메뉴 건너뛰기




Volumn 36, Issue 12, 2009, Pages 2819-2829

The localized scleroderma skin severity index and physician global assessment of disease activity: A work in progress toward development of localized scleroderma outcome measures

(16)  Arkachaisri, Thaschawee a   Vilaiyuk, Soamarat b   Li, Suzanne d   O'Neil, Kathleen M e   Pope, Elena f   Higgins, Gloria C g   Punaro, Marilynn h   Rabinovich, Egla C i   Rosenkranz, Margalit b   Kietz, Daniel A b   Rosen, Paul b   Spalding, Steven J j   Hennon, Teresa R b   Torok, Kathryn S b   Cassidy, Elaine b   Medsger Jr , Thomas A c  


Author keywords

Global assessment; Localized scleroderma; Outcome measure; Quality of life; Skin scores

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CHILDREN'S DERMATOLOGY LIFE QUALITY INDEX; CLINICAL ARTICLE; CLINICAL ASSESSMENT; CLINICAL PRACTICE; CONTENT VALIDITY; CUTANEOUS PARAMETERS; DERMATOLOGY; DISEASE ACTIVITY; DISEASE DURATION; ERYTHEMA; FEMALE; HUMAN; INTERRATER RELIABILITY; INTRARATER RELIABILITY; LOCALIZED SCLERODERMA; LOCALIZED SCLERODERMA SKIN SEVERITY INDEX; MALE; OUTCOME ASSESSMENT; PATIENT ASSESSMENT; PRIORITY JOURNAL; QUALITY OF LIFE; SCLERODERMA; SCORING SYSTEM; SKIN DISEASE;

EID: 72449194883     PISSN: 0315162X     EISSN: None     Source Type: Journal    
DOI: 10.3899/jrheum.081284     Document Type: Article
Times cited : (155)

References (54)
  • 1
    • 0344193114 scopus 로고    scopus 로고
    • Histopathologic differentiation between localized and systemic scleroderma
    • Torres JE, Sanchez JL. Histopathologic differentiation between localized and systemic scleroderma. Am J Dermatopathol 1998;20:242-245
    • (1998) Am J Dermatopathol , vol.20 , pp. 242-245
    • Torres, J.E.1    Sanchez, J.L.2
  • 3
    • 0028788272 scopus 로고
    • Classification of morphea (localized scleroderma)
    • Peterson LS, Nelson AM, Su WP. Classification of morphea (localized scleroderma). Mayo Clin Proc 1995;70:1068-1076
    • (1995) Mayo Clin Proc , vol.70 , pp. 1068-1076
    • Peterson, L.S.1    Nelson, A.M.2    Su, W.P.3
  • 5
    • 33646204698 scopus 로고    scopus 로고
    • Juvenile localized scleroderma: Clinical and epidemiological features in 750 children. An international study
    • Zulian F, Athreya BH, Laxer R, Nelson AM, Feitosa de Oliveira SK, Punaro MG, et al. Juvenile localized scleroderma: clinical and epidemiological features in 750 children. An international study. Rheumatology 2006;45:614-620
    • (2006) Rheumatology , vol.45 , pp. 614-620
    • Zulian, F.1    Athreya, B.H.2    Laxer, R.3    Nelson, A.M.4    Feitosa De Oliveira, S.K.5    Punaro, M.G.6
  • 7
    • 0011387953 scopus 로고
    • Examination of circumscribed scleroderma using 20-MHz B-scan ultrasound
    • Altmeyer P, El-Gammal S, Hoffmann K, editors. Berlin, Heidelberg: Springer-Verlag
    • Hoffmann K, El-Gammal S, Gerbaulet U, Schatz H, Altmeyer P. Examination of circumscribed scleroderma using 20-MHz B-scan ultrasound. In: Altmeyer P, El-Gammal S, Hoffmann K, editors. Ultrasound in dermatology. Berlin, Heidelberg: Springer-Verlag; 1992:231-243
    • (1992) Ultrasound in Dermatology , pp. 231-243
    • Hoffmann, K.1    El-Gammal, S.2    Gerbaulet, U.3    Schatz, H.4    Altmeyer, P.5
  • 8
    • 34547840144 scopus 로고    scopus 로고
    • Ultrasonography is a sensitive tool for monitoring localized scleroderma
    • Li SC, Liebling MS, Haines KA. Ultrasonography is a sensitive tool for monitoring localized scleroderma. Rheumatology 2007;46:1316-1319
    • (2007) Rheumatology , vol.46 , pp. 1316-1319
