Fitting into the prevailing teenage culture: A grounded theory on female adolescents with chronic arthritis

International Journal of Qualitative Studies on Health and Well-being

Volumn 4, Issue 2, 2009, Pages 106-114

  Sllfors, Christina ^a   Hallberg, Lillemor R M ^a  

^a HALMSTAD UNIVERSITY   (Sweden)

Author keywords

Adolescents; Grounded theory; Juvenile arthritis; Pain; Teenage culture

Indexed keywords

EID: 74049150275     PISSN: 17482623     EISSN: 17482631     Source Type: Journal    
DOI: 10.1080/17482620802431862     Document Type: Article

References (42)

1. Accock, A. C., & Hulbert, J. S. (1990). Social network analysis: A structural perspective for family studies. Journal of Social and Personal Relationships, 7, 245-264.
2. Backett-Milburn, K. (2000). Parents, children and the construction of healthy body in middle-class families. In A. Prout (Ed.), The body, childhood and society (pp. 79-100). Basingstoke, UK: Macmillan.
3. Baker, C., Wuerst, J., & Stern, P. (1992). Method slurring: the grounded theory/phenomenology example. Journal of Advanced Nursing, 17, 1355-1360.
4. Benestad, B., Vinje, O., Veieröd, M. B., & Vandvik, I. H. (1996). Quantitative and qualitative assessments of pain in children with juvenile chronic arthritis based on the Norwegian version of the paediatric pain questionnaire. Scandinavian Journal of Rheumatology, 25, 293-299.
5. Bengs, C. (2000). Looking good: a study of gendered body ideals among young people. Doctoral dissertation. Department of Sociology, Umeå University, Umeå, Sweden.
6. Berntsson, L. (2000). Health and well-being of children in the five Nordic countries in 1984 and 1996. Doctoral dissertation. The Nordic School of Public Health, Göteborg, Sweden.
7. Brun Sundblad, G. (2006). Perceived health in Swedish school students: a longitudinal prevalence study. Doctoral dissertation. Karolinska institute, Stockholm, Sweden.
8. Carter, B. (1998). Children and their experience of pain. In B. Carter (Ed.), Perspectives on pain: Mapping the territory (pp. 206-230). London: Arnold.
9. Cassidy, J. T., & Petty, R. E. (2002). Textbook of pediatric rheumatology. In: Juvenile Rheumatoid Arthritis (4th ed.) (pp. 214-361). New York: Churchill Livingstone Inc.
10. Christensen, P. H. (2000). Childhood and the cultural constitution of vulnerable bodies. In A. Prout (Ed.), The body, childhood and society (pp. 38-59). Basingstoke, UK: Macmillan.
11. Erikson, E. H. (1963). Childhood and society (2nd ed.). New York: Norton.
12. Glaser, B.G. (1978). Theoretical sensitivity. Advances in the methodology of grounded theory. Mill Valley, Ca: Sociology Press.
13. Glaser, B. G. (2001). The grounded theory perspective: Conceptualization contrasted with description. Mill Vally, Ca: Sociology Press. Retrieved May 6, 2008, from http:// www.groundedtheory.com/soc14html
14. Glaser, B.G., & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. New York: Aldine Publishing.
15. Glaser, B. G. (1992). Basics of grounded theory analysis. Emergence vs. forcing. Mill Valley: Sociology Press.
16. Goffman, E. (1963/1972). Stigma. Den avvikandes roll och identitet (Stigma: notes on the management of spoiled identity). Raben & Sjögren, Stockholm, Orginal Prentince Hall, 1963.
17. Guell, C. (2007). Painful childhood: Children living with juvenile arthritis. Qualitative Health Research, 17(7), 884-892.
18. Hall, W. A., & Callery, P. (2001). Enhancing the rigor of grounded theory: incorporating reflexivity and relationality. Qualitative Health Research, 11(2), 257-272.
19. Hallberg, L. R.-M. (2006). The ''core category'' of grounded theory: making constant comparisons. International Journal of Qualitative Studies on Health and Well-being, 1(3), 141-148.
20. Hashkes, P. J., & Laxer, R. M. (2005). Medical treatment of juvenile idiopathic arthritis. JAMA, 294, 1671-1684.
21. Henderson, C. J., Lowell, D. J., Specker, B. L., & Campaigne, B. N. (1995). Physical activity in children with juvenile rheumatoid arthritis: Quantification and evaluation. Arthritis Care Research, 8, 114-119.
