Patterns of informal care among Puerto Rican, African American, and white stroke survivors

Ethnicity and Health

Volumn 14, Issue 6, 2009, Pages 591-606

  Hinojosa, Melanie Sberna ^a   Zsembik, Barbara ^b   Rittman, Maude ^b,c  

^a MEDICAL COLLEGE OF WISCONSIN   (United States)

^b UNIVERSITY OF FLORIDA   (United States)

^c Rehabilitation Outcomes Research Center   (United States)

Author keywords

Caregiving; Race ethnicity; Stroke

Indexed keywords

AFRICAN AMERICAN; BASELINE CONDITIONS; HEALTH CARE; MORBIDITY; MORTALITY; STROKE; SURVIVAL;

ADULT; AFRICAN AMERICAN; ARTICLE; CONTROLLED STUDY; CULTURAL ANTHROPOLOGY; DATA ANALYSIS; DYNAMICS; EUROPEAN AMERICAN; FAMILY; FEMALE; HEALTH PRACTITIONER; HEALTH SERVICE; HUMAN; INFORMATION PROCESSING; MAJOR CLINICAL STUDY; MALE; MORBIDITY; MORTALITY; PATIENT CARE; PUERTO RICO; RACISM; STROKE; SURVIVOR; UNITED STATES;

AFRICAN AMERICANS; AGED; CAREGIVERS; EUROPEAN CONTINENTAL ANCESTRY GROUP; FEMALE; HISPANIC AMERICANS; HUMANS; MALE; MIDDLE AGED; QUESTIONNAIRES; STROKE; SURVIVORS;

PUERTO RICO;

EID: 72449210249     PISSN: 13557858     EISSN: 14653419     Source Type: Journal    
DOI: 10.1080/13557850903165403     Document Type: Article

References (71)