    • Li, S.C.1    Liebling, M.S.2    Haines, K.A.3
  • 11
    • 41849130645 scopus 로고    scopus 로고
    • Localized scleroderma severity index and global assessments: A pilot study of outcome instruments
    • Arkachaisri T, Pino S. Localized scleroderma severity index and global assessments: a pilot study of outcome instruments. J Rheumatol 2008;35:650-657
    • (2008) J Rheumatol , vol.35 , pp. 650-657
    • Arkachaisri, T.1    Pino, S.2
  • 12
    • 0031042831 scopus 로고    scopus 로고
    • Quality of life measurement in dermatology: A practical guide
    • Finlay AY. Quality of life measurement in dermatology: a practical guide. Br J Dermatol 1997;136:305-314 (Pubitemid 27105848)
    • (1997) British Journal of Dermatology , vol.136 , Issue.3 , pp. 305-314
    • Finlay, A.Y.1
  • 14
    • 0029019718 scopus 로고
    • The Children's Dermatology Life Quality Index (CDLQI): Initial validation and practical use
    • Lewis-Jones MS, Finlay AY. The Children's Dermatology Life Quality Index (CDLQI): initial validation and practical use. Br J Dermatol 1995;132:942-949
    • (1995) Br J Dermatol , vol.132 , pp. 942-949
    • Lewis-Jones, M.S.1    Finlay, A.Y.2
  • 15
    • 0017360990 scopus 로고
    • The measurement of observer agreement for categorical data
    • Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics 1977;33:159-174
    • (1977) Biometrics , vol.33 , pp. 159-174
    • Landis, J.R.1    Koch, G.G.2
  • 16
    • 0024521543 scopus 로고
    • A concordance correlation coefficient to evaluate reproducibility
    • Lin LI. A concordance correlation coefficient to evaluate reproducibility. Biometrics 1989;45:255-268
    • (1989) Biometrics , vol.45 , pp. 255-268
    • Lin, L.I.1
  • 17
    • 48249153186 scopus 로고
    • Intraclass correlations: Uses in assessing rater reliability
    • Shrout PE, Fleiss JL. Intraclass correlations: uses in assessing rater reliability. Psychol Bull 1979;86:420-428
    • (1979) Psychol Bull , vol.86 , pp. 420-428
    • Shrout, P.E.1    Fleiss, J.L.2
  • 18
    • 34548203767 scopus 로고    scopus 로고
    • Is the CVI an acceptable indicator of content validity? Appraisal and recommendations
    • Polit DF, Beck CT, Owen SV. Is the CVI an acceptable indicator of content validity? Appraisal and recommendations. Res Nurs Health 2007;30:459-467
    • (2007) Res Nurs Health , vol.30 , pp. 459-467
    • Polit, D.F.1    Beck, C.T.2    Owen, S.V.3
  • 21
    • 0031053436 scopus 로고    scopus 로고
    • Evaluating changes in health status: Reliability and responsiveness of five generic health status measures in workers with musculoskeletal disorders
    • DOI 10.1016/S0895-4356(96)00296-X, PII S089543569600296X
    • Beaton DE, Hogg-Johnson S, Bombardier C. Evaluating changes in health status: reliability and responsiveness of five generic health status measures in workers with musculoskeletal disorders. J Clin Epidemiol 1997;50:79-93. (Pubitemid 27089210)
    • (1997) Journal of Clinical Epidemiology , vol.50 , Issue.1 , pp. 79-93
    • Beaton, D.E.1    Hogg-Johnson, S.2    Bombardier, C.3
  • 22
    • 0026932752 scopus 로고
    • Comparative measurement sensitivity of short and longer health status instruments
    • Katz JN, Larson MG, Phillips CB, Fossel AH, Liang MH. Comparative measurement sensitivity of short and longer health status instruments. Med Care 1992;30:917-925
    • (1992) Med Care , vol.30 , pp. 917-925
    • Katz, J.N.1    Larson, M.G.2    Phillips, C.B.3    Fossel, A.H.4    Liang, M.H.5
  • 23
    • 0021998049 scopus 로고
