메뉴 건너뛰기




Volumn 45, Issue 5, 2009, Pages 469-498

Family-centered care for children with autism spectrum disorders: A review

Author keywords

Autism spectrum disorders; Children with special health care needs; Family centered care; Medical home; Parents

Indexed keywords


EID: 72449150178     PISSN: 01494929     EISSN: 15409635     Source Type: Journal    
DOI: 10.1080/01494920903050755     Document Type: Article
Times cited : (50)

References (124)
  • 2
    • 0033992925 scopus 로고    scopus 로고
    • Family-centered care: Facing the new millennium
    • Ahmann, E., & Johnson, B. (2000). Family-centered care: Facing the new millennium. Pediatric Nursing, 26, 87-91.
    • (2000) Pediatric Nursing , vol.26 , pp. 87-91
    • Ahmann, E.1    Johnson, B.2
  • 5
    • 72449189871 scopus 로고
    • Toward developing standards and measurements for family-centered practice in family support programs
    • University of Kansas: Beach Center on Families and Disability
    • Allen, R. I., & Petr, C. G. (1995). Toward developing standards and measurements for family-centered practice in family support programs. In Family-centered service delivery: A cross-disciplinary literature review and conceptualization. University of Kansas: Beach Center on Families and Disability.
    • (1995) Family-centered service delivery: A cross-disciplinary literature review and conceptualization
    • Allen, R.I.1    Petr, C.G.2
  • 7
    • 1342340536 scopus 로고    scopus 로고
    • Committee on Children with Disabilities. Policy statement: The role of the pediatrician in family-centered early intervention services
    • American Academy of Pediatrics [AAP].
    • American Academy of Pediatrics [AAP]. (2001a). Committee on Children with Disabilities. Policy statement: The role of the pediatrician in family-centered early intervention services. Pediatrics, 107, 1155-1157.
    • (2001) Pediatrics , vol.107 , pp. 1155-1157
  • 8
    • 0042393931 scopus 로고    scopus 로고
    • Committee on Children with Disabilities. Technical report: The pediatrician's role in the diagnosis and management of autistic spectrum disorder in children
    • American Academy of Pediatrics [AAP].
    • American Academy of Pediatrics [AAP]. (2001b). Committee on Children with Disabilities. Technical report: The pediatrician's role in the diagnosis and management of autistic spectrum disorder in children. Pediatrics, 107(5), 1-18.
    • (2001) Pediatrics , vol.107 , Issue.5 , pp. 1-18
  • 9
    • 0036299935 scopus 로고    scopus 로고
    • Medical Home Initiatives for Children with Special Needs Project Advisory Committee. Policy statement: The medical home
    • American Academy of Pediatrics [AAP]
    • American Academy of Pediatrics [AAP]. (2002). Medical Home Initiatives for Children with Special Needs Project Advisory Committee. Policy statement: The medical home. Pediatrics, 110, 184-186.
    • (2002) Pediatrics , vol.110 , pp. 184-186
  • 10
    • 0037565091 scopus 로고    scopus 로고
    • Family pediatrics: Report of the Task Force on the Family
    • American Academy of Pediatrics [AAP]
    • American Academy of Pediatrics [AAP]. (2003a). Family pediatrics: Report of the Task Force on the Family. Pediatrics 111, 1541-1571.
    • (2003) Pediatrics , vol.111 , pp. 1541-1571
  • 11
    • 0041336963 scopus 로고    scopus 로고
    • Committee on Hospital Care Institute for Family-Centered Care. Policy statement: Family-centered care and the pediatrician's role
    • American Academy of Pediatrics [AAP].
    • American Academy of Pediatrics [AAP]. (2003b). Committee on Hospital Care Institute for Family-Centered Care. Policy statement: Family-centered care and the pediatrician's role. Pediatrics, 112, 691-696.
    • (2003) Pediatrics , vol.112 , pp. 691-696
  • 12
    • 72449170777 scopus 로고    scopus 로고
    • American Academy of Pediatrics [AAP].. Centers for Medical Home Improvement: Author. Retrieved June 22, 2007
    • American Academy of Pediatrics [AAP]. (2007). National Center of Medical Home Initiatives for Children with Special Needs. Medical Home Index. Centers for Medical Home Improvement: Author. Retrieved June 22, 2007, from http:// www.medicalhomeinfo.org/tools/general.html
    • (2007) National Center of Medical Home Initiatives for Children with Special Needs
  • 13
    • 0004235298 scopus 로고    scopus 로고
    • American Psychiatric Association. (4th ed., text rev) . Washington, DC: APA
    • American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed., text rev.). Washington, DC: APA.
    • (2000) Diagnostic and Statistical Manual of Mental Disorders
  • 14
    • 84993710110 scopus 로고    scopus 로고
    • Model of positive behavioral support for individuals with autism and their families: The family focus process
    • Becker-Cottrill, B., McFarland, J., & Anderson, V. (2003). Model of positive behavioral support for individuals with autism and their families: The family focus process. Focus on Autism and Other Developmental Disabilities, 18(2), 110-120.