1. AHA, 2005. Heart disease and stroke statistics - 2005 update. Dallas, TX: American Heart Association.
2. AHCPR, 1995. Clinical practice guideline: post-stroke rehabilitation. Washington, DC: US Department of Health and Human Services.
3. Anderson, C., Linto, J., and Stewart-Wynne, E.G., 1995. A population-based assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke, 26, 843-849.
4. Aranda, E.M., 2003. Global care work and gendered constraints: the case of Puerto Rican transmigrants. Gender & Society, 17 (4), 609-626.
5. Ayala, C., et al., 2001. Racial/ethnic disparities in mortality by stroke subtype in the United States, 1995-1998. American Journal of Epidemiology, 154 (11), 1057-1063.
6. Beyene, Y., Becker, G., and Mayen, N., 2002. Perception of aging and sense of well-being among Latino elderly. Journal of Cross-Cultural Gerontology, 17, 155-172.
7. Bian, J., et al., 2003. Racial differences in survival post cerebral infarction among the elderly. Neurology, 60 (2), 285-290.
8. Borrayo, E.A., et al., 2007. An inquiry into Latino caregivers' experience caring for older adults with Alzheimer's disease and related dementias. Journal of Applied Gerontology, 26 (5), 486-505.
9. Bradby, H., 2003. Describing ethnicity in health research. Ethnicity and Health, 8 (1), 5-13.
10. Bruno, A., 1998. Are there differences in vascular disease between ethnic and racial groups? Stroke, 29, 2-3.
11. Bruno, A., et al., 1996. Incidence of spontaneous intracerebral hemorrhage among Hispanics and non-Hispanic whites in New Mexico. Neurology, 47, 405-408.
12. Casper, M.L., et al., 1997. Social class and race disparities in premature stroke mortality among men in North Carolina. Annals of Epidemiology, 7 (2), 146-153.
13. Chiou-Tan, F.Y., et al., 2006. Racial/ethnic differences in FIM scores and length of stay for underinsured patients undergoing stroke inpatient rehabilitation. American Journal of Physical Medicine and Rehabilitation, 85 (5), 415-423.
14. Clark, M. and Huttlinger, K., 1998. Elder care among Mexican American families. Clinical Nursing Research, 7, 64-81.
15. Cortes, D.E., 1995. Variations in familism in two generations of Puerto Ricans. Hispanic Journal of Behavioral Sciences, 17, 249-255.
16. Cox, C., 1993. Service needs and interests: a comparison of African American and white caregivers seeking Alzheimer's assistance. American Journal of Alzheimer's Care and Related Disorders & Research, 8 (3), 33-40.
17. Cox, C. and Monk, A., 1993. Hispanic culture and family care of Alzheimer's patients. Health and Social Work, 18, 92-100.
18. Delgado, M. and Tennstedt, S.L., 1997a. Making the case for culturally appropriate community services: Puerto Rican elders and their caregivers. Health and Social Work, 22, 246-255.
19. Delgado, M. and Tennstedt, S.L., 1997b. Puerto Rican sons as primary caregivers of elderly parents. Social Work, 42, 125-134.
20. Dilworth-Anderson, P., Williams, I.C., and Gibson, B.E., 2002. Issues of race, ethnicity, and culture in caregiving research: a 20-year review (1980-2000). The Gerontologist, 42 (2), 237-272.
21. Dilworth-Anderson, P., Williams, S., and Cooper, T., 1999. Family caregiving to elderly African Americans: caregiver types and structures. Journals of Gerontology: Social Sciences, 54B, s237-s241.
22. Eschbach, K., et al., 2004. Neighborhood context and mortality among older Mexican Americans: is there a barrio advantage? American Journal of Public Health, 94 (10), 1807-1812.
23. Folstein, M.F., Folstein, S.E., and McHugh, P.R., 1975. Mini-mental state. A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189-198.
24. Frey, J.L., Jahnke, H.K., and Bulfinch, E.W., 1998. Differences in stroke between white, Hispanic, and Native American patients: the barrow neurological institute stroke database. Stroke, 29, 29-33.
25. Gillium, R.F., 1995. Epidemiology of stroke in Hispanic Americans. Stroke, 26, 1707-1712.
26. Han, B. and Haley, W.E., 1999. Family caregiving for patients with stroke. Review and analysis. Stroke, 30 (7), 1478-1485.
27. Hartmann, A., et al., 2001. Mortality and causes of death after first ischemic stroke: the Northern Manhattan stroke study. Neurology, 57 (11), 2000-2005.
28. Hinojosa, M.S., et al., 2009. Racial/Ethnic variation in recovery from stroke: the role of caregivers. Journal of Rehabilitation Research and Development, 42 (2), 233-242.
29. Horner, R.D., et al., 1991. Racial variations in ischemic stroke-related physical and functional impairments. Stroke, 22 (12), 1497-1501.
30. Horner, R.D., et al., 2003. Effects of race and poverty on the process and outcome of inpatient rehabilitation services among stroke patients. Stroke, 34, 1027-1031.
31. Jette, A.M., Tennstedt, S.L., and Branch, L.G., 1992. Stability of informal long-term care. Journal of Aging and Health, 4, 193-211.
32. Kao, H.S., McHugh, M.L., and Travis, S.S., 2007. Psychometric tests of expectations of filial piety scale in a Mexican-American population. Journal of Clinical Nursing, 16, 1460-1467.
33. Kissela, B., et al., 2004. Stroke in biracial populations: the excess burden of stroke among Blacks. Stroke, 35, 426-431.
34. Lawton, M.P., 1992. The dynamics of caregiving for a demented elder among black and white families. Journals of Gerontology, Social Sciences, 47, s156-s164.
35. Lisabeth, L.D., 2006. Stroke burden in Mexican Americans: the impact of mortality following stroke. Annals of Epidemiology, 16 (1), 33-40.
36. Lugo Steidel, A.G. and Contreras, J.M., 2003. A new familism scale for use with Latino populations. Hispanic Journal of Behavioral Sciences, 25 (3), 312-330.
37. Mar?´n, G. and Mar?´n, B.V., 1991. Research with Hispanic populations. Newbury Park, CA: Sage.
38. McGruder Henraya, F., et al., 2004. Racial and ethnic disparities in cardiovascular risk factors among stroke survivors: United States 1999 to 2001. Stroke, 35, 1557-1561.
39. Montoro Rodriguez, J. and Kosloski, K., 1998. The impact of acculturation on attitudinal familism in a community of Puerto Rican Americans. Hispanic Journal of Behavioral Sciences, 20, 375-390.