    • Comparative measurement efficiency and sensitivity of five health status instruments for arthritis research
    • Liang MH, Larson MG, Cullen KE, Schwartz JA. Comparative measurement efficiency and sensitivity of five health status instruments for arthritis research. Arthritis Rheum 1985;28:542-547
    • (1985) Arthritis Rheum , vol.28 , pp. 542-547
    • Liang, M.H.1    Larson, M.G.2    Cullen, K.E.3    Schwartz, J.A.4
  • 24
    • 0038578829 scopus 로고    scopus 로고
    • Thirteen-megahertz ultrasound probe: Its role in diagnosing localized scleroderma
    • DOI 10.1046/j.1365-2133.2003.05289.x
    • Cosnes A, Anglade MC, Revuz J, Radier C. Thirteen-megahertz ultrasound probe: its role in diagnosing localized scleroderma. Br J Dermatol 2003;148:724-729 (Pubitemid 36629751)
    • (2003) British Journal of Dermatology , vol.148 , Issue.4 , pp. 724-729
    • Cosnes, A.1    Anglade, M.-C.2    Revuz, J.3    Radier, C.4
  • 25
    • 0029565337 scopus 로고
    • Quantitative description of echographic images of morphea plaques as assessed by computerized image analysis on 20 MHz B-scan recordings
    • Seidenari S, Conti A, Pepe P, Giannetti A. Quantitative description of echographic images of morphea plaques as assessed by computerized image analysis on 20 MHz B-scan recordings. Acta Derm Venereol 1995;75:442-445 (Pubitemid 26051890)
    • (1995) Acta Dermato-Venereologica , vol.75 , Issue.6 , pp. 442-445
    • Seidenari, S.1    Conti, A.2    Pepe, P.3    Giannetti, A.4
  • 26
    • 0002270983 scopus 로고
    • Ten years' experience with high-frequency ultrasound examination of the skin: Development and refinement of technique and equipment
    • Altmeyer P, El-Gammal S, Hoffmann K, editors. Berlin, Heidelberg: Springer-Verlag
    • Serup J. Ten years' experience with high-frequency ultrasound examination of the skin: development and refinement of technique and equipment. In: Altmeyer P, El-Gammal S, Hoffmann K, editors. Ultrasound in dermatology. Berlin, Heidelberg: Springer-Verlag; 1992:41-54.
    • (1992) Ultrasound in Dermatology , pp. 41-54
    • Serup, J.1
  • 29
    • 0032858213 scopus 로고    scopus 로고
    • Scoring the severity of atopic dermatitis: Three item severity score as a rough system for daily practice and as a pre-screening tool for studies
    • DOI 10.1080/000155599750010256
    • Wolkerstorfer A, de Waard van der Spek FB, Glazenburg EJ, Mulder PG, Oranje AP. Scoring the severity of atopic dermatitis: three item severity score as a rough system for daily practice and as a pre-screening tool for studies. Acta Derm Venereol 1999;79:356-359 (Pubitemid 29414967)
    • (1999) Acta Dermato-Venereologica , vol.79 , Issue.5 , pp. 356-359
    • Wolkerstorfer, A.1    De Waard Van Der Spek, F.B.2    Glazenburg, E.J.3    Mulder, P.G.H.4    Oranje, A.P.5
  • 30
    • 0028828661 scopus 로고
    • Reliability of the articular examination in children with juvenile rheumatoid arthritis: Interobserver agreement and sources of disagreement
    • Guzman J, Burgos-Vargas R, Duarte-Salazar C, Gomez-Mora P. Reliability of the articular examination in children with juvenile rheumatoid arthritis: interobserver agreement and sources of disagreement. J Rheumatol 1995;22:2331-2336
    • (1995) J Rheumatol , vol.22 , pp. 2331-2336
    • Guzman, J.1    Burgos-Vargas, R.2    Duarte-Salazar, C.3    Gomez-Mora, P.4
  • 31
    • 0029048089 scopus 로고
    • Inter and intraobserver variability of total skin thickness score (modified Rodnan TSS) in systemic sclerosis