22. HSFR (1990). Etikregler fö r humanistisk-samhällsvetenskaplig forskning, reviderad version 1999 (Ethical guidelines for research in the humanities and the social sciences, revised version 1999). Retrieved April 28, 2008, from www.hsfr.se/ humsam/index
23. James, A. (2000). Embodied being: Understanding the self and the body in childhood. In A Prout (Ed.), The body, childhood and society (pp. 19-37). Basingstoke, UK: Macmillan.
24. Julien, D., & Markman, H. J. (1991). Social support and social networks as determinants of individual and marital outcomes. Journal of Social and Personal Relationships, 8, 549- 568.
25. Jylli, L. (2004). Acute pain in pediatric patients. Aspects of pain management and pain assessment. Doctoral dissertation. Karolinska Institute, Stockholm, Sweden.
26. Klepper, S. E., Barbee, J., Effgren, S. K., & Singsen, B. H. (1992). Physical fitness levels in children with polyarticular juvenile rheumatoid arthritis. Arthritis Care Research, 5, 93- 100.
27. McGrath, P. J., & Finley, G. A. (1999). Chronic and recurrent pain in children and adolescents. In P. J. McGrath & G. A. Finley (Eds.), Chronic and recurrent pain in children and adolescents: Progress in pain research and management (pp. 1- 4). Seattle: IASP Press.
28. Naess, S. (1987). Quality of life research, concepts, methods and applications. Oslo: Institute of Applied Social Research.
29. Rejeski, W. J., Brawley, L. R., & Schumaker, S. A. (1996). Physical activity and health*related quality of life. Exercise Sport Science Review, 24, 71-108.
30. Sällfors, C., Hallberg, L. R.-M., & Fasth, A. (2001). Coping with chronic pain. In-depth interviews with children suffering from juvenile chronic arthritis. Scandinavian Journal of Disability Research, 3, 3-20.
31. Sällfors, C., Hallberg, L .R.-M., & Fasth, A. (2002). Oscillating between hope and despair : a qualitative study. Child Care Health Dev, 28(6), 495-505.
32. Sällfors, C., Hallberg, L. R.-M., & Fasth, A. (2003). Gender and age differences in pain, coping and health status among children with chronic arthritis. Clinical Experimental Rheumatolology, 21, 785-793.
33. Sällfors, C., Hallberg, L. R.-M., & Fasth, A. (2004).Well-being in children with juvenile chronic arthritis. Clinical Experimental Rheumatology, 22,125-130.
34. Schanberg, L. E., Lefebvre J. C., Keefe, F. J., Kredisch, D. W., & Gil, K. M. (1997). Pain coping and the pain experience in children with juvenile chronic arthritis. Pain, 73, 181-189.
35. Schanberg, L. E., Maurin E., Anthony, K. K., & Gil, K. M. (2001). Girls with polyarticular arthritis report more disease symptom than boys. Arthritis Rheumatologica, 44(Suppl. 9), 691.
36. Stern, P. N. (1980). Grounded theory methodology: its uses and processes. Image, 17, 20-23.
37. Stevens, S. E., Steele C. A., Jutai, J. W., Kalnins, I. V., Botolussi, J. A., & Biggar, W. D. (1996). Adolescents with physical disabilities: Some psychosocial aspects of health. Journal of Adolescents Heatlh, 19, 157-64.
38. Taub, D. E., McLorg, P. A., & Fanflik, P. L.( 2004). Stigma management strategies among women with physical disabilities: contrasting approaches of downplaying or claiming a disability status. I Deviant Behaviour, 25(2), 169-190.
39. Ungerer, J. A., Chaitow, J., & Champion, G. D. (1988). Psychosocial functioning in children and young adults with juvenile arthritis. Pediatrics, 81, 185-202.
40. Vandvik, I. H., & Eckblad, G. (1990). Relationship between pain, disease severity and psychosocial function in patients with juvenile rheumatoid arthritis. Scandinavian Rheumatology, 19, 295-302.
41. Wendell, S. (1997). ''Toward a feminist Theory of Disability''. In L. J. Davis (Ed.), The Disability Studies Reader (pp. 260-274). USA: Routledge.
42. Wolman, C., Resnick, M., Harris, L. & Blum, R. (1994). Emotional well-being among adolescents with and without chronic conditions. Journal of Adolescents Health, 15, 199-204.