40. Munterner, P., et al., 2002. Trends in stroke prevalence between 1973 and 1991 in the US population 25 to 74 years of age. Stroke, 33, 1209-1213.
41. National Heart, Lung, and Blood Institute, 2004. Mortality and morbidity: 2004. Chartbook on cardiovascular, lung and blood diseases. Washington, DC: NIH. Available from: http:// www.nhlbi.nih.gov/resources/docs/04-chtbk.pdf [Accessed June 2007].
42. Neary, S.R. and Mahoney, D.F., 2005. Dementia caregiving: the experiences of Hispanic/ Latino caregivers. Journal of Transcultural Nursing, 26 (2), 163-170.
43. Ottenbacher, K.J., et al., 2001. Characteristics of persons rehospitalized after stroke rehabilitation. Archives of Physical Medicine and Rehabilitation, 82 (10), 1367-1374.
44. Palloni, A., Pinto-Aguirre, G., and Pelaez, M., 2002. Demographic and health conditions of ageing in Latin America and the Caribbean. International Journal of Epidemiology, 31, 762-771.
45. Parra-Cardona, J.R., et al., 2008. Shared ancestry, evolving stories: similar and contrasting life experiences described by foreign born and U.S. born Latino parents. Family Process, 47 (2), 157-172.
46. Pelaez, M., 2005. La construccio´n de Las Bases de La Buena Salud en La Vejez: situacio´n en Las Americas. Revista Panamericana de Salud Publica, 17 (5/6), 299-302.
47. Pelaez, M. and Martinez, I., 2002. Equity and systems of intergenerational transfers in Latin America and the Caribbean. Pan American Journal of Public Health, 11 (5/6), 439-443.
48. Petty, G.W., et al., 2000. Ischemic stroke subtypes: a population-based study of functional outcome, survival, and recurrence. Stroke, 31, 1062-1068.
49. Plant, J. and Keating, H.J., 1997. Puerto Rican patients travel to Puerto Rico: assessing the effect on clinical care. Connecticut Medicine, 61 (11), 713-716.
50. Ramos, B.M., 2004. Culture, ethnicity, and caregiver stress among Puerto Ricans. Journal of Applied Gerontology, 23 (4), 469-486.
51. Reker, D. and Duncan, P., 2001. Measuring health related quality of life in veterans with stroke. Kansas City, MO: VA Medical Center, Health Services Research and Development Grant #STI-20-029 [online]. Available from: http://www.hsrd.research.va.gov/research/abstracts.cfm?Project-ID--833265559 [Accessed 30 July 2009].
52. Rittman, M.R., 2000. Culturally sensitive models of stroke recovery and caregiving after discharge home. US Department of Veterans Affairs, NRI 98-183. Available from: http:// www.hsrd.research.va.gov/research/completed.cfm [Accessed June 2007].
53. Rodr?´guez, T., et al., 2006. Trends in mortality from coronary heart disease and cerebrovascular diseases in the Americas: 1970-2000. Heart, 92 (4), 453-460.
54. Sánchez-Ayeacute;ndez, M., 1998. Middle-aged Puerto Rican women as primary caregivers to the elderly: a qualitative analysis of everyday dynamics. In: M. Delgado, ed. Latino elders and the twenty-first century: issues and challenges for culturally competent research and practice. New York: Haworth, 75-98.
55. Schwamm, L.H., et al., 2005. Recommendations for the establishment of stroke systems of care: recommendations from the American stroke association's task force on the development of stroke systems. Stroke, 36 (3), 690-703.
56. Sotomayor, M., 1992. Social support networks. Hispanic aging: research reports I and II. Washington, DC: National Institutes of Health, National Institute of Aging.
57. Stansbury, J.P., et al., 2005. Ethnic disparities in stroke: epidemiology, acute care, and postacute outcomes. Stroke, 36, 374-386.
58. Szinovacz, M.E. and Davey, A., 2007. Changes in adult child caregiver networks. The Gerontologist, 47 (3), 280-295.
59. Triandis, H.C., 1995. Individualism and collectivism. Boulder, CO: Westview.
60. U.S. Census Bureau, 2007a. Marital status of the population by sex, race, and Hispanic origin: 1990 to 2007. Current population reports, P20-537 and earlier reports; and 'Families and Living Arrangements'. Available from: http://www.census.gov/population/www/socdemo/ hh-fam.html [Accessed July 2009].
61. U.S. Census Bureau, 2007b. Families by number of own children under 18 years old: 2000 to 2007. Current population reports, P20-537; and 'Families and Living Arrangements'. Available from: http://www.census.gov/population/www/ socdemo/hh-fam.html [Accessed July 2009].
62. Vega, W.A., 1995. The study of Latino families: a point of departure. In: R.E. Zambrana, ed. Understanding Latino families: scholarship, policy and practice. Thousand Oaks, CA: Sage, 3-17.
63. VHA, 2003. Veterans' healthcare enrollment and expenditure projections, office of policy and planning. Washington, DC: Government Printing Office.
64. Villarreal, R., Blozis, S.A., and Widaman, K.F., 2005. Factorial invariance of a pan-Hispanic familism scale. Hispanic Journal of Behavioral Sciences, 27 (4), 409-425.
65. Weiss, C.O., et al., 2005. Differences in amount of informal care received by non-Hispanic whites and Latinos in a nationally representative sample of older Americans. Journal of the American Geriatrics Society, 53, 146-151.
66. Wells, J.N., et al., 2008. Voices of Mexican American caregivers for family members with cancer. Journal of Transcultural Nursing, 19 (3), 223-233.
67. White, C.L., et al., 2003. Evolution of the caregiving experience in the initial 2 years following stroke. Research in Nursing & Health, 26 (3), 177-189.
68. Wilmoth, J.M., 2001. Living arrangements among older immigrants in the United States. The Gerontologist, 41, 228-238.
69. Zea, M.C., Quezada, T., and Belgrave, F., 1994. Latino cultural values: their role in adjustment to disability. Journal of Social Behavior, 9 (5), 1-16.
70. Zsembik, B.A., 2005. Latinos, families and health. In: D.R. Crane and E.S. Marshall, eds. Handbook of families and health: interdisciplinary perspectives. Thousand Oaks, CA: Sage, 40-61.
71. Zsembik, B.A. and Bonilla, Z., 2000. Eldercare and the changing family in Puerto Rico. Journal of Family Issues, 21 (5), 652-674.