Linking the DISABKIDS modules for health-related quality of life assessment with the International Classification of Functioning, Disability and Health (ICF)

Disability and Rehabilitation

Volumn 31, Issue 23, 2009, Pages 1943-1954

  Fava, Leonardo ^a   Muehlan, Holger ^a   Bullinger, Monika ^a  

^a UNIVERSITY MEDICAL CENTER HAMBURG EPPENDORF   (Germany)

Author keywords

adolescents; children; condition generic instrument; condition specific; disability; Health related quality of life; ICF; instrument

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; CLASSIFICATION; DISABILITY; FEMALE; HANDICAPPED CHILD; HUMAN; INTERNATIONAL CLASSIFICATION OF DISEASES; MALE; QUALITY OF LIFE; QUESTIONNAIRE;

ADOLESCENT; CHILD; DISABILITY EVALUATION; DISABLED CHILDREN; FEMALE; HUMANS; INTERNATIONAL CLASSIFICATION OF DISEASES; MALE; QUALITY OF LIFE; QUESTIONNAIRES;

EID: 75349090727     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.1080/09638280902874188     Document Type: Article

References (32)

1. Bowling A. Measuring health: a review of quality of life measurement scales. 2nd ed. Buckingham: Open University Press; 1997.
2. Bowling A. Measuring disease. A review of disease-specific quality of life measurement scales. 2nd ed. Buckingham: Open University Press; 2001.
3. Leonardi M, Bickenbach J, Bedirhan U, Kostanjsek N, Chatterji S. The definition of disability: what is in a name? Lancet 2006;368:1219-1221. (Pubitemid 44485780)
4. The DISABKIDS Group Europe. The DISABKIDS Questionnaire-Quality of life questionnaire for children with chronic conditions. Lengerich: Pabst; 2006.
5. Schmidt S, Debensason D, Muehlan H, Petersen C, Power M, Simeoni MC, Bullinger M; and the DISABKIDS group. The DISABKIDS generic quality of life instrument showed cross-cultural validity. J Clin Epidemiol 2006;59:587-598.
6. Simeoni MC, Schmidt S, Muehlan H, Debensason D, Bullinger M; the European DISABKIDS Group. Field testing of a European Quality for Life instrument for children and adolescents with chronic conditions: the 37 DISABKIDS Chronic Generic Module. Qual Life Res 2007;16:881-893. (Pubitemid 46650892)
7. Verrips GH, Vogels AGC, den Ouden AL, Paneth N, Verloove-Vanhorick SP. Measuring health-related quality of life in adolescents: agreement between raters and between methods of administration. Child Care Health Dev 2000;26:457-469.
8. Achenbach TM, McConaughty SH, Howell CT. Child/adolescent behavioral and emotional problems: implications for cross-informant correlations for situational specificity. Psychol Bull 1987;101:213-232.
9. La Greca A. Through the eyes of the child: obtaining self-reports from children and adolescents. Boston: Allyn and Bacon; 1990.
10. Theunissen NC, Vogel TG, Koopman HM, Verrips GH, Zwinderman KA, Verloove-Vanborick SP, Witt JM. The proxy problem: child report versus parent report in health related quality of life measure. Qual Life Res 1998;7:387-397. (Pubitemid 28343448)
11. Baars RM, Atherton CI, Koopman HM, Bullinger M, Power M; the European DISABKIDS Group. The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents. Health Qual Life Outcomes 2005;3:70.
12. World Health Organization (WHO). International classification of functioning, disabiity, and health (ICF). Geneva: World Health Organization (WHO); 2001.
13. Cieza A, Geyh S, Chatterji S, Konstanjsek N, Ustü n B, Stucki G. ICF linking rules: an update based on lessons learned. J Rehabil Med 2005;37:212-218. (Pubitemid 41025328)
14. Geyh G, Cieza A, Kollerits B, Grimby G, Stucki G. Content comparison of health-related quality of life measures used in stroke based on the international classification of functioning, disability and health (ICF): a systematic review. Qual Life Res 2007;16:833-851. (Pubitemid 46650885)