    • (2003) Focus on Autism and Other Developmental Disabilities , vol.18 , Issue.2 , pp. 110-120
    • Becker-Cottrill, B.1    McFarland, J.2    Anderson, V.3
  • 17
    • 34147185364 scopus 로고    scopus 로고
    • Comparison of indicators for primary care medical home between children with autism or asthma and other special health care needs
    • Brachlow, A. E., Ness, K. K., McPheeters, M. L., & Gurney, J. G. (2007). Comparison of indicators for primary care medical home between children with autism or asthma and other special health care needs. Archives of Pediatrics and Adolescent Medicine, 161, 399-405.
    • (2007) Archives of Pediatrics and Adolescent Medicine , vol.161 , pp. 399-405
    • Brachlow, A.E.1    Ness, K.K.2    McPheeters, M.L.3    Gurney, J.G.4
  • 19
    • 10944269279 scopus 로고    scopus 로고
    • Mothers supporting children with autistic spectrum disorders
    • Bromley, J., Hare, D., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders. Autism, 8, 409-423.
    • (2004) Autism , vol.8 , pp. 409-423
    • Bromley, J.1    Hare, D.2    Davison, K.3    Emerson, E.4
  • 20
    • 5644246482 scopus 로고    scopus 로고
    • Using parent=clinician partnerships in parent education programs for children with autism
    • Brookman-Frazee, L. (2004). Using parent=clinician partnerships in parent education programs for children with autism. Journal of Positive Behavior Interventions, 6, 195-213.
    • (2004) Journal of Positive Behavior Interventions , vol.6 , pp. 195-213
    • Brookman-Frazee, L.1
  • 22
    • 33847773051 scopus 로고    scopus 로고
    • Retrieved October 24, 2008
    • Centers for Disease Control and Prevention [CDC]. (2007a). How common is autism spectrum disorder (ASD)? Retrieved October 24, 2008 from http://www.cdc. gov/ncbddd/autism/faq-prevalence.htm.
    • (2007) How Common Is Autism Spectrum Disorder (ASD)?
  • 23
    • 72449200886 scopus 로고    scopus 로고
    • Prevalence of the autism spectrum disorders in multiple areas of the United States
    • Retrieved October 24, 2008
    • Centers for Disease Control and Prevention [CDC]. (2007b). Prevalence of the autism spectrum disorders in multiple areas of the United States, surveillance years2000 and 2002. Retrieved October 24, 2008 from: http://www.cdc.gov/ncbddd/ dd/addmprevalence.htm.
    • (2007) Surveillance years2000 and 2002
  • 24
    • 72449153143 scopus 로고    scopus 로고
    • Retrieved October 24, 2008
    • Center for Medical Home Improvement. (2006). The Medical Home Index. Retrieved October 24, 2008 from http://www.medicalhomeimprovement.org/outcomes. htm
    • (2006) The Medical Home Index
  • 25
    • 0036991144 scopus 로고    scopus 로고
    • The prevalence of autism spectrum disorders: Recent evidence and future challenges
    • Charman, T. (2002). The prevalence of autism spectrum disorders: Recent evidence and future challenges. European Child & Adolescent Psychiatry, 11(6), 249-256.
    • (2002) European Child & Adolescent Psychiatry , vol.11 , Issue.6 , pp. 249-256
    • Charman, T.1
  • 26
    • 0347589346 scopus 로고    scopus 로고
    • Patterns and perceptions of complementary=alternative medicine among pediatricians and patients' mothers: A review of the literature
    • Cuzzolin, L., Zaffrani, S., Murgia, V., Gangemi, M., Meneghelli, G., Chiamenti, G., & Benoni, G. (2003). Patterns and perceptions of complementary=alternative medicine among pediatricians and patients' mothers: A review of the literature. European Journal of Pediatrics, 162, 820-827.
    • (2003) European Journal of Pediatrics , vol.162 , pp. 820-827
    • Cuzzolin, L.1    Zaffrani, S.2    Murgia, V.3    Gangemi, M.4    Meneghelli, G.5    Chiamenti, G.6    Benoni, G.7
  • 27
    • 84993687245 scopus 로고    scopus 로고
    • The clinical and educational systems: Differences and similarities
    • Dahle, K. B. (2003). The clinical and educational systems: Differences and similarities. Focus on Autism and Other Developmental Disabilities, 18, 238-246.
    • (2003) Focus on Autism and Other Developmental Disabilities , vol.18 , pp. 238-246
    • Dahle, K.B.1
  • 28
    • 0036300797 scopus 로고    scopus 로고
    • The doctor's dilemma: Challenges for the primary care physician caring for the child with special health care needs
    • Davidson, E. J., Silva, T. J., Sofis, L. A., Ganz, M. L., & Palfrey, J. S. (2002). The doctor's dilemma: Challenges for the primary care physician caring for the child with special health care needs. Ambulatory Pediatrics, 2, 218-223.
    • (2002) Ambulatory Pediatrics , vol.2 , pp. 218-223
    • Davidson, E.J.1    Silva, T.J.2    Sofis, L.A.3    Ganz, M.L.4    Palfrey, J.S.5
  • 29
    • 33750134454 scopus 로고    scopus 로고
    • Achieving family and provider partnerships for children with special health care needs
    • Denboba, D., McPherson, M. G., Kenney, M. K., Strickland, B., & Newacheck, P. W. (2006). Achieving family and provider partnerships for children with special health care needs. Pediatrics, 118(4), 1607-1615.
