;275:1329-1334
4. State Council AIDS Working Committee Office, UN Theme Group on HIV/AIDS in China. A Joint Assessment of HIV/AIDS Prevention, Treatment and Care in China (2007). State Council AIDS Working Committee Office, Beijing, China 2007.
5. Yang H, Wu Z, Duan S, et al. Living environment and school of children with HIV infected parents in Southeast China. AIDS Care. 2006;18: 647-655.
6. Richter L. The impact of HIV/AIDS on the development of children. In: Pharoah R, ed. A Generation at Risk? HIV/AIDS, Vulnerable Children and Security in Southern Africa. Pretoria, South Africa: Institute for security studies; 2004: 210-231.
7. Garretsen HFL, Van Gilst ECH, Van Oers HAM. Collecting health information at a local level. Health Promot Interv. 1991;6:121-133.
8. Eiser C, Morse R. Quality-of-life measures in chronic diseases in childhood. Health Technol Assessment. 2001;5:1-147.
9. Varni JW, Seid M, Rode CA. The PedsQL: measurement model for the pediatric quality of life Inventory. Med Care. 1999;37:126-139.
10. Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care. 2001;39:800-812.
11. Varni JW, Burwinkle TM, Seid M, et al. The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr. 2003;3;329-341.
12. Varni JW, Burwinkle TM, Seid M. The PedsQL 4.0 as a school population health measure: feasibility, reliability, and validity. Qual Life Res. 2006; 15:203-215.
13. Mapi Research Institute. Linguistic validation of the PedsQL-a quality of life questionnaire. Mapi Research Institute, Lyon, France; 2002.
14. Cremeens J, Eiser C, Blades M. Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health Qual Life Outcome. 2006;4:58.
15. Atwine B, Cantor-Graae E, Bajunirwe F. Psychological distress among AIDS orphans in rural Uganda. Soc Sci Med. 2005;3:555-564.
16. Nyambedha EO, Wandibba S, Aagaard-Hansen J. Changing patterns of orphan care due to the HIV epidemic in western Kenya. Soc Sci Med. 2003;57:301-311.
17. Xu T, Yan Z, Wang C, et al. A qualitative study of the sociopsychological impact of parental HIV/AIDS on children in rural China [in Chinese]. Chinese J AIDS STD. 2007;13:17-19.
18. Russell KMW, Hudson M, Long A, et al. Assessment of health related quality of life in children with cancer: consistency and agreement between parent and child reports. Cancer. 2009;106:2267-2274.
19. Vance YH, Jenney EM, Morse RC, et al (2001). Issues in measuring quality of life in childhood cancer: measures, proxies, and parental mental health. J Child Psychol Psychiatr. 2001; 42:661-667.
20. Xu W, Ji C, He J, et al. (2004). Preliminary analysis of conditions of AIDS related orphans in selected areas of China [in Chinese]. Chinese J AIDS STD. 2004; 10:416-419.
21. Xu T, Yan Z, Rou K, et al. Disclosure of parental HIV/AIDS to children in rural China. Vulnerable Child Youth Stud. 2007;2:100-105.
22. Woodring LA, Cancelli AA, Ponterotto JG, et al. A qualitative investigation of adolescents' experiences with parental HIV/AIDS. Am J Orthopsychiat. 2005;75:658-675