Late effects of childhood cancer, participation, and quality of life of adolescents

OTJR Occupation, Participation and Health

Volumn 29, Issue 3, 2009, Pages 116-124

  Berg, Christine ^a   Neufeld, Peggy ^a   Harvey, Jeanne ^a   Downes, Amy ^b   Hayashi, Robert J ^a  

^a WASHINGTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b ST LOUIS CHILDREN S HOSPITAL   (United States)

Author keywords

Adolescents; Cancer; Participation

Indexed keywords

ADOLESCENT; ADOLESCENT HEALTH; ADULT; AMNESIA; ARTICLE; ATTENTION DEFICIT DISORDER; CANCER SURVIVOR; CHILD; CHILDHOOD CANCER; CLINICAL ARTICLE; CORRELATION ANALYSIS; DEPRESSION; FATIGUE; HUMAN; LEG PAIN; LEISURE; OCCUPATIONAL THERAPY; PARESTHESIA; PATIENT PARTICIPATION; QUALITY OF LIFE; RATING SCALE; SCHOOL CHILD; SCORING SYSTEM; SEMI STRUCTURED INTERVIEW; SOCIAL BEHAVIOR;

EID: 74049124556     PISSN: 15394492     EISSN: None     Source Type: Journal    
DOI: 10.3928/15394492-20090611-04     Document Type: Article

References (40)