    • (2006) Pediatrics , vol.118 , Issue.4 , pp. 1607-1615
    • Denboba, D.1    McPherson, M.G.2    Kenney, M.K.3    Strickland, B.4    Newacheck, P.W.5
  • 32
    • 0036758193 scopus 로고    scopus 로고
    • Family-centered practices: Birth through high school
    • Dunst, C. (2002). Family-centered practices: Birth through high school. Journal of Special Education, 36, 139-147.
    • (2002) Journal of Special Education , vol.36 , pp. 139-147
    • Dunst, C.1
  • 35
    • 0033219934 scopus 로고    scopus 로고
    • Differences in coping effectiveness and well-being among aging mothers and fathers of adults with mental retardation
    • Essex, E., Seltzer, M. M., & Krauss, M. W. (1999). Differences in coping effectiveness and well-being among aging mothers and fathers of adults with mental retardation. American Journal on Mental Retardation, 104, 545-563.
    • (1999) American Journal on Mental Retardation , vol.104 , pp. 545-563
    • Essex, E.1    Seltzer, M.M.2    Krauss, M.W.3
  • 37
    • 0031158353 scopus 로고    scopus 로고
    • Parent participation in the postanesthesia care unit: Fourteen years of progress at one hospital
    • Fina, D. K., Lopas, L. J., Stagnone, J. H., & Santucci, P. R. (1997). Parent participation in the postanesthesia care unit: Fourteen years of progress at one hospital. Journal of Perianesthesia Nursing, 12, 152-162.
    • (1997) Journal of Perianesthesia Nursing , vol.12 , pp. 152-162
    • Fina, D.K.1    Lopas, L.J.2    Stagnone, J.H.3    Santucci, P.R.4
  • 38
    • 84993790937 scopus 로고    scopus 로고
    • Narratives published on the Internet by parents of children with autism: What do they reveal and why is it important?
    • Fleischmann, A. (2004). Narratives published on the Internet by parents of children with autism: What do they reveal and why is it important? Focus on Autism and Developmental Disabilities, 19, 35-43.
    • (2004) Focus on Autism and Developmental Disabilities , vol.19 , pp. 35-43
    • Fleischmann, A.1
  • 39
    • 0012527524 scopus 로고    scopus 로고
    • Epidemiological investigations of autism and other pervasive developmental disorders
    • C. Lord (Ed.) Washington, DC: National Academy of Sciences Press
    • Fombonne, E. (2001). Epidemiological investigations of autism and other pervasive developmental disorders. In C. Lord (Ed.), Educating children with autism. Washington, DC: National Academy of Sciences Press.
    • (2001) Educating Children with Autism
    • Fombonne, E.1
  • 40
    • 0042902971 scopus 로고    scopus 로고
    • Understanding and intervening with children's challenging behavior: A comprehensive approach
    • A. Wetherby, & B. Prizant (Eds.). Baltimore: Paul H. Brookes
    • Fox, L., Dunlap, G., & Buschbacher, P. (2000). Understanding and intervening with children's challenging behavior: A comprehensive approach. In A. Wetherby, & B. Prizant (Eds.), Autism spectrum disorders: A transactional developmental perspective. Baltimore: Paul H. Brookes.
    • (2000) Autism Spectrum Disorders: A Transactional Developmental Perspective
    • Fox, L.1    Dunlap, G.2    Buschbacher, P.3
  • 42
    • 0027516145 scopus 로고
    • Depression and social adjustment in siblings of boys with autism
    • Gold, N. (1993). Depression and social adjustment in siblings of boys with autism. Journal of Autism and Developmental Disorders, 23, 147-163.
    • (1993) Journal of Autism and Developmental Disorders , vol.23 , pp. 147-163
    • Gold, N.1
  • 43
    • 0037294647 scopus 로고    scopus 로고
    • Gender and coping: The parents of children with high functioning autism
    • Gray, D. (2003). Gender and coping: the parents of children with high functioning autism. Social Science and Medicine, 56, 631-642.
    • (2003) Social Science and Medicine , vol.56 , pp. 631-642
    • Gray, D.1
  • 44
    • 0842312388 scopus 로고    scopus 로고
    • The effect of quality of the relationship between mothers and adult children with schizophrenia, autism, or Down syndrome on maternal well-being: The mediating role of optimism
    • Greenberg, J. S., Seltzer, M. M., Krauss, M. W., Chou, R. J., & Hong, J. (2004). The effect of quality of the relationship between mothers and adult children with schizophrenia, autism, or Down syndrome on maternal well-being: The mediating role of optimism. American Journal of Orthopsychiatry, 74, 14-25.
    • (2004) American Journal of Orthopsychiatry , vol.74 , pp. 14-25
    • Greenberg, J.S.1    Seltzer, M.M.2    Krauss, M.W.3    Chou, R.J.4    Hong, J.5
  • 45
    • 4644355111 scopus 로고    scopus 로고
    • Parents' perceptions of nurse's caregiving behaviors in the pediatric intensive care unit
    • Harbaugh, B. L., Tomlinson, P. S., & Kirschbaum, M. (2004). Parents' perceptions of nurse's caregiving behaviors in the pediatric intensive care unit. Issues in Comprehensive Pediatric Nursing, 27(3), 163-178.