15. Bullinger M, Petersen C, Schmidt S; the European DIS-ABKIDS Group. European paediatric health-related quality of life assessment. Qual Life Newsletter 2002;29:4-5.
16. Bullinger M, Schmidt S, Petersen C; the European DIS-ABKIDS Group. Assessing quality of life with chronic health conditions and disabilities-a European approach. Int J Rehabil Res 2002;25:197-206.
17. Bullinger M, Power MJ, Aaronson NK, Cella DF, Anderson RT. Creating and evaluating cross-cultural instruments. In: B. Spilker (Ed.), Quality of life and pharmacoeconomics in clinical trials. 2nd ed. Hagerstown, MD: Lippincott-Raven; 1996. pp 659-668.
18. Ravens-Sieberer U, Gosch A, Abel T, Auquier P, Bellach BM, Bruil J, Dür W, Rajmil L; the European KIDSCREEN group. Quality of life in children and adolescents: a European public health perspective. Sozial und Präventiv medizin 2001;46:294-302. (Pubitemid 33072141)
19. The KIDSCREEN Group Europe. The KIDSCREEN questionnaires. Quality of life questionnaires for children and adolescents. Lengerich: Pabst; 2006.
20. Petersen C, Schmidt S, Bullinger M; The European DISABKIDS Group. Brief report: developmental and pilot testing of a coping questionnaire for children and adolescent with chronic health conditions. J Pediatr Psychol 2004;29: 635-640. (Pubitemid 39435330)
21. Petersen C, Schmidt S, Bullinger M; The European DISABKIDS Group. Coping with a chronic paediatric health condition and health-related quality of life. Eur Psychol 2006;11:50-56. (Pubitemid 43384947)
22. Muehlan H, Power M, Bullinger M, Schmidt S. Short-forms of subjective quality of life assessments from cross-cultural studies for use in surveys with different populations. Clin Psychol Psychother 2008;15:142-153. (Pubitemid 351982889)
23. Cieza A, Brockow T, Ewert T, Amman E, Kollerits B, ̈ Chatterji S, Ustun B, Stucki G. Linking health-status measurements to the international classification of functioning, disability and health. J Rehabil Med 2002;34:205-210.
24. Cieza A, Brockow T, Ewert T, Amman E, Stucki G. Linking health-status measurements to the international classification of functioning, disability and health. J Rehabil Med 2002;34:205-210.
25. Cieza A, Stucki G. Content comparison of health-related quality of life (HRQOL) instruments based on the international classification of functioning, disability and health (ICF). Qual Life Res 2005;14:1225-1237. (Pubitemid 40895746)
26. Ueda S, Okawa Y. The subjective dimension of functioning and disability: what is it and what is it for? Disabil Rehabil 2003;25:596-601. (Pubitemid 36806193)
27. Wade DT, de Jong BA. Recent advances in rehabilitation. Br Med J 2000;320:1385-1388. (Pubitemid 30261120)
28. Sigl T, Cieza A, Brockow T, Chatterji S, Kostanjsek N, Stucki G. Content comparison of low back pain specific measures based on the International Classification of Functioning, Disability and Health (ICF). Clin J Pain 2006;22: 147-153. (Pubitemid 44366964)
29. Stamm TA, Cieza A, Machold KP, Smolen JS, Stucki G. Content comparison of occupation-based instruments in adult rheumatology and musculoskeletal rehabilitation based on the international classification of functioning, disability and health. Arthritis Rheum 2004;51:917-924. (Pubitemid 39648183)
30. Stucki G, Cieza A, Ewert T, Kostanjsek N, Chatterji S, Ustün B. Application of the international classification of functioning, disability and health (ICF) in clinical practice. Disabil Rehabil 2002;24:281-282. (Pubitemid 34428803)
31. Bjorck-Akesson E, Hollenweger J, Lollar D, Martinuzzi A, Leonardi M, Simeonsson RJ. Applying the international classification of functioning, disability and health (ICF) to measure childhood disability. Disabil Rehabil 2003;25:3-17.
32. World Health Organization (WHO). International classification of functioning, disability, and health (ICF)-children and youth version ICF-CY. Geneva: World Health Organization; 2007.