    • Clements P, Lachenbruch P, Siebold J, White B, Weiner S, Martin R, et al. Inter and intraobserver variability of total skin thickness score (modified Rodnan TSS) in systemic sclerosis. J Rheumatol 1995;22:1281-1285
    • (1995) J Rheumatol , vol.22 , pp. 1281-1285
    • Clements, P.1    Lachenbruch, P.2    Siebold, J.3    White, B.4    Weiner, S.5    Martin, R.6
  • 33
    • 0018345789 scopus 로고
    • Skin thickness and collagen content in progressive systemic sclerosis and localized scleroderma
    • DOI 10.1002/art.1780220205
    • Rodnan GP, Lipinski E, Luksick J. Skin thickness and collagen content in progressive systemic sclerosis and localized scleroderma. Arthritis Rheum 1979;22:130-140 (Pubitemid 9156666)
    • (1979) Arthritis and Rheumatism , vol.22 , Issue.2 , pp. 130-140
    • Rodnan, G.P.1    Lipinski, E.2    Luksick, J.3
  • 34
    • 0031965195 scopus 로고    scopus 로고
    • The modified Rodnan skin score is an accurate reflection of skin biopsy thickness in systemic sclerosis
    • Furst DE, Clements PJ, Steen VD, Medsger TA Jr, Masi AT, D'Angelo WA, et al. The modified Rodnan skin score is an accurate reflection of skin biopsy thickness in systemic sclerosis. J Rheumatol 1998;25:84-88
    • (1998) J Rheumatol , vol.25 , pp. 84-88
    • Furst, D.E.1    Clements, P.J.2    Steen, V.D.3    Medsger Jr., T.A.4    Masi, A.T.5    D'Angelo, W.A.6
  • 35
    • 42449138739 scopus 로고    scopus 로고
    • Immunohistochemical characterization of the cellular infiltrate in localized scleroderma
    • DOI 10.1111/j.1365-4632.2008.03615.x
    • Xie Y, Zhang X, Wakasugi S, Makino T, Inoue Y, Ihn H. Immunohistochemical characterization of the cellular infiltrate in localized scleroderma. Int J Dermatol 2008;47:438-442 (Pubitemid 351560306)
    • (2008) International Journal of Dermatology , vol.47 , Issue.5 , pp. 438-442
    • Xie, Y.1    Zhang, X.2    Wakasugi, S.3    Makino, T.4    Inoue, Y.5    Ihn, H.6
  • 36
    • 29844444317 scopus 로고    scopus 로고
    • Healthy children have a significantly increased skin score assessed with the modified Rodnan skin score
    • DOI 10.1093/rheumatology/kei106
    • Foeldvari I, Wierk A. Healthy children have a significantly increased skin score assessed with the modified Rodnan skin score. Rheumatology 2006;45:76-78 (Pubitemid 43033879)
    • (2006) Rheumatology , vol.45 , Issue.1 , pp. 76-78
    • Foeldvari, I.1    Wierk, A.2
  • 37
    • 0026735870 scopus 로고
    • Reliability of skin involvement measures in scleroderma
    • The UK Scleroderma Study Group
    • Brennan P, Silman A, Black C, Bernstein R, Coppock J, Maddison P, et al. Reliability of skin involvement measures in scleroderma. The UK Scleroderma Study Group. Br J Rheumatol 1992;31:457-460
    • (1992) Br J Rheumatol , vol.31 , pp. 457-460
    • Brennan, P.1    Silman, A.2    Black, C.3    Bernstein, R.4    Coppock, J.5    Maddison, P.6
  • 38
    • 34347218577 scopus 로고    scopus 로고
    • The EUSTAR model for teaching and implementing the modified Rodnan skin score in systemic sclerosis
    • DOI 10.1136/ard.2006.066530
    • Czirjak L, Nagy Z, Aringer M, Riemekasten G, Matucci-Cerinic M, Furst DE. The EUSTAR model for teaching and implementing the modified Rodnan skin score in systemic sclerosis. Ann Rheum Dis 2007;66:966-969 Epub 2007 Jan 18. (Pubitemid 46999803)
    • (2007) Annals of the Rheumatic Diseases , vol.66 , Issue.7 , pp. 966-969
    • Czirjak, L.1    Nagy, Z.2    Aringer, M.3    Riemekasten, G.4    Matucci-Cerinic, M.5    Furst, D.E.6
  • 39
    • 0029056809 scopus 로고
    • Is it possible to reduce observer variability in skin score assessment of scleroderma?