    • (2004) Issues in Comprehensive Pediatric Nursing , vol.27 , Issue.3 , pp. 163-178
    • Harbaugh, B.L.1    Tomlinson, P.S.2    Kirschbaum, M.3
  • 46
    • 10944249734 scopus 로고    scopus 로고
    • The health and social care needs of family carers supporting adults with autistic spectrum disorders
    • Hare, D. J., Pratt, C., Burton, M., Bromley, J., & Emerson, E. (2004). The health and social care needs of family carers supporting adults with autistic spectrum disorders. Autism, 8, 425-444.
    • (2004) Autism , vol.8 , pp. 425-444
    • Hare, D.J.1    Pratt, C.2    Burton, M.3    Bromley, J.4    Emerson, E.5
  • 47
    • 33747627615 scopus 로고    scopus 로고
    • Parental beliefs about autism: Implications for the treating physician
    • Harrington, J. W., Patrick, P. A., Edwards, K. S., & Brand, D. S. (2006). Parental beliefs about autism: Implications for the treating physician. Autism, 10, 452-462.
    • (2006) Autism , vol.10 , pp. 452-462
    • Harrington, J.W.1    Patrick, P.A.2    Edwards, K.S.3    Brand, D.S.4
  • 49
    • 0037296106 scopus 로고    scopus 로고
    • Brief report: Behavioral adjustment of siblings of children with autism
    • Hastings, R. P. (2003). Brief report: Behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders, 33(1), 99-104.
    • (2003) Journal of Autism and Developmental Disorders , vol.33 , Issue.1 , pp. 99-104
    • Hastings, R.P.1
  • 50
    • 18344381200 scopus 로고    scopus 로고
    • Behavior problems of children with autism, parental self-efficacy, and mental health
    • Hastings, R. & Brown, T. (2002). Behavior problems of children with autism, parental self-efficacy, and mental health. American Journal of Mental Retardation, 107, 222-232.
    • (2002) American Journal of Mental Retardation , vol.107 , pp. 222-232
    • Hastings, R.1    Brown, T.2
  • 54
    • 0000078109 scopus 로고    scopus 로고
    • Diagnosis in autism: A survey of over 1200 patients in the UK
    • Howlin, P., & Moore, A. (1997). Diagnosis in autism: A survey of over 1200 patients in the UK. Autism, 1, 135-162.
    • (1997) Autism , vol.1 , pp. 135-162
    • Howlin, P.1    Moore, A.2
  • 56
    • 36048931014 scopus 로고    scopus 로고
    • Identification and evaluation of children with autism spectrum disorders
    • The Council on Children with Disabilities
    • Johnson, C. P., Myers, S. M., & The Council on Children with Disabilities. (2007). Identification and evaluation of children with autism spectrum disorders. Pediatrics, 120, 1183-1215.
    • (2007) Pediatrics , vol.120 , pp. 1183-1215
    • Johnson, C.P.1    Myers, S.M.2
  • 57
    • 0036483117 scopus 로고    scopus 로고
    • Psychosocial adjustment in siblings of children with autism
    • Kaminsky, L., & Dewey, D. (2002). Psychosocial adjustment in siblings of children with autism. Journal of Child Psychology and Psychiatry, 43(2), 225-232.
    • (2002) Journal of Child Psychology and Psychiatry , vol.43 , Issue.2 , pp. 225-232
    • Kaminsky, L.1    Dewey, D.2
  • 58
    • 2142754473 scopus 로고    scopus 로고
    • Exploring the gap between knowledge and behavior: A qualitative study of clinician action following an educational intervention
    • Kennedy, T., Regehr, G., Rosenfeld, J., Roberts, S. W., & Lingard, L. (2004). Exploring the gap between knowledge and behavior: A qualitative study of clinician action following an educational intervention. Academic Medicine, 79, 386-393.
    • (2004) Academic Medicine , vol.79 , pp. 386-393
    • Kennedy, T.1    Regehr, G.2    Rosenfeld, J.3    Roberts, S.W.4    Lingard, L.5
  • 60
    • 0008840381 scopus 로고    scopus 로고
    • Examining the services received by young children with autism and their families: A survey of parent responses
    • Kohler, F. (1999). Examining the services received by young children with autism and their families: A survey of parent responses. Focus on Autism and Other Developmental Disabilities, 14, 150-158.
    • (1999) Focus on Autism and Other Developmental Disabilities , vol.14 , pp. 150-158
    • Kohler, F.1
  • 61
    • 0031092650 scopus 로고    scopus 로고
    • An approach to pediatric perioperative care: Parent-present induction
    • LaRosa-Nash, P. A., & Murphy, J.M. (1997). An approach to pediatric perioperative care: parent-present induction. Nursing Clinics of North America, 32, 183-199.
    • (1997) Nursing Clinics of North America , vol.32 , pp. 183-199
    • Larosa-Nash, P.A.1    Murphy, J.M.2
  • 62
    • 0345735901 scopus 로고    scopus 로고
    • Dilemmas in sharing care: Maternal provision of professionally driven therapy for children with disabilities
    • Leiter, V. (2004). Dilemmas in sharing care: Maternal provision of professionally driven therapy for children with disabilities. Social Science and Medicine, 58, 837-849.
