Design and development of a decision aid to enhance shared decision making by patients with an asymptomatic abdominal aortic aneurysm

Patient Preference and Adherence

Volumn 2, Issue , 2008, Pages 315-322

  Ubbink, Dirk T ^a   Knops, Anouk M ^a   Molenaar, Sjaak ^a   Goossens, Astrid ^a  

^a ACADEMIC MEDICAL CENTER   (Netherlands)

Author keywords

Abdominal aortic aneurysm; Decision making; Decision support techniques; Program development; Research design

Indexed keywords

EID: 74949141515     PISSN: None     EISSN: 1177889X     Source Type: Journal    
DOI: 10.2147/PPA.S4302     Document Type: Article

References (24)

1. Baas A. F, Janssen KJ, Prinssen M, et al. 2008. The Glasgow Aneurysm Score as a tool to predict 30-day and 2-year mortality in the patients from the Dutch Randomized Endovascular Aneurysm Management trial. J Vasc Surg, 47:277-81.
2. Biancari F., Hobo R, Juvonen T. 2006. Glasgow Aneurysm Score predicts survival after endovascular stenting of abdominal aortic aneurysm in patients from the EUROSTAR registry. Br J Surg, 93:191-4.
3. Biancari F., Leo E, Ylönen K, et al. 2993. Value of the Glasgow Aneurysm Score in predicting the immediate and long-term outcome after elective open repair of infrarenal abdominal aortic aneurysm. Br J Surg, 90:838-44.
4. Blankensteijn J. D, de Jong SE, Prinssen M, et al. 2005. Two-year outcomes after conventional or endovascular repair of abdominal aortic aneurysms. N Engl J Med, 352:2398-405.
5. Charles C., Gafni A, Whelan T. 1999. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med, 49:651-61.
6. Chiew K. S, Shepherd H, Vardy J, et al. 2007. Development and evaluation of a decision aid for patients considering first-line chemotherapy for metastatic breast cancer. Health Expect, 11:35-45.
7. Drury D., Michaels L, Jones L, et al. 2005. Systematic review of recent evidence for the safety and efficacy of elective endovascular repair in the management of infrarenal abdominal aortic aneurysm. Br J Surg, 92:937-46.
8. Elwyn G., O'Connor A, Stacey D, et al. 2006. International Patient Decision Aids Standards (IPDAS) Collaboration. Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ, 333:417.
9. Greenhalgh R. M, Brown LC, Kwong GP, et al. 2004. EVAR trial participants. Comparison of endovascular aneurysm repair with open repair in patients with abdominal aortic aneurysm (EVAR trial 1), 30-day operative mortality results: randomised controlled trial. Lancet, 364:843-8.
10. Hirsch A. T, Haskal ZJ, Hertzer NR, et al. 2006. ACC/AHA 2005 Practice Guidelines for the management of patients with peripheral arterial disease (lower extremity, renal, mesenteric, and abdominal aortic). Circulation, 113:e463-654. Hirzalla O., Emous M, Ubbink DT, et al. External validation of the Glasgow Aneurysm Score to predict outcome in elective open abdominal aortic aneurysm repair. J Vasc Surg, 44:712-7.
11. Holmes-Rovner M, Nelson WL, Pignone M, et al. 2007. Are patient decision aids the best way to improve clinical decision making? Report of the IPDAS Symposium. Med Decis Making, 27:599-608.
12. Holmes-Rovner M, Stableford S, Fagerlin A, et al. 2005. Evidence-based patient choice: a prostate cancer decision aid in plain language. BMC Med Inform Decis Making, 5:16.
13. Lin P. H, Lumsden AB. 2003. Images in clinical medicine. Abdominal aortic aneurysm as an incidental finding. N Engl J Med, 348:1445-52.
14. Lovegrove R. E, Javid M, Magee TR, et al. 2008. A meta-analysis of 21,178 patients undergoing open or endovascular repair of abdominal aortic aneurysm. Br J Surg, 95:677-84.
15. Molenaar S., Sprangers MA, Rutgers EJ, et al. 2001. Decision support for patients with early-stage breast cancer: effects of an interactive breast cancer CDROM on treatment decision, satisfaction, and quality of life. J Clin Oncol, 19:1676-87.
16. Molewijk A.C. Risky Business: individualized evidence-based decision support and the ideal of patient autonomy. Thesis, University of Leiden. 2006
17. O'Connor AM, Bennett C, Stacey D, et al. 2007. Do patient decision aids meet effectiveness criteria of the international patient decision aid standards collaboration? A systematic review and meta-analysis. Med Decis Making, 27:554-74.
18. O'Connor AM, Stacey D, Entwistle V, et al. 2003. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev, 3:CD001431.
19. Ruland M. Improving patient safety through informatics tools for shared decision making and risk communication. Int J Med Inform, 73(7-8):551-7.
20. Stiggelbout A. M, Kiebert GM. 1997. A role for the sick role. Patient preferences regarding information and participation in clinical decision making. Can Med Assoc J, 157:383-9.
21. Timmermans D., Molewijk B, Stiggelbout A, et al. 2004. Different formats for communicating surgical risks to patients and the effect on choice of treatment. Patient Educ Couns, 54:255-63.
22. [UKSAT] United Kingdom Small Aneurysm Trial Participants. 1998. Mortality results for randomised controlled trial of early elective surgery or ultrasonographic surveillance for small abdominal aortic aneurysms. Lancet, 352:1649-55.
23. [UKSAT] United Kingdom Small Aneurysm Trial Participants. 2002. Longterm outcomes of immediate repair compared with surveillance of small abdominal aortic aneurysms. N Engl J Med, 346:1445-52.
24. Whelan T., Levine M, Willan A, et al. 2004. Effect of a decision aid on knowledge and treatment decision making for breast cancer surgery. JAMA, 292:435-41.