1. Baltes, P. B. (1997). On the incomplete architecture of human ontogeny: Selection, optimization and compensation as foundation of developmental theory. American Psychologist, 52, 366-380.
2. Barlow, J., Wright, C, Sheasby J., Turner, A., & Hainsworth, J. (2002). Self-management approaches for people with chronic conditions: A review. Patient Education and Counseling, 48, 177-187.
3. Baum, C, & Edwards, D. (2001). Activity Card Sort Test manual. St. Louis, MO: Washington University School of Medicine, Program in Occupational Therapy.
4. Berg, C., & LaVesser, P. (2006). The Preschool Activity Card Sort. The Occupational Therapy Journal of Research, 26, 143-151.
5. Berg, C, & Neufeld, N. (2004). The Adolescent Activity Card Sort. Unpublished manuscript.
6. Blessed, G., Tomlinson, B. E., & Roth, M. (1968). The association between quantitative measures of dementia and of senile change in the cerebral grey matter of elderly participants. British Journal of Psychiatry, 114, 797-811.
7. Blyth, F. M., March, L. M., Nicholas, M. K., & Cousins, M. J. (2005). Self-management of chronic pain: A population-based study. Pain, 113, 285-292.
8. Bowman, K. K., & Bodegard, G. (2004). Life after cancer in childhood: Social adjustment and educational and vocational status of young-adult survivors. Journal of Pediatric Hematology and Oncology, 26, 354-362.
9. Fisch, M. (2004). Treatment of depression in cancer. Journal of the National Cancer Institute Monographs, 32, 105-111.
10. Franklin, D. J. (2007). Cancer rehabilitation: Challenges, approaches and new directions. Physical Medicine and Rehabilitation Clinics of North America, 18, 899-924.
11. Gilman, R. (2001). The relationship between life satisfaction, social interest, and frequency of extracurricular activities among adolescent students. Journal of Youth and Adolescence, 30, 749-767.
12. Heath, J. A. (2005). Monitoring after childhood cancer: An update for GP's. Australian Family Physician, 34, 761-767.
13. Hewitt, M., Weiner, S. L., & Simone, J. (Eds.), National Research Council: Childhood Cancer Survivorship: Improving Care and Quality of Life, Institute of Medicine of the National Academies. (August 26, 2003). Retrieved November 4, 2008, from http:// www.iom.edu.
14. Hudson, M. M., Mertens, A. C, Yasui, Y., Hobbie, W, Chen, H., Gurney J., et al. (2003). Health status of adult long-term survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. Journal of the American Medical Association, 290, 1583-1592.
15. Katzman, R., Brown, T, Field, P, Peck, A., Schechter, R., & Schimmel, H. (1983). Validation of a short orientation-memory-concentration test of cognitive impairment. American Journal of Psychiatry, 140, 734-739.
16. Kielhofner, G. (1995). A model of human occupation: Theory and application. Baltimore: William & Wilkins.
17. La Greca, A. M., Bearman, K. J., & Moore, A. (2002). Peer relations of youth with pediatric conditions and health risks: Promoting social support and healthy lifestyles. Developmental and Behavioral Pediatrics, 23, 271-280.
18. La Greca, A. M., & Harrison, H. M. (2005). Adolescent peer relations, friendships, and romantic relationships: Do they predict social anxiety and depression? Journal of Clinical Child and Adolescent Psychology, 34, 49-61.
19. Langeveld, N. E., Stam, H., Grootenhuis, M. A., & Last, B. F. (2002). Quality of life in young adult survivors of childhood cancer. Support Care Cancer, 10, 579-600.
20. Law, M. (2002). Participation in the occupations of everyday life. American Journal of Occupational Therapy, 56, 640-649.
21. Law, M., Baptiste, S., Carswell, A., McColl, M. A., Polatajko, H., & Pollock, N. (1998). Canadian Occupational Performance Measure (3rd ed.). Ottawa, Canada: CAOT Publications ACE.
22. Law, M., Steinwender, S., & Leclair, L. (1998). Occupation, health and well-being. Canadian Journal of Occupational Therapy, 65, 81-91.
23. Llorens, L. A. (1991). Performance tasks and roles throughout the life span. In C. Christiansen & C. M. Baum (Eds.), Occupational therapy: Overcoming human performance deficits (pp. 44-66). Thorofare, NJ: SLACK Incorporated.
24. Lorig, K. R., & Holman, H. R. (2003). Self management education: History, definition, outcomes, and mechanisms. Annals of Behavioral Medicine, 26, 1-7.
25. Matheson, L. N., & Bohr, R C. (1997). Occupational competence across the life span. In C. H. Christiansen & C. M. Baum (Eds.), Occupational therapy: Enabling function and well-being (pp. 428-457). Thorofare, NJ: SLACK Incorporated.
26. McGregor, L. M., Metzger, M. L., Sanders, R., & Santana, V. M. (2007). Pediatric cancers in the new millennium: Dramatic progress, new challenges. Oncology, 21, 809-819.
27. Meijer, S. A., Sinnema, G., Bijstra, J. O., Mellenbergh, G., & Wolters, W H. G. (2000). Social functioning in children with a chronic illness. Journal of Child Psychology and Psychiatry, 41, 309-317.
28. Ness, K. K., Mertens, A. C, Hudson, M. M., Wall, M. M., Leisenring, W M., Oeffinger, K. C, et al. (2005). Limitations on physical performance and daily activities among long-term survivors of childhood cancer. Annals of Internal Medicine, 143, 639-647.
29. Neufeld, P, & Kniepmann, K. (2003). Wellness and self-manage ment programs for persons with chronic disabling conditions. Occupational Therapy Practice, 8(13), 17-21.
30. Oeffinger, K. C, Mertens, A. C, Sklar, C. Á., Kawashima, T., Hudson, M. M., Meadows, A. T., et al. (2006). Chronic health conditions in adult survivors of childhood cancer. New England Journal of Medicine, 355, 1572-1582.
31. Passmore, A. (2003). The occupation of leisure: Three typologies and their influence on mental health in adolescence. The Occupational Therapy Journal of Research, 23, 76-83.
32. Ream, E., Gibson, F., Edwards, J., Seption, B., Mulhall, A., & Richardson, A. (2006). Experience of fatigue in adolescents living with cancer. Cancer Nursing, 29, 317-325.
33. Rebeiro, K. L., & Cook, J. V. (1999). Opportunity, not prescription: An exploratory study of the experience of occupational engagement. Canadian Journal of Occupational Therapy, 66, 176-187.
34. Schultz, K. A. P, Ness, K. K., Whitton, J., Recklitis, C, Zebrack, B., Robison, L. L., Zeltzer, L., et al. (2007). Behavioral and social outcomes in adolescent survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. Journal of Clinical Oncology, 25, 3649-3656.
35. Starrt, H., Grootenhuis, M. Á., & Last, B. F. (2005). The course of life of survivors of childhood cancer. Psycho-Oncology, 14, 227-238.
36. Taras, H., & Potts-Datema, W (2005). Chronic health conditions and student performance at school. Journal of School Health, 75, 255-266.
37. Varni, J. W, Katz, E. R., Seid, M., Quiggins, D. J. L., & Friedman-Bender, A. (1998). The Pediatric Cancer Quality of Life Inventory-32 (PCQL-32). Cancer, 82, 1184-1196.
38. Varni, J. W., Seid, M., & Rode, C. A. (1999). The PedsQL Measurement model for the Pediatric Quality of Life Inventory. Medical Care, 37, 126-139.
39. World Health Organization. (2001). ICF: International classification of functioning, disability and health. Geneva, Switzerland: Author.
40. Zebrack, B. J., & Chesler, M. A. (2002). Quality of life in childhood cancer survivors. Psycho-Oncology, 11, 132-141.