    • (2004) Social Science and Medicine , vol.58 , pp. 837-849
    • Leiter, V.1
  • 65
    • 0036878237 scopus 로고    scopus 로고
    • Differences in stress and coping for mothers and fathers of children with Asperger's syndrome and nonverbal learning disorders
    • Little, L. (2002). Differences in stress and coping for mothers and fathers of children with Asperger's syndrome and nonverbal learning disorders. Pediatric Nursing, 28(6), 565-570.
    • (2002) Pediatric Nursing , vol.28 , Issue.6 , pp. 565-570
    • Little, L.1
  • 66
    • 14844294447 scopus 로고    scopus 로고
    • Bridging the divide between families and health professionals' perspectives on family-centered care
    • MacKean, G., Thurston, W. E., & Scott, C. M. (2005). Bridging the divide between families and health professionals' perspectives on family-centered care. Health Expectations, 8, 74-85.
    • (2005) Health Expectations , vol.8 , pp. 74-85
    • MacKean, G.1    Thurston, W.E.2    Scott, C.M.3
  • 67
    • 34250892595 scopus 로고    scopus 로고
    • The adjustment of non-disabled siblings of children with autism
    • Macks, R. J., & Reeve, R. E. (2007). The adjustment of non-disabled siblings of children with autism. Journal of Autism and Developmental Disorders, 37, 1060-1067.
    • (2007) Journal of Autism and Developmental Disorders , vol.37 , pp. 1060-1067
    • MacKs, R.J.1    Reeve, R.E.2
  • 68
    • 22144477901 scopus 로고    scopus 로고
    • The role of culture in families' treatment decisions for children with autism spectrum disorders
    • Mandell, D. S., & Novak, M. (2005). The role of culture in families' treatment decisions for children with autism spectrum disorders. Mental Retardation and Developmental Disabilities, 11, 110-115.
    • (2005) Mental Retardation and Developmental Disabilities , vol.11 , pp. 110-115
    • Mandell, D.S.1    Novak, M.2
  • 69
    • 33644700178 scopus 로고    scopus 로고
    • Factors associated with age of diagnosis among children with autism spectrum disorders
    • Mandell, D. S., Novak, M. M., & Zubritsky, C. D. (2005). Factors associated with age of diagnosis among children with autism spectrum disorders. Pediatrics, 116, 1480-1486.
    • (2005) Pediatrics , vol.116 , pp. 1480-1486
    • Mandell, D.S.1    Novak, M.M.2    Zubritsky, C.D.3
  • 70
    • 10944267713 scopus 로고    scopus 로고
    • A survey of parents' reactions to the diagnosis of an autistic spectrum disorder by a local service
    • Mansell, W., & Morris, K. (2004). A survey of parents' reactions to the diagnosis of an autistic spectrum disorder by a local service. Autism, 8, 387-407.
    • (2004) Autism , vol.8 , pp. 387-407
    • Mansell, W.1    Morris, K.2
  • 71
    • 72449166131 scopus 로고    scopus 로고
    • U.S. Department of Health and Human Services Maternal and Child Health Bureau
    • Retrieved June 15, 2007
    • McPherson, M. (2005). U.S. Department of Health and Human Services Maternal and Child Health Bureau. MCHB definition of family-centered care. Retrieved June 15, 2007, from http://mchb.hrsa.gov/McPherson M.
    • (2005) MCHB Definition of Family-centered Care
    • McPherson, M.1
  • 73
    • 0033455465 scopus 로고    scopus 로고
    • Beyond "involvement": Are elementary schools ready to be family-centered?
    • McWilliam, R., Maxwell, K., & Sloper, K. (1999). Beyond "involvement": Are elementary schools ready to be family-centered? School Psychology Review, 28, 378-394.
    • (1999) School Psychology Review , vol.28 , pp. 378-394
    • McWilliam, R.1    Maxwell, K.2    Sloper, K.3
  • 74
    • 27644456702 scopus 로고    scopus 로고
    • Family-school collaboration and positive behavior support
    • Minke, K. M., & Anderson, K. J. (2005). Family-school collaboration and positive behavior support. Journal of Positive Behavior Support, 7, 181-185.
    • (2005) Journal of Positive Behavior Support , vol.7 , pp. 181-185
    • Minke, K.M.1    Anderson, K.J.2
  • 75
    • 34248148045 scopus 로고    scopus 로고
    • Psychological functioning and coping among mothers of children with autism: A population-based study
    • DOI 10.1542/peds.2006-2819
    • Montes, G., & Halterman, J. S. (2007). Psychological functioning and coping among mothers of children with autism: A population-based study. Pediatrics, 119, e1040-1046. (Pubitemid 46715640)
    • (2007) Pediatrics , vol.119 , Issue.5
    • Montes, G.1    Halterman, J.S.2
  • 76
    • 36048962688 scopus 로고    scopus 로고
    • Management of children with autism spectrum disorders
    • The Council on Children with Disabilities
    • Myers, S. M., Johnson, C. P., & The Council on Children with Disabilities. (2007). Management of children with autism spectrum disorders. Pediatrics, 120, 1162-1182.