    • The ad hoc International Group on the Assessment of Disease Outcome in Scleroderma
    • Silman A, Harrison M, Brennan P. Is it possible to reduce observer variability in skin score assessment of scleroderma? The ad hoc International Group on the Assessment of Disease Outcome in Scleroderma. J Rheumatol 1995;22:1277-1280
    • (1995) J Rheumatol , vol.22 , pp. 1277-1280
    • Silman, A.1    Harrison, M.2    Brennan, P.3
  • 40
    • 0033049293 scopus 로고    scopus 로고
    • Measurement of body surface area involvement in atopic eczema: An impossible task?
    • Charman CR, Venn AJ, Williams HC. Measurement of body surface area involvement in atopic eczema: an impossible task? Br J Dermatol 1999;140:109-111
    • (1999) Br J Dermatol , vol.140 , pp. 109-111
    • Charman, C.R.1    Venn, A.J.2    Williams, H.C.3
  • 41
    • 0029836829 scopus 로고    scopus 로고
    • Measurement of disease activity and outcome in atopic dermatitis
    • Finlay AY. Measurement of disease activity and outcome in atopic dermatitis. Br J Dermatol 1996;135:509-515 (Pubitemid 26340258)
    • (1996) British Journal of Dermatology , vol.135 , Issue.4 , pp. 509-515
    • Finlay, A.Y.1
  • 42
    • 0025829454 scopus 로고
    • Measurement of involved surface area in patients with psoriasis
    • Ramsay B, Lawrence CM. Measurement of involved surface area in patients with psoriasis. Br J Dermatol 1991;124:565-570
    • (1991) Br J Dermatol , vol.124 , pp. 565-570
    • Ramsay, B.1    Lawrence, C.M.2
  • 43
    • 0027452591 scopus 로고
    • Assessment of area of involvement in skin disease: A study using schematic figure outlines
    • DOI 10.1111/j.1365-2133.1993.tb00150.x
    • Tiling-Grosse S, Rees J. Assessment of area of involvement in skin disease: a study using schematic figure outlines. Br J Dermatol 1993;128:69-74. (Pubitemid 23030151)
    • (1993) British Journal of Dermatology , vol.128 , Issue.1 , pp. 69-74
    • Tiling-Grosse, S.1    Rees, J.2
  • 44
    • 0032811347 scopus 로고    scopus 로고
    • Clinical measures of disease severity and outcome in psoriasis: A critical appraisal of their quality
    • Ashcroft DM, Wan Po AL, Williams HC, Griffiths CE. Clinical measures of disease severity and outcome in psoriasis: a critical appraisal of their quality. Br J Dermatol 1999;141:185-191
    • (1999) Br J Dermatol , vol.141 , pp. 185-191
    • Ashcroft, D.M.1    Wan Po, A.L.2    Williams, H.C.3    Griffiths, C.E.4
  • 45
    • 25444472611 scopus 로고    scopus 로고
    • Measuring atopic eczema severity visually: Which variables are most important to patients?