    • (2007) Pediatrics , vol.120 , pp. 1162-1182
    • Myers, S.M.1    Johnson, C.P.2
  • 77
    • 0003982059 scopus 로고
    • National Center for Family-Centered Care. Bethesda, MD: Association for the Care of Children's Health
    • National Center for Family-Centered Care. (1989). Family-centered care for children with special health care needs. Bethesda, MD: Association for the Care of Children's Health.
    • (1989) Family-centered Care for Children with Special Health Care Needs
  • 78
    • 19944413853 scopus 로고    scopus 로고
    • National Center for Health Statistics=SLAITS. Retrieved October 24, 2008
    • National Center for Health Statistics=SLAITS. (2001). National survey of children with special health care needs. Retrieved October 24, 2008, from http://cshcndata.org
    • (2001) National Survey of Children with Special Health Care Needs
  • 79
    • 0003651576 scopus 로고    scopus 로고
    • Educating children with autism
    • National Research Council. C. Lord & J. P. McGee (Eds.). Washington, DC: Division of Behavioral and Social Sciences and Education, National Academy Press
    • National Research Council. (2001). Educating children with autism. In C. Lord & J. P. McGee (Eds.), Committee on Educational Interventions for Children with Autism. Washington, DC: Division of Behavioral and Social Sciences and Education, National Academy Press.
    • (2001) Committee on Educational Interventions for Children with Autism
  • 80
    • 0029376957 scopus 로고
    • Pyramidal parent training by peers
    • Neef, N. A. (1995). Pyramidal parent training by peers. Journal of Applied Behavior Analysis, 28(3), 333-337.
    • (1995) Journal of Applied Behavior Analysis , vol.28 , Issue.3 , pp. 333-337
    • Neef, N.A.1
  • 82
    • 5644233808 scopus 로고    scopus 로고
    • The paradigm shift to true collaboration with families
    • Osher, T., & Osher, D. (2002). The paradigm shift to true collaboration with families. Journal of Child and Family Studies, 11, 47-60.
    • (2002) Journal of Child and Family Studies , vol.11 , pp. 47-60
    • Osher, T.1    Osher, D.2
  • 83
    • 33644638112 scopus 로고    scopus 로고
    • The Brookline Early Education Project: A 25-year follow-up study of a family-centered early health and development intervention
    • Palfrey, J., Hauser-Cramm, P., Bronson, M., Warfield, M., Sirin, S., & Chan, E. (2004). The Brookline Early Education Project: A 25-year follow-up study of a family-centered early health and development intervention. Pediatrics, 116, 114-152.
    • (2004) Pediatrics , vol.116 , pp. 114-152
    • Palfrey, J.1    Hauser-Cramm, P.2    Bronson, M.3    Warfield, M.4    Sirin, S.5    Chan, E.6
  • 84
    • 2342467416 scopus 로고    scopus 로고
    • The Pediatric Alliance for Coordinated Care: Evaluation of a medical home model
    • Palfrey, J. S., Sofis, L. A., Davidson, E. J., Liu, J., Freeman, L., & Ganz, M. L. (2004). The Pediatric Alliance for Coordinated Care: Evaluation of a medical home model. Pediatrics, 113(Suppl. 5), 1507-1516.
    • (2004) Pediatrics , vol.113 , Issue.SUPPL. 5 , pp. 1507-1516
    • Palfrey, J.S.1    Sofis, L.A.2    Davidson, E.J.3    Liu, J.4    Freeman, L.5    Ganz, M.L.6
  • 85
    • 0026228173 scopus 로고
    • Family resilience to the challenge of a child's disability
    • Patterson, J. (1991). Family resilience to the challenge of a child's disability. Pediatric Annals, 20, 491-499.
    • (1991) Pediatric Annals , vol.20 , pp. 491-499
    • Patterson, J.1
  • 86
    • 72449165196 scopus 로고    scopus 로고
    • Office of Special Health Care Needs, Rhode Island Department of Health, Rhode Island, Providence, RI
    • Pediatric Practice Enhancement Project. (2005). Office of Special Health Care Needs, Rhode Island Department of Health, Rhode Island, Providence, RI.
    • (2005) Pediatric Practice Enhancement Project
  • 87
    • 0031510005 scopus 로고    scopus 로고
    • Family-centered professional behavior: Frequency and importance to parents
    • Petr, C., & Allen, R. (1997). Family-centered professional behavior: Frequency and importance to parents. Journal of Emotional and Behavioral Disorders, 5, 196-205.
    • (1997) Journal of Emotional and Behavioral Disorders , vol.5 , pp. 196-205
    • Petr, C.1    Allen, R.2
  • 89
    • 34247370641 scopus 로고    scopus 로고
    • A comparative study of stress profiles in mothers of children with autism and those of children with Down's syndrome
    • Pisula, E. (2007). A comparative study of stress profiles in mothers of children with autism and those of children with Down's syndrome. Journal of Applied Research in Intellectual Disabilities, 20, 274-278.
    • (2007) Journal of Applied Research in Intellectual Disabilities , vol.20 , pp. 274-278
    • Pisula, E.1
  • 91
    • 0032833132 scopus 로고    scopus 로고
    • Family presence during invasive procedures in pediatric intensive care unit: A prospective study
    • Powers, K. S., & Rubenstein, J. S. (1999). Family presence during invasive procedures in pediatric intensive care unit: A prospective study. Archives of Pediatric & Adolescent Medicine, 153, 955-958.
    • (1999) Archives of Pediatric & Adolescent Medicine , vol.153 , pp. 955-958
    • Powers, K.S.1    Rubenstein, J.S.2
  • 92
    • 33646462950 scopus 로고    scopus 로고
    • Paradigm shifts in inpatient psychiatric care of children: Approaching child-centered and family centered care
    • Regan, K. M., Curtin, C., & Vorderer, L. (2006). Paradigm shifts in inpatient psychiatric care of children: approaching child-centered and family centered care. Journal of Child and Adolescent Psychiatric Nursing, 19, 29-40.
    • (2006) Journal of Child and Adolescent Psychiatric Nursing , vol.19 , pp. 29-40
    • Regan, K.M.1    Curtin, C.2    Vorderer, L.3
  • 93
    • 33745968602 scopus 로고    scopus 로고
    • Satisfaction with formal support and education for children with autism spectrum disorder: The voices of parents
    • Renty, J., & Roeyers, H. (2006). Satisfaction with formal support and education for children with autism spectrum disorder: The voices of parents. Child: Care, Health & Development, 32, 371-385.
    • (2006) Child: Care, Health & Development , vol.32 , pp. 371-385
    • Renty, J.1    Roeyers, H.2
  • 94
    • 0141539493 scopus 로고    scopus 로고
    • Sibling relationships when a child has autism: Marital stress and support coping
    • Rivers, J. W., & Stoneman, Z. (2003). Sibling relationships when a child has autism: marital stress and support coping. Journal of Autism and Developmental Disorders, 33(4), 383-394.
    • (2003) Journal of Autism and Developmental Disorders , vol.33 , Issue.4 , pp. 383-394
    • Rivers, J.W.1    Stoneman, Z.2
  • 95
    • 33745292357 scopus 로고    scopus 로고
    • Adjustment, sibling problems and coping strategies of brothers and sisters of children with autistic spectrum disorder
    • Ross, P., & Cuskelly, M. (2006). Adjustment, sibling problems and coping strategies of brothers and sisters of children with autistic spectrum disorder. Journal of Intellectual and Developmental Disability, 31(2), 77-86.
    • (2006) Journal of Intellectual and Developmental Disability , vol.31 , Issue.2 , pp. 77-86
    • Ross, P.1    Cuskelly, M.2
  • 96
    • 33747585228 scopus 로고    scopus 로고
    • Family perspectives on raising a child with autism
    • Schall, C. (2000). Family perspectives on raising a child with autism. Journal of Child and Family Studies, 9, 409-423.
    • (2000) Journal of Child and Family Studies , vol.9 , pp. 409-423
    • Schall, C.1
  • 98
    • 2942736901 scopus 로고    scopus 로고
    • How do i judge the "medical homeness" of my practice?
    • Schulz, E., Buchanan, G., & Ochoa, E. (2004). How do I judge the "medical homeness" of my practice? Clinical Pediatrics, 43, 431-435.
    • (2004) Clinical Pediatrics , vol.43 , pp. 431-435
    • Schulz, E.1    Buchanan, G.2    Ochoa, E.3
  • 103
    • 0035063356 scopus 로고    scopus 로고
    • The NAS EarlyBird Programme: Partnership with parents in early intervention
    • Shields, J. (2001). The NAS EarlyBird Programme: Partnership with parents in early intervention. Autism, 5, 49-56.
    • (2001) Autism , vol.5 , pp. 49-56
    • Shields, J.1
  • 104
    • 2342476597 scopus 로고    scopus 로고
    • History of the medical home concept
    • Sia, C., Tonniges, T., Osterhus, E., & Taba, S. (2004). History of the medical home concept. Pediatrics, 113, 1473-1478.
    • (2004) Pediatrics , vol.113 , pp. 1473-1478
    • Sia, C.1    Tonniges, T.2    Osterhus, E.3    Taba, S.4
  • 105
    • 33846172389 scopus 로고    scopus 로고
    • Assessing the diagnostic experiences of a small sample of parents of children with autism spectrum disorders
    • Siklos, S., & Kerns, K. (2005). Assessing the diagnostic experiences of a small sample of parents of children with autism spectrum disorders. Research in Developmental Disabilities, 28, 9-22.
    • (2005) Research in Developmental Disabilities , vol.28 , pp. 9-22
    • Siklos, S.1    Kerns, K.2
  • 106
    • 84993710070 scopus 로고    scopus 로고
    • Evidence-based practices and students with autism spectrum disorders
    • Simpson, R. (2005). Evidence-based practices and students with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 20(3), 140-149.