    • Charman CR, Venn AJ, Williams H. Measuring atopic eczema severity visually: which variables are most important to patients? Arch Dermatol 2005;141:1146-1151
    • (2005) Arch Dermatol , vol.141 , pp. 1146-1151
    • Charman, C.R.1    Venn, A.J.2    Williams, H.3
  • 46
    • 32844466113 scopus 로고    scopus 로고
    • The CLASI (Cutaneous Lupus Erythematosus Disease Area and Severity Index): An outcome instrument for cutaneous lupus erythematosus
    • Albrecht J, Taylor L, Berlin JA, Dulay S, Ang G, Fakharzadeh S, et al. The CLASI (Cutaneous Lupus Erythematosus Disease Area and Severity Index): an outcome instrument for cutaneous lupus erythematosus. J Invest Dermatol 2005;125:889-894
    • (2005) J Invest Dermatol , vol.125 , pp. 889-894
    • Albrecht, J.1    Taylor, L.2    Berlin, J.A.3    Dulay, S.4    Ang, G.5    Fakharzadeh, S.6
  • 47
    • 0036065912 scopus 로고    scopus 로고
    • Reliability testing of the Six Area, Six Sign Atopic Dermatitis severity score
    • Charman CR, Venn AJ, Williams HC. Reliability testing of the Six Area, Six Sign Atopic Dermatitis severity score. Br J Dermatol 2002;146:1057-1060
    • (2002) Br J Dermatol , vol.146 , pp. 1057-1060
    • Charman, C.R.1    Venn, A.J.2    Williams, H.C.3
  • 48
    • 51849151225 scopus 로고    scopus 로고
    • Comparison of the reliability and validity of outcome instruments for cutaneous dermatomyositis
    • Epub 2008 Jul 4
    • Klein RQ, Bangert CA, Costner M, Connolly MK, Tanikawa A, Okawa J, et al. Comparison of the reliability and validity of outcome instruments for cutaneous dermatomyositis. Br J Dermatol 2008;159:887-894 Epub 2008 Jul 4.
    • (2008) Br J Dermatol , vol.159 , pp. 887-894
    • Klein, R.Q.1    Bangert, C.A.2    Costner, M.3    Connolly, M.K.4    Tanikawa, A.5    Okawa, J.6
  • 49
    • 0028421010 scopus 로고
    • Linear scleroderma occurring in a patient with systemic lupus erythematosus - Short report
    • Lee CW, Kwon CW, Yoo DH, Kim SY. Linear scleroderma occurring in a patient with systemic lupus erythematosus - short report. J Korean Med Sci 1994;9:197-199
    • (1994) J Korean Med Sci , vol.9 , pp. 197-199
    • Lee, C.W.1    Kwon, C.W.2    Yoo, D.H.3    Kim, S.Y.4
  • 51
    • 34848816824 scopus 로고    scopus 로고
    • Ocular involvement in children with localized scleroderma: A multicenter study
    • Epub 2007 May 2
    • Zannin ME, Martini G, Athreya BH, Russo R, Higgins GC, Vittadello F, et al. Ocular involvement in children with localized scleroderma: a multicenter study. Br J Ophthalmol 2007;91:1311-1314 Epub 2007 May 2
    • (2007) Br J Ophthalmol , vol.91 , pp. 1311-1314
    • Zannin, M.E.1    Martini, G.2    Athreya, B.H.3    Russo, R.4    Higgins, G.C.5    Vittadello, F.6
  • 52
    • 27744503544 scopus 로고    scopus 로고
    • Translating the science of quality of life into practice: What do dermatology life quality index scores mean?
    • Hongbo Y, Thomas CL, Harrison MA, Salek MS, Finlay AY. Translating the science of quality of life into practice: What do dermatology life quality index scores mean? J Invest Dermatol 2005;125:659-664
    • (2005) J Invest Dermatol , vol.125 , pp. 659-664
    • Hongbo, Y.1    Thomas, C.L.2    Harrison, M.A.3    Salek, M.S.4    Finlay, A.Y.5
  • 53
    • 18844404173 scopus 로고    scopus 로고
    • Effect on quality of life in patients with pityriasis rosea: Is it associated with rash severity?
    • Chuh AA, Chan HH. Effect on quality of life in patients with pityriasis rosea: is it associated with rash severity? Int J Dermatol 2005;44:372-377
    • (2005) Int J Dermatol , vol.44 , pp. 372-377
    • Chuh, A.A.1    Chan, H.H.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.