    • (2005) Focus on Autism and Other Developmental Disabilities , vol.20 , Issue.3 , pp. 140-149
    • Simpson, R.1
  • 107
    • 14644404232 scopus 로고    scopus 로고
    • Mothers of children with Down syndrome reflect on their postnatal support
    • DOI 10.1542/peds.2004-0928
    • Skotko, B. (2005). Mothers of children with Down syndrome reflect on their postnatal support. Pediatrics, 115, 64-77. (Pubitemid 43046283)
    • (2005) Pediatrics , vol.115 , Issue.1 , pp. 64-77
    • Skotko, B.1
  • 108
    • 27644521592 scopus 로고    scopus 로고
    • Linking positive behavior support to family quality-of-life outcomes
    • Smith-Bird, E., & Turnbull, A. (2005). Linking positive behavior support to family quality-of-life outcomes. Journal of Positive Behavior Interventions, 7, 174-180.
    • (2005) Journal of Positive Behavior Interventions , vol.7 , pp. 174-180
    • Smith-Bird, E.1    Turnbull, A.2
  • 109
    • 84993783298 scopus 로고    scopus 로고
    • Examining parents' involvement in and perceptions of special education services: An interview with families in a parent support group
    • Spann, S., Kohler, F., & Soenksen, D. (2003). Examining parents' involvement in and perceptions of special education services: An interview with families in a parent support group. Focus on Autism and Developmental Disabilities, 18, 228-237.
    • (2003) Focus on Autism and Developmental Disabilities , vol.18 , pp. 228-237
    • Spann, S.1    Kohler, F.2    Soenksen, D.3
  • 110
    • 0033467524 scopus 로고    scopus 로고
    • Services for young children with autism spectrum disorders: Voices of parents and providers
    • Sperry, L., Whaley, K., Shaw, E., & Brame, K. (1999). Services for young children with autism spectrum disorders: Voices of parents and providers. Infants and Young Children, 11, 17-33.
    • (1999) Infants and Young Children , vol.11 , pp. 17-33
    • Sperry, L.1    Whaley, K.2    Shaw, E.3    Brame, K.4
  • 112
    • 2342514238 scopus 로고    scopus 로고
    • Access to the medical home: Results of the national survey of children with special care needs
    • Strickland, B., McPherson, M., Weissman, G., van Dyck, P., Huang, Z., & Newacheck, P. (2004). Access to the medical home: Results of the national survey of children with special care needs. Pediatrics, 113, 1485-1492.
    • (2004) Pediatrics , vol.113 , pp. 1485-1492
    • Strickland, B.1    McPherson, M.2    Weissman, G.3    Van Dyck, P.4    Huang, Z.5    Newacheck, P.6
  • 113
    • 11444265082 scopus 로고    scopus 로고
    • Parents of children with autism and the five basic needs
    • Trigonaki, N. (2002). Parents of children with autism and the five basic needs. International Journal of Reality Therapy, 21(2), 13-14.
    • (2002) International Journal of Reality Therapy , vol.21 , Issue.2 , pp. 13-14
    • Trigonaki, N.1
  • 114
    • 0000391247 scopus 로고
    • Family-oriented program models, helpgiving practices, and parental control appraisals
    • Trivette, C. M., Dunst, C. J., Boyd, K., & Hamby, D. W. (1995). Family-oriented program models, helpgiving practices, and parental control appraisals. Exceptional Children, 62, 237-248.
    • (1995) Exceptional Children , vol.62 , pp. 237-248
    • Trivette, C.M.1    Dunst, C.J.2    Boyd, K.3    Hamby, D.W.4
  • 115
    • 72449145586 scopus 로고    scopus 로고
    • U.S. Public Law 105-117 (1999). Individuals with Disabilities Education Act: Part 300, Assistance to the States for the Education of Children with Disabilities [IDEA Part 300]
    • U.S. Public Law 105-117 (1999). Individuals with Disabilities Education Act: Part 300, Assistance to the States for the Education of Children with Disabilities [IDEA Part 300].
  • 117
    • 0033211021 scopus 로고    scopus 로고
    • Maternal perceptions of family-provider relationships and well-being in families of children with Down syndrome
    • Van Riper, M. (1999). Maternal perceptions of family-provider relationships and well-being in families of children with Down syndrome. Research in Nursing & Health, 22, 357-368.
    • (1999) Research in Nursing & Health , vol.22 , pp. 357-368
    • Van Riper, M.1
  • 118
    • 0038244118 scopus 로고    scopus 로고
    • Family-centered early intervention services: Factors contributing to increased parent involvement and participation
    • Wehman, T. (1998). Family-centered early intervention services: Factors contributing to increased parent involvement and participation. Focus on Autism & Other Developmental Disorders, 13, 80-87.
    • (1998) Focus on Autism & Other Developmental Disorders , vol.13 , pp. 80-87
    • Wehman, T.1
  • 120
    • 0036940371 scopus 로고    scopus 로고
    • Supporting families of preschool children with autism: What parents want and what helps
    • Whitaker, P. (2002). Supporting families of preschool children with autism: What parents want and what helps. Autism, 6, 411-426.
    • (2002) Autism , vol.6 , pp. 411-426
    • Whitaker, P.1
  • 123
    • 0029925647 scopus 로고    scopus 로고
    • Effects of parental presence during children's venipuncture
    • Wolfram, R. W., & Turner, E. D. (1996). Effects of parental presence during children's venipuncture. Academic Emergency Medicine, 3, 58-64.
    • (1996) Academic Emergency Medicine , vol.3 , pp. 58-64
    • Wolfram, R.W.1    Turner, E.D.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.